Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Finding It Really Difficult To Gain Weight


Jemimabella

Recommended Posts

Jemimabella Newbie

Hi Everyone,

This is my first ever post on this forum. I am from the UK and I have been diagnosed as a coeliac for nearly seven years. My bloodwork is generally pretty good, and most of the time I feel fine in myself. However, I am disappointed that I have not gained much weight. To be honest I don't have the best appetite in the world and I soon feel full up so don't eat big meals. I am also very cautious about making any mistakes with my diet because I cannot face being so sick ever again.

I would love some inspiration from other coeliacs, like maybe if anything has helped you to put on weight.

Thank you

:rolleyes:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Generic Apprentice

It took me years to put on a decent amount of weight. As your stomach heals it will start to absorb nutrients better. You have to remember it took along time to get as sick as you were. So it will take some time to reverse the damage.

heathen Apprentice

i have been gluten-free for over a year, eat like a horse, and still haven't gained any wait. but i'm not LOSING anymore, and that's what's most important to me right now. i figure the weight gain will come as i get older. make sure you eat, though--and a healthy diet. i know it's easy to splurge on the unhealthy foods that i am still able to eat. like gluten-free oreos. so much sugar...

Susanwisely Newbie

Hi there. Maybe you should ask to see a dietician if you dont have one already? Your Dietician will see if you are getting enough calories. I am 23 years old and only a very scary 84lbs in weight so I know what you are going through.

Ask for a supplement drink called Fortisip. I have to drink 3 per day and they compensate for a meal, plus I eat as nomal but have these extra meal/drinks. Theyre worth trying. Ive been on those for a month and gained 8lbs.

Also try increasing your calories to 2500 a day instead of your RDA of 2000 calories. Believe me, im also trying everything there is to try and find this is my only option....

If you are losing weight that is something you need to see your Dr about.

Hope this helps!

alamaz Collaborator

I lost almosst 15 lbs. when I was first diagnosed and even then I didn't need to lose any weight. I still haven't gained anything back but I think it's a combination of no more or atleast very little sugar and carbs so I'm not bloated anymore. I eat through out the day. I eat an apple with nut butter and a turkey sausage patty for breakfast, a snack at 10am, lunch at 1230, snack at 3/3pm, dinner at 6 and sometimes a snack before bed. most of the time it's a small meal that includes atleast a fruit or veg. and for sure protein. don't worry about eating low fat foods right now and concentrate on the healthy fats (coconut, avocado, artichoke etc.) and protein. I also like the idea of a fortified drink. Not sure what they have accross the ocean but one of those a day in addition to increasing your caloric intake should help.

CtheCeliac Rookie

Welcome! This is my first time posting as well! :rolleyes: I must say that I gained 10 pounds the first six weeks, but have plateaued. I'm almost at the six month mark and am becoming increasingly frustrated that I have not gained a few more pounds. I recorded my caloric intake the first six weeks, and ate around the clock. I think it's when we start to stress and have almost a fear of eating that it can also become difficult to have a healthy appetite. I have a family member who makes the best gluten-free cake. :P It's good for us to have a healthy fear of not wanting to be sick again. At the same time, when we feel extremely limited by our diets or stressed that we may not eat as much or a well-rounded diet. Now that the weather is warming up, I've enjoyed making shakes in the blender with fruit and organic gluten-free yogurt.

My relative who was wasting away as a Celiac gained over 40 pounds in one year. Trust me, the weight was needed. So now, I need to break my 10-pound mark. I'll take ideas, too. :unsure:

Buck22 Rookie

>>organic gluten-free yogurt

Sounds good - what brand do you buy?

Thanks,

Richard

Welcome! This is my first time posting as well! :rolleyes: I must say that I gained 10 pounds the first six weeks, but have plateaued. I'm almost at the six month mark and am becoming increasingly frustrated that I have not gained a few more pounds. I recorded my caloric intake the first six weeks, and ate around the clock. I think it's when we start to stress and have almost a fear of eating that it can also become difficult to have a healthy appetite. I have a family member who makes the best gluten-free cake. :P It's good for us to have a healthy fear of not wanting to be sick again. At the same time, when we feel extremely limited by our diets or stressed that we may not eat as much or a well-rounded diet. Now that the weather is warming up, I've enjoyed making shakes in the blender with fruit and organic gluten-free yogurt.

My relative who was wasting away as a Celiac gained over 40 pounds in one year. Trust me, the weight was needed. So now, I need to break my 10-pound mark. I'll take ideas, too. :unsure:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748

    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.