Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Blood Test Results Within Normal Ranges


dbuhl79

Recommended Posts

dbuhl79 Contributor

So I've gotten the infamous blood test results back. "All within normal range, everyone, nothing even inflamed" You don't have Celiac Disease. That's great right?

Explain to me why I am now on the verge of tears and completely breaking down?!?!

Nobody wants this diagnosis. I will take this and being told I can never have gluten again over being in pain every single day. Running to the bathroom so many times my co-workers and family think I am insane. Losing weight unhealthily. Feeling exhasuted, nasueated and unable to consume ANYTHING. I even missed half of work yesterday.

The kicker here is the GI doctor didnt even schedule a follow-up appointment to search for ANY thing else that could be wrong. Not even to stick me with the official IBS label. :angry:

So what do I do now? Go gluten-free? Send in samples to EnteroLab? So frustrated. :( I just don't want to see another doctor.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lovegrov Collaborator

If your doctor's not going to test you for anything else you have nothing to lose.

richard

pixiegirl Enthusiast

I can relate to your story, mine is the same, exactly. I was told 5 weeks ago that I'm fine with a touch of IBS. BS for sure!

I have been Gluten free for 5 weeks and I stopped the bathroom dashes completely, I feel so much better. Just yesterday I sent in the EnteroLab stuff so I'll see what comes back there. But in my book I just feel so much better now that I'm gluten-free. Its been a huge change.

Its hard to give all gluten products up and it would be awful to do if you didn't have to but if you go gluten-free and feel a lot better, then I think that tells you something really important.

Keep in mind doctors don't know everything, they simply help us with our health decisions.

Susan

dbuhl79 Contributor

Susan & Richard,

Thanks. You're right, nothing to lose. I Had just gotten off the phone with the doctors office when I posted that message, so I was exasperated to say the least. I've had other health issues that I've been tossed around with at the same hospital and I think this is the last straw! :)

I've d etermined to go Gluten Free. I did it for a week and felt better, even glutend myself once with some rice cakes that weren't exactly gluten-free. Felt immediate symptoms. Its got to mean something! :)

Susan its nice to hear you've had such positive results. Let me know how Entero Lab turns out. I can't get there website to load today!

All in all, I know I can go gluten free w/o a pat on my back from the doctor to say "Go ahead'. But theres some part of me that would of really liked that affirmation that I'm not nuts! :) You guys are that confirmation for me!

Thanks so much.. This board is wonderful.

cdevane Rookie

I am right there with the rest of you. Got my blood tests back on Friday and all my doctor's assistant said is that it was "negative for a wheat allergy". Considering that isn't even what I was tested for, I thought it was amusing, especially since I can't even get my GI to return my calls.

Bottom line is I did the gluten free diet as a last resort because I was so deperate to resolve my "IBS" that I have dealt with most of my life. After only three weeks, I feel about a 70% improvement in my IBS symptons, and marked improvement with my headaches, anxiety, and PMS symptoms.

It would be nice to be validated, so I too am going to try the Entero testing as well as the York. It may cost a little money, but if I am feeling better, I don't care!!!

FreyaUSA Contributor

This is definitely the problem with the US testing/diagnosis of celiac disease. Here, either you have celiac disease or you are FINE. Isn't this like telling a smoker, "Hey, you don't have lung cancer, why give up smoking?" Just because gluten causes your body to react in extremely negative ways, just because you feel awful 90-100% of the time, is that a good reason to give it up? According to so many doctors, no. Why? Because it is "too hard." <_< Or, other variations on that theme.

According to one of my kids' pediatricians, the only way to definitively determine if you have a problem with gluten is to go off it. If you have a positive reaction to a gluten-free diet, try something with gluten in it. If you react badly to this, you KNOW you're gluten intolerant or sensitive! Her stance is, if something you're eating adversely effects you, it is obviously doing something to you that is not good and why eat something that makes you feel miserable? (Now, the other pediatrician at the office gave me the "too difficult" lecture. HAH! He didn't even want to run the blood tests. :angry:) I'm with the good pediatrician on this issue. :P

Also remember that celiac disease, DH and gluten sensitivity/intolerance is an area that is being studied as we sit (run to the bathroom, moan in pain, scratch... :blink:) Not everything is known about it yet. How would you feel if, because of the difficulty of following a gluten-free diet you decide not to (as per your gi's advice even though your body tells you this stuff is not good for you) and, 20 or so years from now are incapacitated by a condition that has become linked to gluten sensitivity?

Hmm, I think I have an opinion on this. :lol:

Guest imsohungry

I just want to give you a big ol' hug! :)

Let me tell you something. I have been through heck forward and backward in my short life. Everyday scientists are coming out with "new genes" found linked to various disorders. I was told that I had IBS until some genious dr. decided to test ANA, white blood cell count, etc....and found out I was all out-of-whack. When we started searching for answers 15 years ago, doctors told me that I was a hypochondriac. :(:angry: You know what??? It shows their ignorance. Years later, with the correct blood work and doctors, it was discovered that I have MULTIPLE auto-immune disorders, and the "spells" that I had as a child were actually SEIZURES! Somebody finally got wise enough to do a MRI and PET scan and it turns out that I have a scar on three lobes of my brain and irregular blood metabolism too! :blink: For how many years was I a juvinile hypochondriac?....until I found a couple of good doctors.

My point is, believe in yourself! Only you know how YOU feel. And if you are feeling better gluten-free, good for you! B) Find yourself a doctor who is not content "settling" for what other doctors have already proved to be true...we would never have any new advances in medicine if some doctors weren't out there looking for alternate explanations and identifiers for people's physical problems.

I hope you stay feeling better and better! Much hugs and blessings. -Julie ;)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lilliexx Contributor

hi

i posted something in one of your other threads too. i am sorry you are having to go through this. my recomendation is that you get another doctor, and keep looking until you find a good one.

i had a terrible experience with a lousy doctor once too. I was crying in her office because i had been having stomach problems for so long and didnt know why, so guess what? she disagnosed me with depression :angry: HA i went running out of her office and never went back.

i will also tell you, that giving up gluten can not hurt you, but it may be another food intolerence or some other problem, so i really feel you should look into other food intlorences and find another doctor so you can get to the root of the problem. giving up gluten may help becaus when your stomach is messed up its harder to digest wheat, dairy etc, but there may be another underlying problem too.

i did have a postive test for gluten, but i am still having problems sometimes, so i am still searching for other things that could be causing problems. ( corn is one thing that i recently discovered causes me problems for me.)

anyway i will quit rambling now, but i wish you the best of luck.

take care

lillie

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      129,840
    • Most Online (within 30 mins)
      7,748

    Gabcar14
    Newest Member
    Gabcar14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • HilaryM
      Thank you Scott - I can’t think of much that’s changed diet wise but I’ll definitely try to see if any of this works and probiotics are a great idea thank you!
    • cristiana
      Hello there @maylynn  I'm a slow healer from the UK.  I sympathise.  Despite three endoscopies which showed nothing wrong, I frequently suffered from a very sore stomach, bloating, feeling queasy.   For some time I was taking the wrong iron supplement (Floradix instead of Floravital - the former has gluten in it, but the latter none).  But I would say even very little iron from an approved source made my stomach sore, I think it can be quite irritating. Perhaps that is an issue for you? Oats (the gluten-free pure ones) were an issue for many years (now fine).   Even though my endoscopy findings did not reflect any problems with healing, or any other issues, I self-diagnosed myself with gastritis as it seemed the feeling of nausea and in my case burning in the stomach pointed to it.  I went onto a gastritis/reflux diet and that really helped.   Have a google - there are tonnes online.  That meant avoiding spicy, greasy food, onions, tomatoes, coffee and alcohol.  (Actually, I don't drink, but I did toast someone during that time at a baptism and it set my stomach on fire.)   Instead of drinking strong coffee, I drank water, camomile tea, warm ginger water... so soothing.  I would not go to bed with a full stomach when things were bad, I would let my stomach rest from say 8pm to 8am, which really helped.   My husband and I then decided to buy a new oven and to buy a new dishwasher - we did need new ones anyway.  The new oven had two compartments, gluten goes in one, gluten free in the other.  The new dishwasher was a Miele which does a full rinse with clean water before washing the dishes.  But before I could afford a new dishwasher I would hand wash the dishes and make sure they were really rinsed well, no residue  (unlike our old dishwasher that was really not rinsing well at all). I stopped eating out for quite a few years - I think this is a biggy - although I would have coffee and soft drinks out. Eventually, my levels normalised.  What of the above was the 'silver bullet'?  I am not sure, but finally I did feel a lot better.  Occasionally I will take an over the counter PPI (omeprazole) or a small dose of Gaviscon, but most of the time I don't need them now. I'm not expecting anyone to go to all these lengths, but it could be that one or two of the tips I give you might work.  Don't give up hope! Cristiana
    • RMJ
      Yes, it would make sense to go mostly gluten free, since it gives your troubles.
    • SMK7
      Yes, I made an effort to eat extra gluten at least 3 weeks before the endoscopy. I probably ate a some amount in the weeks before that. I had diarrhea, which resolved once I cut back after the endoscopy. So I think it would make sense to go mostly gluten free?  
    • RMJ
      Yay for the normal biopsy! Thanks for the follow up. Were you eating gluten prior to the endoscopy?
×
×
  • Create New...