Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Food Additives


Kaycee

Recommended Posts

Kaycee Collaborator

Is there any connection between food additives and coeliac?

When I first went gluten free after being diagnosed with coeliac, I improved but after a few months I took a couple of steps back like most people do. I blamed it on everything, from dairy, to nuts to soy. In an effort to try and minimise the risk of eating hidden gluten I went to eating as natural as possible with the least amount of additives, such as preservatives, colourings, flavours etc. This worked wonders and I could control what I ate and reactions became minimal. But it is a hard act to follow, so there were times when I inevitably slipped and had additive laden food, but then I found I was starting to feel miserable, so again I cut out the additives.

So I have now basically got to the stage where I eat as natural as possible, with dairy and nuts and minute amounts of soy, chocolate, barcadi and treat foods, and feel wonderful, but when I eat food with extras, such as coke, bacon, chocolate I sometimes feel like I have been glutened, funny tum and a hung over feeling in the morning. Not all the food with extras, but quite a bit of it I react to. I know these supposed additives are gluten free, so maybe I have problems with additives. I would like to know which ones, but ignorance is probably better for my health. Is this being far fetched? Sometimes I think people close to me think I am just making problems for myself and that it might all be in my head.

I was brought up in a world, late 50's where we lived on a farm and ate mainly home made food. When I left home and married and had children I tried to recreate the same diet I was bought up on, as natural as possible. It was only when I went to work and had four children to raise on my own did I learn how to do shortcuts in cooking. You know, put a packet of flavouring in a stew, prepared food, and more takeaways than was healthy. My cooking style changed and this is when I first noticed my bowels habits etc were changing. I'm not trying to say additives caused coeliac, but more I am suggusting that maybe the additives did not help in keeping my symptoms at bay, and exaserbated them.

I am sure I had coeliac previous to this, as whenever I was pregnant I had low iron levels and there were other things that pointed to possible coeliac.

Just my two cents worth and on why I feel I still cannot get away with eating too many additives.

Cathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SunnyDyRain Enthusiast

Could It be a reaction to MSG? Though MSG is debatable on weather it is safe for Celiacs, I have always found that it causes gluten like reactions in me. I don't think something like Coke would have MSG, but Bacon may and any canned goods or even many broths. Coke could have artfical sweeteners and they can cause problems too.

Hopefully somone else can give you some more insight.

Guest KG in FL
Is there any connection between food additives and coeliac?

When I first went gluten free after being diagnosed with coeliac, I improved but after a few months I took a couple of steps back like most people do. I blamed it on everything, from dairy, to nuts to soy. In an effort to try and minimise the risk of eating hidden gluten I went to eating as natural as possible with the least amount of additives, such as preservatives, colourings, flavours etc. This worked wonders and I could control what I ate and reactions became minimal. But it is a hard act to follow, so there were times when I inevitably slipped and had additive laden food, but then I found I was starting to feel miserable, so again I cut out the additives.

So I have now basically got to the stage where I eat as natural as possible, with dairy and nuts and minute amounts of soy, chocolate, barcadi and treat foods, and feel wonderful, but when I eat food with extras, such as coke, bacon, chocolate I sometimes feel like I have been glutened, funny tum and a hung over feeling in the morning. Not all the food with extras, but quite a bit of it I react to. I know these supposed additives are gluten free, so maybe I have problems with additives. I would like to know which ones, but ignorance is probably better for my health. Is this being far fetched? Sometimes I think people close to me think I am just making problems for myself and that it might all be in my head.

I was brought up in a world, late 50's where we lived on a farm and ate mainly home made food. When I left home and married and had children I tried to recreate the same diet I was bought up on, as natural as possible. It was only when I went to work and had four children to raise on my own did I learn how to do shortcuts in cooking. You know, put a packet of flavouring in a stew, prepared food, and more takeaways than was healthy. My cooking style changed and this is when I first noticed my bowels habits etc were changing. I'm not trying to say additives caused coeliac, but more I am suggusting that maybe the additives did not help in keeping my symptoms at bay, and exaserbated them.

I am sure I had coeliac previous to this, as whenever I was pregnant I had low iron levels and there were other things that pointed to possible coeliac.

Just my two cents worth and on why I feel I still cannot get away with eating too many additives.

Cathy

Nitrates in the bacon could easily bother you and does many people. The carbonation in the Coke could bother you and does bother some people. Chocolate? Could it have something along the lines of the red wine bothering some more than others? The flavonoids? Some people have very sensative tummies! It's good you pay attention!

Rachel--24 Collaborator

I also have problems with additives...pretty much all of them.

I dont eat processed foods. I have problems with MSG, aspartame, food dyes (red 40 etc), sulphites, preservatives, etc.

I eat whole foods and stick to organic.

I dont know what could be causing your problems with added chemicals....for me its due to high toxicity. I got sick from mercury and a hidden lyme infection...ever since I've been intolerant to gluten, chemicals, molds and pretty much anything that is adding to the toxic burden my body is already dealing with.

There are ALOT of things to cause problems in processed foods. Caffeine can also contribute to symptoms....so that might be part of what bothers you with coke.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.