Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

We Need Help!


sully

Recommended Posts

sully Newbie

We are new to the gluten free diet. Our son is 2 years old and has serious balance and gait issues so we are trying it for a while. Can you tell us some ingredients we should be looking out for on ingredients lists that don't specifically say wheat or gluten but could contain gluten. We have emailed some companies to see if they are gluten free and they say to read the label, but we don't know what some the ingredients are most of the time. Things like, maltodextrin, dextrose, caramel color, natural flavors, turmeric, natural pork flavor. I could go on forever. Is there a list somewhere that tells you what these things are?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



JNBunnie1 Community Regular

Hi Sully, there's a list on the homepage of this website, it's in the list of links and it says it's a link for a list of ok and not ok ingredients. You might want to print it out and keep it in your purse. There's also a person here named NoGluGirl who has a list of stuff that's ok at Walmart, but ingredients change, so always read labels, even if you bought the same thing a week ago!

JennyC Enthusiast

Your BEST bet is to stick with companies that will not hide their gluten in vague ingredients. I will post a link to those companies. You should call these companies yourself. It gives you good practice and then you know for sure. Besides, some of the companies might not have the best policies about labeling gluten (Like Campbell's?). Anyway, the list is pretty actuate--not absolutely perfect. My favorite mainstream companies are Kraft and General Mills. Other companies have good lists like Ora-Ida, Hormel, Frito-Lay, and so on. If there are other products that you love and you suspect that they may be gluten free, then you should call the company.

Now to really answer your question. The major ingredients that I watch for are natural flavoring, flavoring, spices, and broth. Modified food starch is more about personal preference. If modified food starch is made out of wheat it has to be disclaimed, as wheat is one of the top 8 allergens. In theory, MFS could be made out of barley, rye or oats, but it is basically unheard of.

Here's my policy. I try to stick with companies that either label their products gluten free or will clearly list their ingredients. I also use some gluten free lists provided by companies. I mostly buy name brands, or Walmart brands. If I pick up a product that does not fall into the above categories and it contains an ingredient like natural flavorings, flavorings or broth I put it back and choose an alternative product.

Open Original Shared Link

Don't worry, it gets much easier to buy food as time goes on. :)

Guest j_mommy

Here is the list I take shopping with me!

https://www.celiac.com/st_prod.html?p_prodi...-30107237049.ca

adufek Newbie
We are new to the gluten free diet. Our son is 2 years old and has serious balance and gait issues so we are trying it for a while. Can you tell us some ingredients we should be looking out for on ingredients lists that don't specifically say wheat or gluten but could contain gluten. We have emailed some companies to see if they are gluten free and they say to read the label, but we don't know what some the ingredients are most of the time. Things like, maltodextrin, dextrose, caramel color, natural flavors, turmeric, natural pork flavor. I could go on forever. Is there a list somewhere that tells you what these things are?

The Canadian Celiac Society (www.celiac.ca) has a poket dictionary that fits easily in your purse for when your shopping and lists all the ingredients you can and cannot have on the gluten free diet, very handy, I love mine. I'm not sure where you live but if you live in Canada you can order through the site (Products - Booklets). Hope this helps.

happygirl Collaborator

See this link, from a very recent thread: Open Original Shared Link

Aligray Apprentice

Sully,

I used the safe list and forbidden list from this site. It is printed out and i refer to it regularly.

I know it can be EXTREMELY OVERWHELMING at first but stick with it! I ate so little when i was first diagnosed. I NEVER shopped at walmart b/c i was terrified to read the labels.

BUT BUT BUT.......

As time goes on, and as you familiarize yourself with the lists then it becomes second nature. I can read a label in 5.5 seconds now :lol: Serious!

Good luck to you guys! It gets better! Hang in there!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - cristiana replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    2. - trents replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    3. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    4. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here

    5. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      4

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,817
    • Most Online (within 30 mins)
      7,748

    sleuth
    Newest Member
    sleuth
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • cristiana
      Hi @KathyR37 and a very warm welcome here.  I am so very sorry that you are going through all of this. I just wanted to check, have you ever been tested for any other gastrointestinal conditions? Cristiana  
    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.