Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Casein Vs. Lactose?


GeoffCJ

Recommended Posts

GeoffCJ Enthusiast

"So, if he can eat cheese without any reaction, he is most likely lactose intolerant. But, if he has a reaction to cheese than he may be casein intolerant."

What's the easiest way to tell reliably which I'm reacting too?

Thanks,

Geoff


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



CarlaB Enthusiast

The easiest way would be to avoid dairy for a time, then drink milk and take a lactaid. If it still bothers you, it was the casein.

SunnyDyRain Enthusiast

I've heard that it sometimes takes a large dose of lactaid to help lactose intolerant people.

Is there blood work or something they can test for?

How come dairy is just starting to bother me now, 3 weeks after going gluten free?

missy'smom Collaborator

Been wondering about this for the longest time. So, for those who are casein intolerant, what happens if you drink Lactaid milk?

dlp252 Apprentice
Been wondering about this for the longest time. So, for those who are casein intolerant, what happens if you drink Lactaid milk?

Terrible sinus congestion leading to sinus infection develops over a few days to a week. :(

Sometimes gas, bloating, diarrhea or any one or a combination of those, happens within a few hours of ingesting.

CarlaB Enthusiast
Been wondering about this for the longest time. So, for those who are casein intolerant, what happens if you drink Lactaid milk?

It makes no difference that it has lactaid since it's the casein that bothers them.

Sunny, the dairy may have been bothering you all along but you only started noticing it as you started feeling a bit better. That would be my guess.

Enterolab tests for casein sensitivity. I tested positive, went off casein for six months and noticed no difference at all. I added it back and had no problems. I don't think any test is accurate all the time.

missy'smom Collaborator

My problem must be lactose then because in the past there was a big difference in my reaction to Lactaid vs. regular milk. On a day when my system is running smoothly, I should try a test again and drink a glass of Lactaid milk and see how I feel, now that I'm gluten-free (never drink it straight up). My mother was told when I was an infant that I had a milk allergy so she just didn't give it to me in a glass :huh: I got it in every other form!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SunnyDyRain Enthusiast
Sunny, the dairy may have been bothering you all along but you only started noticing it as you started feeling a bit better. That would be my guess.

I could see that if I didn't have 2 weeks of good BM's , and feeling good before the dairy started to effect me.

To me it seems once my body got used to not eat gluten, it said "OH CRAP, she's feeling good....now how are we going to screw with her?!"

ArtGirl Enthusiast
Enterolab tests for casein sensitivity. I tested positive, went off casein for six months and noticed no difference at all. I added it back and had no problems. I don't think any test is accurate all the time.

It may have been a false positive, but this I think is very rare. I tested positive to Casein through Enterolab, but also through other labs as well. They were dead-on.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

    2. - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

    3. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Alarming

    4. - Maggieinsc commented on Scott Adams's article in Winter 2026 Issue
      5

      Celiac Disease and Longevity: Can Treatment and Healing Improve Long-Term Survival?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748

    Yvonne Thomas
    Newest Member
    Yvonne Thomas
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
    • xxnonamexx
      Thanks for the info. I have been taking the ones you recommended but when I saw this I was curious if it was something else to add to the journey Thank  
    • Jane07
      I used to be able to get the Rivera yougut i havent been able to get it lately. I like getting it did say it did say gluten free. I just looking for a good yogurt that gluten free that i can add some fruit and nuts to any suggestion would be helpful  thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.