Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Does This Work?

NoSugarShell

Recommended Posts

NoSugarShell Explorer
NoSugarShell
Posted

I suspect that I have some kind of gluten intolerance so I have eliminated it from my diet. Over the years I have had so many different symptoms that seem to go right along with Celiac disease and I have an uncle that has been diagnosed with it.

Today is my 6th day. I felt great the first couple of days even though had a slight headache both days but now I feel run down and another headache. I lost 3 pounds in the first 4 days and my appetite really decreased (loved that one). Has anyone experienced this? Am I on the right track. I am sticking to just basic foods to be safe. Meat, cheese (very little), vegetables, fruits, and water.

If anyone has any advice or insight for me please I am all ears.

Sincerely,

Michelle

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


elye Community Regular
elye
Posted

Hi, Michelle,

I know that many of us experienced a real roller coaster of ups and downs on the road to recovery, (and still are!) with big swings sometimes even day to day. A lot of celiacs don't feel completely "well" for a year after going gluten-free. You may be suffering from malabsorption, and that could explain the run-down feeling. Getting blood work done is probably a good idea. Hang in there, and welcome! :)

EBsMom Apprentice
EBsMom
Posted
Today is my 6th day. I felt great the first couple of days even though had a slight headache both days but now I feel run down and another headache. I lost 3 pounds in the first 4 days and my appetite really decreased (loved that one). Has anyone experienced this? Am I on the right track. I am sticking to just basic foods to be safe. Meat, cheese (very little), vegetables, fruits, and water.

Michelle, I had a "detox" period when I gave up gluten, and it lasted for a couple of weeks. At the worst of it, I had body aches and an awful headache, like I was getting the flu. I felt vaguely nauseous, had no appetite, and had a head fog as thick as pea soup. Then one day, near the end of the second week, it all lifted and I started feeling better. It still took a few weeks to normalize completely, for me, but I never again felt as badly as I did for those 2 weeks. It could be that you're going through something similar. Both of my kids experienced gluten "withdrawal" as well, so I don't think it's uncommon. Drink lots of water!!! Hope you feel better soon!

Rho

jewi0008 Contributor
jewi0008
Posted
Michelle, I had a "detox" period when I gave up gluten, and it lasted for a couple of weeks. At the worst of it, I had body aches and an awful headache, like I was getting the flu. I felt vaguely nauseous, had no appetite, and had a head fog as thick as pea soup. Then one day, near the end of the second week, it all lifted and I started feeling better. It still took a few weeks to normalize completely, for me, but I never again felt as badly as I did for those 2 weeks. It could be that you're going through something similar. Both of my kids experienced gluten "withdrawal" as well, so I don't think it's uncommon. Drink lots of water!!! Hope you feel better soon!

Rho

I agree, I'm always really bad for 2 weeks after as well. It's literally on the 13th or 14th day that things start to disappear. I wonder why that timing is?!

NoSugarShell Explorer
NoSugarShell
Posted
  • Author

Thank you for the reply's. It really helps in motivating me to stick with it. I can't wait for the two week mark. :D

JNBunnie1 Community Regular
JNBunnie1
Posted

I second getting a blood panel for nutrients done, and maybe sarting now with some Vitamin B, since everyone with Celiac seems to feel better taking it.

Kitty Cat Newbie
Kitty Cat
Posted
Hi, Michelle,

I know that many of us experienced a real roller coaster of ups and downs on the road to recovery, (and still are!) with big swings sometimes even day to day. A lot of celiacs don't feel completely "well" for a year after going gluten-free. You may be suffering from malabsorption, and that could explain the run-down feeling. Getting blood work done is probably a good idea. Hang in there, and welcome! :)

I didn't know this I been almost gluten free since last Friday (3 crakers, 2 small cookies and maybe something else). And I've been feeling like poo. I do work out almost everyday sometime twice a day. So keeping my energy level up is hard.

going to the GI tomorrow to talk about my problems.

You go NoSugarShell :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748
    bobadigilatis
    Newest Member
    bobadigilatis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.