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dawnw007

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dawnw007 Newbie

has any idea who I am...and all seem so caring here, I'd like to let you all know, I've been diagnosed Celiac through the blood test, the gastro, who was in anyway to do a bile duct snip, didn't bother to do the exam I asked for...so I just tried the diet, only to find that when I was exposed, those old joint pains and swellings, and constipation returned ten fold!

A year later, I had my daughter tested, from 6 up she took Ballet classes, and had such an extended tummy, thin hair, nails...I asked the HMO Doc. for a blood test. Negative...she decided to try the Gluten Free Diet and found her intestinal system to work much better, and the bloating of her stomach to go down significantly.

So we both have been on a Gluten Free diet for years now. I was just reading about co-enzyme B vitimans..I've taken my B100's for years, gluten-free just by chance (for so long I'd see that on the bottle and wonder) I think I may switch myself and get my daughter, who I've recently been working with her to take B complex..she has anxiety problems and such that I thought it may help..from what I've read here, all of you have confirmed my concerns...Thank You...Wish I'd known how to use a live stream before, I'd been here years ago...been going it alone for so long. Thanks To All for All your Wonderful Information!!! Dawnw007


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blueeyedmanda Community Regular

Hi Dawn

Welcome to the board :)

happygirl Collaborator

Welcome to the board, Dawn!

Judyin Philly Enthusiast

Let me add my welcome

Judy

confused Community Regular

welcome dawn

paula

Jodi Mills Apprentice

Hi Dawn,

I am new to the board as well...

Jodi

missy'smom Collaborator

Welcome! :) This is a good place to come to.


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Tazzie Newbie

HI Dawn I am new to

dawnw007 Newbie

I Thank each and everyone, So Much, for all the kind replys! This is the definition of what community truly can be!!! If all the world were so accepting and kind, it would be a better place, yet this sort of kindness starts in the the most surprising places, like here. I feel it is hard to find true community of any kind on line, here I see it every day! It is important to acknowledge the kindnesses we receive and give in life. They are a lot of what keeps us going day to day, knowing we have our sometimes few, yet every one makes a difference, True Communities in this fast changing society!

dlp252 Apprentice

Hello and welcome!

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    • asaT
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    • par18
      Scott, I agree with everything you said except the term "false negative". It should be a "true negative" just plain negative. I actually looked up true/false negative/positive as it pertains to testing. The term "false negative" would be correct if you are positive (have anti-bodies) and the test did not pick them up. That would be a problem with the "test" itself. If you were gluten-free and got tested, you more than likely would test "true" negative or just negative. This means that the gluten-free diet is working and no anti-bodies should be present. I know it sounds confusing and if you don't agree feel free to respond. 
    • SilkieFairy
      I realized it is actually important to get an official diagnosis because then insurance can cover bone density testing and other lab work to see if any further damage has been done because of it. Also, if hospitalized for whatever reason, I have the right to gluten-free food if I am officially celiac. I guess it gives me some legal protections. Plus, I have 4 kids, and I really want to know. If I really do have it then they may have increased risk. 
    • par18
      Been off this forum for years. Is it that important that you get an official diagnosis of something? It appears like you had a trigger (wheat, gluten, whatever) and removing it has resolved your symptom. I can't speak for you, but I had known what my trigger was (gluten) years before my diagnosis I would just stay gluten-free and get on with my symptom free condition. I was diagnosed over 20 years ago and have been symptom free only excluding wheat, rye and barley. I tolerate all naturally gluten free whole foods including things like beans which actually helps to form the stools. 
    • trents
      No coincidence. Recent revisions to gluten challenge guidelines call for the daily consumption of at least 10g of gluten (about the amount in 4-6 slices of wheat bread) for a minimum of 3 weeks. If possible, I would extend that two weeks to ensure valid testing.
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