Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Red Wine


annie-is-GF

Recommended Posts

annie-is-GF Newbie

I was diagnosed about 3-4 weeks ago and I have been gluten-free for that long. On Saturday night I had about 3 glasses of pure red wine throughout the evening. (Nothing was added to the wine, ie: no flavorings etc.) I have been having mild diarrhea, abdominal pain, fatigue and a general feeling of being unwell ever since. I know that there is no gluten in this kind of wine but I am feeling exactly like I have accidently eaten gluten. Has anyone experienced this or does anyone have idea why I am experiencing this?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



pedro Explorer

Hi

This happen to me about 2 weeks ago, and until now I do not know what it was. It will be very intresting to see what others have to say. It would be a shame to remove yet another thing.

Thanks for your question, the answers will help me too.

Have a great day.

Lisa Mentor

Red wine is safe for Celiacs although some here react to the sulfites in the wine.

burdee Enthusiast

Consider whether you might have sensitivities to egg or milk. Although red wines are gluten free, wine makers commonly use egg white to 'fine' or purify red wines and skim milk to 'fine' white wines. You can find some unrefined wines, but they are more expensive. Also alcohol exacerbates 'leaky gut' symptoms.

BURDEE

annie-is-GF Newbie

One more thing I forgot to mention in my original post: I have also been feeling like it is hard to get a full breath in; like I am short of breath, but without any wheezing whatsoever. Like, really easily out of breath when I walk across the room or get up from sitting. It doesn't feel like an allergy, I just feel really exhausted, like the exhaustion affects my breathing.

Anyone have any idea what that's all about?

ravenwoodglass Mentor

One more question that may seem silly but might solve the mystery. Were you on a date with your significant other? If so what were they eating and drinking and did you do any kissing? We can get glutened from kissing someone who is eating or drinking gluten. May not be the case for you but figured I should throw it in.

holdthegluten Rising Star
One more thing I forgot to mention in my original post: I have also been feeling like it is hard to get a full breath in; like I am short of breath, but without any wheezing whatsoever. Like, really easily out of breath when I walk across the room or get up from sitting. It doesn't feel like an allergy, I just feel really exhausted, like the exhaustion affects my breathing.

Anyone have any idea what that's all about?

About a week ago i drank 10-12 glasses of red wine at a wedding i dont remember being a part of. Since then i have been feeling like crap, and having trouble breathing. It feels like my intestine is swollen and keeping me from getting a good breath. I was vomitting the day after the wedding and i may have been glutened there. I think the trouble breathing is due to stomach/intestinal irritation, causing inflammation and making it hard to breath at times. As you heal, it will subside. Before i got diagnosed with celiac, i was having these same symptoms (trouble breathin,bloating,fatigue,etc), so i figure it just part of the many symptoms this disease manifests. Try not to worry about it. Youll be okay. Be patient,sometimes it takes time for these strange symptoms to subside.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



annie-is-GF Newbie

:) :)

Thanks so much! To be honest I am surprised someone had this happen to them as well... it seemed so random and unrelated to celiac so I wasn't convinced that it had anything to do with celiac. Last summer I had a lot of trouble breathing and even went to Emergency and they could find nothing wrong with me so they gave me a prescription for VALIUM. LOL.

I definitely didn't have 12 glasses of wine (wow!!) but it's still a relief to know that wine can cause problems if your gut is still healing. Thanks again for the advice.

annie-is-GF Newbie
One more question that may seem silly but might solve the mystery. Were you on a date with your significant other? If so what were they eating and drinking and did you do any kissing? We can get glutened from kissing someone who is eating or drinking gluten. May not be the case for you but figured I should throw it in.

HAHA, good question! Unfortunately I was NOT on a hot date... but that is good thinking, bringing up the possibility that it may have been something else DURING my red wine drinking that may have glutened me. I shall have to think about that. :D

Guest KG in FL
Hi

This happen to me about 2 weeks ago, and until now I do not know what it was. It will be very intresting to see what others have to say. It would be a shame to remove yet another thing.

Thanks for your question, the answers will help me too.

Have a great day.

I have found through much research in this subject (haha) that red wine causes the same reaction in me as gluten. I wish not as it spoils my fun! Red wine has health benefits so I still try it once in a while, but I have had to stick with a white wine. Which I faithfully do! I unfortunately feel, with my body, it's the sulfites or the alcohol, or something with the red is to blame. I will probably test this theory again soon. But mostly with white where I end up feeling OK. Unless it's more than 4 glasses of that, then back to the "glutening"! haha Sounds like this is no help but what I really feel is that alcohol mimics glutening in my body.

Lisa Mentor
I have found through much research in this subject (haha) that red wine causes the same reaction in me as gluten. I wish not as it spoils my fun! Red wine has health benefits so I still try it once in a while, but I have had to stick with a white wine. Which I faithfully do! I unfortunately feel, with my body, it's the sulfites or the alcohol, or something with the red is to blame. I will probably test this theory again soon. But mostly with white where I end up feeling OK. Unless it's more than 4 glasses of that, then back to the "glutening"! haha Sounds like this is no help but what I really feel is that alcohol mimics glutening in my body.

You have to do whatever works for you. But, if it makes you feel better, my husband with a combination of red wine and beef, will do his morning newspaper reading in the bathroom. And, he is non-Celiac. :rolleyes: And, he would be so proud that I mentioned this.

ravenwoodglass Mentor
HAHA, good question! Unfortunately I was NOT on a hot date... but that is good thinking, bringing up the possibility that it may have been something else DURING my red wine drinking that may have glutened me. I shall have to think about that. :D

Gluten reaction can also be a delayed reaction. As an intolerance it can take as much as 3 days between injestion and tummy upset. If you are new to the diet be sure you look over the days before you got ill, not just that one. It is important that you try to eat much naturally gluten free food for the first couple months as possible. It will help you heal faster and when you add processed stuff back in it is easier to tell if CC is getting you, which is a high risk for many mainstream items.

Guest KG in FL
Gluten reaction can also be a delayed reaction. As an intolerance it can take as much as 3 days between injestion and tummy upset. If you are new to the diet be sure you look over the days before you got ill, not just that one. It is important that you try to eat much naturally gluten free food for the first couple months as possible. It will help you heal faster and when you add processed stuff back in it is easier to tell if CC is getting you, which is a high risk for many mainstream items.

My reaction to gluten is always 3 days- 72 hours- without fail. I don't know why it works like clockwork like that, but it has for years. I know the gluten works differently for all. My 72 hour reaction helps me retrace my steps to see what might have glutened me. Now the red wine- usually 10-12 hours later?

hathor Contributor

Here is an article about a current rulemaking considering requiring winemakers to list allergens on their labels.

Open Original Shared Link

In addition to fining agents such as egg, casein or fish, wheat-based glues are sometimes used to seal wine barrels. Whether these things end up in the final products is controversial. From what I can tell, the industry says they don't show up. But then they say that there is no test for finding out if they are there or not.

If you have problems with a particular wine, you might want to avoid it. Some other wine might not bother you.

There are lists of vegan wines on the internet, if it is an animal-based fining agents that bothers you. When I have brought this issue up before, some have told me that they do sometimes react to these. All I know about the "wheat-based glue on the wine barrels" issue is that one sentence in the article.

crosstalk Newbie

When I first discovered my intolerance (doctors have been of no help) and after two weeks of been gluten free it seemed like I was reacting to everything, and I hard time sorting things out and still occasionally do.

I learned that I had more than one intolerance, and also some allergies. As you may know, IgA will involve an intolerance, while IgG will involve an allergy. I found page 11 of this guide to be helpful;

Open Original Shared Link

You may have a yeast intolerance, which would cause a similar reaction to a glutening. Because any IgA reaction will cause the same symptoms. Though I do not think I am a celiac (I do not have the primary HLA genes but I still am gluten intolerant and have all the same symptoms) I too had a major problem with the breathing/wheezing/fatique. The area where I made progress here was (half luckily) whacking everything out of my diet that I was reacting to and my sinusitus cleared up (mostly) by surprise, Whenever I "reacted" to something my sinusitus would come back in a major way followed by fatigue. I take a store brand Claritine (antihistimine) that is cornstarch free and that would help some when I had what seemed to be an IgG reaction. I have cut all grains out of my diet. I'm glad that I did because I do think that I'm corn intolerant, and am working with a modified paleolithic (cave man) diet.

Because of this "normal breathing" I was able to sleep with much less snoring and get a more restful sleep. But it is five months out from being gluten-free and I still struggle with fatigue. I increased (and do check with a doctor on this) my sodium intake. It seemed that vitamin C helped a little too (I could just be vitamin deficient). But when the vitamin C (I was taking magnesium supplements as well) started to cause (more) Diarrhea I discontinued the vitamin C. When I feel like I'm really dragging I occasionally (and I do mean occasionally) take a glass of warm water with 1/4 of teaspoon of salt.. I think that Open Original Shared Link was affecting me. I do not know if the food alergies caused it or the other way around. But if you read that link you will instantly know more than 90% of doctors in practice. Here's another link;

Open Original Shared Link

It is very important to not self diagnose. But I can't help but think of all the misdiagnosis that are happening in this area. These things are completely off the map in most doctor's offices. It's astounding really. The medical profession up to this point has let me down. I continue to search for answers.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,856
    • Most Online (within 30 mins)
      7,748

    Sonya Haskin
    Newest Member
    Sonya Haskin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jillian83
      He is. Which makes everything even more difficult. I’m not a believer in “staying for the kids” but I have nowhere to go and it’s not just me, it’s me plus my babies. We live in a beautiful place, lots of land in the country and me and the kids love the place we’ve called home for their entire lives. But Im seeing that he’ll never change, that my kids deserve a happy healthy Momma, and that staying in this as is will be the early death of me. Then I look at the scars covering my entire body…this disease and the chronic stress I’ve been enduring for years that tell me I’m no longer beautiful and no one will ever look at me with interest again. I try self care, try to give myself grace so I can just start loving myself enough to gain strength but the slightest sparkle in my eye and skip in my step attracts his wrath and it all comes crashing ten fold. Life is just absolutely railing me from every single direction leaving me wanting to wave that white flag bc I don’t feel like there’s much hope no matter what happens. 
    • trents
    • Jillian83
      Hi, I was recently diagnosed with Celiac and dermatitis herpetiformis after years of suffering without answers. I lost my mind. I lost my job. I lost so much time. I lost Me. Conventional doctors are opulent come near me and the one who did sat across the room, misdiagnosed me, pumped me full of steroids which collapsed my entire hip for 6 months. So without answers I began my holistic journey. Fast forward a couple of years and still struggling with a mysterious whole body itchy, crawling “skin hell”, perfect teeth now deteriorating, thick hair now thinning rapidly and no more than a day or 2 at most relief….An acquaintance opened up a functional medicine practice. Cash only, I found a way. Within a month tests clearly showing my off the charts gluten allergy/sensitivity as well as the depletion of vital nutrients due to leaky gut and intestinal damage. dermatitis herpetiformis was more than likely what I was experiencing with my skin. I was happy. I thought this is easy, eat healthy Whole Foods, follow the diet restrictions and I finally get to heal and feel confident and like myself again very soon! 😔 Supplements are very pricey but I got them and began my healing. Which leads to the other major issue: not working, stay at home Mom of young kids, entirely financially dependent on my man of 7 plus years. He’s never been supportive of anything I’ve ever done or been thru. He controls everything. I’m not given much money ever at a time and when he does leave money it’s only enough to possibly get gas. His excuse is that I’ll spend it on other things. So my “allowance” is inconsistent and has conditions. He withholds money from me as punishment for anything he wants. Since being diagnosed, he’s gained a new control tactic to use as punishment. He now is in control of when I get to eat. He asked for proof of my diagnosis and diet bc he said I made it up just to be able to eat expensive organic foods. Then after I sent him my file from my doctor he then said she wasn’t a real doctor. 😡. I go days upon days starving, sometimes breaking down and eating things I shouldn’t bc I’m so sick then I pay horribly while he gets annoyed and angry bc I’m not keeping up with all the duties I’m supposed to be doing. His abuse turns full on when I’m down and it’s in these desperate times when I need his support and care the most that I’m punished with silence, being starved, ignored, belittled. He will create more of a mess just bc I’m unable to get up and clean so that when I am better, I’m so overwhelmed with chores to catch up that the stress causes me to go right back into a flare from hell and the cycle repeats. I’m punished for being sick. I’m belittled for starving and asking for healthy clean water. I’m purposely left out of his life. He won’t even tell me he’s going to the grocery or to get dinner bc he doesn’t want me to ask him for anything. I have no one. I have nothing. Im not better. My supplements ran out and I desperately need Vitamin D3 and a methylated B complex at the very minimal just to function….he stares at me blankly…no, a slight smirk, no words. He’s happiest when im miserable and I am miserable.  this is so long and im condensing as much as I can but this situation is so complicated and disgusting. And it’s currently my life. The “IT” girl, the healthy, beautiful, perfect skin, perfect teeth, thick and curly locks for days, creative and talented IT girl….now I won’t even leave this house bc Im ashamed of what this has dont to my body, my skin. Im disgusted. The stress is keeping me from healing and I think he knows that and that’s why he continues to keep me in that state. He doesn’t want me confident or successful. He doesn’t want me healed and healthy bc then how would he put the blame of all his problems on me? This journey has been hell and I’ve been in Hell before. I’ve been killed by an ex, I’ve been raped, robbed, held hostage, abused beyond nightmares but the cruelty I’ve experienced from him bc of this disease is the coldest I’ve ever experienced. I’ve wanted to give up. Starving and in tears, desperate…I found a local food pantry in our small town so I reached out just saying I had Celiac and was on hard times. This woman is blessing me daily with prepared gluten free meals, donations, educational info, people who know this disease and how they manage life and the blessings just keep coming. But it’s overwhelming and I feel like I don’t deserve it at all. He just glared and I know he’s going to sabotage it somehow. I don’t even know what to do anymore. I’m so broken and just want peace and healing. 
    • cristiana
      @Colleen H   I am just curious,  when you were tested for coeliac disease, did the doctors find out if you had any deficiencies? Sometimes muscle pain can be caused by certain deficiencies, for example, magnesium, vitamin D, calcium, and potassium.   Might be worth looking into having some more tests.  Pins and needles can be neuropathy, again caused by deficiencies, such as iron and B12,  which can be reversed if these deficiencies are addressed. In the UK where I live we are usually only tested for iron, B12 and vitamin D deficiencies at diagnosis.   I was very iron anemic and supplementation made a big difference.  B12 was low normal, but in other countries the UK's low normal would be considered a deficiency.  My vitamin D was low normal, and I've been supplementing ever since (when I remember to take it!) My pins and needles definitely started to improve when my known deficiencies were addressed.  My nutritionist also gave me a broad spectrum supplement which really helped, because I suspect I wasn't just deficient in what I mention above but in many other vitamins and minerals.  But a word of warning, don't take iron unless blood tests reveal you actually need it, and if you are taking it your levels must be regularly monitored because too much can make you ill.  (And if you are currently taking iron, that might actually be making your stomach sore - it did mine, so my GP changed my iron supplementation to a gentler form, ferrous gluconate). Lastly, have you been trying to take anything to lessen the pain in your gut?  I get a sore stomach periodically, usually when I've had too much rich food, or when I have had to take an aspirin or certain antibiotics, or after glutening.  When this happens, I take for just a few days a small daily dose of OTC omeprazole.  I also follow a reflux or gastritis diet. There are lots online but the common denominators to these diets is you need to cut out caffeine, alcohol, rich, spicy, acidic food etc and eat small regularly spaced meals.   When I get a sore stomach, I also find it helpful to drink lots of water.  I also find hot water with a few slices of ginger very soothing to sip, or camomile tea.  A wedge pillow at night is good for reflux. Also,  best not to eat a meal 2-3 hours before going to bed. If the stomach pain is getting worse, though, it would be wise to see the doctor again. I hope some of this helps. Cristiana    
    • Me,Sue
      I was diagnosed with coeliac disease a couple of years ago [ish]. I love my food and a variety of food, so it's been hard, as it is with everyone. I try and ensure everything I eat doesn't contain gluten, but occasionally I think something must have got through that has gluten in. Mainly I know because I have to dash to the loo, but recently I have noticed that I feel nauseous after possibly being glutened. I think the thing that I have got better at is knowing what to do when I feel wiped out after a gluten 'episode'. I drink loads of water, and have just started drinking peppermint tea. I also have rehydration powders to drink. I don't feel like eating much, but eventually feel like I need to eat. Gluten free flapjacks, or gluten free cereal, or a small gluten free kids meal are my go to. I am retired, so luckily I can rest, sometimes even going to bed when nothing else works. So I feel that I am getting better at knowing how to try and get back on track. I am also trying to stick to a simpler menu and eat mostly at home so that I can be more confident about what I am eating. THANKS TO THOSE WHO REPLIED ABOUT THE NAUSEA .
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.