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- Clear2me replied to Clear2me's topic in Gluten-Free Foods, Products, Shopping & Medications5Gluten free nuts
Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat. I am going to keep checking. Thank... -
- RMJ replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5Going for upper endoscopy today
I’m glad you have a clear answer. Some endoscopes have enough magnification for the doctor to see the damage during the procedure. -
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While it seems unlikely to contain intentional gluten ingredients--and based on the ingredients you provided, this canned Wendy's chili appears to be gluten-free, but with a very important caveat: it cannot be considered certified or guaranteed gluten-free due to the potential for cross-contamination and the ambiguous nature of "natural flavors." -
- Scott Adams replied to Midwesteaglesfan's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms5
Going for upper endoscopy today
Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
- Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications5
Guinness, can you drink it?
I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have...
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Thank you for all the excellent information. I moved from Wyoming to California. May be its where I am located but So far none of the Costco Kirkland brand I have looked at is labeled gluten free. Same with the Sam's Members Mark. The Kirkland nuts you mention all say they are processed in a plant that processes wheat. I am going to keep checking. Thank you. The Azure Market looks promising 😁 Take care S -
I’m glad you have a clear answer. Some endoscopes have enough magnification for the doctor to see the damage during the procedure.
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By Scott Adams · Posted
Welcome to the club!😉 This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.): -
By Scott Adams · Posted
I could not find the thread, but I recall at least one user who was drinking regular gluten beer daily but getting celiac blood tests done often (I think it was monthly) and doing a biopsy each year and all celiac disease tests were always negative. Everyone is different, but in general regular beer would be considered low gluten (not gluten-free!). I have no issues with Daura Damm, but those who are super sensitive might. -
By Aretaeus Cappadocia · Posted
Azure Standard (https://www.azurestandard.com/) is one of my gluten-free vendors. I've purchased nuts, "grains", flours, and many other products there. If you are not familiar with Azure, you have to set up an account (no cost) and get your purchases either via shipping (expensive) or "drop" (free if you buy a reasonable minimum). Search their website for a drop location in your area. Each drop location has a local volunteer(?) coordinator who coordinates with the local customers. I go to a drop 4-5 miles from my home that delivers every 2 weeks. We seem to range from 8-18 customers at a given delivery. The downside of the drop is that you have to be there when they say. They give you a few days notice of the precise time, though, and they are punctual. Their pricing relative to other vendors for various products ranges from best price to overpriced, so you have to shop and compare. Quality is mostly good but once in a while you get a dud - however they've been very responsive to giving me a credit on the few occasions when I've complained. In my opinion, they are not as transparent about gluten as they could be. Some products are labeled "gluten free" and so far I trust that. Many products are labeled "Azure Market products are re-packaged by Azure for your convenience in a facility that meets Food Safety Modernization Act (FSMA) standards, including an approved allergen control program." I've corresponded with them over this and they all but say this means gluten free. I've come to trust this, with a little nervousness, but I wish they would be more explicit. They also sell a lot of gluten-containing products. Frankly, I think they are overlooking a business opportunity to become a trusted source for the gluten-free community by not being more clear about gluten. Among Azure products I've purchased are "Walnuts, Baker's Pieces, Raw", "Cashews, Raw, Large White Pieces, Organic" and "Missouri Northern Pecan Grower Pecans Fancy Native, Raw, Halves". The walnuts and cashews were very good and the pecans were fabulous. For almonds, I've been buying Blue Diamond unsalted when they go on sale (mostly from Safeway). The salted ones are probably fine too but the flavored ones I avoid now that I am gluten-free. I also buy products including nuts from CostCo (cashews, shelled pistachios). Their nuts usually contain a "made in a facility that processes wheat" statement, which is scary. I've contacted customer service about various Kirkland products and they will usually give you a response <<for a specific lot>> whether it really was made in a wheat facility (sometimes yes sometimes no). For the "Kirkland Signature Fancy Whole Cashews, Unsalted, 40 oz" and "Kirkland Signature Shelled Pistachios, Roasted & Salted, 1.5 lbs", I got a "safe" answer and I ate them. I got an "unsafe" answer once for "Kirkland Signature Fancy Whole Cashews with Sea Salt, 2.5 lbs" and "Kirkland Signature Dry Roasted Macadamia Nuts, Salted, 1.5 lbs" and I don't look at these anymore. Again, these answers were given for specific lots only. They will accept an unopened return for cash if you find out you don't want it. Costco also sells "Kirkland Signature Super Extra-Large Peanuts, 2.5 lbs" that are labeled gluten free. My celiac kid eats them all the time. I pretty much only eat food that I prepare myself from scratch. My celiac symptoms are not that overt, so I can't say for certain I could identify a glutening. However, my antibody levels dropped 25 fold (into normal range) since my dx earlier this year. Hope this helps.
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Thank you for that information!! I have learned so much since coming to this site and I really appreciate ALL the tips from everybody!!
I live in New Orleans, and I spend far too much time wondering about the what ifs and the logistics of getting out of town in non moving traffic.
My best bets have been to pack safe peanut butter and rice crisps, trail mix, some fruit leather, and lots of water. From experience, the cooler is the last thing anyone makes space for when family heirlooms are on the line.
My plan of action is to grab the container of paperwork, including my SS card, birth certificate, high school papers, medical papers (including diagnosis and Celiac guidelines, signed by my doctor), emergency/ evacuation contact sheet (my friends, family, and healthcare providers were all willing to give me contact numbers and e-mail so we do not wind up unable to locate each other like in 2005, and insurance card. I have a medium sized bag that I will fill with basic clothing, one photo album, and a small cooler. My fiance keeps his papers with mine, and has a bag of equal size. Food I need for the trip goes in the cooler, everything else goes out to the dumpster before we leave. I will buy food I need for the stay when I get where I am going (which is dictated by whether or not it has a WF in the vicinity, as that is my job and my food source).
Last time I had a hardcore evacutaion, we learned how very little you actually need, as opposed to what you want.
So- important documents, a week's worth of clothing, one heirloom or sentimental object, and enough food to get you to your destination. If you have a baby, plan ahead by bringing about a week's worth of food and diapers for them, plus enough water to make bottles and rinse them out.
Hope that helps!
~Destiny (is so stressed out)
I would also get some extra tissues, toliet paper, and flashlights too to take along. Some immodium.
Oh, wow... now you mention it. I cannot imagine getting stuck in evecuation traffic, getting a hold of something that disagrees with me, and not having immodium!
That would make evacuation even more nightmareish.
It would not be worthwhile to sacrafice your own health to help us. There are enough others doing the heavy lifting, knowing our area is in your prayers is help enough.
In the event you are ever displaced, try to have emergency numbers for your doctors, a signed note (on their letterhead) explaining your condition and diagnosis for another doctor wherever you wind up, and a month's worth of any Rx medication. If at all possible, I try to have my prescriptions moved to where I am going before I leave. Most of the time, the pharmacist has already left, though. Just as well, they need to move, too!
Hope this helps,
~Destiny
i think another important thing when stocking up on food is to make sure it's stuff you like and use on a regular basis, so you know how to prepare it, you're ok eating it, etc.
a great place to check out as far as food storage goes is www.bluechipgroup.net
they are a local supplier that i love, and on the food storage page, they have a 1-year emergency gluten-free plan! i'm trying to build one of my own for my family...it's so much work!
Got an answer about Ensure:
Hello Destiny,
Thank you for contacting Abbott's Ross Products Division.
Ensure
Last night I was remembering right after Katrina when we began receiving bus loads of evacuees and I, along with many other members of our local Celiac group, began making phone calls to our Celiac group leader and to the Red Cross, the local food bank, etc. to try to make donations of gluten-free food for evacuating Celiacs. All the pictures on TV showed the receiving areas handing out pizzas and burgers.
Any Celiac that might evacuate away from their known areas might want to keep a list of Celiac groups in their evacuation supplies. It would help you plug into the needed resources right away.
A List of Local Celiac Disease Support Groups/Chapters
https://www.celiac.com/st_prod.html?p_prodi...-49107235539.b0
And I will say that the Red Cross seemed rather clueless about gluten-free food but the food bank was willing to accept the food and keep it separate from the regular stuff. They put it in their medical area where they keep the diabetic food.