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BRUMI1968

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BRUMI1968 Collaborator
BRUMI1968
Posted

Anyone diagnosed with this? If so, what were your symptoms. I'm considering this as possibly my problem right now, so have done web research...but some real life reports would be great if anyone has any.

Thanks. :)

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holdthegluten Rising Star
holdthegluten
Posted
Anyone diagnosed with this? If so, what were your symptoms. I'm considering this as possibly my problem right now, so have done web research...but some real life reports would be great if anyone has any.

Thanks. :)

I am seeing an ND on friday about this same possibility. Ill let you know!

Tranquillity Rookie
Tranquillity
Posted

Huh, interesting. I've looked into this a bit as well. I actually found this thread via Google.

Looking forward to hear your results.

jerseyangel Proficient
jerseyangel
Posted

I spoke to my gastro about this being a possibility for me last spring. He said it could be, and had me take a breath test which turned out to negative.

Interestingly, about a month or two after that, I had to go on an antibiotic for an upper resp. infection. On the second day of treatment, my loose stools vanished. Just like that. (this was all the more odd to me, as antibiotics had always upset my stomach--and I can only take one kind)

Prior to this, I would get D and lower ab. cramping and general uneasiness quite often. I have several other food intolerances, so I was sure that I wasn't eating anything that was causing it. It was more chronic in nature--not like a reaction to anything.

I did a lot of reading about this, and saw that in some cases, the problems return within weeks or months after the antibiotics. In my case, it has not--although I've been taking calcium carbonate (Caltrate) twice a day to avoid D. This is the very best I've felt in a very long time--even my anxiety is much better.

My advice--if you suspect this for yourself, try a course of the antibiotic. ;) I'm not one to take a lot of medications, but in this case I'm really glad I did.

~alex~ Explorer
~alex~
Posted

I was diagnosed with this by a direct sample of fluid from my small intestine taken during a follow up endoscopy. I was on antibiotics for a month and felt significantly better afterward. The doctor said that celiac is a risk factor for bacterial overgrowth because all of that undigested, unabsorbed food makes a good environment for bacteria.

If your doctor thinks you have this, hopefully he will give you antibiotics. It certainly helped me.

BRUMI1968 Collaborator
BRUMI1968
Posted
  • Author

Interesting that two folks said antibiotics made them feel better. I'd read that antibiotics are pretty effective for large bowel bacterial dysbiosis, but not small bowel - that it tends to exacerbate it.

Anyway, all my tests for giardia and the like came back negative, so now I'm thinking that SBBO might be the case, plus liver impairment and gall bladder impairment. What I know, is that my digestive processes are messed up, and those are the big players, right? Maybe I don't have SBBO at all...who knows. My insurance is terrible, so I can't get many tests to figure it out.

I'm taking probiotics, digestive enzymes, and Betaine HCI (increases stomach acid?) with every meal now (probiotics 1/2 hour before) and my bowel movements are starting to look relatively normal again - well, the food is somewhat digested anyhow.

My lab tests from Enterolab are pending. So I guess I'll just keep to my zero sugar/zero fruit diet, and the pills; then do a liver cleanse, a gall bladder cleanse, a colon cleanse, and see what's going on after that.

Thanks all for your responses.

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    • knitty kitty
      My only proof

      By knitty kitty · Posted

      You're right, doctors usually only test Vitamin D and B12.  Both are really important, but they're not good indicators of deficiencies in the other B vitamins.  Our bodies are able to store Vitamin B12 and Vitamin D in the liver for up to a year or longer.  The other B vitamins can only be stored for much shorter periods of time.  Pyridoxine B 6 can be stored for several months, but the others only a month or two at the longest.  Thiamine stores can be depleted in as little as three days.  There's no correlation between B12 levels and the other B vitamins' levels.  Blood tests can't measure the amount of vitamins stored inside cells where they are used.  There's disagreement as to what optimal vitamin levels are.  The Recommended Daily Allowance is based on the minimum daily amount needed to prevent disease set back in the forties when people ate a totally different diet and gruesome experiments were done on people.  Folate  requirements had to be updated in the nineties after spina bifida increased and synthetic folic acid was mandated to be added to grain products.  Vitamin D requirements have been updated only in the past few years.   Doctors aren't required to take as many hours of nutritional education as in the past.  They're educated in learning institutions funded by pharmaceutical corporations.  Natural substances like vitamins can't be patented, so there's more money to be made prescribing pharmaceuticals than vitamins.   Also, look into the Autoimmune Protocol Diet, developed by Dr. Sarah Ballantyne, a Celiac herself.  Her book The Paleo Approach has been most helpful to me.  You're very welcome.  I'm glad I can help you around some stumbling blocks while on this journey.    Keep me posted on your progress!  Best wishes! P.S.  interesting reading: Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/
    • NanceK
      My only proof

      By NanceK · Posted

      So interesting that you stated you had sub clinical vitamin deficiencies. When I was first diagnosed with celiac disease (silent), the vitamin levels my doctor did test for were mostly within normal range (lower end) with the exception of vitamin D. I believe he tested D, B12, magnesium, and iron.  I wondered how it was possible that I had celiac disease without being deficient in everything!  I’m wondering now if I have subclinical vitamin deficiencies as well, because even though I remain gluten free, I struggle with insomnia, low energy, body aches, etc.  It’s truly frustrating when you stay true to the gluten-free diet, yet feel fatigued most days. I’ll definitely try the B-complex, and the Benfotiamine again, and will keep you posted. Thanks once again!
    • knitty kitty
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By knitty kitty · Posted

      Segments of the protein Casein are the same as segments of the protein strands of gluten, the 33-mer segment.   The cow's body builds that Casein protein.  It doesn't come from wheat.   Casein can trigger the same reaction as being exposed to gluten in some people.   This is not a dairy allergy (IGE mediated response).  It is not lactose intolerance.  
    • trents
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By trents · Posted

      Wheatwacked, what exactly did you intend when you stated that wheat is incorporated into the milk of cows fed wheat? Obviously, the gluten would be broken down by digestion and is too large a molecule anyway to cross the intestinal membrane and get into the bloodstream of the cow. What is it from the wheat that you are saying becomes incorporated into the milk protein?
    • Scott Adams
      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

      By Scott Adams · Posted

      Wheat in cow feed would not equal gluten in the milk, @Wheatwacked, please back up extraordinary claims like this with some scientific backing, as I've never heard that cow's milk could contain gluten due to what the cow eats.
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