Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Feel Awful After Endoscopy/biopsy...is This Normal?


JustCan

Recommended Posts

JustCan Explorer

Hi Everyone,

I have been going through the process of getting diagnosed over the past few months and have found this site to be such a great resource. This is my first time posting and I'm hoping that someone can help. I started eating gluten free about 4 months ago. Being gluten-free made such a difference and I felt great. My primary doc did the blood tests for celiac while I was gluten-free and they came back negative (big surprise) so he sent me to a gastroenterologist who thinks I do have celiac and wanted to do the biopsy. Long story short, I did a 4 week gluten challenge (awful as you can imagine) and then had the biopsy done yesterday. My doc told me to go back to the gluten-free diet regardless of the results since it obviously works for me but I have felt awful since the test yesterday. I stopped eating any gluten right after the test but I'm not sure if my symptoms (stomach ache, bloating, dizziness, extreme tiredness, etc.) are from my gluten challenge, the anesthesia during the test, the test itself or maybe a combination of all three.

Did this happen to anyone else? I know it can take a little while to feel better now that I'm back on the gluten-free diet but I wanted to see if this seemed normal. I guess it was wishful thinking that I would instantly feel better!

Thanks so much!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



blueeyedmanda Community Regular

After my endo I was very tired for quite a few days, I remember sleeping the entire day after having it done. It took me a few days to feel normal again. Surprisingly I was up and normal more quickly after the colonoscopy, the first few hours were uncomfortable but I slept it off and was not even fatigued.

Lisa Mentor

Many people respond differently to anesthesia and invasive proceedures. I slept into the night when I returned home. In addition, it could be the results of your gluten challenge. In a few days, I expect that you will feel much betther.

Welcome and please feel free to join us or ask any question you may have.

darkangel Rookie

You might feel a little groggy from the anesthesia in the hours immediately following your procedure, but I'm betting the symptoms you describe are more from a month of gluten. It may take your system a while to get back to normal.

melmak5 Contributor

It took me 2 full days to recover. I was exhausted, and kept dropping things. By the third day I felt like I could run a marathon; it was like a giant cloud lifted.

Good luck getting healthy!

melrobsings Contributor

It takes me a few days. The drugs make me projectile vomit...

Phyllis28 Apprentice

I had an endoscopy along with a colonscopy done about two weeks ago. I was very tired the next day and had a mild headache. For me, I believe it was the anesthesia.

Hope you feel better soon.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Mickide Apprentice

I felt terrible after mine. Took me about 2 days to feel better. Tired, nauseas, vomiting, stomach pains, the works... My in laws thought I would be just fine and brought my 2 little ones home 30 mins after I got home! Aurg.. Hope you feel better!!

darkangel Rookie

Wow. I stand corrected. I must be in the minority.

jerseyangel Proficient
Wow. I stand corrected. I must be in the minority.

I must be, too. I had a colo and endo on the same day. I felt fine afterward--even stopped at Whole Foods on the way home because the doctor told me to go gluten-free/lactose free that day. (Husband drove)

For the OP, it is probably a combination of the meds used and the effects of the gluten challenge. Everyone's different, though, and we all can experience the exact same thing so differently.

Judyin Philly Enthusiast

I had both a couple of weeks ago w/o the gluten challange.

I felt great the week and a half after with the clean colon I think...but now returning to old stuff BUT...SINCE I didn't do the gluten challange and have been gluten-free etc for 2 + years...I'M BETTING YOU'LL FEEL GREAT ONCE THE OLD GLUTEN IS TOTALLY OUT OF YOUR SYSTEM.

GOOD LUCK

  • 1 year later...
Amber M Explorer
I had both a couple of weeks ago w/o the gluten challange.

I felt great the week and a half after with the clean colon I think...but now returning to old stuff BUT...SINCE I didn't do the gluten challange and have been gluten-free etc for 2 + years...I'M BETTING YOU'LL FEEL GREAT ONCE THE OLD GLUTEN IS TOTALLY OUT OF YOUR SYSTEM.

GOOD LUCK

My question is, is all of the drugs they give you gluten free? My friend just had a breast biopsy. She has been gluten free for over 8 months along with me and they had to knock her out for this test. Of the 6 drugs they gave her, we could only find 3 on the "gluten free meds" list. She has been having neurological problems for a week now, similar to mine caused by gluten. She is not well at all. Can't drive or work. I was wondering if the drugs had gluten and of course being shot straight into the blood stream would go right to the base of the brain that is affected by gluten. I will be getting the actual names of the drugs that were not on the list of "gluten free" and will do some research. This is a serious matter and we need to know. Anyone else know anything about this?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,206
    • Most Online (within 30 mins)
      7,748

    S.Craigwell
    Newest Member
    S.Craigwell
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
    • Xravith
      I'm very confused... My blood test came out negative, I checked all antibodies. I suppose my Total IgA levels are normal (132 mg/dl), so the test should be reliable. Still, I'm not relieved as I can't tolerate even a single biscuit. I need to talk to my doctor about whether a duodenal biopsy is necessary. But it is really possible to have intestinal damage despite having a seronegative results? I have really strong symptoms, and I don't want to keep skipping university lectures or being bedridden at home.
    • Scott Adams
      They may want to also eliminate other possible causes for your symptoms/issues and are doing additional tests.  Here is info about blood tests for celiac disease--if positive an endoscopy where biopsies of your intestinal villi are taken to confirm is the typical follow up.    
    • Scott Adams
      In the Europe the new protocol for making a celiac disease diagnosis in children is if their tTg-IgA (tissue transglutaminase IgA) levels are 10 times or above the positive level for celiac disease--and you are above that level. According to the latest research, if the blood test results are at certain high levels that range between 5-10 times the reference range for a positive celiac disease diagnosis, it may not be necessary to confirm the results using an endoscopy/biopsy: Blood Test Alone Can Diagnose Celiac Disease in Most Children and Adults TGA-IgA at or Above Five Times Normal Limit in Kids Indicates Celiac Disease in Nearly All Cases No More Biopsies to Diagnose Celiac Disease in Children! May I ask why you've had so many past tTg-IgA tests done, and many of them seem to have been done 3 times during short time intervals?    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.