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After Diagnosis: Is Your Stomach Generally Happy Or Does It Seem More Sensitive Than "normal" Stomachs?


Yenni

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Yenni Enthusiast

I am staring to wonder if I will ever be able to have a "normal" stomach. If it will always be more sensitive than people with no intolerances.

What is your stomach like after you stopped with gluten (and others stuff if you needed to)? Is it as well working as others or is it always a bit more sensitive and get "off" often?


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Guest j_mommy

I think we will always have more sensitive stomachs!!!!

I'm not sure I even now what normal as far as digestive stuff is anymore......But i'm ok with it! I'm just happy to know whats going on!!!!

darlindeb25 Collaborator

I'm sorry, but I have to agree with akJenny. I think our stomachs will always be more sensitive, especially if tummy probs were part of the reason for your diagnosis. My tummy is a lot more sensitive than many people. Any stress in my life, my tummy reacts. Any illnesses effect it. I though, also have a lot of other intolerance's. My sister doesn't seem to have as many problems with her stomach as I do.

I'm sure some do much better than I have and some, probably worse. You will heal in the time your body needs too. Keep your chin up!

Nancym Enthusiast

Mine got better yet more sensitive. Meaning some things went away like the terrible cramping I had, but my bowels got techy. I recently read about small bowel overgrowth and my doctor put me on an antibiotic for that (rifamaxin) and since then things are MUCH BETTER! Yay! BTW: Celiac disease can cause SBO (small bowel overgrowth). Anyway, it is something to investigate. I told my doctor I didn't want to go through a lot of testing to treat it and he agree the antibiotics were easy to do, stay local to the bowel and it'd either work or not. I think it worked!

Danno Rookie

We're probably all different due to other sensitivities, but once I got away from gluten, no problems, an iron stomach!

oceangirl Collaborator
Mine got better yet more sensitive. Meaning some things went away like the terrible cramping I had, but my bowels got techy. I recently read about small bowel overgrowth and my doctor put me on an antibiotic for that (rifamaxin) and since then things are MUCH BETTER! Yay! BTW: Celiac disease can cause SBO (small bowel overgrowth). Anyway, it is something to investigate. I told my doctor I didn't want to go through a lot of testing to treat it and he agree the antibiotics were easy to do, stay local to the bowel and it'd either work or not. I think it worked!

YES!!!!!!!

I am definitely more sensitive to things than most others I know! I am gluten, corn, soy, dairy and legume free and have been for almost a year and I still have "touchy" intestines. (for me, it's my intestines- my stomach is usually okay unless I really get nailed) BUT!!! I am MUCH better and have more good days, for the most part, than bad. I certainly can understand your abject frustration, however, because it can get a bit old at times! I am noticing that I at least have spates of time when I can introduce a new thing and do relatively well with it, so, that's exciting. I wish you good luck and encourage patience with this thing. It clearly seems to take time.

lisa

jerseyangel Proficient

My stomach is more sensitive now, since I've been gluten-free. For the first 6 months on the diet, things got much better, then other foods began to give me problems.

Once I identified the problem foods, and omitted them, things got better again, but I'm afraid I'll always have a touchy digestive system.

It dosen't take much to set it off--gluten cross contamination, illness, anxiety, other food intolerances, and sometimes it happens for no apparent reason. I have to say, though, that after 2 years--the vast majority of the time, I can track it back to something.

I am being tested next week to see if SIBO might be the cause of my ongoing issues. I think if these problems continue, it's a worthwhile thing to look into.


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Yenni Enthusiast

What test do they do to find out if it is bacterial overgrowth?

Glad I am not the only one with a sensitive stomach. :blink:

aikiducky Apprentice

My list of foods to avoid is kinda long - gluten, dairy, eggs, legumes, nightshades- but as long as I do avoid those, my stomach doesn't seem to be particularly sensitive to stress or such. I can eat raw veggies as much as I can for example and not have any trouble. I've been dairy free for a long time, gluten free for two and a half years and all the rest free for almost that long. Especially in the first hear my digestive system was much more sensitive.

Pauliina

Ed-G Newbie
I'm sorry, but I have to agree with akJenny. I think out stomachs will always be more sensitive, especially if tummy probs were part of the reason for your diagnosis.

I must be the strange one. I've always had a cast iron stomach. It's the rest of my digestive system that's crap.

Ed in MD

JNBunnie1 Community Regular

Actually, the best thing to take for bacterial overgowth is probiotics, not antibiotics. When you take antibiotics, you kill all the good bugs in your system as well as the bad, and as soon as you stop taking them, the bad ones come back even worse because you've now killed the good bugs that help control them.

I've always been pretty solid with my stomach, I only had GI Celiac symptoms for about six months, before I figured it out. Since then, the only thing that's bothered my stomach has been stress, never food.

DingoGirl Enthusiast
We're probably all different due to other sensitivities, but once I got away from gluten, no problems, an iron stomach!

Sadly, I am the opposite....had an iron stomach all my life, until the three or four years preceding diagnosis (and still, it wasn't that bad and I didn't really care or notice it).....but once I went off gluten, I realized, there was no longer that constant, dull ache that had been with me, that I hadn't quite realized how much it hurt until it was gone.

Having said that......

My stomach is more sensitive now, since I've been gluten-free. For the first 6 months on the diet, things got much better, then other foods began to give me problems.

Once I identified the problem foods, and omitted them, things got better again, but I'm afraid I'll always have a touchy digestive system.

It dosen't take much to set it off--gluten cross contamination, illness, anxiety, other food intolerances, and sometimes it happens for no apparent reason. I have to say, though, that after 2 years--the vast majority of the time, I can track it back to something.

I am being tested next week to see if SIBO might be the cause of my ongoing issues. I think if these problems continue, it's a worthwhile thing to look into.

.....I agree with everything Patti wrote. And, I am ONLY gluten-intolerant, don't have Patti's sensitivities, but, if I consume gluten (or processed food - anything with MSG, which I avoid like the plague), I am in DEEP pain, stuck near the bathroom and with horrible consequences. And stressful situations now affect my stomach and gut, also.....unlike before.

sfm Apprentice
I am staring to wonder if I will ever be able to have a "normal" stomach. If it will always be more sensitive than people with no intolerances.

What is your stomach like after you stopped with gluten (and others stuff if you needed to)? Is it as well working as others or is it always a bit more sensitive and get "off" often?

I think my stomach will always be more sensitive that most people's. I have also been finding that I notice more when things do bother me, than I did when my stomach was such a mess that anything I ate bothered me.

Or maybe others just think their symptoms are just 'normal' for them! (I know I did for a long time :rolleyes: )

I always remind myself that there are worse things that could be wrong with me - this one is something I can live with. My mother, sister and father have all sorts of health issues which are probably related to undiagnosed gluten intolerance. In a way, I'm the lucky one - I'm hoping that I caught on early enough to avoid some of what they are going through.

Sheryll

rsm Newbie

My stomach is much more sensitive, gluten free for 12 weeks, I can now tell a problem food within an hour of eating. Dairy and certain oils are a problem, like cottonseed oil used to fry certain chips, is a real problem. I can now weed out the offenders more easily because they show up right away. Before going gluten free I could eat just about anything because my stomach always hurt anyway. It wasn't until going gluten free I actually found out how much it did hurt, I just got used to it. A simple diet means a happy digestive system. Hopefully in a year or so I can start to add things back in, like real cheese!

grey Explorer

My stomach seems hyper-sensitive; I assume it calms down a little eventually. I was just thinking though about how amazing it is that I never noticed that food bothered me. How could I not have noticed?

rsm & sfm;s post made me think about this some more - I used to think I pretty much had an iron stomach with the exception of crab and avoiding certain foods as migraine triggers.

Now that I'm paying attention, I see that actually my stomach/GI reacts differently to different things and pretty much hurts all the time. Still blows my mind that you (we?) can get used our food beating us up so much!

Kaycee Collaborator
I must be the strange one. I've always had a cast iron stomach. It's the rest of my digestive system that's crap.

Ed in MD

Ed, you are not alone.

I was brought up in a family of cast iron stomachs.

But like you, my stomach is fine, it is after what I have ingested goes further down, that is when I get the problems.

Cathy

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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