Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Catered Wedding Tomorrow.

num1habsfan

By num1habsfan
in Coping with Celiac Disease

Recommended Posts

num1habsfan Rising Star
num1habsfan
Posted

So today (the 31st) my cousin is getting married by a justice of the peace in a hotel here in Regina. They had emailed me the menu and I told him what I could have (which wasn't much) and that I wasnt sure about the sauces on the chicken and beef because I didnt know if they were gluten-free/lactose-free. I checked my email today and he said they are preparing a GLUCOSE free/lactose free meal :o . I HOPE he just made a typing slip and accidently put the wrong word.

Now SOMEHOW i'm going to have to talk to the cook and find out if it's gluten-free. I will feel bad if they went through all the trouble figuring out a meal for me and I can't eat it, but I'm not someone who could take the chance and get glutened, especially not at a wedding where I know it won't end early!!

Ahh this could be a nightmare. Some of those fancier hotels don't allow you to bring any food with yourself either (its a buffet) and I have never been to this hotel so i have no idea if they have any microwave access, either!! Cross your fingers for me... :huh:

~ Lisa ~

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Fingers are crossed for you. I would eat before I went and take a couple of gluten-free snacks in my purse. I know from your past posts that if you get hungry enough you will grab something that may not be safe so please be extra careful. If they see you eating something they didn't make just tell them about your multiple food sensitivieies, you are not going there for a sit down restaurant dinner so I doubt you will even be questioned if you bring in a couple snacks.

So eat before you go, bring something with you in case the cook misunderstood your dietary needs and just enjoy yourself. Have a great time.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Fingers are crossed for you. I would eat before I went and take a couple of gluten-free snacks in my purse. I know from your past posts that if you get hungry enough you will grab something that may not be safe so please be extra careful. If they see you eating something they didn't make just tell them about your multiple food sensitivieies, you are not going there for a sit down restaurant dinner so I doubt you will even be questioned if you bring in a couple snacks.

So eat before you go, bring something with you in case the cook misunderstood your dietary needs and just enjoy yourself. Have a great time.

I wouldnt DARE to do that ever again (cheat). I'm pretty sure that was after one of my scopes?? I was sick from that and at the point didn't care too much. If I wasn't nearly puking from hunger I wouldn't have resorted to eating regular food. Much too sensative for that...

You'd NEVER catch me with a purse in my life, so I guess it's a good thing I'm taking a little bag kinda thing to carry my camera in. Then I'll have a place to hide some snack bars or something. We still didnt eat here at my apartment yet and the wedding starts at 4, so i won't go too long without food...

~ Lisa ~

WW340 Rookie
WW340
Posted

Buffets are the easiest to fake with no one noticing you are eating something different.

I am too sensitive to cross constamination, so I don't trust catered affairs. I have a very small cooler bag that is no bigger than a camera case. I take food that does not need to be heated. I go to the buffet line and get a plate and maybe 1 or 2 safe looking items (veggies, cheese, fruit) and then I go back to my table and discretely pull out my safe food from home and place it on my plate.

I have never had anyone notice, even sitting with me at the same table, that I am eating my own food from home. What I take will vary depending on how long I expect to be there and what I know will be available. Sometimes, just cheese, crackers, dip, boiled eggs. Sometimes, chicken salad, or lox and a bagel. If I feel I must have a desert, I take that, too.

Good luck to you.

num1habsfan Rising Star
num1habsfan
Posted
  • Author
Buffets are the easiest to fake with no one noticing you are eating something different.

I am too sensitive to cross constamination, so I don't trust catered affairs. I have a very small cooler bag that is no bigger than a camera case. I take food that does not need to be heated. I go to the buffet line and get a plate and maybe 1 or 2 safe looking items (veggies, cheese, fruit) and then I go back to my table and discretely pull out my safe food from home and place it on my plate.

I have never had anyone notice, even sitting with me at the same table, that I am eating my own food from home. What I take will vary depending on how long I expect to be there and what I know will be available. Sometimes, just cheese, crackers, dip, boiled eggs. Sometimes, chicken salad, or lox and a bagel. If I feel I must have a desert, I take that, too.

Good luck to you.

Well like I said, they're supposed to be making me a separate plate thats not cooked the same as for the buffet line. So i'm still terrified of there being gluten in it...but a bagel is a good idea for sure. I wish I had internet on my cell phone, could keep you updated that way!

~ Lisa ~

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Just got back from the wedding...it WAS in fact gluten-free and lactose-free...not only THAT, but I got served my plate the same time as the head table got their meal!! Before anyone else got to eat. And because everything was numbered and had assigned seating they knew just where to bring it. It was so filling, and so delicious. Also a HUGE relief because my mind was like "oh my god, i can't believe for once I DON'T have to worry about my food!!". I'll upload a picture of my plate after I go to sleep and wake up haha. Much too pooped.....now i remember why people call us "crazy ukrainians" :lol:

~ Lisa ~

nutralady2001 Newbie
nutralady2001
Posted

Have been following this thread I'm so pleased for you!

Reminds me of when I went out once there was a part of the dessert I couldn't eat (the dessert was OK but there was a sauce containing gluten poured on it) and we let them know. I went to the loo and when I came back they had served the desserts and there was mine piled high with all this luscious fresh fruit that they had given me to replace the sauce way beyond what I thought would happen I thought I'd just get dessert minus the sauce :lol::lol: I felt so conspicuous and rather special

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

So glad to hear it went well. :)

marlykarly Rookie
marlykarly
Posted
Just got back from the wedding...it WAS in fact gluten-free and lactose-free...not only THAT, but I got served my plate the same time as the head table got their meal!! Before anyone else got to eat. And because everything was numbered and had assigned seating they knew just where to bring it. It was so filling, and so delicious. Also a HUGE relief because my mind was like "oh my god, i can't believe for once I DON'T have to worry about my food!!". I'll upload a picture of my plate after I go to sleep and wake up haha. Much too pooped.....now i remember why people call us "crazy ukrainians" :lol:

~ Lisa ~

That is great news! Me and 2 of my celiacs were at a wedding this weekend too..and the chef heard that there were 3 celiacs attending.. OUR meal was hand delivered and we had MORE food and better food thanthe wedding party! :-)

I felt so special LOL

So glad that it all worked out for you too.

joystar6 Newbie
joystar6
Posted

Glad you had a really good experience at the wedding. I've been to so many through my work, tired after photographing all day, it is the most difficult time to be strong and not eat the food that you know is not good for you. The bring along doggy bag worked well for me too.

More chefs are understanding now though and I find, more fruit and vegetable trays at buffets. IN the beginning I was so odd. Now there is almost one other Celiac at every dinner. I still have to be careful though and ask specifically if what I'm getting is gluten free. One wedding, was Italian, so there was a first course of lasagna. They brought me a huge plate of gluten-free pasta. It looked different than anything I'd seen before so had to ask and they said yes, gluten free. I noticed one of the bride's maids got the same dish. So later I went over and asked if she was Celiac too? She said no, she was vegetarian. So they gave her the gluten free pasta too.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

http://img.photobucket.com/albums/v481/num1habfan/IMG_2441.webp

Theres my meal!!

~ Lisa ~

nutralady2001 Newbie
nutralady2001
Posted

Yum!! That looks absolutely scrumptious!

WW340 Rookie
WW340
Posted

That looks great. So happy it worked out for you.

num1habsfan Rising Star
num1habsfan
Posted
  • Author

Thanks...just wish today wasn't my 5th anniversary of having Celiac, kind of ruins the moment...I've been quite miserable today because of it.

~ Lisa ~

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jmartes71
      - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from...
    2. Scott Adams
      0

      Gluten-Free Peanut Butter Cup Swirl Brownies

    3. Mari
      - Mari replied to Jmartes71's topic in Coping with Celiac Disease
      3

      Related issues

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate...
    4. MogwaiStripe
      - MogwaiStripe replied to annamarie6655's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Airborne Gluten?

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks...
    5. knitty kitty
      - knitty kitty replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      16

      Gluten Issues and Vitamin D

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine. Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes. HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc. Thiamine deficiency inside a cell triggers a...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,255
    • Most Online (within 30 mins)
      7,748
    BeccaLynn
    Newest Member
    BeccaLynn
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Jmartes71
      Related issues

      By Jmartes71 · Posted

      I had the test done by one of the specialist through second pcp I had only a few months because he was saying I wasn't.Even though Im positive HLA-DQ2 .My celiac is down played.I am with new pcp, seeing another girl doctor who wants to do another breathe test next month though Im positive sibo this year.I have high blood pressure not sure if its pain from sciatica or sibo, ibs or hidden gluten. Im in disability limbo and I should have never been a bus driver because im still suffering and trying to heal with zero income except for my husband. This isnt fare that my health is dictating my living and having ti beg for being revalidation of my disregarded celiac disease. Its an emotional roller coaster I don't want to be on and the medical made it worse.New pcp new gi, exhausted, tired and really fed up. GI doctor NOT girl..
    • Mari
      Related issues

      By Mari · Posted

      Hi Jmartes, It sure is difficult to get useful advice from medical providers. Almost 20 years  ago a Dr suggested that I might have Celiacs and I took a Celiac Panel blood test. No gluten challenge diet. On that test the tTG was in normal range but an alpha antibody was very high. I went online and read about celiac disease and saw how I could investigate this low tTG and still have celiac disease. Normal tTG can happen when a person had been reacting for many years. Another way is that the person has not been eating enough gluten to raise the antibody level. Another reason is that the tTG does not show up on a blood but may show up on a fecal test. Almost all Celiacs inherit at least one of the 2 main Celiac genes. I had genetic tests for the Celiac genes at Enterolab.com. I inherited one main Celiac gene from one parent and the report said that the DQ gene I inherited from my other parent, DQ6, could cause a person to have more problems or symptoms with that combination. One of my grandmother's had fairly typical symptoms of Celiacs but the other grandmother had severe food intolerances. I seem to show some problems inherited from both grandmothers. Human physiology is very complex and researchers are just beginning to understand how different body systems interact.  If you have taken an autosomal DNA test you can download your raw data file and upload it to Prometheuw.com for a small fee and search for Celiac Disease. If you don't find any Cekiac genes or information about Celiac disease  you may not have autoimmune gluten intolerance because more than 99% of Celiacs have one or both of these genes.  PLEASE ASK QUESTIONS IF YOU WANT TO KNOW EHAT i HAVE DONE TO HELP WITH SYMPTOMS.  
    • MogwaiStripe
      Airborne Gluten?

      By MogwaiStripe · Posted

      I can't prove it, but I truly believe I have been glutened by airborne particles. I used to take care of shelter cats once per week at a pet store, and no matter how careful I was, I would get glutened each time even if I wore a mask and gloves and washed up well after I was done. I believe the problem was that because I'm short, I couldn't do the the tasks without getting my head and shoulders inside their cages, and so the particles from their food would be all over my hair and top of my shirt. Then I had to drive home, so even if I didn't get glutened right then, the particles would be in my car just waiting for me to get in the car so they could get blown into my face again. I gave up that volunteer gig and stopped getting glutened so often and at such regular intervals.
    • knitty kitty
      Gluten Issues and Vitamin D

      By knitty kitty · Posted

      Hello, @MogwaiStripe, Vitamin D is turned into its activated forms by Thiamine.  Thiamine deficiency can affect Vitamin D activation. https://pubmed.ncbi.nlm.nih.gov/14913223/ Thiamine deficiency affects HLA genes.  HLA genes code for autoimmune diseases like Celiac, Thyroiditis, Diabetes, etc.  Thiamine deficiency inside a cell triggers a toggle switch on the gene which in turn activates autoimmune diseases carried on the gene.  The reference to the study is in my blog somewhere.  Click on my name to go to my page, scroll down to the drop down menu "Activities" and click on blogs.  
    • knitty kitty
      Airborne Gluten?

      By knitty kitty · Posted

      Hello, @annamarie6655, Yes, there's many of us who react to airborne gluten!   Yes, animal feed, whether for chickens or cats or dogs, can release airborne gluten.  I can get glutened from the bakery section at the grocery store.   The nose and mouth drain into the digestive system and can trigger systemic reactions.   I find the histamine release in response to airborne gluten will stuff up my sinuses and bother my eyes.  High histamine levels do cause anxiety and migraines.  The muscle spasms can be caused by high histamine, too.  The digestive system may not manifest symptoms without a higher level of gluten exposure.   Our bodies make an enzyme, DAO (diamine oxidase), to break down histamine.   Pyridoxine B 6, Cobalamine B12, Vitamin C, copper, zinc, and iron are needed to make DAO.  DAO supplements are available over the counter.  Taking a B Complex supplement and additional Thiamine in the form Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) helps reduce the amount of histamine being released.  Mast cells without sufficient Thiamine have an itchy trigger finger and release histamine at the slightest provocation.  Thiamine helps mast cells refrain from releasing their histamine.    I find taking additional TTFD thiamine helps immensely with neurological symptoms as TTFD can easily cross the blood brain barrier without a carrier.  High histamine in the brain can cause the muscle spasms, anxiety and migraines.  Vitamin C really helps with clearing histamine, too.   The Digiorno pizza mystery reaction could have been caused by a reaction to the cheese.  Some people develop lactose intolerance.  Others react to Casein, the protein in dairy, the same as if to gluten because Casein resembles the molecular structure of gluten.  An enzyme used in some dairy products, microbial transglutaminase, causes a gluten reaction because it is the same as the tissue transglutaminase our bodies make except microbes make it.  Those tTg IgA blood tests to diagnose celiac disease measure tissue transglutaminase our bodies release as part of the autoimmune response to gluten.   You're doing great!  A Sherlock Holmes award to you for figuring out the connection between airborne gluten and animal feed!!!  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.