Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Think I'm Getting Glutened

confusedks

By confusedks
in Coping with Celiac Disease

Recommended Posts

Mom23boys Contributor
Mom23boys
Posted

My family was the same way when I went milk free. I would even buy my milk free foods and they would eat them all up then complain about how nasty they were. I'd complain then they would tell me how selfish I was. :( Even though I'm old enough to be your parents, I completely understand!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


NoGluGirl Contributor
NoGluGirl
Posted

Dear Kassandra,

I am with you, here! My parents are the same way. They get crumbs all over the place! Then, they treat you like you are a lunatic! If they were the ones becoming so ill from it, they would not take that attitude!

Dear Mom23boys,

That is exactly how it is! People will complain and say you are selfish, when they are the ones who are! That is so aggravating! Even worse, we are the ones who suffer for it. I want to be well and able to move out on my own so I do not have to worry about gluten getting in my things anymore.

Sincerely,

NoGluGirl

Ridgewalker Contributor
Ridgewalker
Posted

I have heard many stories about people getting glutened because of gluten/gluten-free shared kitchens, but this really is awful. I am truly shocked at what you two are having to put up with in your own homes, with your own family members!

The thing is... it isn't THAT hard to minimize the cc risks, as long as everyone in the house is careful and puts in a tiny amount of effort. My son has not shown any symptoms of being glutened by cc in the house since the first few weeks! All it takes is a couple separate utensils/appliances, and good cleaning practices, which become habit very quickly... I'm kind of appalled that your families refuse to put forth that small effort.

I am so sorry you're having to deal with this crap-- I wish there was something I could do!!!

-Sarah

NoGluGirl Contributor
NoGluGirl
Posted

Dear Sarah,

Thank you for your kind thoughts. :) Sometimes, that is better than anything else you could do. The frustration is difficult to deal with. I wish I could be well enough to work and move out on my own. Then I would not have to worry about it. Where I live, you could have all of your limbs missing, and they would find a reason not to give you disability.

It just amazes you how inconsiderate other people are, and then have the nerve to call you self-centered. They refer to you as obsessed. People do not understand that Celiac truly dictates most aspects if not all things in your life. I get violently ill from a microscopic crumb. I really do not feel I am overdoing it. No one would want to become that ill if it is preventable.

Sincerely,

NoGluGirl

confusedks Enthusiast
confusedks
Posted
  • Author

Sarah,

Thank you! It is really hard because I am really worried about a smooth school year and on top of it, I have to make sure everything I eat is gluten-free and not cc'd. Tonight I went to cut apples and realized there was bagel crumbs everywhere!!! :angry: It's kinda the last thing I need to be worrying about, but my mom won't go completely gluten free in the house! Ugh, well the good news is when I have kids (a LONG ways away from now) I will have a gluten-free house and if they want non gluten-free food, they can eat it out...friends houses, etc. So my mom has shown me what I don't want! Lol

Thanks again,

Kassandra

PatBrown Newbie
PatBrown
Posted

If you dont get your own fridge put your stuff in a drawer (veggie or meat). Sometimes they(men and boys) are relly to lazy to search and just grab whats in clear view.

NoGluGirl Contributor
NoGluGirl
Posted

Dear Pat,

You are right about that! My dad does that stuff! He will be like "Where is it?" I told him "Move the jelly." "Oh, there it is!" :rolleyes: That is so annoying! What is it with people being so lazy?

Sincerely,

NoGluGirl

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Florence Lillian
      - Florence Lillian replied to Jay Heying's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Celiac friendly probiotics

      In response to your questions regarding probiotics. I have had Celiac for 40 years. Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything. I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference. After reading about people with Crones, IBS, etc, who made...
    2. slkrav
      - slkrav posted a topic in Introduce Yourself / Share Stuff
      0

      Gluten free beer ?

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    3. cristiana
      - cristiana replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Ferritin levels. And see what your hemoglobin looks like too, that will tell you if you are anemic? You can have 'low normal' levels that will not be flagged by blood tests. I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial...
    4. Mari
      - Mari replied to KathyR37's topic in Coping with Celiac Disease
      5

      New here

      Hi Katht - I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was...
    5. Colleen H
      - Colleen H replied to Colleen H's topic in Gluten-Free Foods, Products, Shopping & Medications
      16

      Ibuprofen

      Yes thyroid was tested.. negative Iron ...I'm. Not sure ... Would that fall under red blood count? If so I was ok Thank you for the detailed response..☺️
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,881
    • Most Online (within 30 mins)
      7,748
    Dan Bryst
    Newest Member
    Dan Bryst
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Florence Lillian
      Celiac friendly probiotics

      By Florence Lillian · Posted

      In response to your questions regarding probiotics.  I have had Celiac for 40 years.  Stomach issues: digestion, IBS to chronic constipation, bloat after eating anything.  I was unable to eat a healthy variety of foods, tried probiotics supplements - some made me worse, others made no difference.  After reading about people with Crones, IBS, etc, who made their own probiotics I started making Milk Kefir: not water Kefir. There are 10 probiotics in milk KEFIR. After 3 weeks I was able to eat more, no gas, no IBS.  If you have a computer just ask for videos on making milk Kefir. I branched out and make my own Kombucha for even more probiotics. I do not make my yogurt because there are only about four probiotics in that. I started this when I was 82 and I still make my own Kefir and Kombucha. My stomach issues were fixed with the Milk Kefir alone. If you decide to try making it, make certain you order MILK GRAINS. The finished product tastes a bit like Buttermilk. I hope this helps in your journey to good health.
    • slkrav
      Gluten free beer ?

      By slkrav · Posted

      Help me out here. Lauren Dam gluten-free beer from Spain is listed as gluten free. Yet its made from Barley Malt. I thought barley and any form had gluten. Anybody have any more information about it?
    • cristiana
      Ibuprofen

      By cristiana · Posted

      Ferritin levels.  And see what your hemoglobin looks like too, that will tell you if you are anemic?  You can have 'low normal' levels that will not be flagged by blood tests.  I had 'low normal' levels, my lab reading was. c12, just over what was considered normal, but I had small benign lesion on my tongue, and sometimes a sore mouth, and a consultant maxillofacial ordered an iron infusion for me as he felt my levels were too low and if he  raised them to 40, it would help.   Because you are not feeling 100% it might be worth looking at your levels, then discussing with your doctor if they are low normal.  But I stress, don't supplement iron without your levels being monitored, too much is dangerous.
    • Mari
      New here

      By Mari · Posted

      Hi Katht -  I sympathize with your struggles in following a gluten-free diet and lifestyle. I found out that I had Celiac Disease a few months before I turned 70. I just turned 89 and it has taken me almost 20 years to attain a fairly normal intestinal  function. I also lost a lot of weight, down to 100 lb. down from about 140 lb. What Trents wrote you was very true for me. I am still elimination foods from my diet. One person suggested you keep a food diary and that is a good idea but it is probably best just to do an elimination diet. There are several ne and maybe one for celiacs. I used one for a while and started with plain rice and zucchini and then added back other foods to see if I reacted or not. That helped a great deal but what I did not realise that it would only very small amounts of some foods to cause inflammation in my intestine. Within the last few years I have stopped eating any trace amounts of hot peppers, corn and soy(mostly in supplements) and nuts, (the corn in Tylenol was giving me stomach aches and the nuts were causing foot pains). Starting an elimination diet with white rice is better than brown rice that has some natural toxins. In addition it is very important to drink sufficient plain water. You can find out how much to drink for your height and weight online. I do have difficulty drinking 48 ounces of water but just recently have found an electrolyte supplement that helps me stay well hydrated, Adding the water and electrolytes may reduce muscle cramps and gag spams you wrote about. . Also buy some anti-gluten enzyme capsules to take with meals. I use GliadinX advertised here. These are a lot of things to do at one time as they reflect my 20 years of experience. I hope you do what you can manage to do over time. Good luck and take care.
    • Colleen H
      Ibuprofen

      By Colleen H · Posted

      Yes thyroid was tested.. negative  Iron ...I'm. Not sure ... Would that fall under red blood count?  If so I was ok  Thank you for the detailed response..☺️
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.