Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Enterolab Test

Sally's Mommy

Recommended Posts

Sally's Mommy Newbie
Sally's Mommy
Posted

I have posted here off and on, questioning whether or not my daughter and I have problems with gluten sensitivity. I finally ordered the Enterolab test, and it came back negative! I wanted to post this, because I know the question often comes up wondering whether or not anyone ever gets a negative test from them. Well, I did! I'm relieved, but still wondering what's up with me. I do have psoriasis, and I do have loose stool (in fact, that was the one "positive" on my Enterolab test--my fecal fat score). I'm not sure what to make of that, but I guess I'll have to play around with my diet and figure out what's up there.

Anyway, yes Enterolab DOES come back negative for some people! Hope that helps someone on the fence about testing with them.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


bakinghomesteader Contributor
bakinghomesteader
Posted

That is so weird! I was just going to post that question. "Has anyone ever gotten a negative result from Enterolab" I just got mine back today, they were positive. Just confirmed what I thought. Now my husband will be even more supportive. :P

CarlaB Enthusiast
CarlaB
Posted

You might look into bacterial dysbiosis, it can cause malabsorption and diarrhea, and a whole slew of other symptoms.

Congrats on the negative test!!!!

gfpaperdoll Rookie
gfpaperdoll
Posted

I would pursue other testing but I would also go back to enterolab & get the gene test.

Also, you can just do a dietary trial & see if you get better, if you do then there is your answer...

dally099 Contributor
dally099
Posted

hi there, my tests were negative as well, by one point, however my gene screening came back that im a DQ8, sooooo i talked to the nurse there and she told me that i probably caught it early a year from now the numbers would probably be higher, so i have been gluten free for 6 months now and feel much better. good luck in your search, i hope you are feeling better soon,

confused Community Regular
confused
Posted
I have posted here off and on, questioning whether or not my daughter and I have problems with gluten sensitivity. I finally ordered the Enterolab test, and it came back negative! I wanted to post this, because I know the question often comes up wondering whether or not anyone ever gets a negative test from them. Well, I did! I'm relieved, but still wondering what's up with me. I do have psoriasis, and I do have loose stool (in fact, that was the one "positive" on my Enterolab test--my fecal fat score). I'm not sure what to make of that, but I guess I'll have to play around with my diet and figure out what's up there.

Anyway, yes Enterolab DOES come back negative for some people! Hope that helps someone on the fence about testing with them.

Did you get the casein test to, or just the basic stool testing with the malabsorption. Casein could be causing the malabsorption. Would you mind posting all of your scores. It could be possible that maybe u are just IGa deficient and still be reacting to gluten.

paula

Sally's Mommy Newbie
Sally's Mommy
Posted
  • Author
Would you mind posting all of your scores. It could be possible that maybe u are just IGa deficient and still be reacting to gluten.

paula

Sure--here are my results:

Fecal Antigliadin IgA 9 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 399 Units (Normal Range <300 Units)

Cow's Milk Protein Sensitivity Stool Test

Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal Range <10 Units)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

I did not get the gene testing done. Maybe I should have, but from what I've seen on here (and several months back there was a big discussion about this) pretty much everyone shows up as having genes that could predispose them to celiac disease. Right? :blink:

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


holiday16 Enthusiast
holiday16
Posted

Just have to add that I called and talked with the nurse at Enterolab because so many people in my family got tested and the results would be borderline postive except for one person that was borderline negative. My question to her was if it was possible that showed a trend towards possible low IGA since it is genetic. She thought it might so I went to my Dr. and had my total IGA tested. It came back as about 67 the first time and 71 the second time I had it rechecked, with the lower end of normal being 80. So it was low, but not super low. It would be enough to skew the results of the test however. Even though my symptoms were so severe and I am super sensitive to gluten I only scored an 11 which didn't quite match up, but having low IGA explained why my numbers were so low and yet I improved so much.

Just another factor to consider as someone mentioned. I think celiacs are 10 times more likely to have low IGA if I remember right.

PeggyV Apprentice
PeggyV
Posted
Sure--here are my results:

Fecal Antigliadin IgA 9 (Normal Range <10 Units)

Fecal Antitissue Transglutaminase IgA 9 Units (Normal Range <10 Units)

Quantitative Microscopic Fecal Fat Score 399 Units (Normal Range <300 Units)

Cow's Milk Protein Sensitivity Stool Test

Fecal anti-casein (cow's milk) IgA antibody 8 Units (Normal Range <10 Units)

Acute/Chronic Colitis Stool Test

Fecal lactoferrin Negative (Normal - Negative)

I did not get the gene testing done. Maybe I should have, but from what I've seen on here (and several months back there was a big discussion about this) pretty much everyone shows up as having genes that could predispose them to celiac disease. Right? :blink:

I had the Enterolab test done also. I was in the normal range also, even though they told me my Fecal Fat score was 435. I had the gene test and they told me I had 2 gluten intolerant genes. HA-DQ 3,1 (subtype 9,5) they told me I had no active gluten sensitivity. I had been gluten free about 5 months and gluten light for years.

I have been gluten free almost a year now, and I do know that if I accidently consume gluten in even small amounts I bloat up, get D, get a sharp pain down my leg, get back aches and feel tired this lasts for days up to 2 weeks. I also break out in clusters of small blisters the itch terribly and turn bright red/purple, usually on my hands, arms, stomach, legs and recently foot. Despite what Entrolab says, I strongly suspect I have Celiacs and dont plan to change my diet. I cant even imagine what eating gluten again on purpose would do! I am not going to pursue a diagnosis because we are retiring in the next 5 years and will need to find insurance.

Good luck, I hope you find what is wrong.

Peggy

dally099 Contributor
dally099
Posted

i would say you are pretty borderline, talk with the nurse at entrolab and get her thoughts. their are pretty helpfull there, GOOD LUCK

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,733
    • Most Online (within 30 mins)
      7,748
    Debydear
    Newest Member
    Debydear
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Theresa2407
      How Come Gluten Didnt Bother Me In Italy

      By Theresa2407 · Posted

      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      How Come Gluten Didnt Bother Me In Italy

      By Gigi2025 · Posted

      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Possible celiac - need advice

      By Scott Adams · Posted

      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      Celiac or not??

      By Scott Adams · Posted

      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      How Come Gluten Didnt Bother Me In Italy

      By Scott Adams · Posted

      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.