Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Seven Things You Love About Celiac Disease


pedro

Recommended Posts

pedro Explorer

Hello everyone.

We need to vent the frustrations.

Seven things you love about Celiac.

1. I look at my kitchen in a different way now

2. I Like the cooking

3. I like to bake, but don


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



burdee Enthusiast

I appreciate your positive 'count your blessings' perspective. I hope more people will consider the benefits, not just the burdens, of having celiac disease. Here are my '7 things I love about celiac disease':

(1) Because I also have other celiac disease related food allergies (dairy, egg, soy and cane sugar), I'm FORCED to eat a healthy diet of mainly vegies, fruits, meats, nuts and gluten-free grains. No junk food for me! LOL

(2) I've been thin all my life. I'm the same weight I was during college 40 years ago and wear some of the same clothes. I've kept my weight within a 10 pound range for 40 years.

(3) People think I'm 20 years younger than I am chronologically at age 60.

(4) Food reactions give me OBVIOUS symptoms (intestinal cramps, bloating and gas) which motivate me to avoid sources of food allergies and intolerances. I don't have one of those 'silent' diseases which would allow me to mistreat my body until I'm seriously ill.

(5) Since diet is the only effective treatment for celiac disease, I divorced myself from the drug obsessed mainstream medical community and rely on the whole body preventative approach of naturopathic doctors.

(6) At age 60 I take NO PRESCRIPTIONS and only occasional OTC DRUGS (Tylenol for rare headaches).

(7) I control my health, rather then being at the mercy of some clueless doc for drug treatment.

I will add more as those occur to me. Thanks for this thought provoking topic.

BURDEE

Nantzie Collaborator

1) I've learned to cook. Same thing though - like to cook, hate to clean up.

2) I feel better than I ever remember feeling.

3) I don't feel like I'm in a constant battle with my body.

4) I'm not overly concerned that I'm going to die before my kids are grown up.

5) I know that my kids and grandkids will never have to go through years of misdiagnosis.

6) My life isn't driven by cravings anymore.

7) I don't feel guilty eating chocolate and other gluten-free goodies. I figure it's a trade off for what I can't have. Plus, without the cravings, I'm not eating or wanting as much of this as I used to.

Nancy

nikki8 Explorer

I know I can think of seven, but am short on time so I'm going to post the one that keeps me sane:

****Whatever has gluten in it really isn't that good for you anyway.****

I'm trying to lose a little weight. Everytime I face a tempting food that has gluten, I think "well, that isn't healthy anyway. Good thing I can't have it."

Nikki

confused Community Regular

1. I love that i now know what is wrong with me, no longer thinking I am dying from somthing that is not controllable.

2. I love that I have an excuse to eat more organic foods.

3. i love that we know now what is wrong with my Step-son.

4. i love that i can no longer eat fast food stuff that has way too many calories

5. i love that my family has grown closer since being diagnosed

6. i love that when you call manufadtors to see if stuff is gluten free, they will send u coupons lol

7. And lastly I love that i have the energy to keep up with my 5 very active kids.

paula

jerseyangel Proficient

1--I finally know the reason for all of my "stomach flu's" and panic attacks.

2--I eat a very "clean" diet now.

3--I don't wake up depressed anymore :)

4--I get to be a member of celiac.com.

5--I don't have to take any meds for it--so no side effects.

6--I no longer question my own sanity

7--For at last, being able to tell the people in my life who rolled their eyes at me, told me I was just trying to lose weight, it was all in my head, I was just "sensitive", got mad at me for missing functions, thought I was too picky, etc, etc, that this is REAL! (I felt so vindicated :lol: )

1-out-of-133 Newbie

1. I can fix it. The solution to a lot of my distress is simple- I don't eat gluten, I don't feel bad. I don't have to pay big bucks on medication for the rest of my life.

2. Coconut oil. I've learned so many great things about coconut oil from this web site, and use it all the time. I never would have tried it otherwise.

3. My joint pain is a lot better- I didn't even know I had joint pain. I thought I was just getting old!

4. More energy- ok sometimes it's only a 3 or 4 out of 10 but... it used to be a .25

5. Not so anxious/ depressed.

6. Helping others. Hey 1 out of 133. Since I started this last October, I have had so many discussions with other people about their chronic problems and/ or digestive issues. One of my friends I talked to about this said something about getting the fecal test done.

7. My diet is so much healthier. OK- the first month I sulked and ate Fritos and Pepsi, but now I'm into a pretty healthy basic diet.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Creative-Soul Newbie

Here are my first seven... :D

1. I finally know why I was feeling so incredibly crummy for most of my life...yea!

2. The only "prescription" that works is a change of diet - NO DRUGS!

3. I am much more aware of, and in tune with, my body

4. I no longer have those crazy annoying sugar / salt / diary cravings!!!

5. I know even more about diet / nutrition than I did before; and I thought I knew a lot!

6. Rediscovered coconut oil and my cultural - more healthy - way of eating; I've come full circle, so to speak...

7. Losing @ 20lbs of unhealthy weight, especially around the middle!

And...

I've met a great group of people here... you guys rock!

loco-ladi Contributor

keeping in mind I diagnosed myself (and so far appear to be right, not that I will gloat next time I see the Dr who said I am nuts)

#1 I feel so much better

#2 I feel better without the handfulllllllllssssssss of pills "he" wanted me to consume daily

#3 I have lost 5 yes people count each one of those 5 pounds in about 2 months time

#4 I am once more allowed to get creative when I have time to bake

#5 I ate a dang chocolate chip cookie (yes it was indeed gluten-free!) for the first time in 3 years and dang it all it tasted awesome!!!!!!!!!

#6 My husband is so very supportive and jumped for joy with me this morning at my bathroom scales!

#7 To heck with it next time I see the "Dr" (and I use that term loosely) on the street (cause I will be danged if I pay for another visit) I am gonna gloat to the tops of the trees!

pedro Explorer

You guys reminded me why I need to keep the gluten-free diet going.

Thank you for all you support.

I am here to stay!!!!!!!!!

Kaycee Collaborator

1 I have a better awareness of food and particularly additives. I make informed choices.

2 I have learnt how to put myself first for a change. But I don't forget the rest, I just have a bit more respect for myself.

3 I have learnt how to cook from scratch again. I knew how to do it once before, but the skill went out the door when I discovered frozen packaged food.

4 I am feeling healthier.

5 I don't ever have to eat another mcd's hamburger. I can now go to posher restuarants if I want, but I don't.

6 For me, being a coeliac does not entail having to take drugs. I thank my lucky stars that I have no other diseases to contend with.

7 Can I say I have become fanatically passionate about gluten free and everything about it. Finally I have found something that gets me going. It sounds strange and probably not really a good place to be, but I have never been passionate about anything else in my life before.

Cathy

happygirl Collaborator
4--I get to be a member of celiac.com.

Patti, you get the award for best celiac.com moderator for the above post :)

jerseyangel Proficient
Patti, you get the award for best celiac.com moderator for the above post :)

:lol: I'll take it! ;)

Judyin Philly Enthusiast

hi

I was just cking to see what Patti had posted re: Laura post

This is wonderful Patti.

I hope to get there someday too.

Can you copy and put in your d/s journal.

It is just the best.

I printed it out and will add to my journal when I remember the '''sunday debacal"'

I am so greatful to know I've some so far in almost 2 years even tho i still have a long way to go.

Alot of answers are clearned now.

OK LETS JUST SAY THE LAST SENTENCE 7 TIMES.

:lol:

pedro Explorer

7 Can I say I have become fanatically passionate about gluten free and everything about it. Finally I have found something that gets me going. It sounds strange and probably not really a good place to be, but I have never been passionate about anything else in my life before.

Cathy

Kaycee Collaborator

Pedro, you may have my number 7 on your fridge (it should be number 1), but thanks to you I have just realised what having coeliac has done for me. By addressing the problem and going gluten free it has given me a passion, and this passion is for my life. I have found life again, and I am enjoying it.

Thank you for this reality check.

Cathy

Karen B. Explorer

Do I have to stop at 7? In no particular order...

1. So few of the people I work around bake that they think I'm a genius because I can make a cake or bread -- much less one without wheat!

2. gluten-free baking satisfies my inner geek because experimenting with recipes is like a science experiment. Being able to surprise a gathering of other Celiacs with a treat like powder sugar donut holes make you feel really good!

3. I'm losing weight for the first time in my life! It never worked before, but since going gluten-free I'm able to lose weight.

4. I know what goes into my mouth (and body) now.

5. Finding the answer to the muscle cramps and potassium depletion my Mom has suffered from for years that her docs couldn't solve and helping my sister heal after neck surgery #4 so she won't have to have a #5.

6. Having my broken wrist heal so well (95% usage returned) that my doc was surprised. One of the people in our Celiac group was referred after his broken bone wouldn't heal. Fortunately, my wrist broke 3 years after my diagnosis!

7. Having a health issue that doesn't require pills or treatments, just eating right. The initial tentative diagnosis was bleeding ulcer or colon cancer. Celiac was good news!

8. Having my hubby love me so much that he charted the days of an unexplained reaction against his breakfast of a gluten-free cereal or raisin bran and convinced me that it was his morning "Goodbye" kiss that was giving me problems. (I didn't think it could be that sensitive) At his insistence, we now have a gluten-free kitchen.

9. Not having to drink a Vente (20 oz) at Starbucks in the morning and another one in the afternoon to be able to function at work.

10. Discovering Chebe bread, Tinkyada pasta and quinoa hot cereal.

Jo.R Contributor

1) I can now enjoy my children.

2) I have been forced to deal with carb addiction.

3) I am forced (thankfully so) to cook and creat healthier meals for my family.

4) I have a good doctor.

5) I had to learn what a message board was, liked it and the people on it.

6) I have become more aware of my body.

7) I have Celiac Disease A Hidden Epidemic as a bathroom reader and no longer need a bathroom reader.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    2. - knitty kitty replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

    3. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    4. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      7

      results from 13 day gluten challenge - does this mean I can't have celiac?

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      49

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,368
    • Most Online (within 30 mins)
      7,748

    Klairep
    Newest Member
    Klairep
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • knitty kitty
      @catnapt,  Wheat germ contains high amounts of lectins which are really hard to digest and can be irritating to the digestive tract.  They can stimulate IgG antibody production as your blood test shows.   Even beans have lectins.  You've simply eaten too many lectins and irritated your digestive tract.   You may want to allow your digestive tract to rest for a week, then start on gluten in "normal" food, not in concentrated vital wheat gluten. This explains it well: Lectins, agglutinins, and their roles in autoimmune reactivities https://pubmed.ncbi.nlm.nih.gov/25599185/
    • knitty kitty
      I take Now B-1 (100 mg) Thiamine Hydrochloride, and Amazing Formulas L-Tryptophan (1000 mg).   Both are gluten free and free of other allergens.  I've taken them for a long time and haven't had a problem with them. I take Vitamin A from BioTech called "A-25".  It's gluten and allergen free and made in the USA.  It's a powder form of Vitamin A.  I was having trouble digesting fats at one point, but found I tolerated the powder form much better and have stuck with it since.   Tryptophan and Vitamin A help heal the intestines as well as improves skin health.  I get Dermatitis Herpetiformis and eczema flairs when my stomach is upset.  So I'm healing the outside as well as the inside.   I take one 1000 mg Tryptophan before bedtime.   With the Thiamine HCl, take 100 mg to start.  If you don't notice anything, three hours later take another. You can keep increasing your dose in this manner until you do notice improvement.  Remember not to take it in the evening so it won't keep you too energized to sleep. When I first started Thiamine HCl, taking 500 mg to 1000 mg to start was recommended.  If you've been thiamine insufficient for a while, you do notice a big difference.  It's like the start of a NASCAR race: Zoom, Zoom, turn it up!   This scared or made some people uncomfortable, but it's just your body beginning to function properly, like putting new spark plugs in your engine.  I took 1000 mg all at once without food.  It kicked in beautifully, but I got a tummy ache, so take with food.  I added in Thiamine TTFD and Benfotiamine weeks later and felt like I was Formula One racing.  So cool.  You may feel worse for a couple days as your body adjusts to having sufficient thiamine.  Feels sort of like you haven't cranked your engine for a while and it backfires and sputters, but it will settle down and start purring soon enough.  Adjust your dose to what feels right for you, increasing your dose as long as you feel improvement.  You can reach a plateau, so stay there for several days, then try bumping it up again.  If no more improvements happen, you can stay at the plateau amount and experiment with increasing your Thiamine TTFD.  It's like being your own lab rat.  LoL Yes, take one Benfotiamine at breakfast and one at lunch.  Take the B Complex at breakfast. Take the TTFD at breakfast and lunch as well.  I like to take the vitamins at the beginning of meals and the NeuroMag at the end of meals.   You may want to add in some zinc.  I take Thorne Zinc 30 mg at breakfast at the beginning of the meal.   Are you getting sufficient Omega Threes?  Our brains are made up mostly of fat.  Flaxseed oil supplements, sunflower seed oil supplements (or eat the seeds themselves) can improve that.  Cooking with extra virgin olive oil, avocado oil, or coconut oil is also helpful.   @Wheatwacked likes phosphotidyl choline supplements for his Omega Threes.  He's also had dramatic health improvement by supplementing thiamine.  You're doing great!  Thank you for sharing your journey with us.  This path will smooth out.  Keep going!  
    • catnapt
      good luck! vital wheat gluten made me violently ill. I will touch the stuff ever again.  
    • catnapt
      I wouldn't consider this lucky. I can NOT tolerate the symptoms. And I googled it and I was not even getting 10 grams of gluten per day and I was extremely ill. They'd have to put me in the hospital. I'm not kidding.   I will have my first appt with a GI dr on March 4th   I will not eat gluten again - at least not on purpose   they are going to have to come up with a test that doesn't require it. 
    • xxnonamexx
      What Thiamine Hydrochloride brand do you take? Is it like the other vitamins I have added? What brand Tryptophan and amount do you take. Thanks
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.