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Biopsy?


jambo massive

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jambo massive Apprentice

I am waiting for a appoinment to have a Biopsy after being ill in hospital. even tho i had a couple when i was young and was postive to have celiac. Is it important to have one?? as i read in a topic that i could get help with food cost's?


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Guest j_mommy

It's a personal opinion to have one. The blood tests are really enough!!! I had positive blood tests and reguardless of what my biopsy says (May 15) I'm still going gluten free. If you do have one...insist that they take multiple samples b/c celiac can effect villi in one area and not another.

You can get a tax write off with this disease. But you have to spend a significant amount of money. On my income(I'm a single mom, one income family, I rent) I would have to spend $7,500. And it's the diffrence between the reg food and gluten free. So say reg bread is 2 a loaf and celiac is 5....you could deduct 3. But you'd have to meet teh minimum befor eyou could deduct anything. It helps if you own your own home and itemize. Sorry my mom's an account and we've discussed this!LOL I don't make enough or qualify for this deduction!

aikiducky Apprentice

If you were diagnosed by a biopsy with celiac as a child, you are celiac. The old diagnosis would still be valid, since celiac is a life long disease that doesn't go away.

There might be something to be said for doing a biopsy now to see how much damage there is maybe.

I'm very sorry that you have been sick. It's too bad no one knew to tell you that you should have been gluten free all this time. I hope you'll recover quickly, but don't get too worried if it takes a while. If you have been eating gluten for many years, it will take some time for your body to recover from that.

Pauliina

VydorScope Proficient

Strictly speaking you NEED food, shelter, and clothing. Beyond that everything a choice (with consequences of course!) . :)

But no, you do not need another biopsy. You already have a DX of celiac disease so there is nothing to be gained UNLESS they are looking for something else also.

happygirl Collaborator

If you were already positive for Celiac via biopsy, you have the gold standard of diagnosis. You are and have been a Celiac.

nikki-uk Enthusiast
I am waiting for a appoinment to have a Biopsy after being ill in hospital. even tho i had a couple when i was young and was postive to have celiac. Is it important to have one?? as i read in a topic that i could get help with food cost's?

It is true that in the UK you need biopsy proof to be eligable for prescription gluten-free foods BUT surely your old notes would show you had a positive biopsy as a kid?? Once a coeliac - always a coeliac. :)

jambo massive Apprentice
It is true that in the UK you need biopsy proof to be eligable for prescription gluten-free foods BUT surely your old notes would show you had a positive biopsy as a kid?? Once a coeliac - always a coeliac. :)

Yea that is true but i have moved away from my old town and since living in birmingham i can not find a GP yet im going through out patients in the local hospital. Hopefully next week i will be able to find a GP.


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ravenwoodglass Mentor
Yea that is true but i have moved away from my old town and since living in birmingham i can not find a GP yet im going through out patients in the local hospital. Hopefully next week i will be able to find a GP.

You should be able to access those records even after moving. Have you contacted your old doctors? If you are unable to for some reason, in the US we have a legal right to copies of all records but don't know if it is the same in UK, make sure you have your new GP contact and get the records. They should be able to get them if you can't.

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      I was tested back in 2017 and my TTG-IGA was mildly elevated (an 11 with reference range <4) but my EMA was negative and biopsy was negative. Fast forward to 2 weeks ago where I was like y'know what, I still have so many symptoms and I'm always so sick, I should repeat this, thinking it was not going to be positive.  I also found out through 23 and me that I do have the HLA-DQ2.5 gene so I thought it would be good to repeat given my ongoing symptoms. Well my blood work came back with a ttg-iga level of 152.6 with a reference range of <15 and my EMA was positive and EMA titer was 1:10 with reference range of <1:5. I guess I'm nervous that I'm going to do the biopsy and it's going to be negative again, especially since I also had an endoscopy in 2020, not to look for celiac but just as a regular 5 year thing I do because of all my GI issues, and they didn't see anything then either. I have no idea how long the EMA has been positive but I'm wondering if it's very recent, if the biopsy will show damage and if so, if they'll say well the biopsy is the gold standard so it's not celiac? I of course am doing all the things to convince myself that it isn't real. Do a lot of people go through this? I think because back in 2017 my ttg-iga was elevated but not a huge amount and my EMA was negative and my biopsy was negative, I keep thinking this time it's going to be different. But this time my ttg-iga is 152.6 with reference range <15, and my EMA was positive. BUT, my titer is only 1:10 and I keep reading how most people here had a ttg-iga in the hundreds or thousands, and the EMA titer was much higher. So now I am convinced that it was a false positive and when they do the biopsy it'll be negative.
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