Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disabilty?


Rpm999

Recommended Posts

Rpm999 Contributor

is it possible to get disability at 17? i've been extremely sick for so long, and haven't been able to get any insurance whatsoever (tried them all), and i need to see specialists and everything...i'm just seeing my body rot away while everybody is hungry for money and going around in circles with pathetic doctors...i mean, i haven't been able to have a job cause of how sick i am, had to quit school...it's just all impossible with what's going on, and i'm seeing my mom suffer with no doctor for her problems too and just don't want to go that root at a young age like this


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Lisa Mentor
is it possible to get disability at 17? i've been extremely sick for so long, and haven't been able to get any insurance whatsoever (tried them all), and i need to see specialists and everything...i'm just seeing my body rot away while everybody is hungry for money and going around in circles with pathetic doctors...i mean, i haven't been able to have a job cause of how sick i am, had to quit school...it's just all impossible with what's going on, and i'm seeing my mom suffer with no doctor for her problems too and just don't want to go that root at a young age like this

Open Original Shared Link

Here is a site that might have the answer to your question.

I am sorry that you aren't doing well. Can we help in any way?

tarnalberry Community Regular

you would, at the least, have to have a doctor confirm your disability. if you're in the US, you may be able to get at least very basic, emergency care at community hospitals. maybe not the best in the world, but better than nothing. sliding-scale clinics are another option, for some. if you suspect gluten-intolerance, you might try getting off *all* gluten now, so you can get well enough to pursue further investigation in the future if you need to.

ravenwoodglass Mentor

In addition to the checking into the disability have you checked to see if your family qualifies for medicaid? You may also qualify for foods stamps which could help also. If you are a newly diagnosed celiac do not lose hope. It can take some time to recover but usually we do. Take Care.

confusedks Enthusiast

I don't know what state you're in, but here in CA, we have a program called Mr. Mip. It's basically a program that you can get insurance no matter what, but only if you're uninsurable (which I am, so we are applying for it.) It's kinda like a "best kept secret" that almost nobody knows about.

I have a lot of other health problems other than Celiac (well, possible Celiac...not sure) so we really need the help. I don't know if other states have a program like this...but it's worth a try.

A lady from Blue Cross told us about it (my brother is insured with them and my mom talked about me...I'm 17 also...and she suggested it.)

I hope this helps...you may want to call insurance companies and ask about this kind of program. If you have any more questions, feel free to PM me.

P.S. If you do have Celiac and that's what's causing your health problems, it's a little harder to get help because the treatment is a gluten free diet. The reason we're doing it is because I have Lyme disease and the treatment for that is expensive (antibiotics, etc.)

Rpm999 Contributor

yeah the reason i say it is because there's other things i'm thought to have, possibly lyme, and some other things occurring aside from celiac...it's all a big cycle with any of those things

i just really don't have a clue why insurance is so how to get, my dad has a decent job but my mom doesn't due to sickness and because my dad makes slightly over, half of these places don't want to insure us...but i think they base the pay off what it is before taxes are taken out, which if true, is hard on the people...and paying out front for coverage is just far too much, it's literally impossible

confused Community Regular

Here in colorado we have colorado kids insurance that anyone can get. Im sure all states have some sort of insurance that kids can get. Just google your state and see what you come up with, Only give basic answers to your health problems, never tell them the whole truth lol.

paula


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Rpm999 Contributor

lol i'll look it up but i honestly don't think there's anything here in rhode island...maybe somebody will know

in mass there's mass health which EVERYBODY gets, but of course i no longer live there

confusedks Enthusiast

The program I was talking about Mr. Mip isn't for kids only. It's for anyone at any age who has so much preexisting they can't get coverage.

Rpm999 Contributor

supposedly it's California only though, i don't think there's something similar here :(

happygirl Collaborator

Every state has Medicaid.

Also, every state has a version of SCHIP....state children's health insurance program. Depending on your family size/income, you may qualify for health insurance through the state.

Each state has various options. It might be helpful to talk to one of the caseworkers at DHS to determine what you maybe be eligible for.

Open Original Shared Link

Here is your states family/child care government webpage

Open Original Shared Link

I believe this is the application:

Open Original Shared Link

Open Original Shared Link

sickchick Community Regular

I have been on SSI for about 4 years now (hope to get off soon!) I was so sick at one point I couldn't get up and down stairs.

Needless to say it does help I don't get much my health care coverage is minimal. I end up paying for my Dr's out of my pocket anyways.

Good luck with your quest

sickchick

finally diagnosed Apprentice
supposedly it's California only though, i don't think there's something similar here :(

hi, in rhode island you do have a plan which is like medicaid in massachusetts it is called rite care/rite share through dhs. Open Original Shared Link

also there is another way for care with the rhode island free clinic, Open Original Shared Link

it is for ordinary people like us who don't qualify or can't get health insurance through an employer or through their state funded program as listed above. i would try both, there are alot of people out the who can help you and send you in the right direction.

they also have a food stamp program which might be able to help with the cost of buying gluten free food, (very expensive as we know) www.dhs.state.ri.us. unfortunately when it comes to state funded programs you have to fill out alot of forms and get alot of people attention to get some help.

good luck. lorrie

debmidge Rising Star
lol i'll look it up but i honestly don't think there's anything here in rhode island...maybe somebody will know

in mass there's mass health which EVERYBODY gets, but of course i no longer live there

I don't think Rhode Island is known for social programs......Last I checked I don't think they have a govt.-based Disability program. It think the state's motto is "Live Free or Die."

I think the way around this is:

1) become independent legally from your parents (there's a legal word for when a minor claims adult status, but I can't remember it)

2) move to Mass and become a legal resident there to get the health care

3) as a RI minor, you might be eligible for Federal SSI - call a local Social Security office to inquire..or go to their website....you'd be collecting SSI under your parent's social security.

psawyer Proficient
1) become independent legally from your parents (there's a legal word for when a minor claims adult status, but I can't remember it)

I think what you are referring to is an emancipated minor.

Open Original Shared Link

Rpm999 Contributor

yeah but it isn't like i live on my own or have a job at the moment, would that even be possible?

debmidge Rising Star
yeah but it isn't like i live on my own or have a job at the moment, would that even be possible?

Don't really know how that works...I knew a girl who did that (Washington State) & she moved in with her grandmother, got a job & paid a really low rent to her grandmother (who probably gave it back to her in cash). Her parents were alcoholics & she needed to be emancipated & move out.

However, Rhode Island does not have a disability program for its residents...you'd have to collect thru federal government (SSI) and that's difficult to do - you usually need an attorney's help as SSI usually declines people on the first try. You are a minor and you'd have to collect thru your parents' SSI number.

Were you primarily looking for disability income or health insurance coverage?

For health insurance info - USA only:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

    2. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

    3. - Ello replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

    4. - trents replied to Ello's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

    5. - Ello posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      4

      Small Bowel Resection 12 inches

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,827
    • Most Online (within 30 mins)
      7,748

    ABC reno
    Newest Member
    ABC reno
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
    • Ello
      I have always eaten gluten and never stopped until my recent episode. I started more wheat products as my Dr. requested for the Tissue Transglutaminase Iga Antibody. mye result Value <1.0 Value interpretation: <15.0 Antibody not detected > or =15.0 Antibody detected I do not understand any of it. After eating all that wheat product my body exploded with all sorts of symptoms. I stop gluten ASAP. I am still in the healing process. I started having issues after my surgery. 
    • trents
      Welcome to the celic.com community @Ello! You say you had a blood test for celiac disease after eating gluten for 2 weeks. Were you gluten free before that? Had you ever been officially diagnosed with celiac disease previously? You say the result of the blood test was 1.5. Can you provide the name of the test and the reference range for negative vs. positive for the test? I ask because different labs used different reference ranges so scores without a reference range aren't very helpful.
    • Ello
      Surgery was in April 2023 due adhesions wrapped around my small bowel which caused blockage and had to be removed. Adhesions were so badly entangled that Surgeon could not cut out them, so the resection was performed. July 2025 started having severe yellow diarrhea and sometimes constipation. Just had another episode and was tested for celiac. Blood test stated 1.5 after eating gluten for 2 weeks. Lipase level was 120. Having an CT scan to check the pancreas. I have never had any issues eating gluten and now I am so fearful that I might have celiac. Has anyone had a small bowel resection? I am 65 years old. UGGH! I am still feeling bloating etc. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.