Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Very Interesting Article In The New Scott Free Issue


jerseygrl

Recommended Posts

jerseygrl Explorer

There is an article about a young woman who has just been dx'd with celiac disease. Now, instead of the flirtatious girl that she once was, she feels

extremely inhibited socially. She worries about getting glutened by kissing someone! In fact, she has been known to carry a new toothbrush

and toothpaste to any party in case she meets someone she's attracted to.. Now, there are a whole lot of "issues" I could comment

on regarding this, but for now, I am curious about this one aspect -- I dont have celiac, but my young DD does --

is it common to have to worry about playing "tonsil-hockey" with someone (of course, she's not dating till she's 30, heh heh!)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



snapple Apprentice

I don't know about everyone else, but I do worry about kissing those that eat gluten. I have been known to be so strict about others lips touching mine, that my husband started comlaining a lot (he wasn't getting his daily alottment of kisses :P ) . I have toned it down some, but yes, it is something I really am careful with. Usually if it has been a few hours or he has brushed his teeth, than we can kiss freely. other than that, we usually stop and think before kissing ensues. Spontaneous is no longer part of our vocab :lol:

Kate

jerseygrl Explorer

Wow, this concern just never occured to me. But then again, there was the girl who died 6 months or so ago by kissing her boyfriend

after he ate peanuts. She was allergic, and I guess he just didnt think about it...... so sad.

Nantzie Collaborator

Yep. My husband doesn't kiss me if he's had gluten. He has to brush his teeth first. Or if several hours have gone by, it seems to be okay.

Just like the rest of the celiac life, the boys who really care about her will be more than willing to do what they need to do to keep her safe and healthy. It will probably weed out a lot of jerks. ;)

My daughter also is going to have to deal with this when she dates. Although my husband assures me that we're moving to an island, patrolled by boyfriend-eating sharks. :lol: I'm pretty sure he's kidding. :unsure:

:D

Nancy

jerseygrl Explorer

I don't know how old your daughter is, Nan, but maybe by the time my 6yo learns how to jump the BF-eating sharks,

there will be a cure or a pill ofr celiac disease ;)

Nantzie Collaborator

LOL!

Nancy

blueeyedmanda Community Regular
Wow, this concern just never occured to me. But then again, there was the girl who died 6 months or so ago by kissing her boyfriend

after he ate peanuts. She was allergic, and I guess he just didnt think about it...... so sad.

That is sad, it probably was the last thing on his mind.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Kyalesyin Apprentice

We've had problems with kissing a few times here....

We know when I've had gluten and not gotten rid of it- my wife gets rash around her mouth. I find that eating cheese works well- seems to pick up any clinging gluten and get rid of it very effectively.

jerseygrl Explorer

Oddly, my DD never has stomach discomfort when glutened -- she just gets terribly aggitated and really "wigs out" neurologically.

That should make for an interesting dating scenerio!! :lol::blink:

mandasmom Rookie

My husband is really allergic to shell fish--I sent him to the hospital on our honeymoon bacuse I had eaten lobster and then kissed him!!!! We are very careful about kissing....lots of toothbrushes in our house!!!! But i have given up my seafood..just to be sure!!

sfm Apprentice
There is an article about a young woman who has just been dx'd with celiac disease. Now, instead of the flirtatious girl that she once was, she feels

extremely inhibited socially. She worries about getting glutened by kissing someone! In fact, she has been known to carry a new toothbrush

and toothpaste to any party in case she meets someone she's attracted to.. Now, there are a whole lot of "issues" I could comment

on regarding this, but for now, I am curious about this one aspect -- I dont have celiac, but my young DD does --

is it common to have to worry about playing "tonsil-hockey" with someone (of course, she's not dating till she's 30, heh heh!)

I don't always think of things like that - but my boyfriend will not kiss me, after eating gluten, until he has had a chance to rinse his mouth or chew gum for awhile. My children are the same way, and won't drink from my straw or my cup if they've been eating gluten. And it does make sense, if you think about it... I am extremely sensitive to very small amounts of gluten.

Sheryll

zansu Rookie

it does give all new meaning to the phrase "you make me sick!" :o

Karen B. Explorer

When I was first diagnosed, I didn't believe that it could be that sensitive. I was still thinking of it like an allergy (a little bit is okay). My hubby didn't tell me what he was doing but for a few weeks, he tracked which days he had raisin bran for breakfast and which days he had a gluten-free hot cereal. He also called me at work to see if I was having tummy troubles.

After a few weeks he showed me the results and we've been careful since then. Understand that we've been married for over 20 years and I'm not talking about a major lip lock. Our only morning contact was a quick peck on the way out the door and it was enough to make my tummy rumble all day. That was when I started changing my paradigm for Celiac from a dimmer switch (like my MSG allergy) to an on/off switch.

I would almost think that such sensitivity was psychosomatic except that I didn't know he was tracking my answers when I gave them. When he charted it, there wasn't a lot more to say but "You're right, Dear!"

Sneaky man, my husband.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      3

      New issue

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      My journey is it gluten or fiber?

    3. - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

    4. - trents replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Insomnia help

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,101
    • Most Online (within 30 mins)
      7,748

    Steve Olson
    Newest Member
    Steve Olson
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Jmartes71
      Nope its just me because they can eat wheat and when we use same pans I found out last year thanks to you guys and the autoimmune website im learning,we are not to share though clean, same with sponge. I just wish doctors understood. I am with new gi and new pcp but im falling apart because blood work is fabulous.Im so ANGERY.I have reached out to my local representative, in Stanislaus but its just weekly stuff.Im going to need to physical go down there.Any recommendations on what to say and do because this is absolutely ridiculous. If I didn't have my husband though we are really hurting with one income, I would absolutely be one of the homeless population. Thats alarming begging to be heard about a diagnosis that was given as an adult and dealing with this, medical needs to stick to patients regardless of switching insurance or doctor. 
    • knitty kitty
      If you haven't noticed a difference yet, bump up your Thiamax.  Add in another Thiamax with breakfast and lunch.  Increase the NeuroMag as well.  You can add in another Benfotiamine, too.   Thiamine is safe and nontoxic even in high doses.  Taking more is fine. I had to bump mine up several times when first starting.  It's a matter of finding what works for you.  Everyone is different.   Stick with it.  Some of the health improvements are very subtle and gradual.   Keep going!  You're doing great!
    • knitty kitty
      Hello, @hjayne19, About half of the people with Celiac disease react to the protein Casein in dairy the same as to gluten with the inflammation and antibodies and all.  Reacting to Casein is not the same as lactose intolerance nor a dairy allergy.  Damaged villi are incapable of producing lactAse, the enzyme that digests lactOse, the sugar in dairy.  When the villi grow back, the villi can resume making lactase again.  I react to casein. Keep in mind that part of the autoimmune response to gluten and casein is the release of histamine.  Histamine causes inflammation, but it is also powerful excitory neurotransmitter, causing heightened mental alertness.  Histamine release is what causes us to wake up in the morning.  Unfortunately, excessive histamine can cause insomnia.  Our bodies can make histamine, but foods we eat contain different amounts of histamine, too.  Our bodies can clear a certain amount of histamine, but if overwhelmed, chronic high histamine levels can keep inflammation going and cause other health problems.   I got very weary of playing Sherlock Holmes trying to deduce what I was reacting to this week, so I adopted the low histamine version of the Autoimmune Protocol diet, a Paleo diet designed by a doctor with Celiac, Dr. Sarah Ballantyne.  Her book, The Paleo Approach, has been most helpful.   The low histamine AIP diet cuts out lots of foods that are known to be irritating to the digestive tract.  After a few weeks, when my system was calmer and healing, I could try adding other foods to my diet.  It was much easier starting with safe foods, adding one thing at a time, and checking for reactions than trying to figure out what I was reacting to with so many variables.  I learned to recognize when I had consumed too much histamine from different combinations of foods.  Everyone is different and can tolerate different amounts of histamine in their food.  B Vitamins help us make enzymes that break down histamine.  Vitamin D helps regulate and calm the immune system.  Supplementing with Thiamine helps prevent mast cells from releasing histamine.  Keeping a food-mood-poo'd journal helps identify problematic foods.   I hope you will consider trying the AIP diet.
    • trents
      You may be cross reacting to the protein "casein" in dairy, which is structurally similar to gluten. People assume lactose intolerance is the only problem with dairy. It is not, at least for the celiac community.
    • hjayne19
      Hi @knitty kitty  Just revisiting this to get some help. I found after understanding the extent of my anxiety, my sleep got a little better. Flash forward to a few weeks later I have had a few bad sleeps in a row and I feel desperate for a good nights sleep. I understand worrying about it won’t help but one thing I had tied things too was dairy. Initially when I went gluten free I felt great for the first few weeks then started having some stomach pain. So thought maybe I was lactose intolerant. I started eating lactose free Greek yogurt and that did help take the cramping away I guess. Over the last few months I haven’t eaten it every single day and I went a few weeks without it. The last few nights I did have a small amount with breakfast and noticed that was the only new thing I’ve really added to my diet. I had seen a few other posts about this. Is it possible to still react to lactose free? Would this potentially be a dairy allergy? Or something else. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.