Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Hives & Accidental Gluten Ingestion


Gwen B

Recommended Posts

Gwen B Rookie

Has anyone had hives after ingesting gluten?

I am a new undiagnosed coeliac and gluten free for 2 months. I ate at PF Changs, Portland, OR and suffered a severe hive attack - swelling face, neck, faintness only stopped by swift ER treatment. I also suffered the usual stomache problems that had plagued me before going gluten-free.

I was skin tested for allergies and the only food related stuff I tested posative for was soy, not wheat. I have not been tested for coeliac properly since the doctors i have seen said it was unlikely after a low negative tTg score over a year ago. However they also said that if I felt better on this gluten-free diet that must be it! They also said that there may not be any reason that the histamin reaction was triggered by food. I don't like coincidence and cannot help suspecting that I reacted to the combination of soy and wheat from being accidentally given regular soy sauce and not the gluten-free sauce I asked for. I have had everything else that I ate that day subsequently without any effect, except of course gluten.

Anybody else had similar experience?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Babygirl6915 Explorer
Has anyone had hives after ingesting gluten?

I am a new undiagnosed coeliac and gluten free for 2 months. I ate at PF Changs, Portland, OR and suffered a severe hive attack - swelling face, neck, faintness only stopped by swift ER treatment. I also suffered the usual stomache problems that had plagued me before going gluten-free.

I was skin tested for allergies and the only food related stuff I tested posative for was soy, not wheat. I have not been tested for coeliac properly since the doctors i have seen said it was unlikely after a low negative tTg score over a year ago. However they also said that if I felt better on this gluten-free diet that must be it! They also said that there may not be any reason that the histamin reaction was triggered by food. I don't like coincidence and cannot help suspecting that I reacted to the combination of soy and wheat from being accidentally given regular soy sauce and not the gluten-free sauce I asked for. I have had everything else that I ate that day subsequently without any effect, except of course gluten.

Anybody else had similar experience?

I am not too sure about the celiac aspect but I as far as wheat allergies go, you should have a blood allergy test. I do not test positive for wheat on the skin test however I test VERY positive for it on the blood test. I also suffer from severe hives every so often when I have been glutened. You really should have another allergy test!

zkat Apprentice

If I understand your post correctly, you have tested positive for Soy allergy and then had a hive reaction after eating at a chinese resturant with Soy sauce. My guess is your hives were triggered by the soy if that is a confirmed allergy. Some allergies become worse over time, I would not ever risk eating soy again if I were you!

Kat.

Gwen B Rookie
If I understand your post correctly, you have tested positive for Soy allergy and then had a hive reaction after eating at a chinese resturant with Soy sauce. My guess is your hives were triggered by the soy if that is a confirmed allergy. Some allergies become worse over time, I would not ever risk eating soy again if I were you!

Kat.

I have eaten soy yogurt since the hive incident and not suffered anything but a little gas. I'm already doing gluten-free, lactose and cassein, I'm not sure I want to add to the list! The allergist said that the soy protein that affects me when I drink soy milk may be destryed by heating and therefore inoccuous when eaten as cooked food. Is soy yogurt heated?

I'm thinking I should get blood allergy testing.

confusedks Enthusiast

Gwen B,

By the sounds of your allergic reaction, you need to ask for an epi-pen. You need to have one with you at all times, if you had to go to the ER, that's bad.

Also, I would ask for another allergy test because you may have developed a new allergy.

Gwen B Rookie
Gwen B,

By the sounds of your allergic reaction, you need to ask for an epi-pen. You need to have one with you at all times, if you had to go to the ER, that's bad.

Also, I would ask for another allergy test because you may have developed a new allergy.

Thanks for the info. I now have an epi-pen and am summoning up the courage to bug my doctor again about the allergy. I feel somewhat let down by their indifference and hate going back to the docs with yet another complaint!After all they gave me one blood test for celiac and a skin test for the allergies and they were both negative for wheat!

I am supposed to go away and contact them again if I have another hive attack.

Gwen B Rookie
Gwen B,

By the sounds of your allergic reaction, you need to ask for an epi-pen. You need to have one with you at all times, if you had to go to the ER, that's bad.

Also, I would ask for another allergy test because you may have developed a new allergy.

Thanks for the info. I now have an epi-pen and am summoning up the courage to bug my doctor again about the allergy. I feel somewhat let down by their indifference and hate going back to the docs with yet another complaint!After all they gave me one blood test for celiac and a skin test for the allergies and they were both negative for wheat!

I am supposed to go away and contact them again if I have another hive attack.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,744
    • Most Online (within 30 mins)
      7,748

    jude T
    Newest Member
    jude T
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Theresa2407
      Maybe you have a low  intolerance to Wheat.   Rye, Barley and Malt are the gluten in Celiac disease.  It has always been stated Wheat and Gluten, not just a Wheat intolerance.  Barley will keep me in bed for (2) weeks.  Gut, Migrains, Brain fog, Diahrea.  It is miserable.  And when I was a toddler the doctor would give me a malt medicine because I always had Anemia and did not grow.  Boy was he off.  But at that time the US didn't know anyone about Celiac.  This was the 1940s and 50s.  I had my first episode at 9 months and did not get a diagnosis until I was 50.  My immune system was so shot before being diagnoised, so now I live with the consequences of it. I was so upset when Manufacturers didn't want to label their products so they added barley to the product.  It was mostly the cereal industry.  3 of my favorite cereals were excluded because of this. Malt gives me a bad Gut reaction.
    • Gigi2025
      Thanks much Scott.  Well said, and heeded.   I don't have Celiac, which is fortunate.
    • Scott Adams
      Do you have the results of your endoscopy? Did you do a celiac disease blood panel before that?  Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      It is odd that your Tissue Transglutaminase (TTG) IgA level has bounced from the "inconclusive" range (7.9, 9.8) down to a negative level (5.3), only to climb back up near the positive threshold. This inconsistency, coupled with your ongoing symptoms of malabsorption and specific nutrient deficiencies, is a strong clinical indicator that warrants a more thorough investigation than a simple "satisfactory" sign-off. A negative blood test does not definitively rule out celiac disease, especially with such variable numbers and a classic symptomatic picture. You are absolutely right to seek a second opinion and push for a referral to a gastroenterologist. A biopsy remains the gold standard for a reason, and advocating for one is the most direct path to getting the answers you need to finally address the root cause of your suffering. Here is more info about how to do a gluten challenge for a celiac disease blood panel, or for an endoscopy: and this recent study recommends 4-6 slices of wheat bread per day:    
    • Scott Adams
      There is a distinction between gluten itself and the other chemicals and processing methods involved in modern food production. Your experience in Italy and Greece, contrasted with your reactions in the U.S., provides powerful anecdotal evidence that the problem, for some people, may not be the wheat, but the additives like potassium bromate and the industrial processing it undergoes here. The point about bromines displacing iodine and disrupting thyroid function is a significant one, explaining a potential biological mechanism for why such additives could cause systemic health issues that mimic gluten sensitivity. It's both alarming and insightful to consider that the very "watchdog" agencies meant to protect us are allowing practices banned in many other developed countries. Seeking out European flour and your caution about the high-carb, potentially diabeticgenic nature of many gluten-free products are excellent practical takeaways from your research, but I just want to mention--if you have celiac disease you need to avoid all wheat, including all wheat and gluten in Europe.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.