Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Anyone Out There Have "bladder Spasms"?


Anonymousgurl

Recommended Posts

Anonymousgurl Contributor

deleted


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

My mom has interstitial cystitis, which sounds a lot like what you're describing. I don't know a lot about it, but try poking around the internet some and see what you can find. I do know that it is an autoimmune disease, and I've heard that it can be linked to celiac disease.

I hope you find some relief soon! If it turns out that is what it is, my mom found a lot of relief by changing her diet and by being on some minor medications for a few months.

trents Grand Master

I wouldn't think bladder spasms would give you bloating. You may have a bladder problem, the frequent voiding suggests that (UTI?) but you may also have an intestinal malady like colitis.

Steve

jerseyangel Proficient

I had diagnosed bladder spasms after my hysterectomy. They are quite common after abdominal surgery.

They don't cause bloating--the main symptom is pain while urinating. Not to be confused with the burning of an infection, this pain is sharp and in the area of the bladder.

loraleena Contributor

I too have intersticial cystitis which includes these symtoms. Google it to read more. It can come and go, but I have been flaring for a couple months now. Bloating happens a lot with this. I can be fine, then I flare up, am uncomfortable and have to pee a lot. The bloating is crazy. Way more than from when I eat. Sometimes I look 5 months pregnant!

imsohungry Collaborator
I too have intersticial cystitis which includes these symtoms. Google it to read more. It can come and go, but I have been flaring for a couple months now. Bloating happens a lot with this. I can be fine, then I flare up, am uncomfortable and have to pee a lot. The bloating is crazy. Way more than from when I eat. Sometimes I look 5 months pregnant!

Yep, I have the same issue with the bloating b/c of IC. I often can't zip my pants all the way...when that's the case, I just put on a long t-shirt to hide my underwear :ph34r: (It's nobody's business if I'm wearing bikini cut or my "granny panties" that day!) :P

Good luck to you, Peacenlove, bladder spasms can indicate any number of things. Make an appointment with your OB/GYN and see if she'll refer you to a urologist if she can't find the problem.

Best wishes. -Julie

Anonymousgurl Contributor

Thank you so much, all of you, for your input.

Have any of you found any relief when you're spasming (or i jmengert's case, relief for your mom)? I tried to look up natural remedies for interstitial cystitis but I didn't come up with anything.

I hope you're all feeling well and your spasms are under control! I'm having a good today and haven't had any (though I do still have some boating, gosh I feel your pain with that one!). Does anyone know of any specific foods that cause their spasms? I know gluten is a huge one for me, but I also can't seem to tolerate oil at all...my diet has to be nonfat, which I know isn't the healthiest thing in the world.

But anyways, thanks so much...it helps to know that other people have experienced some of the same things I have!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



jmengert Enthusiast

I know the big trigger foods for my mom are anything with acid--tomatoes, lemons, etc. Bananas are also bad, as are cranberries, interestingly since they are supposed to help UTIs. Her doctor (a specialist in IC) gave her a long list of foods to avoid. Between that and the antibiotics, she's pretty much in remission. She does avoid those foods, though, all the time.

She told me that she took Uristat (the OTC meds for UTI infection pain relief) for when the spasms got really bad, and that helped somewhat.

Betty in Texas Newbie

What a connection I had bladder problems all my life I was 52 when I got dig with celiac. I would have to soak in hot bath water for hours sometimes it would happen at 3;00 in the morning I would cry, I would have to be dialated to help with the pain and that would help to urinen to come out easier. I have been gluten free for 4 years and not more problems with the bladder it is like a miracal. Thank God.

loraleena Contributor

There is an IC diet. It includes acidic foods , but also a lot more. Check it out on line. I use a homeopathic remedy called Cantharsis at 30c. It helps a lot. I also use a natural remedy called Cysta Q. Both seem to be helping. I take the Cantharsis 6pellets four times a day. I take 2 Cysta Q a day. One with breakfast and one with dinner. I also follow the diet.

imsohungry Collaborator

How ya feeling peacenlove,

Have your bladder spasms calmed down?

Take Care,

Julie :)

Anonymousgurl Contributor
How ya feeling peacenlove,

Have your bladder spasms calmed down?

Take Care,

Julie :)

Thanks Everyone, I really appreciate the input.

You're too sweet Julie :) I'm doing okay. For a few days I didn't have any spasms but today I tried to introduce an omega 6 capsule and had terrible spasms. I also had some pretty bad ones yesterday when I tried a B12 capsule. I checked to make sure that they are both gluten free and they are. I just seem to have a terrible time with fatty acids, even just a capsule full.

And how are you? I hope all is well!

ElenaDragon Explorer

Hello, I have Interstitial Cystitis. When it started, I had pain nearly all the time and felt like I had to pee all the time. It felt like a UTI, but without bacteria present. Early on I followed the IC diet, which is more complicated than just avoiding acidic foods... there is quite a long list of foods to avoid, foods that are safe, and foods that may or may not be okay. Still I was having problems.

There is a medication for IC called Elmiron which has helped me quite a bit once I was diagnosed. It takes many months to begin to work, but once it did I could be much more lenient with my diet and only avoid the most acidic things. I also take an over the counter supplement called Prelief before I eat acidic foods, which will take the acid out of foods when you eat them. The supplement is simply a form of calcium. Also, some people have success with freeze dried aloe vera capsules, but be careful because you would need the ones that don't have added acid and that have the laxative part of the plant removed. The most recommended brand for bladder issues is Desert Harvest.

A site I found extremely helpful for getting myself a diagnosis and figuring out the diet and other treatments is Open Original Shared Link, especially the message boards there.

Hope this helps! :)

loraleena Contributor

I would try natural stuff first if you can. I also use prelief before everything I eat. Regarding the B-vitamins. For some reason they trigger bladder symptoms in IC patients. Not sure what to do about this because I really need to take them also. A lot of people take the cysta q with the Dessert Essence aloe vera. Good luck.

DOCKLEARFAN Apprentice
Most afternoons I get these spasms in my mid section, along with some pretty bad bloating which I can't seem to get rid of (if you catch my drift...). I used to think that it was intestinal bloating and intestinal spasms, but now I'm starting to think that it may be my bladder. I have to "go" ALL the time...just about every hour or hour and a half...and I've read a little bit about "bladder spasms" and that seems to be a symptom....I was just wondering if anyone has had a similar experience with this or if they know anything about these symptoms. I just want the spasms to go away, and for my tummy to shrink back to normal!

I posted a similar response awhile ago, but its worth another post. I had massive intestinal spasms all the time. They were embarrasing as #$#@@

Anyway, there is a drug called Hyoscyamine and is controls intestinal spasms.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Ibuprofen

    2. - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      My only proof

    3. - Scott Adams replied to wellthatsfun's topic in Coping with Celiac Disease
      1

      still struggling with cravings

    4. - Scott Adams replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Oh my goodness medication causing pain !!!!

    5. - Scott Adams replied to Me,Sue's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Knowing what to do when feeling unwell.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,869
    • Most Online (within 30 mins)
      7,748

    Stacy W
    Newest Member
    Stacy W
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi Colleen Are you supplementing B12/having injections? I have learned recently that sometimes when you start addressing a B12 deficiency, it can temporarily make your symptoms worse.  But it is important not to stop the treatment.  Regarding your problems with anxiety, again that is another symptom of a B12 deficiency.   I didn't know what anxiety was until it hit me like a train several months before gastrointestinal issues began, so I can certainly relate.   Two books which helped me hugely were At Last A Life by Paul David (there is a website you can look up) and The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi.  Although his book is aimed at people who have depression, following the principals he sets out was so helpful in lessening my anxiety.  Llardi suggests we need to focus on getting enough: - physical exercise - omega-3 fatty acids - natural sunlight exposure - restorative sleep - social connectedness - meaningful, engaging activity   ... and we should feel a lot better. That is not to stay you must stop taking medication for depression or anxiety if you have been prescribed it, but adopting the changes Dr Llardi sets out in the book should really help. Can I just ask two more questions:  1) you say that you are B12 deficient, did they test your iron levels too?  If not, you really ought to be checked for deficiency and, 2) did they check your thyroid function, as an overactive thyroid can be cause rapid heartbeat and a lot of coeliacs have thyroid issues? Cristiana        
    • Jmartes71
      Hello still dancing around my celiac disease and not getting medically backed up considering Ive been glutenfree since 1994.All my ailments are the core issue of my ghost disease aka celiac disease. Im angery because the "celiac specialist " basically lightly dismissed me.Im extremely angery and fighting for a new primary care physician which is hard to do in Northern Cali.So currently without and looking.Im angery that its lightly taken when its extremely serious to the one who has it.My only evidence is a brochure back in the days when I got news letters when I lived at my parents.It was published in 1998.I was diagnosed before any foods eliminated from my diet. Angery doctors don't take seriously when Im clearly speaking.I did write to the medicine of congress and have case number.
    • Scott Adams
      I totally get this. It's absolutely a grieving process, and it's okay to feel gutted about the loss of those simple joys, especially at 18. Your feelings are completely valid—it's not about being ungrateful for your amazing boyfriend, it's about mourning the life you thought you'd have. That "tortured by the smell" feeling is so real. It does get easier, I promise, but it's okay to sit in the sadness and just vent about how much it stings right now. Thanks for sharing that. Celiac.com has published a book on our site by Jean Duane PhD called Gluten-Centric Culture, which covers many of the social aspects of having celiac disease: This chapter in particular covers issues around eating with family and others - Gluten-Centric Culture: Chapter 5 - Grabbing A Bite Together:    
    • Scott Adams
      Many of us with celiac find that the fillers in medications can cause a reaction, and sometimes our bodies just process things weirdly. That "rebound muscle pain" and "burning feet" you described sounds awful and is a huge red flag. It's frustrating enough managing the diet without medication causing setbacks. So sorry you're dealing with this, but you're definitely on the right track by connecting the dots. You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      It's so tough when you're doing everything right and still get hit with it. I'm glad you're figuring out a system that works for you—the peppermint tea and rehydration powders are smart moves. It sounds like you've really learned to listen to your body, and that's half the battle. Sticking to simple, safe food at home is the best way to build yourself back up. It's great you can take the time to rest properly. Thanks for sharing what works; it's a big help to others figuring this out too. This article, and the comments below it, may be helpful:    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.