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Thanks For Understanding...

michiamojersey

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michiamojersey Rookie
michiamojersey
Posted

I just need to vent...

I am so glad that I found this website. Finally, I have found people who can say, "I know how you feel" and you know it's real....genuine. How many times have you all heard that? Do they know what it's like to be doubled over in pain? Do they know what it's like to feel the hopelessness when the doctor refers you to a shrink because he/she can't figure out what's wrong with you...it must be in your head, right? Do they know the embarassment you feel when you have to tell a new boyfriend or girlfriend what it means for you to get "sick"? Do they know the self control it takes to not have a slice when all your friends/family are out for pizza? Do they know how it feels to lay awake at night thinking, "What is wrong with me"?! Have they ever felt that defeat when you accidently get "glutened"? Do they know how hard it is to go through your kitchen, bag everything up and give it away leaving you with bare cupboards...not knowing what you are supposed to eat? Do they know how awful some of this gluten-free crap tastes like? Do their mouths water at the thought of one more warm Krispy Kreme? To all of you that have to order salads with no croutons or cheese....who instinctively have an "escape" excuse just in case you get "that feeling" and you need to leave abruptly....to those of us that are forever explaining our "allergy", (and no, you can't just order a burger and take the bun off). We are troopers that have been through the trenches and continue to march on through this gluten-filled world. I salute you....'cause I know how you feel!

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NoGluGirl Contributor
NoGluGirl
Posted

Dear michiamojersey,

Thank you for posting this! Welcome to the forum! It is nice to find others who understand! :) I have been gluten-free almost a year now. Even so, everyone in my family likes to pretend there is no such thing as Celiac, and if so, I could not possibly have it. :rolleyes: My doctor diagnosed me. Apparently, her word is not good enough.

Getting glutened is a real problem. I have to share a kitchen. I am stuck living with my parents, which is really depressing at 24. They tell me to go out and get a job, yet refuse to help me get or stay well. They do not take this seriously at all. I also could have Lyme Disease.

The world is full of stupid people, and alas, many of them seem to be in my family. I have decided to be adopted. :lol: Have you ever thought "How could I be related to these people?" :huh:

It truly is daunting the insensitivity and selfishness others possess. The other night, my parents got Chinese food yet again. I have not had any in nearly a year, and it makes me want to cry! :(

Sincerely,

NoGluGirl

ravenwoodglass Mentor
ravenwoodglass
Posted

All I can add is you sure are in the right place, and we are glad your here. Unfortunately we can all identify real well with your post. Wishing you the best and welcome.

stef-the-kicking-cuty Enthusiast
stef-the-kicking-cuty
Posted

Amen! I seriously considered putting THAT on a t-shirt... lol!

Welcome to the board :lol:

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      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
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      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
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      26F!
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