Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Mentioned This In Another Topic, But Please Help...


Rpm999

Recommended Posts

Rpm999 Contributor

i know i got a couple opinions, but i feel so screwed up that i just need to hear possibilities

i've been real sick for 11 months, lots of symptoms, almost pos. have celiac all that...but it's not that i'm asking about

i had a catscan on monday and being almost a week later, i just feel terrible

things i feel that i haven't felt before this: extreme chills, heat blowing on me feelings...crying without being sad AT ALL nor having any emotions to make me cry other than feeling up and down all day, just really off, shaky, breathing and dizziness feels worst than it was before (since those have been symptoms this whole time)

this is just pretty damn scary, i haven't felt like this in this whole time...and i've been having gluten this whole time so i fail to see how it'd be like a poison to me if it's already in my system...maybe somebody can explain or have a past experience...i'd die just to feel like how i felt before monday cause there's just no control and some weird mental things going on now, on top of an already weakened body

i went to the ER today but obviously they can't really do anything, and my doctor is an idiot, so what do you suggest or think? what could it have to do with? my body is just so out of wack and i feel emotionally strange and it's been a while, so any opinion would be nice

another thing is i've been having a lot of cramps and weird bowel movements, sometimes it even looks like fish food, waste from nose (don't know the pro. term for snot haha), stringy looking....just not even bowel movements, odd excrements, but i've been having some weird feelings in that area since too...kind of a shooting pain feeling, but not really, more of a feeling like your rectum is bleeding but isn't...hard to explain a mix of the feeling like you have to go, with a little sharp burn i guess

i'm just curious because i had a barium swallow and was fine and not this sensitive since that, but i haven't seen any barium in my bowels since which i find really weird....i still have that flush feeling the dye gave me too which is strange

i know it's hard for any of you to say without knowing other sicknesses, but for THAT day to be the day that's just hell, what could have made me react like that? i mean maybe the dye threw my thyoid off if i'm having an issue with that, but how long does that take to wear off? are those symptoms normal? what should i do? i really just have no idea what to do at all right now :( , it's been a struggle finding out my sicknesses so anything i COULD have that could throw that off would help...large range of symptoms i've had from the get-go, so imagine how this is on top of that


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



loraleena Contributor

Have you gone gluten free? If not, any trauma to the body can make your symptoms start or escalate. You may also want to consider small bowel bacteria, candia overgrowth and parasites. I would try the gluten free diet and see. Have you been tested or tried to eliminate it before? Get a complete thyroid panel done as well. Check the other threads on thyroid recently to see more details on this from me and others.

Ridgewalker Contributor

I think you may be having a reaction to the intravenous contrast material. It's usually Iodine based. Read this:

"Are there risks in obtaining a CT scan?

A CT scan is a very low-risk procedure. The most common problem is an adverse reaction to intravenous contrast material. Intravenous contrast is usually an iodine-based liquid given in the vein, which makes many organs and structures, such as the kidneys and blood vessels much more visible on the CT scan. There may be resulting itching, a rash, hives, or a feeling of warmth throughout the body. These are usually self-limiting reactions and go away rather quickly. If needed, antihistamines can be given to help relieve the symptoms. A more serious reaction to intravenous contrast is called an anaphylactic reaction. When this occurs, the patient may experience severe hives and/or extreme difficulty in breathing. This reaction is quite rare, but is potentially life-threatening if not treated. Medications which may include corticosteroids, antihistamines, and epinephrine reverse this adverse reaction.

Toxicity to the kidneys which can result in kidney failure is an extremely rare complication of the intravenous contrast used in CT scans. Diabetics, dehydrated individuals, or patients who already have impaired kidney function are most prone to this reaction. Newer intravenous contrast agents have been developed, such as Isovue, which have nearly eliminated this complication."

The above quote is from medicinenet.com.

It doesn't specifically list all your symptoms, but it's a possibility.

Also, I think your body is having a hard time passing the barium. How long ago was the swallow? Did the docs tell you to make sure to drink TONS of water after the barium swallow? This is necessary to flush the barium from your system.

If the barium sticks around too long, it can congeal and be difficult to pass. In that case, you may need a laxative to help it get going. You really should have seen some sign of the barium in the couple days after the procedure. Kind of whitish or chalky.

I think if it were me, I'd try drinking as much water as possible, and take a dose of Benedryl every 4 hours for 48 hours. If it's no better, I'd go to the doctor and TELL them you're having a reaction to the contrast material. If it is a reaction, you may need a stronger antihistamine and a steroid like Prednisone or something.

I really hope, whatever it is, you start feeling better soon!!!

Rpm999 Contributor

hey hey...i just find it weird, it's been over a week

i really feel terrible, but you know what's odd? i can be really tired, sleep 4 hours then wake up feeling wide awake, which i HATE yet can't control...i never had that prior to that day, i always slept a lot...my body is just flipping out, sometimes it feels in overdrive and really hungry, sometimes i just feel dead all around...sometimes a mix...sometimes real dizzy, and those flush/ice feelings on top of weird emotional/nerve things....i never had ANY of those prior to that day, so something got thrown off i guess, plus crying out of nowhere just surprises me, i never cry even if i was sad, which i'm not, just very off...get back to me on that you two, i've been struggling :( ...i've been real sick for 10 months yet never been bedridden once, now i am and it's just bad...regret getting that that day because i react to things oddly all the time....doctors are idiots and said it was possible to react like that to nexium back then and i did, so i hope you guys have an idea based on that

as far as the barium, i've had many bowel movements but i NEVER saw any barium come out...and it's been over a week! so weird, when i had the swallow it all came out immediately, this time was very different...could it have absorbed in my system or something weird...? i feel quite cramped and nauseous too

i feel like somethings just got thrown REALLY off yet have no idea what to say, my body's just going through hell...i can't go gluten-free right now, because as twisted as this sounds, it's the only thing that stops my body being sped up and starving when it swings to that...i doubt this has to do with celiac though because for these past 10 months i always slept a ton and had no appetite and no more...not weird distress like this...i plan to start right away when this feels better because i'm just too a mess right now...sorry if i sound like i'm going crazy, i just always get stuck with these strange things and it's hard to explain...i guess it's what happens when your system is horrible, crazy things happen easily

nutralady2001 Newbie

As some-one else suggested as part of trying to figure it out get thyroid testing done.

You need TSH, Freee T3 and Free T4 as well as an antibodies panel including all antibodies testing for both Hashimoto's and Graves Diseases

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,142
    • Most Online (within 30 mins)
      7,748

    Jeaneneve
    Newest Member
    Jeaneneve
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      My migraines generally have their onset during the early morning hours as well. Presently, I am under siege with them, having headaches all but two days so far this month. I have looked at all the things reported to be common triggers (foods, sleep patterns, weather patterns, stress, etc.). Every time I think I start to see a pattern it proves not to pan out in the long run. I'm not sure it's any one thing but may, instead, be a combination of things that coalesce at certain times. It's very frustrating. The medication (sumatriptan or "Imatrix") is effective and is the only thing that will quell the pain. NSAIDs, Tylenol, even hydrocodone doesn't touch it. But they only give you 9 does of sumatriptan a month. And it doesn't help that medical science doesn't really know what causes migraines. They know some things about it but the root cause is still a mystery.
    • Scott Adams
      These are labeled gluten-free: https://www.amazon.com/Corn-Husks-Tamales-Authentic-Flavorful/dp/B01MDSHUTM/
    • Wheatwacked
      Just a gluten free diet is not enough.  Now you have to identify and replenish your malnutrition.  Celiac disease is co-morbid with malabsorption syndrome.  Low vitamin D, Low Thiamine caused Gastointeston Beriberi, low choline, low iodine are common the general population, and in newly diagnosed Celiacs in the western culture its is more likely.  It takes time to heal and you need to focus on vitamins and minerals.  Gluten free foods are not fortified like regular processed foods.  
    • Sarah Grace
      Dear Kitty Since March I have been following your recommendations regarding vitamins to assist with various issues that I have been experiencing.  To recap, I am aged 68 and was late diagnosed with Celiac about 12 years ago.  I had been experiencing terrible early morning headaches which I had self diagnosed as hypoglycaemia.  I also mentioned that I had issues with insomnia, vertigo and brain fog.   It's now one year since I started on the Benfotiamine 600 mg/day.  I am still experiencing the hypoglycaemia and it's not really possible to say for sure whether the Benfotiamine is helpful.  In March this year, I added B-Complex Thiamine Hydrochloride and Magnesium L-Threonate on a daily basis, and I am now confident to report that the insomnia and vertigo and brain fog have all improved!!  So, very many thanks for your very helpful advice. I am now less confident that the early morning headaches are caused by hypoglycaemia, as even foods with a zero a GI rating (cheese, nuts, etc) can cause really server headaches, which sometimes require migraine medication in order to get rid off.  If you are able to suggest any other treatment I would definitely give it a try, as these headaches are a terrible burden.  Doctors in the UK have very limited knowledge concerning dietary issues, and I do not know how to get reliable advice from them. Best regards,
    • knitty kitty
      @rei.b,  I understand how frustrating starting a new way of eating can be.  I tried all sorts of gluten-free processed foods and just kept feeling worse.  My health didn't improve until I started the low histamine AIP diet.  It makes a big difference.   Gluten fits into opioid receptors in our bodies.  So, removing gluten can cause withdrawal symptoms and reveals the underlying discomfort.  SIBO can cause digestive symptoms.  SIBO can prevent vitamins from being absorbed by the intestines.  Thiamine insufficiency causes Gastrointestinal Beriberi (bloating, abdominal pain, nausea, diarrhea or constipation).  Thiamine is the B vitamin that runs out first because it can only be stored for two weeks.  We need more thiamine when we're sick or under emotional stress.  Gastric Beriberi is under recognised by doctors.  An Erythrocyte Transketolace Activity test is more accurate than a blood test for thiamine deficiency, but the best way to see if you're low in thiamine is to take it and look for health improvement.  Don't take Thiamine Mononitrate because the body can't utilize it well.  Try Benfotiamine.  Thiamine is water soluble, nontoxic and safe even at high doses.  I thought it was crazy, too, but simple vitamins and minerals are important.  The eight B vitamins work together, so a B Complex, Benfotiamine,  magnesium and Vitamin D really helped get my body to start healing, along with the AIP diet.  Once you heal, you add foods back in, so the AIP diet is worth doing for a few months. I do hope you'll consider the AIP diet and Benfotiamine.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.