Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rock Info?


jen2be2

Recommended Posts

jen2be2 Explorer

Does anyone have the info. for the ROCK group for SO CAL? We just moved to CA.

Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Juliet Newbie

Whereabouts in So. Cal.? With which chapter would you be affiliated?

jen2be2 Explorer

We are in Riverside County~ Temecula\French Valley/Murrietta/ Winchester area.

Juliet Newbie

Sorry for the late response!

I'm not affiliated with your chapter. I can say that the ROCK event I went to in the Glendale area was not that helpful for me right now since my son is under 5. It seems to be tailored a little more to the 5 and over crowd since the events center around kids and what they'd like to do. At 3 1/2, my son is just a running monkey and not ready to sample food and talk about school or decorate cookies (though he'll eat them :) ) However, talking with one of the leaders of the ROCK group over here was very helpful. She gave lots of tips and where to shop and what worked for everyone in her family. Also gave the tip of making a large number of unfrosted cupcakes and freezing them for up to 2 months. I defrost one as they are needed for a birthday party or other celebration.

What I found more helpful at this time was going to the actual Celiac support groups right now since they had the most information on food, what's available, and latest research. At this age, that's what's most important is for me to know these things while he just starts to understand what has gluten and what doesn't. He doesn't feel that different and definitely doesn't feel deprived yet. :)

Here's the head of the ROCK chapter & Celiac chapter in your area Inland Empire

Kellee Shearer (951) 242-8448 - treshearer@aol.com

  • 2 weeks later...
Ruby Rose Newbie
We are in Riverside County~ Temecula\French Valley/Murrietta/ Winchester area.

Hi,

I have been living with celiac for 25 years and I have lived in Temecula for 20 years. Please feel free to contact me at RRKiesling@aol.com

Also, I'm a preschool teacher and I have thought about starting a ROCK group. Danna Korn sent me all the info about this, but I haven't acted upon it yet.

Mary ... aka Ruby Rose

:)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,210
    • Most Online (within 30 mins)
      7,748

    BJ OConnor
    Newest Member
    BJ OConnor
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.