Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Peripheral Neropathy


Lisa

Recommended Posts

Lisa Mentor

*toe numbness

*ankle and shin numbness

* thigh tingles

*occasional sharp knee pain and losing support

*Shoulder joint pain.

*All on the same side.

That's right side..............

Left side,

Can't balance on the left side

Hand shaky, right hand is cool,. Any advise would be appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



trents Grand Master

May I ask, how old are you? The symptoms you describe could be reflective of a number of medical conditions or a combination of them, some of them serious. You should be seeking professional medical help if you are not already. Don't assume your symptoms are related to celiac disease and blow it off.

Steve

Lisa Mentor

I am 52 and what do you know that I don't know. I have an appointment on the 28th of this month and gathering all the pertinent information that I can.

trents Grand Master

I don't know anything you don't know. I have worked as a hospital staff chaplain for 15 years and have seen a lot of people who have symptoms similar to what you describe. Some of the things you describe could be cause by everything from a brain tumer to inner ear problems to diabetes to arthritis to fibromyalgia (sp?) to lupis. Those are just some things that come to mind. At 52, you could be experiencing the onset of degenerative diseases of various sorts and my guess would be you have more than one thing going on. I hope you aren't insulted, I'm 56 so I'm furtur along the down slope than you are.

Steve

Canadian Karen Community Regular

Lisa,

Have you been neglecting yourself to care for Hazel? You are too much like me, I know the answer already..... ;)

Alot of it sounds like what I get like when I am over-stressed, and push myself too hard. I don't eat, I don't slow down, I just keep on going until everything that needs to be done gets done, and there never are enough hours in the day, and I find that at 9 p.m., I realize that I haven't even eaten a morsel the whole day..... Then when it's bedtime, I can feel tingling down my arms from my neck seizing up and pain in my hips going through down to my feet..... Then I lay in bed for hours because I can't turn my brain off (or my bowels! LMAO!).....

I would not take any chances though and see if you can get your appt. moved up at all..... Don't just shrug it off.......

Hugs.

Me

Karen B. Explorer
*toe numbness

*ankle and shim numbness

* thigh tingles

*occasional sharp knee pain and losing support

*Shoulder joint pain.

*All on the same side.

That's right side..............

Left side,

Can't balance on the left side

Hand shaky, right hand is cool,. Any advise would be appreciated.

I'd call my doc tomorrow morning, I'm not sure I wouldn't be checking with an ER tonight. I know I wouldn't wait for the appointment on the 28th.

I'm 48 and a co-worker that's about my age started experiencing "mini-strokes" due to stress. There are other things that can also remind us that while 50 may be the new 30, sometimes it's still 50.

If it's nothing but pushing yourself too far, then you're only out the time it took to check on it But if it's something, I don't know of many medical issues that are improved by turning a blind eye. Also, how can you take care of anyone else when you're fighting something like this? As they say on planes, first take care of yourself and then assist the person next to you.

Let us know how you're doing tomorrow.

psawyer Proficient

Lisa, please check your personal messages.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



grey Explorer

My peripheral neuropathy was on both sides, except for the random pains (like being stuck with a hot needle), same thing with the weakness. I think this is fairly typical.

The way that you have things on one side should probably be checked right away - like tonight, or ASAP - as others have been saying. Do you or have you been having headaches? If so, you really might want to go to the ER. You definately want to talk to the doctor before the 28th - do you have access to an oncall md?

It can't hurt to have things checked.

I hope that everything checks out ok and you feel better.

best,

grey

jerseyangel Proficient

Hi Lisa,

I've been having computer problems, but I wanted you to know that I'm thinking about you--but don't have a good answer to your symptoms.

My PN mostly improved on the gluten-free diet--mine was mostly on my left side, except below my knees, where the tingling and stabbing sensations were on both sides.

I still have some numbness on the left side of my face and altered sensations in my left arm.

You've been under more stress than usual, and you mentioned getting glutened by Hazel's pots and pans recently. It could be that, but I agree with everyone that it's best to bring all of this to the attention of your doctor.

Feel better, friend, and keep us posted :)

Lisa Mentor

Thank you for your replies. My symptoms appear to be mild. I will watch it closely and consult with my doctor.

Yes, stress can do a number on you and it's coming at me from all directions. :(

I appreciate your thoughts and a special thanks to those that PM'd me.

VioletBlue Contributor
Thank you for your replies. My symptoms appear to be mild. I will watch it closely and consult with my doctor.

Yes, stress can do a number on you and it's coming at me from all directions. :(

I appreciate your thoughts and a special thanks to those that PM'd me.

Some of the symptoms you describe sound like my sciatic problems. Sciatica has a tendency to radiate down one side of the body, down one leg, out one arm. Nerve pain is not necessarily the only component of sciatica. Numbness tingling and joint pain can happen as well and you are not necessarily aware that it originates from your spine.

I have also experienced neuropathy and it's been a somewhat different experience for me from the sciatica. At one point just before I was diagnosed with Celiac is was particularly bad. I would get sharp sudden stabbing pains, like a needle being stuck in my. My limbs were most often the targets of that. I also used to fall down periodically and not know why. I'd be walking along and suddenly I was on the ground with no sense of having tripped or even fallen. It is the oddest sensation. I still have trouble knowing where my arms and hands are sometimes, LOL. Again, hard to explain, but it's not uncommon for me to slam an arm into a wall going around corners or into furniture.

violet

happygirl Collaborator

MG-

Not sure how I missed this before---just saw it. I'm happy that you have an app't lined up. I don't have any brilliant answers, but I hope that your doctor has some ideas and guides you down the right path.

xoxo

mftnchn Explorer

Just one more tidbit of information. I tend to have my allergy symptoms on the left side, congestion is worse, etc. A naturopathic doctor once told me that this is quite typical.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - SamAlvi replied to SamAlvi's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      High TTG-IgG and Normal TTG-IgA

    2. - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    3. - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

    4. - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

    5. - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,868
    • Most Online (within 30 mins)
      7,748

    yooperjb
    Newest Member
    yooperjb
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • SamAlvi
      Thank you for the clarification and for taking the time to explain the terminology so clearly. I really appreciate your insight, especially the distinction between celiac disease and NCGS and how anemia can point more toward celiac. This was very helpful for me.
    • Jsingh
      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.