Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Do You Get Diarrhea?

shanbr

By shanbr
in Coping with Celiac Disease

Recommended Posts

shanbr Rookie
shanbr
Posted

Do you get diarrhea even if you haven't eaten gluten?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Karen B. Explorer
Karen B.
Posted
Do you get diarrhea even if you haven't eaten gluten?

Lots of things can cause D, not just gluten. Stress, viruses, spicy food and everyone has their own individual triggers too. Too much pancake syrup will do me in.

JNBunnie1 Community Regular
JNBunnie1
Posted
Do you get diarrhea even if you haven't eaten gluten?

Absolutely, not to mention the fact that it takes a while for your intestinal system to recover fully. You might try taking a broad spectrum probiotic, make sure it's gluten free. Any health food store will be happy to check for you, I take Flora's udo's Choice Adult Probiotic. That should help with your internal repair.

Ursa Major Collaborator
Ursa Major
Posted

I get diarrhea from gluten, rice, eggs and potatoes.

Guest j_mommy
Guest j_mommy
Posted

The first couple of days after going gluten-free I still had the big D. But now after a couple of weeks I haven't.

As Karen B said it could be a multitude of other things. Stress is a big one for me, smoking, soda ect......

If I have more than 1 glass of milk...I also get it!!!

Hope you feel better soon!!

dlp252 Apprentice
dlp252
Posted

Had diarrhea before going gluten free and still have it.

Been gluten free for over a year and a half and still have diarrhea...in fact it's getting worse in the last few months!

Nancym Enthusiast
Nancym
Posted

I'd say it's due to something else. For me I'm sensitive to other foods: diary, seeds, corn and probably other things. Or it might be something like small bowel overgrowth. Google that term and see if it makes sense.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


SunnyDyRain Enthusiast
SunnyDyRain
Posted

Yeah...

I had a hard time figuring out what was happening to me, I was gluten-free but still getting the big D. I first figured out caisens, that helped me, then I had to relearn what is normal for bowel movements. My first lesson was if I eat fruit all day, I'll be on the toliet all night... I was upset thinking I was some weirdo who was intolerant to fruit. Then my boyfriend (who hates when I talk about my BM's) told me if anyone ate that much fruit that would happen. I was also told nuts don't digest, so don't freak out. I have also been accused of worrying myself sick over the gluten-free diet. Everyone thinks I overthink the diet and make myself sick from worry, but I think my worry is called for. Besides I worry the same amount everyday, If I was worrying every day...i'd be sick everyday!

Unfortunately my main symtom of Celiac was D, so I have to first eliminate normal causes of D, then if they check out, look for casien/gluten sources.

pedro Explorer
pedro
Posted
I get diarrhea from gluten, rice, eggs and potatoes.

Hi Ursa. I cannot eat potatos neither. Why is it that potatoes give me so much bloading and pain.

Is this temporary until my instestine is heal, or do think this is permanent?.

Many thanks

StrongerToday Enthusiast
StrongerToday
Posted

Fatty foods, even a small bag of chips, can do me in! :angry:

VegasCeliacBuckeye Collaborator
VegasCeliacBuckeye
Posted
Hi Ursa. I cannot eat potatos neither. Why is it that potatoes give me so much bloading and pain.

Is this temporary until my instestine is heal, or do think this is permanent?.

Many thanks

It could be a nightshade intoelrance - some folks with celiac disease have that.

Eggs, apples, most raw fruit, an abundance of OJ, an abundance of fried food and even champagne has give me the big "D" on occasion.

Karen B. Explorer
Karen B.
Posted

Just realized I forgot to mention overdosing on coffee, too much coffee will definitely cause it.

Yenni Enthusiast
Yenni
Posted

Yes, I can get diarrhea from other stuff too. Stress, if I eat a lot of rice, medication like antibiotics, chocolate..

Felidae Enthusiast
Felidae
Posted

In addition to gluten, tapioca and beef give me diarrhea.

tmk Explorer
tmk
Posted

i just got some blood work done for celiac disease and haven't heard back on the results yet -- i have had chronic diarrhea for the past 18 years and when i found this site, and read all the great info, i was really optimistic. this post has kind of freaked me out a bit -- about people still having diarrhea after going gluten-free. i was hoping that gluten-free would end the constant diarrhea and worry of "accidents" and give me back my life. is there anybody out there who the gluten-free diet has completely rid them of diarrhea (w/ the exception of "d" from flu's, etc.)? :blink:

thanks for the info!!!

Walter S Explorer
Walter S
Posted

I have been gluten free for a few months now and I am still getting diarrhea all of the time! Also I now get nausea and vomiting which I din't get before. Next step for me is the elimination diet.

SunnyDyRain Enthusiast
SunnyDyRain
Posted
i just got some blood work done for celiac disease and haven't heard back on the results yet -- i have had chronic diarrhea for the past 18 years and when i found this site, and read all the great info, i was really optimistic. this post has kind of freaked me out a bit -- about people still having diarrhea after going gluten-free. i was hoping that gluten-free would end the constant diarrhea and worry of "accidents" and give me back my life. is there anybody out there who the gluten-free diet has completely rid them of diarrhea (w/ the exception of "d" from flu's, etc.)? :blink:

thanks for the info!!!

I have to say my D is much different from the D I had before gluten-free. Before I had very little contol over it, and very little warning. Now I can feel it coming a few hours ahead of time. they arn't nearly as "violent". Before I would check where the bathrooms were when I went somwhere, now I can seem to wait till i get home before needing to go.

Does that make you feel any better?

lob6796 Contributor
lob6796
Posted

I get it from gluten, milk, soy, coffee, beef, and certain types of oils - like those chips with olestra. Too much fruit will do it, as will too many nuts. lol.. so much!

pedro Explorer
pedro
Posted

Hi

I had a min of 3 big D a day. When I started with the gluten-free diet a week and a half later the D were gone.

I can relax now. I told my wife before I started the diet I probably have to end up wearing adult pampers. Sometimes the big D would come at a time I was driving, and there is not way to stop them. It was horrible. Give the diet a try. I started with vegestables, fish, or little pieces of chicken, I did not eat nothing fry, or spicy.

I hope you feel better.

Take care.

lob6796 Contributor
lob6796
Posted
Hi

I had a min of 3 big D a day. When I started with the gluten-free diet a week and a half later the D were gone.

I can relax now. I told my wife before I started the diet I probably have to end up wearing adult pampers. Sometimes the big D would come at a time I was driving, and there is not way to stop them. It was horrible. Give the diet a try. I started with vegestables, fish, or little pieces of chicken, I did not eat nothing fry, or spicy.

I hope you feel better.

Take care.

I have to say that for some, the big D is the most life changing aspect. My father drives an oversize load truck for a living, and we live out in the middle of no where. No matter what the poor guy eats, he is stopping this ENORMOUS truck in the middle of a road, basically blocking off all traffic, and running off into the woods. Thank god we live out in the middle of nowhere. He used to work in Boston driving tractor trailers and he said if he had these symptoms back then he didn't know if he would be able to do his job. You can't exactly stop, drop and ...go in the middle of Boston. He is looking forward to getting through all the testing and getting his bathroom needs under control.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
    2. Scott Adams
      - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid mul...
    3. Scott Adams
      - Scott Adams commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      2

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      Better to know late than never, and it is too bad they did not test you for it earlier!
    4. Scott Adams
      0

      Koikoi Trading Inc., Issues Allergy Alert on Undeclared Wheat and Sesame in FU ZHOU FISH BALL

    5. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      8

      how much gluten do I need to eat before blood tests?

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after eating them. If it happens a few times after eating the same foods- I cut back...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,321
    • Most Online (within 30 mins)
      7,748
    James Minton
    Newest Member
    James Minton
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
      IBS-D vs Celiac

      By trents · Posted

      Welcome to the celiac.com community, @SilkieFairy! You could also have NCGS (Non Celiac Gluten Sensitivity) as opposed to celiac disease. They share many of the same symptoms, especially the GI ones. There is no test for NCGS. Celiac disease must first be ruled out.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      Under the circumstances, your decision to have the testing done on day 14 sounds very reasonable. But I think by now you know for certain that you either have celiac disease or NCGS and either way you absolutely need to eliminate gluten from your diet. I don't think you have to have an official diagnosis of celiac disease to leverage gluten free service in hospitals or institutional care and I'm guessing your physician would be willing to grant you a diagnosis of gluten sensitivity (NCGS) even if your celiac testing comes up negative. Also, you need to be aware that oats (even gluten free oats) is a common cross reactor in the celiac community. Oat protein (avenin) is similar to gluten. You might want to look at some other gluten free hot  breakfast cereal alternatives.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.