Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newbie Introduction And Question For The Ladies


ksymonds84

Recommended Posts

ksymonds84 Enthusiast

Hi everyone

I am 42 years old and was diagnosed as spastic colon in my early twentys. I've had symptoms come and go all my life mainly diarreah, mouth sores, psoriasis, and mild joint pain. Last November and December were terrible for me. Diarreah every morning, mouth sores, and muscle cramps in my calves and feet. My hubby and I own two restaurants and have a rebellious teenage daughter so I chalked it up to stress bugging my IBS. My brother in law who is a Celiac came to stay with us for Christmas and thought I should be tested for Celiac because we share alot of the same symptoms. I first went gluten free for about 5 days and the diarreah was gone so I called doc and set up celiac panel for two days later and went back to eating gluten which just gave me a ton of gas. I went gluten free again the day after the test and started feeling better again. The tests came back a week later as negative. I felt so good on the diet that I decided to just stay with it since I was feeling fantastic, no D or mouth sores etc. I had one screw up when I thought klondike heath bar ingredients sounded o.k. and woke up at 3 am with alot of uncomfortable gas but no D in the morning. So now my question is that I have been feeling wonderful except when I got my period this week, the D and flatuence came back but not everyday. Is this a normal thing to have problems during your period? I've been careful with diet so I don't THINK i was glutened. I guess I was just hoping I had an answer and would have smooth sailing. Thanks for any input!

Kathy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



HappyMomof5 Newbie

Kathy,

I also had diarrhea, mouth sores, psoriasis, and mild joint pain. (I attributed D to a "virus", mouth sores to acid reflux, psoriasis to just familial dry skin, and joint pain to my scoliosis. Since going gluten-free, they're all gone. :) )

I had a positive biopsy, for which I'm grateful because I never would've believed I had celiac otherwise. I've been Gluten Free since this January 4th!

I had withdrawal symptoms and mood swings, crying jags, and deep highs and lows, then my period came 2 weeks from the last time I had it. I'm 36 and that's never happened before.

So yes, I would say the lack of gluten is affecting your hormones, and will change your bowel habits. The frequent diarrhea will stop, but many celiacs continue to have it off and on, or when they get gluten accidentally.

I have a celiac friend who had to take the 'Pepto Bismol treatment' of 1 Pepto tablet 3 times a day for 6 weeks in order to get his D to stop. Some bad celiacs have to do that treatment 2 or 3 times, depending on the amount of damage in the small intestine.

I've heard you begin healing within a week, and sometimes it takes 6 months to a year according to some doctors. Really, it depends on the damage done, but congrats to you for figuring it out on your own.

When I was pregnant I would throw up if I ate gluten the first 4 months, so I learned to avoid it. I had 5 babies at the rate of 1 every 2 years. (Ages 2, 4, 6, 8, 10) :) I credit those 4 months every so often as keeping me healthy for the last 10 years.

I think even a little bit of time gluten free makes a big difference.

Good luck,

~Heather

Gwen B Rookie

Hi,

I've been gluten-free for almost three months and yes I did find that my bowel movements took a while to adjust. I used to almost always have mild D before the diet. After a month gluten-free I realised that the gas anc stomach pain was actually due to dairy intolerance. I gave those up and then gave my body time to adjust again, this time mild C especially if i had accidetally had some gluten or cassein, which I didn't realise was in soy and rice cheese. In the last week and a half I have been suffering again and my body adjust again, this time the culprit is soy. I'm now wary of eggs and am not having eggs at the moment just in case.

All this ditective work! It's frustrating but I hope to be feeling as good as I did the first three weeks soon ( I had an accidental cc last night and still trying to detect where from, so am not so happy today :( )

Definately check out the lactose intolerance, it's very common to new gluten-free free folks and may be just temporary, six months or so.

Good luck!

Sweetfudge Community Regular

i also have very "gluten-like" symptoms when it comes to that time of the month. kind of annoying. and i agree with everyone who said you should cut out dairy for a few months. i did and it helped so much. then i was fine adding it back into my diet for awhile. now a year later, wondering if it might be bothering me. that or soy. welcome to the forums by the way :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - TheDHhurts posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Prana Organics no longer GFCO-certified

    2. - cristiana replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    3. - trents replied to Dizzyma's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

    4. - Dizzyma posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      2

      Newly diagnosed mam to coeliac 11 year old

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,927
    • Most Online (within 30 mins)
      7,748

    drw80whz
    Newest Member
    drw80whz
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • TheDHhurts
      I've been buying my seeds and nuts from Prana Organics for a number of years because the products have been GFCO-certified. I just got a new order delivered of their flax and sunflower seeds, and it turns out that they are no longer GFCO-certified. Instead, it just has a generic "Gluten Free" symbol on the package. I reached out to them to ask what protocols/standards/testing they have in place. The person that wrote back said that they are now certifying their gluten free status in-house, but that she couldn't answer my questions related to standards because the person with that info was on vacation. Not very impressed, especially since it still says on their website that they are GFCO-certified. Buyer beware!
    • cristiana
      Hi @Dizzyma I note what @trents has commented about you possibly posting from the UK.  Just to let you know that am a coeliac based in the UK, so if that is the case, do let me know if can help you with any questions on the NHS provision for coeliacs.    If you are indeed based in the UK, and coeliac disease is confirmed, I would thoroughly recommend you join Coeliac UK, as they provide a printed food and drink guide and also a phone app which you can take shopping with you so you can find out if a product is gluten free or not. But one thing I would like to say to you, no matter where you live, is you mention that your daughter is anxious.  I was always a bit of a nervous, anxious child but before my diagnosis in mid-life my anxiety levels were through the roof.   My anxiety got steadily better when I followed the gluten-free diet and vitamin and mineral deficiencies were addressed.  Anxiety is very common at diagnosis, you may well find that her anxiety will improve once your daughter follows a strict gluten-free diet. Cristiana 
    • trents
      Welcome to the celic.com community @Dizzyma! I'm assuming you are in the U.K. since you speak of your daughter's celiac disease blood tests as "her bloods".  Has her physician officially diagnosed her has having celiac disease on the results of her blood tests alone? Normally, if the ttg-iga blood test results are positive, a follow-up endoscopy with biopsy of the small bowel lining to check for damage would be ordered to confirm the results of "the bloods". However if the ttg-iga test score is 10x normal or greater, some physicians, particularly in the U.K., will dispense with the endoscopy/biopsy. If there is to be an endoscopy/biopsy, your daughter should not yet begin the gluten free diet as doing so would allow healing of the small bowel lining to commence which may result in a biopsy finding having results that conflict with the blood work. Do you know if an endoscopy/biopsy is planned? Celiac disease can have onset at any stage of life, from infancy to old age. It has a genetic base but the genes remain dormant until and unless triggered by some stress event. The stress event can be many things but it is often a viral infection. About 40% of the general population have the genetic potential to develop celiac disease but only about 1% actually develop celiac disease. So, for most, the genes remain dormant.  Celiac disease is by nature an autoimmune disorder. That is to say, gluten ingestion triggers an immune response that causes the body to attack its own tissues. In this case, the attack happens in he lining of the small bowel, at least classically, though we now know there are other body systems that can sometimes be affected. So, for a person with celiac disease, when they ingest gluten, the body sends attacking cells to battle the gluten which causes inflammation as the gluten is being absorbed into the cells that make up the lining of the small bowel. This causes damage to the cells and over time, wears them down. This lining is composed of billions of tiny finger-like projections and which creates a tremendous surface area for absorbing nutrients from the food we eat. This area of the intestinal track is where all of our nutrition is absorbed. As these finger-like projections get worn down by the constant inflammation from continued gluten consumption before diagnosis (or after diagnosis in the case of those who are noncompliant) the efficiency of nutrient absorption from what we eat can be drastically reduced. This is why iron deficiency anemia and other nutrient deficiency related medical problems are so common in the celiac population. So, to answer your question about the wisdom of allowing your daughter to consume gluten on a limited basis to retain some tolerance to it, that would not be a sound approach because it would prevent healing of the lining of her small bowel. It would keep the fires of inflammation smoldering. The only wise course is strict adherence to a gluten free diet, once all tests to confirm celiac disease are complete.
    • Dizzyma
      Hi all, I have so many questions and feel like google is giving me very different information. Hoping I may get some more definite answers here. ok, my daughter has been diagnosed as a coeliac as her bloods show anti TTG antibodies are over 128. We have started her  on a full gluten free diet. my concerns are that she wasn’t actually physically sick on her regular diet, she had tummy issues and skin sores. My fear is that she will build up a complete intolerance to gluten and become physically sick if she has gluten. Is there anything to be said for keeping a small bit of gluten in the diet to stop her from developing a total intolerance?  also, she would be an anxious type of person, is it possible that stress is the reason she has become coeliac? I read that diagnosis later in childhood could be following a sickness or stress. How can she have been fine for the first 10 years and then become coeliac? sorry, I’m just very confused and really want to do right by her. I know a coeliac and she has a terrible time after she gets gluttened so just want to make sure going down a total gluten free road is the right choice. thank you for any help or advise xx 
    • xxnonamexx
      very interesting thanks for the info  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.