Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Members In Need.....ongoing Support Thread

AndreaB

By AndreaB
in Introduce Yourself / Share Stuff

Recommended Posts

AndreaB Contributor
AndreaB
Posted

This thread is designed to be a place where those that need prayers, good thoughts, vibes, energy for situations they need support for to come.

A centralized thread will help keep those members needs in one place for others to see.

For those who subscribe to this thread......if it's not active at times, please make sure to re-add it to your subscriptions after 30 days. That way no one will be left without the support they need.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


jerseyangel Proficient
jerseyangel
Posted

Thanks Andrea :)

nutralady2001 Newbie
nutralady2001
Posted

Thank you this is an excellent idea xx

Judyin Philly Enthusiast
Judyin Philly
Posted

thanks Andrea

Great idea. Is this a new forum topic so we can go there to ck or just a thread?

judy

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Thank you, Andrea!!

blueeyedmanda Community Regular
blueeyedmanda
Posted

Thanks Andrea :):)

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

So here is my first "in need" post on this thread:

My son's friend Noah, age 8 1/2, is STILL in terrible trouble.

He has been in a medically induced coma since Labor Day because of encephalitis-caused seizures. The latest cat scans show extensive brain damage. They are still unable to bring him out of the coma without further seizures.

I am not sure what to ask for here--maybe visualizing his brain tissue recovering against all odds? Seizures ending? His opening his eyes, smiling, and hugging his parents?

Prayers?

Our family--and our whole community--is heartbroken. And that's gotta be nothing compared to what his family is going through.

Thanks, everybody.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


AndreaB Contributor
AndreaB
Posted
  • Author

Judy,

It's a thread devoted to those in need of support.

Alison,

I'm sorry to hear about Noah still not doing well. I'll let my family know about him too.

Judyin Philly Enthusiast
Judyin Philly
Posted

Alison.....Noah has been in my nightly prayers since I learned about him and his family.

They will continue as for those for you....who cared enough to bring them to our attention.

judy

Cheri A Contributor
Cheri A
Posted

I was wondering how Noah was doing... I'm :( to read your post. He and his family, the medical staff, and your family continue to be in my prayers also.

Canadian Karen Community Regular
Canadian Karen
Posted

Allison, I too was wondering about Noah. Sad to hear things have not taken a turn for the better....

Continuing to pray....

Hugs

Karen

Ursa Major Collaborator
Ursa Major
Posted

Alison, I will pray for Noah right now.

I could sure use prayer. Things are deteriorating here at home, it is getting unbearable for Susie and me.

Her vice principal in charge of her at school is a complete jerk, and her and my husband are getting to be great buddies, which is very upsetting to Susie and me. They seem to be doing everything they can to make life miserable for Susie, who doesn't deserve that, she is a sweet kid.

I am glad that she is going to move to live with her older sister and her family in February (our second-oldest, ten years older than Susie), for her sake. But her being gone will make things harder for me.

Anyway, I won't go into more detail than that. But I am at the end of my rope.

Glutenfreefamily Enthusiast
Glutenfreefamily
Posted

Fiddle faddle- Noah and his family are in my prayers, I hope things turn around for him soon.

Ursa- Im so sorry you are having family problems, I will be praying for you also and your daughter Susie.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
Alison, I will pray for Noah right now.

I could sure use prayer. Things are deteriorating here at home, it is getting unbearable for Susie and me.

Her vice principal in charge of her at school is a complete jerk, and her and my husband are getting to be great buddies, which is very upsetting to Susie and me. They seem to be doing everything they can to make life miserable for Susie, who doesn't deserve that, she is a sweet kid.

I am glad that she is going to move to live with her older sister and her family in February (our second-oldest, ten years older than Susie), for her sake. But her being gone will make things harder for me.

Anyway, I won't go into more detail than that. But I am at the end of my rope.

Sorry things are so frustrating, Ursa.

I don't suppose it would help if Susie were to smile and pretend to agree with your husband and the vice principal? Just until February? Sort of as a survival thing...

Anyway, prayers sent!

jerseyangel Proficient
jerseyangel
Posted

Alison,

I will keep Noah and his family in my prayers. :( We need to keep that positive energy flowing his way.

Ursa,

Gosh, I'm so sorry about you and Susie. You are in my thoughts, too :)

confused Community Regular
confused
Posted

I will of course pray for noah, i feel so sad for everyone involved. Please keep us posted on him and the whole family.

Ursa, im so sorry things are that bad. Is there a way you can just leave your hubby and you and susie go live with your oldest dtr.

paula

confused Community Regular
confused
Posted

I am also in need for thoughts for 2 reasons.

1. that this family can come into agreement on mnay issues and that i have the strngbth to keep supporting my husband, this week has been very difficult on us both.

2. my uncle(the one that had cancer a few months back) got bit by an brown recluse, he had it drained but it gbot p%$#@# again and posion puss was coming out of his ears. They are doing an mri on him today, they dotn feel they can operate cause the poison has spread to far. I am so worried for him.

paula

Judyin Philly Enthusiast
Judyin Philly
Posted

Allison, Paula, Ursa.........such saddness.

Your all in my prayers.

judy

nutralady2001 Newbie
nutralady2001
Posted
Allison, Paula, Ursa.........such saddness.

Your all in my prayers.

judy

You are all in my prayers as well xx :wub:

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.