Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

I Cant Believe Im Saying This But....


Glutenfreefamily

Recommended Posts

Glutenfreefamily Enthusiast

Diarrhea from cross contamination is much better than constipation for me :ph34r::blink:

I was like this for about 10 hours this weekend :blink: :blink: Of course I had no red bull either and was too sick to get some from the store. I was glutened in the grocery store, Im assuming its because of the bakery as I walked past there and there were ladies baking within a few feet of me. I could not think at all, I felt like a drug addict because I was so out of it.

I had the worst case of brain fog I have ever had, I cant believe it lasted for 10 hours and of course I was glutened on a busy day in the morning so I was horribly unproductive that day. This is also the first time I had been constipated from gluten as its always diarrhea.

I wonder if it lasted so long because my body didn't force its evacuation, I hope to goodness I never get another glutening like that again. Anybody else swing from one to the other and notice your symptoms lasted longer than normal with constipation?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

I was dealing with something similar last spring after my bout with diverticulitis. In my case it was not gluten it turned out to be soy. Soy gave me very similar mental effects but clogs my system for days. My BMs will look like train wrecks, little pieces distinct that ball up at the end of the line and are very difficult to pass. The only thing I found that helps that is not a med of some sort is sweet potatoes. I assume it is the added fiber that helps but it works for me within 24 hours without any cramps or other unpleasent side effects.

You may want to look at soy reactions as a possibility.

darlindeb25 Collaborator

Me too! When I get constipated, it is either soy or corn causing the problem, never gluten. I honestly do not think walking past the bakery in your grocery store will gluten you, I can't be sure of course, yet I do doubt it. I will say though, after over 7 yrs of being gluten free, the smell of fresh baked bread in a bakery no longer makes me want it, now it kind of makes me feel like running the other way!!!! I guess it's like a turning point in my celiac life, up until now, I still wanted bread when I smelled it, but lately, the scent has been making me turn away.

It's not unusual for a celiac to be intolerant of soy too. I was gluten free for 3 yrs before my soy intolerance reared it's ugly head and it was another 6 months or so before corn joined the group. They say the gluten intolerance hides the other intolerance's for a while. Live and learn huh?

Glutenfreefamily Enthusiast

Thanks :)

Im positive it wasnt soy since I avoid it usually and have lately been avoiding it and eating a whole foods vegan diet. I cant imagine how I would get glutened otherwise since we didnt attend parties or have any gluten products in the home but ah well at least its done now. Im sure its gluten since I had my standard seizure which is my classic symptom since I was little.

I have been gluten free for over 2 years and now gluten totally turns me off, I do not want to feel what I use to feel before changing our diets.

hathor Contributor

I have heard several people notice that they felt glutened and the only thing they can think of is being in places where there may be flour in the air. So it is not impossible.

Is it possible that some product you bought was cross-contaminated? Those "made on the same equipment" type warnings are strictly voluntary. Anything new you've tried, either a food or a personal care product? You carefully read labels on everything?

Yes, it is frustrating when you have a reaction and any possibility you come up with seems so unlikely. But I guess unlikely things do happen sometimes.

Leslie-FL Rookie

I have wondered, myself, about flour in the air when someone is baking. So far I have had no reaction when going to places where baking is done, but I don't know that I've ever been somewhere WHILE they are doing their baking.

I wanted to help my mother with her holiday baking this year because she has a foot injury and standing for long periods of time is hard for her, but I was so leery of the flour-in-the-air thing. I offered to get one of those masks like they sell in the paint department, but my mom was just as concerned about it as I was and wouldn't let me help her.

Glutenfreefamily Enthusiast

Hathor- Thanks :) I have been doing mwl program so the only thing I can think of in terms of food if it had it on the skin of my veggies and it didnt get washed off properly. I havent used any new products. I hope its not corn :unsure: since that is used on a spray on my veggies and fruit. I would think I would still have it though since I have been eating them all along. I use to wash them with baking powder but not for the last six months since I have had to be really careful with my salt intake. Does red bull have soy in it? That is the only thing I have drank a few times this week for migraines.

Leslie- Thanks :) I could see the flour poof into the air :blink: when she threw some kind of dough onto the table within a few feet behind a counter as I was walking past. I panicked right there just wondering if it was going to happen. I know how you feel with wanting to help your Mom but I wouldnt risk it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



hathor Contributor

Red Bull has no soy in it, but I suppose it could contain something else that bothers you. Or have you had it before without problems?

Glutenfreefamily Enthusiast

So far I havent noticed problems with it, I drink it with migraines and when I have been glutened since it seems to help the headaches and me being tired.

Thanks Again :)

misdiagnosed6yrs Apprentice

Did you wash the handles on the cart? Or maybe touched something? Probably but that was my first thought

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Mari replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    2. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      44

      Supplements for those Diagnosed with Celiac Disease

    4. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      21

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,543
    • Most Online (within 30 mins)
      7,748

    Jeanette K.
    Newest Member
    Jeanette K.
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Mari
      I think, after reading this, that you areso traumatized by not being able yo understand what your medical advisors have been  what medical conditions are that you would like to find a group of people who also feel traumatized who would agree with you and also support you. You are on a crusade much as the way the US Cabinet  official, the Health Director of our nation is in trying to change what he considers outdated and incorrect health advisories. He does not have the education, background or experience to be in the position he occupies and is not making beneficial decisions. That man suffered a terrible trauma early in his life when his father was assonated. We see now how he developed and worked himself into a powerful position.  Unless you are willing to take some advice or  are willing to use a few of the known methods of starting on a path to better health then not many of us on this Celiac Forum will be able to join you in a continuing series of complaints about medical advisors.    I am almost 90 years old. I am strictly gluten free. I use 2 herbs to help me stay as clear minded as possible. You are not wrong in complaining about medical practitioners. You might be more effective with a clearer mind, less anger and a more comfortable life if you would just try some of the suggestions offered by our fellow celiac volunteers.  
    • Jmartes71
      Thus has got to STOP , medical bit believing us! I literally went through 31 years thinking it was just a food allergy as its downplayed by medical if THEY weren't the ones who diagnosed us! Im positive for HLA-DQ2 which is first celiac patient per Iran and Turkey. Here in the States especially in Cali its why do you feel that way? Why do you think your celiac? Your not eating gluten so its something else.Medical caused me depression. I thought I was safe with my former pcp for 25 years considering i thought everything I went through and going through will be available when I get fired again for health. Health not write-ups my health always come back when you're better.Im not and being tossed away at no fault to my own other than shitty genes.I was denied disability because person said he didn't know how to classify me! I said Im celiac, i have ibs, hernia, sciatica, high blood pressure, in constant pain have skin and eye issues and menopause intensified everything. With that my celiac nightmare began to reprove my disregarded disease to a bunch of clowns who think they are my careteam when they said I didn't have...I feel Im still breathing so I can fight this so no body else has to deal with this nightmare. Starting over with " new care team" and waisting more time on why I think I am when diagnosed in 1994 before food eliminated from my diet. P.s everything i went through I did write to medical board, so pretty sure I will continue to have a hard time.
    • knitty kitty
      @Scatterbrain, Thiamine Vitamin B1 and amino acid Taurine work together.  Our bodies can make Taurine from meats consumed.  Our bodies cannot make Thiamine and must consume thiamine from food.  Meat is the best source of B vitamins like Thiamine.   Vegetarians may not make sufficient taurine since they don't eat meat sources of taurine.  Seaweed is the best vegetarian source of taurine. Vegetarians may not consume sufficient Thiamine since few veggies are good sources.  Whole grains, legumes, and nuts and seeds contain thiamine.  Many of these sources can be hard to digest and absorb for people with Celiac disease.   You may find taking the forms of thiamine called Benfotiamine or TTFD (tetrahydrofurfuryl disulfide) and a B Complex will give the benefits you're looking for better than taurine alone.  
    • knitty kitty
      @Jmartes71, I went to Doterra's site and had a look around.  The Doterra TerraZyme supplement really jumped out at me.  Since we, as Celiacs, often have digestive problems, I looked at the ingredients.  The majority of the enzymes in this supplement are made using black mold, Aspergillus!  Other enzymes are made by yeast Saccharomyces!  Considering the fact that Celiac often have permeable intestines (leaky gut syndrome), I would be very hesitant to take a product like this.  Although there may not be live black mold or yeast in the product, the enzymes may still cause an immune system response which would definitely cause inflammation throughout the body.   Skin, eyes, and intestines are all made from the same basic type of cells.  Your skin on the outside and eyes can reflect how irritated the intestines are on the inside.  Our skin, eyes, and intestines all need the same vitamins and nutrients to be healthy:  Vitamin A, Niacin B3 and Tryptophan, Riboflavin B2, Biotin B7, Vitamin C, and Omega Threes.  Remember that the eight B vitamins work together.  Just taking high doses of just one, vitamin like B12, can cause a deficiency in the others.  Taking high doses of B12 can mask a Folate B9 deficiency.  If you take B12, please take a B Complex, too.  Thiamine B1 can be taken in high doses safely without toxicity.  Thiamine is needed by itself to produce energy so every cell in the body can function, but Thiamine also works with the other B vitamins to make life sustaining enzymes and digestive enzymes.  Deficiencies in either Niacin, Vitamin C, or Thiamine can cause digestive problems resulting in Pellagra, Scurvy, and Gastrointestinal Beriberi.   If you change your diet, you will change your intestinal microbiome.  Following the Autoimmune Protocol Diet, a Paleo diet, will starve out SIBO bacteria.  Thiamine keeps bacteria in check so they don't get out of control as in SIBO.  Thiamine also keeps MOLDS and Yeasts from overgrowth.   Menopause symptoms and menstrual irregularities are symptomatic of low Vitamin D.   Doctors are not as knowledgeable about malnutrition as we need them to be.  A nutritionist or dietician would be more helpful.   Take control of your diet and nutrition.  Quit looking for a pill that's going to make you feel better overnight.  The Celiac journey is a marathon, not a sprint.   "Let food be your medicine, and let medicine be your food."
    • RUKen
      The Lindt (Lindor) dairy-free oat milk truffles are definitely gluten-free, and (last time I checked) so are the white chocolate truffles and the mint chocolate truffles. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.