Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

After Diagnosis: Is Your Stomach Generally Happy Or Does It Seem More Sensitive Than "normal" Stomachs?

Yenni

By Yenni
in Coping with Celiac Disease

Recommended Posts

Yenni Enthusiast
Yenni
Posted

I am staring to wonder if I will ever be able to have a "normal" stomach. If it will always be more sensitive than people with no intolerances.

What is your stomach like after you stopped with gluten (and others stuff if you needed to)? Is it as well working as others or is it always a bit more sensitive and get "off" often?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Guest j_mommy
Guest j_mommy
Posted

I think we will always have more sensitive stomachs!!!!

I'm not sure I even now what normal as far as digestive stuff is anymore......But i'm ok with it! I'm just happy to know whats going on!!!!

darlindeb25 Collaborator
darlindeb25
Posted

I'm sorry, but I have to agree with akJenny. I think our stomachs will always be more sensitive, especially if tummy probs were part of the reason for your diagnosis. My tummy is a lot more sensitive than many people. Any stress in my life, my tummy reacts. Any illnesses effect it. I though, also have a lot of other intolerance's. My sister doesn't seem to have as many problems with her stomach as I do.

I'm sure some do much better than I have and some, probably worse. You will heal in the time your body needs too. Keep your chin up!

Nancym Enthusiast
Nancym
Posted

Mine got better yet more sensitive. Meaning some things went away like the terrible cramping I had, but my bowels got techy. I recently read about small bowel overgrowth and my doctor put me on an antibiotic for that (rifamaxin) and since then things are MUCH BETTER! Yay! BTW: Celiac disease can cause SBO (small bowel overgrowth). Anyway, it is something to investigate. I told my doctor I didn't want to go through a lot of testing to treat it and he agree the antibiotics were easy to do, stay local to the bowel and it'd either work or not. I think it worked!

Danno Rookie
Danno
Posted

We're probably all different due to other sensitivities, but once I got away from gluten, no problems, an iron stomach!

oceangirl Collaborator
oceangirl
Posted
Mine got better yet more sensitive. Meaning some things went away like the terrible cramping I had, but my bowels got techy. I recently read about small bowel overgrowth and my doctor put me on an antibiotic for that (rifamaxin) and since then things are MUCH BETTER! Yay! BTW: Celiac disease can cause SBO (small bowel overgrowth). Anyway, it is something to investigate. I told my doctor I didn't want to go through a lot of testing to treat it and he agree the antibiotics were easy to do, stay local to the bowel and it'd either work or not. I think it worked!

YES!!!!!!!

I am definitely more sensitive to things than most others I know! I am gluten, corn, soy, dairy and legume free and have been for almost a year and I still have "touchy" intestines. (for me, it's my intestines- my stomach is usually okay unless I really get nailed) BUT!!! I am MUCH better and have more good days, for the most part, than bad. I certainly can understand your abject frustration, however, because it can get a bit old at times! I am noticing that I at least have spates of time when I can introduce a new thing and do relatively well with it, so, that's exciting. I wish you good luck and encourage patience with this thing. It clearly seems to take time.

lisa

jerseyangel Proficient
jerseyangel
Posted

My stomach is more sensitive now, since I've been gluten-free. For the first 6 months on the diet, things got much better, then other foods began to give me problems.

Once I identified the problem foods, and omitted them, things got better again, but I'm afraid I'll always have a touchy digestive system.

It dosen't take much to set it off--gluten cross contamination, illness, anxiety, other food intolerances, and sometimes it happens for no apparent reason. I have to say, though, that after 2 years--the vast majority of the time, I can track it back to something.

I am being tested next week to see if SIBO might be the cause of my ongoing issues. I think if these problems continue, it's a worthwhile thing to look into.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Yenni Enthusiast
Yenni
Posted
  • Author

What test do they do to find out if it is bacterial overgrowth?

Glad I am not the only one with a sensitive stomach. :blink:

aikiducky Apprentice
aikiducky
Posted

My list of foods to avoid is kinda long - gluten, dairy, eggs, legumes, nightshades- but as long as I do avoid those, my stomach doesn't seem to be particularly sensitive to stress or such. I can eat raw veggies as much as I can for example and not have any trouble. I've been dairy free for a long time, gluten free for two and a half years and all the rest free for almost that long. Especially in the first hear my digestive system was much more sensitive.

Pauliina

Ed-G Newbie
Ed-G
Posted
I'm sorry, but I have to agree with akJenny. I think out stomachs will always be more sensitive, especially if tummy probs were part of the reason for your diagnosis.

I must be the strange one. I've always had a cast iron stomach. It's the rest of my digestive system that's crap.

Ed in MD

JNBunnie1 Community Regular
JNBunnie1
Posted

Actually, the best thing to take for bacterial overgowth is probiotics, not antibiotics. When you take antibiotics, you kill all the good bugs in your system as well as the bad, and as soon as you stop taking them, the bad ones come back even worse because you've now killed the good bugs that help control them.

I've always been pretty solid with my stomach, I only had GI Celiac symptoms for about six months, before I figured it out. Since then, the only thing that's bothered my stomach has been stress, never food.

DingoGirl Enthusiast
DingoGirl
Posted
We're probably all different due to other sensitivities, but once I got away from gluten, no problems, an iron stomach!

Sadly, I am the opposite....had an iron stomach all my life, until the three or four years preceding diagnosis (and still, it wasn't that bad and I didn't really care or notice it).....but once I went off gluten, I realized, there was no longer that constant, dull ache that had been with me, that I hadn't quite realized how much it hurt until it was gone.

Having said that......

My stomach is more sensitive now, since I've been gluten-free. For the first 6 months on the diet, things got much better, then other foods began to give me problems.

Once I identified the problem foods, and omitted them, things got better again, but I'm afraid I'll always have a touchy digestive system.

It dosen't take much to set it off--gluten cross contamination, illness, anxiety, other food intolerances, and sometimes it happens for no apparent reason. I have to say, though, that after 2 years--the vast majority of the time, I can track it back to something.

I am being tested next week to see if SIBO might be the cause of my ongoing issues. I think if these problems continue, it's a worthwhile thing to look into.

.....I agree with everything Patti wrote. And, I am ONLY gluten-intolerant, don't have Patti's sensitivities, but, if I consume gluten (or processed food - anything with MSG, which I avoid like the plague), I am in DEEP pain, stuck near the bathroom and with horrible consequences. And stressful situations now affect my stomach and gut, also.....unlike before.

sfm Apprentice
sfm
Posted
I am staring to wonder if I will ever be able to have a "normal" stomach. If it will always be more sensitive than people with no intolerances.

What is your stomach like after you stopped with gluten (and others stuff if you needed to)? Is it as well working as others or is it always a bit more sensitive and get "off" often?

I think my stomach will always be more sensitive that most people's. I have also been finding that I notice more when things do bother me, than I did when my stomach was such a mess that anything I ate bothered me.

Or maybe others just think their symptoms are just 'normal' for them! (I know I did for a long time :rolleyes: )

I always remind myself that there are worse things that could be wrong with me - this one is something I can live with. My mother, sister and father have all sorts of health issues which are probably related to undiagnosed gluten intolerance. In a way, I'm the lucky one - I'm hoping that I caught on early enough to avoid some of what they are going through.

Sheryll

rsm Newbie
rsm
Posted

My stomach is much more sensitive, gluten free for 12 weeks, I can now tell a problem food within an hour of eating. Dairy and certain oils are a problem, like cottonseed oil used to fry certain chips, is a real problem. I can now weed out the offenders more easily because they show up right away. Before going gluten free I could eat just about anything because my stomach always hurt anyway. It wasn't until going gluten free I actually found out how much it did hurt, I just got used to it. A simple diet means a happy digestive system. Hopefully in a year or so I can start to add things back in, like real cheese!

grey Explorer
grey
Posted

My stomach seems hyper-sensitive; I assume it calms down a little eventually. I was just thinking though about how amazing it is that I never noticed that food bothered me. How could I not have noticed?

rsm & sfm;s post made me think about this some more - I used to think I pretty much had an iron stomach with the exception of crab and avoiding certain foods as migraine triggers.

Now that I'm paying attention, I see that actually my stomach/GI reacts differently to different things and pretty much hurts all the time. Still blows my mind that you (we?) can get used our food beating us up so much!

Kaycee Collaborator
Kaycee
Posted
I must be the strange one. I've always had a cast iron stomach. It's the rest of my digestive system that's crap.

Ed in MD

Ed, you are not alone.

I was brought up in a family of cast iron stomachs.

But like you, my stomach is fine, it is after what I have ingested goes further down, that is when I get the problems.

Cathy

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,217
    • Most Online (within 30 mins)
      7,748
    billiam3some
    Newest Member
    billiam3some
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      My mo,ther married a bread making when I was 4

      By Scott Adams · Posted

      Your story is a powerful and heartbreaking testament to the profound damage that can be caused by undiagnosed celiac disease and the profound pain of not being believed or supported by family. It is sadly a common narrative within the celiac community to have suffered for years, even decades, while autoimmune conditions stack up, all while being dismissed. To answer your core question: yes, living in a environment with significant, constant gluten exposure, especially from airborne flour in a home where milling and baking occurred, would have created a perpetual state of autoimmune activation for you, even beyond the direct ingestion. This chronic exposure is strongly linked to the development and exacerbation of the very autoimmune disorders you describe—Migraines, Meniere's, Hashimoto's, and more. Your body was under constant attack, and the lack of care and understanding from your family compound that trauma significantly. It is not your fault. Many in the community share similar stories of a cascade of illnesses finally explained by a celiac diagnosis, often coming too late to prevent irreversible damage. While I cannot speak to the legal aspects of your inheritance situation, your experience with the medical neglect and the lasting impact of your childhood environment is deeply valid and shared by others who understand this unique type of suffering. Thank you for having the courage to share your truth. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      7yo struggling!

      By Scott Adams · Posted

      It's incredibly tough to watch a young child grapple with the frustration and sense of deprivation that comes with a restrictive diet, and your empathy for her is the first and most important step. At seven, children are deeply focused on fairness, and her feelings are completely valid. To support her mental health, shift the narrative from "missing out" to "empowered choice." Instead of "you can't have that," use language like "we choose these safe foods so your tummy feels happy and strong." Involve her directly in her own care; let her be the "Gluten-Free Detective" at the grocery store, picking out exciting new treats, or make her the head chef in baking a special dessert that everyone gets to enjoy. When eating out, empower her by having her call the restaurant ahead to ask about safe options (with your help), making her feel in control rather than a passive victim. Acknowledge her feelings—"It's okay to feel sad that you can't have the roll, I sometimes feel that way too"—and then immediately pivot to a positive action, like unwrapping the special brownie you brought just for her. This combination of validation, involvement, and reframing turns a limitation into a shared family challenge where she feels supported, capable, and loved.
    • Scott Adams
      Rice Flakes

      By Scott Adams · Posted

      I know that Shiloh Farms makes this product, but I don't think it is labeled gluten-free.
    • Scott Adams
      Food Allergies

      By Scott Adams · Posted

      Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful:    
    • Scott Adams
      Diagnosis and further testing Celiac

      By Scott Adams · Posted

      It's strange to see two very different results in what appears to be a single blood test--one is positive and one is negative for a celiac disease test. Are these results separated by time? This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
×
×
  • Create New...