Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Around Albany Ny?

bremac

Recommended Posts

bremac Apprentice
bremac
Posted

Anyone live in the Albany area? I have not met another celiac here and sometime I feel so alone.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


thecookingnerd607 Rookie
thecookingnerd607
Posted
Anyone live in the Albany area? I have not met another celiac here and sometime I feel so alone.

Im in binghamton NY. Close enough.

blueeyedmanda Community Regular
blueeyedmanda
Posted

I am in PA, but even though we are on close location wise, we are always local on here. Most of my close friends on this board are in other states. No matter the distance, their information has always helped.

Do you have any stores in your area to get gluten-free foods?

is there a local support group?

Welcome to our board!!!

blueeyedmanda Community Regular
blueeyedmanda
Posted

duplicate post, kitty stepped on my keyboard...Lucky's first post :)

lmvrbaby Newbie
lmvrbaby
Posted

HI, I am from Waterloo NY. The west side of Syracuse, south east from Rochester. Like I read in the post before we are all local on here. Glad to meet you. I have run into a few people, no names exchanged only shopping in the Wegmans store that has Celiac. NIce to know someone else in the area. I have talked to the manager of the department in the gracery store and she says there are 9 or 10 families that shop for the gluten free foods in this store alone, so I know they are out there but have not met them personally. Maybe someday. Hope to chat more frequently. :D

blueeyedmanda Community Regular
blueeyedmanda
Posted

I love that store!! Our store is not open yet so I will drive to the next closest one.

jerseyangel Proficient
jerseyangel
Posted

Hi :)

I live in New Jersey, but my husband and I are both from Syracuse. Our families are all still up there.

I shopped at Wegmans years ago there, and now, finally we have one here. Great store!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


maferfay Newbie
maferfay
Posted
Anyone live in the Albany area? I have not met another celiac here and sometime I feel so alone.

Hi I live in the Albany, Area, if I can be of any help, please don't hesitate to contact me.

eleep Enthusiast
eleep
Posted

I live in Florida now, but I'm originally from Niskayuna and I've lived in both Albany and Troy -- I'm actually thinking I might move back up there within a year or so!

NY547 Newbie
NY547
Posted

Hannaford has a good selection of gluten-free foods as does healthway on route 9. We are also in the Albany area, and like Erica, my daughter had inconclusice blood tests, then more recently the screen came back all negative. Her enterolab results were positive (low numbers, but positive). She has not had an endoscopy yet. I am still deciding whether or not to have it done.

The doctors have rules out everything with their blood tests including celiac, lyme, mono and a few others. She responded well to a gluten-free diet in the past, which is why I am still considering the endoscopy. Do many people have a postitve endoscopy after negative blood work? I thought the tests were pretty accurate these days.

Bremac, you are definately not alone. At a dinner last year, the man sitting beside me was celiac. What are the odds? There are 3 people in my immediate neighborhood that I know have celiac. That is not counting my daughter who is not a confirmed celiac. Yes, there are many people in this area who are coping with celiac disease! You are definately not alone!

  • 4 months later...
kristineb Newbie
kristineb
Posted

I live in Guilderland and have only been a Celiac since June of '07. I found that Hannaford in Latham Fams is by far the best place for me to buy a lot of Gluten Free items, but my mother has been to Job Lots in Schenectady for the bigger bulk items like gluten free flour and things to bake with. She was a chef and now makes me tons of gluten free meals and muffins. I feel extremely grateful for that because it's really difficult to find any sort of quick on the go things to eat, so I freeze them and then stick them in the microwave to thaw. It's a huge adjustment but since she's been searching for more products and making them it's made things a bit easier.

hineini Enthusiast
hineini
Posted

I live in New Paltz and go up to Albany on a fairly regular basis.

I have just started a gluten-free outings / social group for the Hudson Valley - You can see more info in the Support Groups folder on this forum. The first meeting is in New Paltz (1 hr south of Albany) but future meetings will be in varying locations throughout the Hudson Valley. Maybe we'll make a field trip up to that gluten-free cafe and bakery (Sherry Lynn's) in Brunswick. Sign up for the group if you want to be updated about future events.

And if I can be of any assistance, let me know. I know of a few resources, including a gluten-free blog based in Albany.

EBsMom Apprentice
EBsMom
Posted
Anyone live in the Albany area? I have not met another celiac here and sometime I feel so alone.

Hi! We live in Columbia County, southeast of Albany. We're in Albany at least 3 or 4 times a week for my kids extracurricular activities. I'm gluten-free, as well as both of my children (ages 10 and 12.) I do a lot of my shopping at Hannaford's, but have also been visiting the co-op in Albany (Honest Weight) every week or so. I think that there are quite a few celiacs in the area....at least, the gluten-free quinoa bread flies out of the co-op so quickly that there *have* to be other celiacs around, lol!

Rho

MammaW Newbie
MammaW
Posted

Southern Vermont about an hour and a half from Albany....(Not me...at least I don't think so...my almost 1 year old)

  • 4 weeks later...
mouth Enthusiast
mouth
Posted
Anyone live in the Albany area? I have not met another celiac here and sometime I feel so alone.

hI i AM NOT Celiac, but my daughter is.. Sorry not close enough.. Long Island,, NY here.. good luck..

lynn

  • 2 weeks later...
missmelissa21 Rookie
missmelissa21
Posted

Albany area here. Not diagnosed celiac as of right now, but I have a GI appt. on December 17 where maybe I can figure something out.

Do all you Albany people go to Albany GI for gastroenterologists?

I'm seeing Dr. Ben, I believe.

I noticed a small gluten free section in the natural foods section of price chopper in slingerlands. Not much, but i don't know how much would be in a good size section.

mamaw Community Regular
mamaw
Posted

Kristeneb

I see where you said your Mother was a chef & she makes you alot of gluten-free foods. You are so lucky.... perhaps she or yourself could share some of her gluten-free goodies recipes for the rest of us. It seems we all are always looking for something new......

thanks

mamaw

  • 2 weeks later...
rysmom Rookie
rysmom
Posted

Hi, I am in Saratoga, NY. My son is a celiac and has a dairy allergy. I have been questioning whether I would benefit from a gluten free diet myself as I have terrible migraines.

I would be interested in meeting anyone to discuss gluten-free issues. We recently moved here and are still looking for a doctor I can trust. If anyone has any recommendations???

mouth Enthusiast
mouth
Posted
Hi, I am in Saratoga, NY. My son is a celiac and has a dairy allergy. I have been questioning whether I would benefit from a gluten free diet myself as I have terrible migraines.

I would be interested in meeting anyone to discuss gluten-free issues. We recently moved here and are still looking for a doctor I can trust. If anyone has any recommendations???

Oh Sorry I live down on long Island and use Schneiders Childrens Hospital. I know that they have satellite offices, I just am not sure where. sorry i could not be of more help.

lynn

  • 1 month later...
kristineb Newbie
kristineb
Posted
Kristeneb

I see where you said your Mother was a chef & she makes you alot of gluten-free foods. You are so lucky.... perhaps she or yourself could share some of her gluten-free goodies recipes for the rest of us. It seems we all are always looking for something new......

thanks

mamaw

kristineb Newbie
kristineb
Posted

My mom can pretty much change any recipe into gluten free. She makes perogies, banana nut muffins, corn muffins, stuffed shells, etc... If there are specific things you like let me know and I can have her modify the recipe the best way she can... The only thing she has to try and work on are bagels, they aren't to easy to keep them soft so she has had som problems with those but she's working on it.

kristineb Newbie
kristineb
Posted
Hannaford has a good selection of gluten-free foods as does healthway on route 9. We are also in the Albany area, and like Erica, my daughter had inconclusice blood tests, then more recently the screen came back all negative. Her enterolab results were positive (low numbers, but positive). She has not had an endoscopy yet. I am still deciding whether or not to have it done.

The doctors have rules out everything with their blood tests including celiac, lyme, mono and a few others. She responded well to a gluten-free diet in the past, which is why I am still considering the endoscopy. Do many people have a postitve endoscopy after negative blood work? I thought the tests were pretty accurate these days.

Bremac, you are definately not alone. At a dinner last year, the man sitting beside me was celiac. What are the odds? There are 3 people in my immediate neighborhood that I know have celiac. That is not counting my daughter who is not a confirmed celiac. Yes, there are many people in this area who are coping with celiac disease! You are definately not alone!

I had a endoscopy done three years before my diagnosis and it was positive but my blood test came back negative. Three years after my endoscopy I started having tired symtoms and not feeling well. It took a couple of months but the celiac test came back positive.

  • 2 weeks later...
edgeyveggie Newbie
edgeyveggie
Posted

Rochester/Syracuse here

blueeyedmanda Community Regular
blueeyedmanda
Posted
Rochester/Syracuse here

Well you have Wegmans which is celiac heaven!!!!

flourgirl Apprentice
flourgirl
Posted

Check out support groups online for the area. I'm pretty sure there are 2 or 3. I've looked because my family is in the Lake George area, and that was the closest I could find anything. My sister has had to take my neice to Albany for some of the testing. Her doctors are really messing around. 2 Positive blood tests. and they keep saying that they doubt she has Celiac, and they've been delaying a biopsy. What does it take? Meanwhile she's deathly ill, pale and growing tinier by the day.

Anyway.....I know there are a number of people not so far from you. After my diagnosis, my family members keep "running into" Celiace everywhere, and until last Nov. had never heard of it. We're out there.....just not wearing any banners and flags!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,902
    • Most Online (within 30 mins)
      7,748
    Patty6133
    Newest Member
    Patty6133
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • trents
      New (possible) celiac diagnosis

      By trents · Posted

      Welcome to the forum, @Judy M! Yes, he definitely needs to continue eating gluten until the day of the endoscopy. Not sure why the GI doc advised otherwise but it was a bum steer.  Celiac disease has a genetic component but also an "epigenetic" component. Let me explain. There are two main genes that have been identified as providing the "potential" to develop "active" celiac disease. We know them as HLA-DQ 2.5 (aka, HLA-DQ 2) and HLA-DQ8. Without one or both of these genes it is highly unlikely that a person will develop celiac disease at some point in their life. About 40% of the general population carry one or both of these two genes but only about 1% of the population develops active celiac disease. Thus, possessing the genetic potential for celiac disease is far less than deterministic. Most who have the potential never develop the disease. In order for the potential to develop celiac disease to turn into active celiac disease, some triggering stress event or events must "turn on" the latent genes. This triggering stress event can be a viral infection, some other medical event, or even prolonged psychological/emotional trauma. This part of the equation is difficult to quantify but this is the epigenetic dimension of the disease. Epigenetics has to do with the influence that environmental factors and things not coded into the DNA itself have to do in "turning on" susceptible genes. And this is why celiac disease can develop at any stage of life. Celiac disease is an autoimmune condition (not a food allergy) that causes inflammation in the lining of the small bowel. The ingestion of gluten causes the body to attack the cells of this lining which, over time, damages and destroys them, impairing the body's ability to absorb nutrients since this is the part of the intestinal track responsible for nutrient absorption and also causing numerous other food sensitivities such as dairy/lactose intolerance. There is another gluten-related disorder known as NCGS (Non Celiac Gluten Sensitivity or just, "gluten sensitivity") that is not autoimmune in nature and which does not damage the small bowel lining. However, NCGS shares many of the same symptoms with celiac disease such as gas, bloating, and diarrhea. It is also much more common than celiac disease. There is no test for NCGS so, because they share common symptoms, celiac disease must first be ruled out through formal testing for celiac disease. This is where your husband is right now. It should also be said that some experts believe NCGS can transition into celiac disease. I hope this helps.
    • Judy M
      New (possible) celiac diagnosis

      By Judy M · Posted

      My husband has had lactose intolerance for his entire life (he's 68 yo).  So, he's used to gastro issues. But for the past year he's been experiencing bouts of diarrhea that last for hours.  He finally went to his gastroenterologist ... several blood tests ruled out other maladies, but his celiac results are suspect.  He is scheduled for an endoscopy and colonoscopy in 2 weeks.  He was told to eat "gluten free" until the tests!!!  I, and he know nothing about this "diet" much less how to navigate his in daily life!! The more I read, the more my head is spinning.  So I guess I have 2 questions.  First, I read on this website that prior to testing, eat gluten so as not to compromise the testing!  Is that true? His primary care doctor told him to eat gluten free prior to testing!  I'm so confused.  Second, I read that celiac disease is genetic or caused by other ways such as surgery.  No family history but Gall bladder removal 7 years ago, maybe?  But how in God's name does something like this crop up and now is so awful he can't go a day without worrying.  He still works in Manhattan and considers himself lucky if he gets there without incident!  Advice from those who know would be appreciated!!!!!!!!!!!!
    • Scott Adams
      Patiently Waiting to See Results

      By Scott Adams · Posted

      You've done an excellent job of meticulously tracking the rash's unpredictable behavior, from its symmetrical spread and stubborn scabbing to the potential triggers you've identified, like the asthma medication and dietary changes. It's particularly telling that the rash seems to flare with wheat consumption, even though your initial blood test was negative—as you've noted, being off wheat before a test can sometimes lead to a false negative, and your description of the other symptoms—joint pain, brain fog, stomach issues—is very compelling. The symmetry of the rash is a crucial detail that often points toward an internal cause, such as an autoimmune response or a systemic reaction, rather than just an external irritant like a plant or mites. I hope your doctor tomorrow takes the time to listen carefully to all of this evidence you've gathered and works with you to find some real answers and effective relief. Don't be discouraged if the rash fluctuates; your detailed history is the most valuable tool you have for getting an accurate diagnosis.
    • Scott Adams
      Gluten free beer ?

      By Scott Adams · Posted

      In this case the beer is excellent, but for those who are super sensitive it is likely better to go the full gluten-free beer route. Lakefront Brewery (another sponsor!) has good gluten-free beer made without any gluten ingredients.
    • trents
      Patiently Waiting to See Results

      By trents · Posted

      Welcome to the forum, @catsrlife! Celiac disease can be diagnosed without committing to a full-blown "gluten challenge" if you get a skin biopsy done during an active outbreak of dermatitis herpetiformis, assuming that is what is causing the rash. There is no other known cause for dermatitis herpetiformis so it is definitive for celiac disease. You would need to find a dermatologist who is familiar with doing the biopsy correctly, however. The samples need to be taken next to the pustules, not on them . . . a mistake many dermatologists make when biopsying for dermatitis herpetiformis. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.