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Got My Test Results

horsegirl

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horsegirl Enthusiast
horsegirl
Posted

I just got my results from Enterolab, & everything was positive.

Plus, the gene tests showed I am positive for the HLA-DQ 1,1 genes (2 copies).

(Specifically: HLA-DQB1, allele 1 06xx

and HLA-DQB1, allele 2 06xx).

RATS!!!!!!!!!!

No wonder I've had so many severe neurological symptoms, rather than the more "typical" GI/tummy problems (which I've had, but to a much smaller degree).

Now, I'm worried because this means my daughter (3 1/2 years old) also has at least 1 copy of the HLA-DQ 1 gene too. I know I need to get her tested, but I need to process this first.

AND, I also have the anti-casein antibody (21 units, with normal range being <10), so I have

to contend with the gluten-free and casein-free diet.

Anyone who can offer support, ideas, suggestions, hugs, etc, etc to help me deal with this would be much appreciated. I'm going for the EGD/biopsy tomorrow, so we'll see if there's intestinal damage too, although I've only been back on gluten for 6 weeks (was gluten free for 5 months before then).

Wish me luck!

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neesee Apprentice
neesee
Posted

Unless you are asian with DQ4 everyone has gluten sensitive genes according to Enterlolab. However, you don't have the genes for celiac.

neesee

confused Community Regular
confused
Posted
I just got my results from Enterolab, & everything was positive.

Plus, the gene tests showed I am positive for the HLA-DQ 1,1 genes (2 copies).

(Specifically: HLA-DQB1, allele 1 06xx

and HLA-DQB1, allele 2 06xx).

RATS!!!!!!!!!!

No wonder I've had so many severe neurological symptoms, rather than the more "typical" GI/tummy problems (which I've had, but to a much smaller degree).

Now, I'm worried because this means my daughter (3 1/2 years old) also has at least 1 copy of the HLA-DQ 1 gene too. I know I need to get her tested, but I need to process this first.

AND, I also have the anti-casein antibody (21 units, with normal range being <10), so I have

to contend with the gluten-free and casein-free diet.

Anyone who can offer support, ideas, suggestions, hugs, etc, etc to help me deal with this would be much appreciated. I'm going for the EGD/biopsy tomorrow, so we'll see if there's intestinal damage too, although I've only been back on gluten for 6 weeks (was gluten free for 5 months before then).

Wish me luck!

Did you have malabosrption?

paula

gfpaperdoll Rookie
gfpaperdoll
Posted

Hi horsegirl, I offer you a lot of hugs & all my sympathies...

I am also double DQ1 & yes, most people do not get it that gluten makes us sooooo sick.

you will be much healthier and will not have to go thru a lifetime of damaging your body (&the brain) like I have.

since my mother died of colon cancer & I know so many other double DQ1 people that are so sick I wonder if it is the DQ1 & DQ3 people that get all the other diseases like cancer and the other auto immune illnesses & maybe the DQ2 & DQ8 people only get celiac.

& yes, I think that 90% of the American Northern Europen type people should not be eating gluten or dairy.

oh yea, most of us DQ1 people cannot do dairy either & we have a lot of other food allergies. Lucky you if you do not have any other allergies.

Don't worry about your little girl, she will be healthier not eating gluten & the times are a'changin so no telling what the food supply will be like in 30 years. wheat is a cheap inexpensive way to feed the masses...

Guest Doll
Guest Doll
Posted
Hi horsegirl, I offer you a lot of hugs & all my sympathies...

I am also double DQ1 & yes, most people do not get it that gluten makes us sooooo sick.

you will be much healthier and will not have to go thru a lifetime of damaging your body (&the brain) like I have.

since my mother died of colon cancer & I know so many other double DQ1 people that are so sick I wonder if it is the DQ1 & DQ3 people that get all the other diseases like cancer and the other auto immune illnesses & maybe the DQ2 & DQ8 people only get celiac.

& yes, I think that 90% of the American Northern Europen type people should not be eating gluten or dairy.

oh yea, most of us DQ1 people cannot do dairy either & we have a lot of other food allergies. Lucky you if you do not have any other allergies.

Don't worry about your little girl, she will be healthier not eating gluten & the times are a'changin so no telling what the food supply will be like in 30 years. wheat is a cheap inexpensive way to feed the masses...

Actually, DQ2 and DQ8 *are* linked with other autoimmune diseases. Especially Type 1 diabetes, MS, and RA.

Open Original Shared Link

Open Original Shared Link

There is shared genetics among Celiac and all of these other diseases.

EBsMom Apprentice
EBsMom
Posted
I just got my results from Enterolab, & everything was positive.....<snip>

Now, I'm worried because this means my daughter (3 1/2 years old) also has at least 1 copy of the HLA-DQ 1 gene too. I know I need to get her tested, but I need to process this first.

Hi Horsegirl -

I just got results back from Enterolab yesterday, too, for my ds and myself. We're already gluten-free, along with my dd, who was the first to be diagnosed with a gluten sensitivity. It's a family affair for us (and many others.) Both my dd and myself also react to casein, so we're gluten-free/cf. At first I found the cf part to be difficult, but we've become accustomed to it. The thing that has helped me the most is just not keeping dairy-type things that we used to like in the house. If my son or dh want ice cream, they can go out for it. I buy sorbets, juice bars, etc., to keep in our freezer at home. I also only buy cheese that my dd doesn't like - it makes it easer for her. I've also been combing my cookbooks and online sites for flavor-full recipes that are gluten-free/cf, and making oversized batches of whatever I find. Not having quick convenience meals and snacks was very hard for me at first, but when I have a fridge full of leftovers, there's always something to eat when we're in a hurry. It's a lifestyle change, to be sure, but I'm starting to see that it's not all bad. My kids think my cooking is better these days (blush) and I definitely pay more attention to what goes in our mouths now. We were always pretty healthy eaters, so I never supplemented with vitamins. I now have both kids and myself on multivites, just to make sure our bases are covered.

Anyway - welcome (to the ranks of the gluten sensitive!) I wasn't completely sure that I belonged here either (except as mom to a gluten-senstive girl) until yesterday. Good luck with your endo....let us know what it shows. And I hear you about processsing before you address your child's potential issues. One step at a time works very well in this world (gluten-free or otherwise.)

Rho

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