Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

New Member

Yellow Rose

Recommended Posts

Yellow Rose Explorer
Yellow Rose
Posted

Hello Everyone,

My name is Carole Edminson/Yellow Rose from Hondo, TX and I have been skulking around for the past 3 months trying to figure out how to work this site. I finally figured it out and here is my story.

My husband is a Deacon in the Catholic Church and of course we pray for lots of people but I rarely pray for myself. In Oct of 2006 I pulled a muscle in my back and it did not heal up until early Dec. So I was very inactive and my muscles got real weak. In the middle of Dec. I pulled a groin muscle in my leg and that took 4 months to heal. At Easter every muscle in my body was hurting and I was thinking I was in a flare from athritus and could barely walk to the bathroom and back. Out of desperation I started praying and asked, "Lord Please Heal My Broken Body". The following week my oldest daughter Sarah who is a biochemist called me and she had been at the dentist and picked up a magazine that had an article on common misdiagnoses of genetic diseases. She had taken a class on genetic diseases the semester before and was very into it. She started to read the first one and almost put down the magazine but the second one had a symptom box and that caught her eye. Well after reading the list she said this sounds like my mom. She called me and we went on the internet together and I have had 95% of the symptoms over the past 27 years. The kicker for me was the seziures that have never been explained. I went to my Dr. who couldn't remember what the test for Celiac's was and told me to call him the next week. The last time he had a Celiac's patient was 8 years ago. My antibody test came back positive and I have been gluten free for less than 24 hours at this point because I found another hidden wheat source that I have been having all along (corn tortillias). My daughter Sarah wants to be a research Dr. and wanted to find a cure for my athritus. When I got the test back I called her and told her that she had cured me before she ever finished getting her degree. WE CRIED TEARS OF JOY.

I want to thank everyone who posts to this website. I would have been lost without all of you the past couple of months. Your compassion and willilngness to spread your knowledge has been a constant source of comfort while I was skulking around.

So now for my questions:

Those of you with joint and muscle pain how long before you went into remission?

Is there a Dr. packet? I can't believe that 8 yrs has gone by since mine has seen a Celiac patient. How many has he missed?

Yellow Rose

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Hey Carole,

We are glad that you have joined us.

Most doctors, are not well versed to look for Celiac Disease. It formerly was considered rare, but it's estimated that 1 in 133 have Celiac with an average of 11 years before being diagnosed. Rather not much excuse for doctors.

I had chronic lower back pain for many years and my doctor always told me that my IBS issues and back pain were unrelated. WRONG. After six months gluten free, the back pain is totally gone.

I am happy for you that you now can be on the road to recovery. Please feel free to ask anything.

Welcome to the Club!!!

Lolabell Newbie
Lolabell
Posted
snip... the second one had a symptom box and that caught her eye. Well after reading the list she said this sounds like my mom. She called me and we went on the internet together and I have had 95% of the symptoms over the past 27 years. The kicker for me was the seizures that have never been explained...snip.

Can unexplained seizures be a symptom of celiac disease? I hadn't read that anywhere yet. I have a good friend who's daughter (32 yrs)just started having seizures. She has been tested for everything, (except celiac) and every thing comes out negative. Can you explain this more? Thanks for sharing your story. We pray every week for this young woman at Church...maybe this is the answer to our prayers for her.

Yellow Rose Explorer
Yellow Rose
Posted
  • Author

My understanding is it has to do with not being able to absorb latic acid. I read this early on somewhere on this site. I have been going through the old pages one at a time you might try a search under seizures to see if it comes up. A blood test is easy enough to ask for as a start.

Will pray for your answer.

Yellow Rose

kbtoyssni Contributor
kbtoyssni
Posted
Can unexplained seizures be a symptom of celiac disease? I hadn't read that anywhere yet. I have a good friend who's daughter (32 yrs)just started having seizures. She has been tested for everything, (except celiac) and every thing comes out negative. Can you explain this more? Thanks for sharing your story. We pray every week for this young woman at Church...maybe this is the answer to our prayers for her.

Gosh, practically everything can be a symptom of celiac! :) I also had joint/muscle pain (with a diagnosis of fibromyalgia). The pain was gone in probably a month, but I'd lost a lot of strength and stamina from lying in bed for six months and it took a long time to get that back. Congrats on your diagnosis and welcome to the board!

happygirl Collaborator
happygirl
Posted

YR:

I am so happy you have a diagnosis. It is such a relief! This board is definitely a comfort, and a good place for information.

I would recommend your dr. (and you/your daughter) read:

Dr. Peter Green of Columbia University...."Celiac Disease: A Hidden Epidemic"

his celiac center's website is www.celiacdiseasecenter.columbia.edu

Dr. Alessio Fasano's clinic www.celiaccenter.org

and the NIH awareness campaign for celiac: Open Original Shared Link

Rusla Enthusiast
Rusla
Posted

Yellow Rose, welcome.

I don't know how to answer your question as having arthritis also does not make joint pain go away. However I can answer about the big "D" if you have that...lol

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


lonewolf Collaborator
lonewolf
Posted
Those of you with joint and muscle pain how long before you went into remission?

I had severe arthritis that started getting better after 5 days. Eight months after eliminating dairy, eggs, soy, beans and nightshade vegetables (as well as wheat and gluten) I was able to walk 12-14 hours a day at Disneyland with very little discomfort in my feet. After a year I had no signs at all and added some foods back.

blueeyedmanda Community Regular
blueeyedmanda
Posted

Hi Carole welcome to the board! You will find so much help and support here!!!

Yellow Rose Explorer
Yellow Rose
Posted
  • Author
Hi Carole welcome to the board! You will find so much help and support here!!!

Thanks everyone,

I have noticed this week that I am not as painful since finding the corn tortillias with possible CC. I have only changed that one thing and was better in the beginning before I picked up the wrong brand. In Texas we have HEB grocery and they have an HEB Homestyle corn tortillia that has no wheat and the others listed and they are to die for. HEB, Central Market, and Hill Country Fare are all HEB brands and they have been suprisingly gluten free and inexpensive. The corporate headquarters is very good at getting back to you if it is not on their ready at hand list. I talked with them last week and they are working on mail order for groceries but not there yet. You can order a basket from them with things you want if anyone is interested.

I was at my Dr. last week and can't believe it but I have lost 21 pounds in the last three months.

Yellow Rose

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop...
    2. tiffanygosci
      - tiffanygosci posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Aldi Pueblo Lindo Yellow Corn Tortillas

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products...
    3. tiffanygosci
      - tiffanygosci replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache...
    4. trents
      - trents replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women...
    5. Mari
      - Mari replied to tiffanygosci's topic in Coping with Celiac Disease
      10

      New Celiac Mama in My 30s

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,980
    • Most Online (within 30 mins)
      7,748
    Susan Upchurch
    Newest Member
    Susan Upchurch
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      There is much helpful 'truth' posted on this forum. Truths about Celiac Disease are based on scientific research and people's experience. Celiac disease is inherited. There are 2 main Celiac 'genes' but they are variations of one gene called HLa - DQ What is inherited when a person inherits one or both of the DQ2 or the DQ8 is a predisposition to develop celiac disease after exposure to a environmental trigger. These 2 versions of the DQ gene are useful in diagnosing  celiac disease but there are about 25 other genes that are known to influence celiac disease so this food intolerance is a multigenic autoimmune disease. So with so many genes involved and each person inheriting a different array of these other genes one person's symptoms may be different than another's symptoms.  so many of these other genes.  I don't think that much research on these other genes as yet. So first I wrote something that seem to tie together celiac disease and migraines.  Then you posted that you had migraines and since you went gluten free they only come back when you are glutened. Then Scott showed an article that reported no connection between migraines and celiac disease, Then Trents wrote that it was possible that celiacs had more migraines  and some believed there was a causal effect. You are each telling the truth as you know it or experienced it.   
    • tiffanygosci
      Aldi Pueblo Lindo Yellow Corn Tortillas

      By tiffanygosci · Posted

      Another annoying thing about trying to figure this Celiac life out is reading all of the labels and considering every choice. I shop at Aldi every week and have been for years. I was just officially diagnosed Celiac a couple weeks ago this October after my endoscopy. I've been encouraged by my local Aldi in that they have a lot of gluten free products and clearly labeled foods. I usually buy Milagro corn tortillas because they are cheap and are certified. However, I bought a package of Aldi's Pueblo Lindo Yellow Corn Tortillas without looking too closely (I was assuming they were fine... assuming never gets us anywhere good lol) it doesn't list any wheat products and doesn't say it was processed in a facility with wheat. It has a label that it's lactose free (hello, what?? When has dairy ever been in a tortilla?) Just, ugh. If they can add that label then why can't they just say something is gluten free or not? I did eat some of the tortillas and didn't notice any symptoms but I'm just not sure if it's safe. So I'll probably have to let my family eat them and stick with Milagro. There is way too much uncertainty with this but I guess you just have to stick with the clearly labeled products? I am still learning!
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you all for sharing your experiences! And I am very thankful for that Thanksgiving article, Scott! I will look into it more as I plan my little dinner to bring with on the Holiday I'm also glad a lot of research has been done for Celiac. There's still a lot to learn and discover. And everyone has different symptoms. For me, I get a bad headache right away after eating gluten. Reoccurring migraines and visual disturbances were actually what got my PCP to order a Celiac Panel. I'm glad he did! I feel like when the inflammation hits my body it targets my head, gut, and lower back. I'm still figuring things out but that's what I've noticed after eating gluten! I have been eating gluten-free for almost two months now and haven't had such severe symptoms. I ate a couple accidents along the way but I'm doing a lot better
    • trents
      New Celiac Mama in My 30s

      By trents · Posted

      @Mari, did you read that second article that Scott linked? It is the most recently date one. "Researchers comparing rates of headaches, including migraines, among celiac patients and a healthy control group showed that celiac subjects experienced higher rates of headaches than control subjects, with the greatest rates of migraines found in celiac women.  Additionally, celiacs had higher rates of migraine than control subjects, especially in women. In fact, four out of five women with celiac disease suffered from migraines, and without aura nearly three-quarters of the time."
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      As far as I know and I have made severalonline searches, celiac disease disease has not been recognized as a cause of migraines or any eye problems. What I wrote must have been confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.