Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Begining Probiotics


mhansen

Recommended Posts

mhansen Rookie

My dietician recommended I start on probiotics as my intestines are healing. Anyone have good or bad experiences with these? I found some at whole foods that list gluten free.

Thanks

mhansen


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

I never used them but there are other doctors who recommend exactly the same thing to all people who have just been diagnosed.

richard

Lisa Mentor

I took some for about four days. They did not sit well with me at all and threw them out. I believe the ones that I bought contained dairy. There are some probiotics that are dairy free, but not familiar with which brands.

sfm Apprentice
My dietician recommended I start on probiotics as my intestines are healing. Anyone have good or bad experiences with these? I found some at whole foods that list gluten free.

Thanks

mhansen

If you have a vitamin shoppe near you, they have a gluten free dairy free "Ultimate 10" probiotic (Vitamin Shoppe brand) that my GI was very in favor of. He said it was good that I was getting all 10 strains of beneficial bacteria.

burdee Enthusiast

If you ever took antibiotics, you NEED probiotics. If you abstain from gluten and other foods allergies, but STILL have gas, bloating and/or cramping pains, you NEED probiotics. If you have constipation which is unresolved by dietary fiber, fluids or magnesium supplements, you NEED probiotics. By 'dietary fiber' I don't mean fiber supplements, like 'Fiber Con' or "Metamucil", I mean normal fruits, vegies, whole grains and nuts. If you bruise easily or have other Vitamin K defiency symptoms, you NEED probiotics.

There are effective and ineffective probiotics. Our intestines contain about 500 TRILLION bacteria. If your probiotic doesn't give you at least 100-200 BILLION LIVE organisms per dose, you aren't adding anything to change your bacterial balance. If we don't have enough good bacteria, the bad bacteria can take over or we can develop overgrowths of fungus like Candida Albicans, which is normal in small amounts, but problematic if good bacteria don't keep it in check. Many probiotic products either have limited amounts of good bacteria or they really have 'dead' bacteria. If you must refrigerate the probiotic, the organisms can already be dead when they arrive at the store or they can die en route to your house. If probiotics are not refrigerated or freeze-dried, they probably have dead bacteria. Yogurt products don't supply nearly enough variety or amounts of necessary probiotics. Obviously freeze-dried probiotic supplements are the best.

If you take probiotics and don't notice any reaction, you aren't getting enough live organisms. Effective probiotics SHOULD cause bloating, gas and even some cramping discomfort. If you take a strong dose, the good bacteria will change how your body processes food. So you SHOULD feel some discomfort. Of course, you should check the probiotic product to avoid any food allergens. However, even SAFE probiotics should make you feel uncomfortable at first. When you can take them and not feel discomfort, you probably have enough good bacteria in your gut.

I'm on my third course of high intensity probiotic treatments. I took my first course about a year ago, when the Comprehensive Stool Bacteria and Fungus test (prescribed by my naturopath) showed I had a bad Klebsiella infection. He treated that with Caprylic acid to kill the Klebsi kritters. Then I took 2 weeks of 4 capsule probiotics (freeze dried with 27 billion organisms per capsule) daily to restore my good bacteria, because Caprylic acid killed good bacteria. Afterwards for the first time in my life I had normal stools (soft and regular).

Then I got a bad food born bacterial infection (from eating meat sandwiches left out in the sun too long). When I was retested, I had ZIP good bacteria and an excess of a mild form of E. Coli. So I took priobiotics again. Unfortunately that treatment didn't complete restore my good bacteria level. I should have told my doc that I STILL felt discomfort at the end of that high intensity treatment. However I was so glad to end the discomfort from those probiotics, that I didn't mention that I never felt comfortable, which meant my gut never got enough good bacteria.

8 months later, I retested and my good bacteria were still too low. Now I've almost finished another treatment course of high dose probiotics. Although I felt extreme discomfort when I began those probiotics, I hardly experience any reaction now. This time I took 2 weeks of daily probiotic packets which contained over 170 billion live organisms each (14x170 billion). Within 3 days after beginning that treatment my stools became normal again and I stopped suffering frequent bruises.

I've read probiotics improve gut motility and produce at least half of the vitamin K we need. Before taking the last probiotic treatment, I had a high fiber diet, drank lots of liquids and took a lot of magnesium. That gave me regular, but not soft stools. I also bruised very easily. I no longer suffer those symptoms. I will continue to take daily lower dose probiotic capsules after I finish this high intensity treatment course. If I get hard stools again, I will increase that dosage.

BURDEE

Lizking531 Rookie

Bio-K comes in dairy and non-dairy (soy) variety. The non-dairy is labeled gluten-free. They are the refrigerated small drink type. The non-dairy actually tastes way better. I found these at Wild Oats.

jaten Enthusiast

My GI put me on Flora Q when I was diagnosed with Celiac. It's over-the-counter but most pharmacies keep it behind the counter so you have to ask. Highly recommended.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Karen B. Explorer

I take PB-8 that I get at Whole Foods. I knew about the importance of probiotics before the Celiac diagnosis from back when I was in my 20s and went through 2 years of constant struggle with antibiotics for bladder infections and sinus infections offset by struggles with skin rashes and yeast infections.

My doc of that time laughed at the idea of taking probiotics or eating yogurt. Then a year later, he saw it in an "official" source and told me I might want to consider it. At times like that, I don't think docs give their patients enough credit for impulse control. :-)

Anyone having a problem with recurring bladder infections, I read (may have been People's Pharmacy) that taking extra vitamin C increases the acidity of your urine and discourages bladder infections. Haven't had a problem with recurring infections since then.

jmd3 Contributor
There are effective and ineffective probiotics. Our intestines contain about 500 TRILLION bacteria. If your probiotic doesn't give you at least 100-200 BILLION LIVE organisms per dose, you aren't adding anything to change your bacterial balance. If we don't have enough good bacteria, the bad bacteria can take over or we can develop overgrowths of fungus like Candida Albicans, which is normal in small amounts, but problematic if good bacteria don't keep it in check. Many probiotic products either have limited amounts of good bacteria or they really have 'dead' bacteria. If you must refrigerate the probiotic, the organisms can already be dead when they arrive at the store or they can die en route to your house. If probiotics are not refrigerated or freeze-dried, they probably have dead bacteria. Yogurt products don't supply nearly enough variety or amounts of necessary probiotics. Obviously freeze-dried probiotic supplements are the best.

8 months later, I retested and my good bacteria were still too low. Now I've almost finished another treatment course of high dose probiotics. Although I felt extreme discomfort when I began those probiotics, I hardly experience any reaction now. This time I took 2 weeks of daily probiotic packets which contained over 170 billion live organisms each (14x170 billion). Within 3 days after beginning that treatment my stools became normal again and I stopped suffering frequent bruises.

BURDEE

Which probiotics do you take? The highest probiotic I have seen is 35 billions cfu's.

I am currently taking a probiotic that has about 15 billion cfu - I was taking one in the morning - didn't seem like enough - I have added one in the evening as well. I definately got the rumblings, and gas pains, the good and the evil bacteria fight is now happening...I guess I wasn't taking enough.

What do you think about the enteric coated??

burdee Enthusiast

I just finished a 2 week treatment course of HLC Symbiotic Intensive from Pharmax for people who are especially deficient in good bacteria. This is a freeze dried product which contains 125 billion bacteria per sachet (packet). I mixed each packet with water and took that before my evening meal. I noticed immediate bloating and gas discomfort which decreased during the 2 week treatment course. I notice dramatic improvement in regularity and bruising after a few days of taking that product.

I have also taken the Pharmax HLC high potency probiotic capsules which contain 8 billion highly viable good bacteria per capsule. Those are also freeze dried but refrigerated at my naturopath's office. I took 2-3 of those capsules daily after taking the intensive treatment.

BURDEE

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    2. - Scatterbrain replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    3. - knitty kitty replied to Scatterbrain's topic in Sports and Fitness
      9

      Feel like I’m starting over

    4. - knitty kitty replied to Larzipan's topic in Related Issues & Disorders
      34

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,314
    • Most Online (within 30 mins)
      7,748

    Lisa Gassick
    Newest Member
    Lisa Gassick
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Check your multivitamin to see if it contains Thiamine Mononitrate, which is a "shelf-stable" form of thiamine that doesn't break down with exposure to light, heat, and time sitting on a shelf waiting to be sold.  Our bodies have difficulty absorbing and utilizing it.  Only 30% is absorbed and less can be utilized.   There's some question as to how well multivitamins dissolve in the digestive tract.  You can test this at home.  YouTube has instructional videos.   Talk to your nutritionist about adding a B Complex.  The B vitamins are water soluble, so any excess is easily excreted if not needed.  Consider adding additional Thiamine in the forms Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) or thiamine hydrochloride.   Thiamine is needed to help control electrolytes.  Without sufficient thiamine, the kidneys loose electrolytes easily resulting in low sodium and chloride.   We need extra thiamine when we're emotionally stressed, physically ill, and when we exercise regularly, are an athlete, or do physical labor outdoors, and in hot weather.  Your return to activities and athletics may have depleted your thiamine and other B vitamins to a point symptoms are appearing.   The deficiency symptoms of B vitamins overlap, and can be pretty vague, or easily written off as due to something else like being tired after a busy day.  The symptoms you listed are the same as early B vitamin deficiency symptoms, especially Thiamine.  Thiamine deficiency symptoms can appear in as little as three days.  I recognize the symptoms as those I had when I was deficient.  It can get much worse. "My symptoms are as follows: Dizziness, lightheaded, headaches (mostly sinus), jaw/neck pain, severe tinnitus, joint stiffness, fatigue, irregular heart rate, post exercise muscle fatigue and soreness, brain fog, insomnia.  Generally feeling unwell." I took a B 50 Complex twice a day and extra thiamine in the forms Benfotiamine and TTFD.  I currently take the Ex Plus supplement used in this study which shows B vitamins, especially Thiamine B 1, Riboflavin B2, Pyridoxine B 6, and B12 Cobalamine are very helpful.   A functional evaluation of anti-fatigue and exercise performance improvement following vitamin B complex supplementation in healthy humans, a randomized double-blind trial https://pmc.ncbi.nlm.nih.gov/articles/PMC10542023/
    • Scatterbrain
      I am taking a multivitamin which is pretty bolstered with B’s.  Additional Calcium, D3, Magnesium, Vit C, and Ubiquinol.  Started Creapure creatine monohydrate in June for athletic recovery and brain fog.  I have been working with a Nutritionist along side my Dr. since February.  My TTG IGA levels in January were 52.8 and my DGP IGA was >250 (I don’t know the exact number since it was so high).  All my other labs were normal except Sodium and Chloride which were low.  I have more labs coming up in Dec.  I make my own bread, and don’t eat a lot of processed gluten-free snacks.
    • knitty kitty
      @Scatterbrain, What supplements are you taking? I agree that the problem may be nutritional deficiencies.  It's worth talking to a dietician or nutritionist about.   Did you get a Marsh score at your diagnosis?  Was your tTg IgA level very high?  These can indicate more intestinal damage and poorer absorption of nutrients.   Are you eating processed gluten free food stuffs?  Have you looked into the Autoimmune Protocol Diet?  
    • knitty kitty
      Vitamin and mineral deficiencies can make TMJ worse.  Vitamins like B12 , Thiamine B1, and Pyridoxine B6 help relieve pain.  Half of the patients in one study were deficient in these three vitamins in one study below. Malabsorption of vitamins and minerals is common in celiac disease.  It's important to eat healthy nutrient dense diets like the Autoimmune Protocol Diet, a Paleo diet that has similarities to the Mediterranean diet mentioned in one of the studies.   Is there a link between diet and painful temporomandibular disorders? A cross-sectional study https://pmc.ncbi.nlm.nih.gov/articles/PMC12442269/   Nutritional Strategies for Chronic Craniofacial Pain and Temporomandibular Disorders: Current Clinical and Preclinical Insights https://pmc.ncbi.nlm.nih.gov/articles/PMC11397166/   Serum nutrient deficiencies in the patient with complex temporomandibular joint problems https://pmc.ncbi.nlm.nih.gov/articles/PMC2446412/  
    • Iam
      Yes.  I have had the tmj condition for 40 years. My only help was strictly following celiac and also eliminating soy.  Numerous dental visits and several professionally made bite plates  did very little to help with symptoms
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.