Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Disabilty?

Rpm999

By Rpm999
in Doctors

Recommended Posts

Rpm999 Contributor
Rpm999
Posted

is it possible to get disability at 17? i've been extremely sick for so long, and haven't been able to get any insurance whatsoever (tried them all), and i need to see specialists and everything...i'm just seeing my body rot away while everybody is hungry for money and going around in circles with pathetic doctors...i mean, i haven't been able to have a job cause of how sick i am, had to quit school...it's just all impossible with what's going on, and i'm seeing my mom suffer with no doctor for her problems too and just don't want to go that root at a young age like this

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted
is it possible to get disability at 17? i've been extremely sick for so long, and haven't been able to get any insurance whatsoever (tried them all), and i need to see specialists and everything...i'm just seeing my body rot away while everybody is hungry for money and going around in circles with pathetic doctors...i mean, i haven't been able to have a job cause of how sick i am, had to quit school...it's just all impossible with what's going on, and i'm seeing my mom suffer with no doctor for her problems too and just don't want to go that root at a young age like this

Open Original Shared Link

Here is a site that might have the answer to your question.

I am sorry that you aren't doing well. Can we help in any way?

tarnalberry Community Regular
tarnalberry
Posted

you would, at the least, have to have a doctor confirm your disability. if you're in the US, you may be able to get at least very basic, emergency care at community hospitals. maybe not the best in the world, but better than nothing. sliding-scale clinics are another option, for some. if you suspect gluten-intolerance, you might try getting off *all* gluten now, so you can get well enough to pursue further investigation in the future if you need to.

ravenwoodglass Mentor
ravenwoodglass
Posted

In addition to the checking into the disability have you checked to see if your family qualifies for medicaid? You may also qualify for foods stamps which could help also. If you are a newly diagnosed celiac do not lose hope. It can take some time to recover but usually we do. Take Care.

confusedks Enthusiast
confusedks
Posted

I don't know what state you're in, but here in CA, we have a program called Mr. Mip. It's basically a program that you can get insurance no matter what, but only if you're uninsurable (which I am, so we are applying for it.) It's kinda like a "best kept secret" that almost nobody knows about.

I have a lot of other health problems other than Celiac (well, possible Celiac...not sure) so we really need the help. I don't know if other states have a program like this...but it's worth a try.

A lady from Blue Cross told us about it (my brother is insured with them and my mom talked about me...I'm 17 also...and she suggested it.)

I hope this helps...you may want to call insurance companies and ask about this kind of program. If you have any more questions, feel free to PM me.

P.S. If you do have Celiac and that's what's causing your health problems, it's a little harder to get help because the treatment is a gluten free diet. The reason we're doing it is because I have Lyme disease and the treatment for that is expensive (antibiotics, etc.)

Rpm999 Contributor
Rpm999
Posted
  • Author

yeah the reason i say it is because there's other things i'm thought to have, possibly lyme, and some other things occurring aside from celiac...it's all a big cycle with any of those things

i just really don't have a clue why insurance is so how to get, my dad has a decent job but my mom doesn't due to sickness and because my dad makes slightly over, half of these places don't want to insure us...but i think they base the pay off what it is before taxes are taken out, which if true, is hard on the people...and paying out front for coverage is just far too much, it's literally impossible

confused Community Regular
confused
Posted

Here in colorado we have colorado kids insurance that anyone can get. Im sure all states have some sort of insurance that kids can get. Just google your state and see what you come up with, Only give basic answers to your health problems, never tell them the whole truth lol.

paula

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Rpm999 Contributor
Rpm999
Posted
  • Author

lol i'll look it up but i honestly don't think there's anything here in rhode island...maybe somebody will know

in mass there's mass health which EVERYBODY gets, but of course i no longer live there

confusedks Enthusiast
confusedks
Posted

The program I was talking about Mr. Mip isn't for kids only. It's for anyone at any age who has so much preexisting they can't get coverage.

Rpm999 Contributor
Rpm999
Posted
  • Author

supposedly it's California only though, i don't think there's something similar here :(

happygirl Collaborator
happygirl
Posted

Every state has Medicaid.

Also, every state has a version of SCHIP....state children's health insurance program. Depending on your family size/income, you may qualify for health insurance through the state.

Each state has various options. It might be helpful to talk to one of the caseworkers at DHS to determine what you maybe be eligible for.

Open Original Shared Link

Here is your states family/child care government webpage

Open Original Shared Link

I believe this is the application:

Open Original Shared Link

Open Original Shared Link

sickchick Community Regular
sickchick
Posted

I have been on SSI for about 4 years now (hope to get off soon!) I was so sick at one point I couldn't get up and down stairs.

Needless to say it does help I don't get much my health care coverage is minimal. I end up paying for my Dr's out of my pocket anyways.

Good luck with your quest

sickchick

finally diagnosed Apprentice
finally diagnosed
Posted
supposedly it's California only though, i don't think there's something similar here :(

hi, in rhode island you do have a plan which is like medicaid in massachusetts it is called rite care/rite share through dhs. Open Original Shared Link

also there is another way for care with the rhode island free clinic, Open Original Shared Link

it is for ordinary people like us who don't qualify or can't get health insurance through an employer or through their state funded program as listed above. i would try both, there are alot of people out the who can help you and send you in the right direction.

they also have a food stamp program which might be able to help with the cost of buying gluten free food, (very expensive as we know) www.dhs.state.ri.us. unfortunately when it comes to state funded programs you have to fill out alot of forms and get alot of people attention to get some help.

good luck. lorrie

debmidge Rising Star
debmidge
Posted
lol i'll look it up but i honestly don't think there's anything here in rhode island...maybe somebody will know

in mass there's mass health which EVERYBODY gets, but of course i no longer live there

I don't think Rhode Island is known for social programs......Last I checked I don't think they have a govt.-based Disability program. It think the state's motto is "Live Free or Die."

I think the way around this is:

1) become independent legally from your parents (there's a legal word for when a minor claims adult status, but I can't remember it)

2) move to Mass and become a legal resident there to get the health care

3) as a RI minor, you might be eligible for Federal SSI - call a local Social Security office to inquire..or go to their website....you'd be collecting SSI under your parent's social security.

psawyer Proficient
psawyer
Posted
1) become independent legally from your parents (there's a legal word for when a minor claims adult status, but I can't remember it)

I think what you are referring to is an emancipated minor.

Open Original Shared Link

Rpm999 Contributor
Rpm999
Posted
  • Author

yeah but it isn't like i live on my own or have a job at the moment, would that even be possible?

debmidge Rising Star
debmidge
Posted
yeah but it isn't like i live on my own or have a job at the moment, would that even be possible?

Don't really know how that works...I knew a girl who did that (Washington State) & she moved in with her grandmother, got a job & paid a really low rent to her grandmother (who probably gave it back to her in cash). Her parents were alcoholics & she needed to be emancipated & move out.

However, Rhode Island does not have a disability program for its residents...you'd have to collect thru federal government (SSI) and that's difficult to do - you usually need an attorney's help as SSI usually declines people on the first try. You are a minor and you'd have to collect thru your parents' SSI number.

Were you primarily looking for disability income or health insurance coverage?

For health insurance info - USA only:

Open Original Shared Link

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,671
    • Most Online (within 30 mins)
      7,748
    Paul1567
    Newest Member
    Paul1567
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Who's Online (See full list)

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Rejoicephd
      Draft gluten-free ciders… can they be trusted ?

      By Rejoicephd · Posted

      That and my nutritionist also said that drinking cider is one of the worst drink choices for me, given that I have candida overgrowth.  She said the combination of the alcohol and sugar would be very likely to worsen my candida problem.  She suggested that if I drink, I go for clear vodka, either neat or with a splash of cranberry.   So in summary, I am giving ciders a rest.  Whether it's a gluten risk or sugars and yeast overgrowth, its just not worth it.
    • Inkie
      Tea Bags and Gluten

      By Inkie · Posted

      Thank you for the information ill will definitely bring it into practice .
    • Scott Adams
      Tea Bags and Gluten

      By Scott Adams · Posted

      While plain, pure tea leaves (black, green, or white) are naturally gluten-free, the issue often lies not with the tea itself but with other ingredients or processing. Many flavored teas use barley malt or other gluten-containing grains as a flavoring agent, which would be clearly listed on the ingredient label. Cross-contamination is another possibility, either in the facility where the tea is processed or, surprisingly, from the tea bag material itself—some tea bags are sealed with a wheat-based glue. Furthermore, it's important to consider that your reaction could be to other substances in tea, such as high levels of tannins, which can be hard on the stomach, or to natural histamines or other compounds that can cause a non-celiac immune response. The best way to investigate is to carefully read labels for hidden ingredients, try switching to a certified gluten-free tea brand that uses whole leaf or pyramid-style bags, and see if the reaction persists.
    • Scott Adams
      Inconclusive results

      By Scott Adams · Posted

      This is a challenging and confusing situation. The combination of a positive EMA—which is a highly specific marker rarely yielding false positives—alongside strongly elevated TTG on two separate occasions, years apart, is profoundly suggestive of celiac disease, even in the absence of biopsy damage. This pattern strongly aligns with what is known as "potential celiac disease," where the immune system is clearly activated, but intestinal damage has not yet become visible under the microscope. Your concern about the long-term risk of continued gluten consumption is valid, especially given your family's experience with the consequences of delayed diagnosis. Since your daughter is now at an age where her buy-in is essential for a gluten-free lifestyle, obtaining a definitive answer is crucial for her long-term adherence and health. Given that she is asymptomatic yet serologically positive, a third biopsy now, after a proper 12-week challenge, offers the best chance to capture any microscopic damage that may have developed, providing the concrete evidence needed to justify the dietary change. This isn't about wanting her to have celiac; it's about wanting to prevent the insidious damage that can occur while waiting for symptoms to appear, and ultimately giving her the unambiguous "why" she needs to accept and commit to the necessary treatment. This article might be helpful. It breaks down each type of test, and what a positive results means in terms of the probability that you might have celiac disease. One test that always needs to be done is the IgA Levels/Deficiency Test (often called "Total IGA") because some people are naturally IGA deficient, and if this is the case, then certain blood tests for celiac disease might be false-negative, and other types of tests need to be done to make an accurate diagnosis. The article includes the "Mayo Clinic Protocol," which is the best overall protocol for results to be ~98% accurate.    
    • Scott Adams
      Medication

      By Scott Adams · Posted

      Welcome to the community! Generally, for a gluten challenge before celiac disease blood tests, Tylenol (acetaminophen) is considered safe and should not interfere with your antibody results. The medications you typically need to avoid are those like ibuprofen (Advil, Motrin) or naproxen (Aleve) that can cause intestinal irritation, which could potentially complicate the interpretation of an endoscopy if you were to have one. However, it is absolutely crucial that you confirm this with either your gastroenterologist or your surgeon before your procedure. They know the specifics of your case and can give you the definitive green light, ensuring your surgery is comfortable and your celiac testing remains accurate. Best of luck with your surgery tomorrow
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.