Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Suffolk County Celiac Vendor Fair


darlindeb25

Recommended Posts

darlindeb25 Collaborator

The vendor fair was today, April 29th. A good time was had by all. Every vendor came except for one and they all brought lots of goodies. Dr. Peter Green signed many of the books we were selling, written by him, "Celiac Disease, The Hidden Epidemic".

Two of you came up to me and said, "I found the lady with the long hair!" Tinkerbellswt, aka Stephanie and Mouth, aka Lynn both found me and introduced themselves. It was very nice meeting both of you, thank you for looking for me. :D

At least 1500 people attended the fair, not including many children that were not counted, by accident! From all the comments I heard, I think everyone was happy they attended.

Thank you for a great fair!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mandigirl1 Enthusiast

Do u know when the next fair will be in NY tri-state area????

I missed this one :(

joelcontrol Apprentice
Do u know when the next fair will be in NY tri-state area????

I missed this one :(

about two years unless we can convince the volunteers to do it next year.

It was a lot of work for them.

There is a walk coming up in Queens I wonder how many vendors will be there sounds interesting the walk.

lfij Newbie

i live in tx, but my parents are from LI and went to this today and said it was great. they met the celiac chicks who have that great site about NYC and have tons of good reccomendations for good gluten-free foods bc there were tons of samples, i'm so jealous!

darlindeb25 Collaborator

Joel--Did I meet you? I met so many people, my head is spinning. So many out here who have so many questions.

I really like Anne Lee, yet I was very disappointed when she told at least one lady that it doesn't matter if her make-up contains gluten as long as she doesn't suffer from DH. That just so isn't true for so many of us.

Dr. Green shook hands with many--everyone loves to hear him speak.

It was great, the entire day, even if it was very exhausting.

TinkerbellSwt Collaborator

Hi Deb! It was great to finally meet someone from here.. our celiac group went up there, 14 in all, and we all had a great time! sooo much food.. we went to dinner after the fair, but we still arent quite sure why??? LOL the food there was soo good, why go to dinner? ahhh, used it as an excuse to extend a field trip longer!

Dr. Greene was wonderful.. what a nice "normal" guy! It was truly an experience, first to just join my group, to feel so not alone, but after yesterday, WOW, am I ever not alone.

I really didnt realize how alone I had felt in my celiacs.. I really thought I was ok, now after yesterday, I almost wanted to cry.. I am so NOT alone.. even after being told it, and joining a group, but this fair really opened my eyes!

Thanks to you and all your members for a wonderful great time deb!!!

I am now going to the conference in VA too.. after yesterday I can only imagine how I will feel!!!

B)

jkmunchkin Rising Star

I was actually just coming on to send you (Deb) a thank you along with all the other volunteers of the Suffolk County Celiac group for putting on such an incredible event!!

I was completely stuffed by the time I left. LOL!!!

I wanted to come find you, but I was really hot and I couldn't believe how many people were already there when I got there at 11:00, that I just went on a mission of tasting, buying and getting out of there. Definately got lots of yummy treats and took note of products I want to buy in the future.

Also managed to go to the Peter Andrew's tent sale down the road after I left, and unexpectedly bought some furniture! Overall it was a fun, expensive day ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

I do belong to a great support group and we are all so happy that so many people had a great time. It was great to meet those of you I did meet--was a good day. Thank you.

  • 3 weeks later...
burdee Enthusiast
I do belong to a great support group and we are all so happy that so many people had a great time. It was great to meet those of you I did meet--was a good day. Thank you.

Hi Deb:

After organizing and coordinating our local celiac disease Awareness Walk and Gluten Free Food Fair for the past 2 years, I'm considering doing a big gluten free EAT event in Seattle next year. We have lots of restaurants with gluten-free menus or entrees. Seattle already has an annual 'Bite of Seattle'. Other local towns have a 'Taste of Edmonds or Taste of Tacoma. I'm considering a 'Gluten Free Gobble' (how's that for alliteration? LOL) for next year. Can you semd me by pm the names and contact information to the organizers for your Suffolk County Celiac Vendor Fair? I don't want to do a vendor fair per se, but want to talk to them about organizing a food only (no walk) event. Thanks.

BURDEE

happygirl Collaborator

Deb: This sounds like a wonderful event! You and the other volunteers must be so proud of its success.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Hmart replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    2. - trents replied to Hmart's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?

    3. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      10

      Help I’m cross contaminating myself,

    4. - DebJ14 replied to Jhona's topic in Introduce Yourself / Share Stuff
      30

      Does anyone here also have Afib

    5. - Hmart posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Is this celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,924
    • Most Online (within 30 mins)
      7,748

    Mckshane
    Newest Member
    Mckshane
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Hmart
      I was not taking any medications previous to this. I was a healthy 49 yo with some mild stomach discomfort. I noticed the onset of tinnitus earlier this year and I had Covid at the end of June. My first ‘flare-up’ with these symptoms was in August and I was eating gluten like normal. I had another flare-up in September and then got an upper endo at the end of September that showed possible celiac. My blood test came a week later. While I didn’t stop eating gluten before I had the blood test, I had cut back on food and gluten both. I had a flare-up with this symptoms after one week of gluten free but wasn’t being crazy careful. Then I had another flare-up this week. I think it might have been caused by Trader Joe’s baked tofu which I didn’t realize had wheat. But I don’t know if these flare-ups are caused by gluten or if there’s something else going on. I am food journaling and tracking all symptoms. I have lost 7 pounds in the last 10 days. 
    • trents
      Welcome to the forum, @Hmart! There are other medical conditions besides celiac disease that can cause villous atrophy as well as some medications and for some people, the dairy protein casein. So, your question is a valid one. Especially in view of the fact that your antibody testing was negative, though there are also some seronegative celiacs. So, do you get reactions every time you consume gluten? If you were to purposely consume a slice of bread would you be certain to develop the symptoms you describe?
    • klmgarland
      I have a lot to learn!  Thank you
    • DebJ14
      I only went on the multi vitamin AFTER a couple of year of high dose, targeted supplementation resolved most of my deficiencies.  I was on quite a cocktail of vitamins that was changed every 6 months as my deficiencies resolved.  Those that were determined to be genetic are still addressed with specific doses of those vitamins, minerals and amino acids. I have an update on my husband and his A Fib.  He ended up in the hospital in August 2025 when his A Fib would not convert.  He took the maximum dose of Flecainide allowed within a 24 hour period.  It was a nightmare experience!  They took him into the ER immediately.  They put in a line, drew blood, did an EKG and chest Xray all within minutes.  Never saw another human for 6 hours.  Never got any results, but obviously we could see he was still in A fib by watching the monitor.  They have the family sign up for text alerts at the ER desk.  So glad I did.  That is the only way we found out that he was being admitted.  About an hour after that text someone came to take him to his room on an observation floor.  We were there two hours before we saw another human being and believe it or not that was by zoom on the TV in the room.  It was admissions wanting to know his vaccine status and confirming his insurance, which we provided at the ER desk.  They said someone would be in and finally a nurse arrived.  He was told a hospitalist was in charge of his case.  Finally the NP for the hospitalist showed up and my husband literally blew his stack.  He got so angry and yelled at this poor woman, but it was exactly what he needed to convert himself to sinus rhythm while she was there.  They got an EKG machine and confirmed it.  She told him that they wanted to keep him overnight and would do an echo in the morning and they were concerned about a wound on his leg and wanted to do a doppler to make sure he did not have a DVT.  He agreed.  The echo showed everything fine, just as it was at his annual check up in June and there was no DVT.  A cardiologist finally showed up to discharge him and after reviewing his history said the A Fib was due to the Amoxicillan prescribed for his leg wound.  It both triggers A Fib and prevents the Flecainide from working.  His conversion coincided with the last dose of antibiotic getting out of his system.  So, make sure your PCP understands what antibiotics you can or cannot take if susceptible to A Fib.  This cardiologist (not his regular) wanted him on Metoprolol 25 mg and Pradaxa.  My husband told him that his cardiologist axed the idea of a beta blocker because his heart rate is already low.  Sure enough, it dropped to 42 on the Metoprolol and my husband felt horrible.  The pradaxa gave him a full body rash!  He went back to his cardiologist for follow up and his BP was fine and heart rate in the mid 50's.  He also axed the Pradaxa since my husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation.   Oh and I forgot to say the hospital bill was over $26,000.  Houston Methodist!  
    • Hmart
      The symptoms that led to my diagnosis were stomach pain, diarrhea, nausea, body/nerve tingling and burning and chills. It went away after about four days but led me to a gastro who did an upper endo and found I had marsh 3b. I did the blood test for celiac and it came back negative.  I have gone gluten free. In week 1 I had a flare-up that was similar to my original symptoms. I got more careful/serious. Now at the end of week 2 I had another flare-up. These symptoms seem to get more intense. My questions:  1. How do I know if I have celiac and not something else? 2. Are these symptoms what others experience from gluten?  When I have a flare-up it’s completely debilitating. Can’t sleep, can’t eat, can’t move. Body just shakes. I have lost 10 pounds since going gluten free in the last two weeks.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.