Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab

silk

Recommended Posts

silk Contributor
silk
Posted

I have heard a lot about this here. I'm just wondering if this is a fairly credible diagnosis? (Not doubting anyone, just considering it for myself and am curious)

Also, for those who have used it, did you find that your M.D. gave any weight to the results from Enterolab or have they just pooh-poohed it. (Sorry, really bad pun, but intended! :lol: )

Also, I seem to remember that someone said if you do the full panel of testing they also check for other intolerance. This would be the biggy to me because I know gluten is a problem but I continue to have other GI symptoms after eating and can't pinpoint it. I am not really wild about doing the elimination diet nor am I wild about the expense of testing through Enterolab, but I consider that the testing would probably be much less costly when you factor in the cost of foods (pepto for the bad stuff you ingestJ) and the time spent suffering until you figure this stuff out.

Would really appreciate some input on this. Thanks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


b91hd7fjk Apprentice
b91hd7fjk
Posted

Sorry I cant answer your question but i am toally in the same boat and am desperate for feedback on it....I still dont know what to do and like you said financially it would be better to choose between the two. Aslo, what test on Entrolab should you check offto get done if u are already diagnosed Celiac and on the Glutenfree diet....I want to know intolerences not necessarily allergies.

Ok thanks.

-Staci

confused Community Regular
confused
Posted
Sorry I cant answer your question but i am toally in the same boat and am desperate for feedback on it....I still dont know what to do and like you said financially it would be better to choose between the two. Aslo, what test on Entrolab should you check offto get done if u are already diagnosed Celiac and on the Glutenfree diet....I want to know intolerences not necessarily allergies. Ok thanks.-Staci

Staci, you could do the package of soy yeast and eggs, i think it is 199, i havent checked there lately. I was going to have that done when i retest my malabsorption this coming month.

paula

Ginsou Explorer
Ginsou
Posted

I would definately have the Enterolab tests done. My blood tests for celiac, ordered by my gastroenterologist, were negative. I had no insurance, and eventually ended up in the emergency room....everything I ate was making me sick and I was in a lot of pain 24/7. I learned of Enterolab thru this website and had the full panel done.....in addition to double celiac/gluten genes, I have a problem with casein and soy. I'm also lactose intolerant. I would have never known of these health problems if I didn't have the tests done. My hospital bill was in the $7,000 range and associated medical bills were about $1,000.00. Enterolab definately was cheaper. I had a CT scan done in the hospital and that eliminated any life threatening problem, and was advised to have an endoscopy and colonoscopy done. I will have medical insurance coverage in October 2008 and will have those procedures done at that time. The gastroenterologist practice where I will have the endo and colo done recommend and believe the results of Enterolab. The gastro dr. himself has celiac.

I've had heartburn problems for the past 4 years that Nexium and Protonix did not help. The heartburn has all but disappeared since changing my diet.

culhanegirl Newbie
culhanegirl
Posted
I have heard a lot about this here. I'm just wondering if this is a fairly credible diagnosis? (Not doubting anyone, just considering it for myself and am curious)

Also, for those who have used it, did you find that your M.D. gave any weight to the results from Enterolab or have they just pooh-poohed it. (Sorry, really bad pun, but intended! :lol: )

Also, I seem to remember that someone said if you do the full panel of testing they also check for other intolerance. This would be the biggy to me because I know gluten is a problem but I continue to have other GI symptoms after eating and can't pinpoint it. I am not really wild about doing the elimination diet nor am I wild about the expense of testing through Enterolab, but I consider that the testing would probably be much less costly when you factor in the cost of foods (pepto for the bad stuff you ingestJ) and the time spent suffering until you figure this stuff out.

Would really appreciate some input on this. Thanks.

I tested with them and found out I was also sensitive to Casein as well as gluten which helped a lot because I was still having symptoms after eliminating gluten and was getting really frustrated and confused. After also eliminating casein my symptoms went away. I also had my sons tested even though they showed no symptoms. They tested positive and we are now all on the Gluten-free Casein-free diet. My youngest (19 months) is small for his age and this may be due to the gluten. It has only been two months so I am curious to see if his growth will be positively affected. My five year old is better behaved since off gluten and dairy which is all he ate before!

celiacgirls Apprentice
celiacgirls
Posted

My whole family has done the testing and the results seem accurate to me. Most of our doctors think it isn't credible but they don't really need to believe it. They do honor my requests for gluten free meds. I can't think of any other way I need them to believe in it.

holdthegluten Rising Star
holdthegluten
Posted

They are an extremely accurate lab..............a great choice! Another great lab is Biohealth, but you need a doctor to order their tests.............google biohealth.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


silk Contributor
silk
Posted
  • Author
They are an extremely accurate lab..............a great choice! Another great lab is Biohealth, but you need a doctor to order their tests.............google biohealth.

Thanks for the information! Can anyone tell me if, because Biohealth requires a dr. to order the tests, does your health insurance cover them?

Also, since by process of elimination I know that I have problems with gluten, is it possible to do conventional testing through my m.d. for other things like dairy, soy, eggs, nuts, etc. so that ins. would cover it?

Bad day yesterday and back on the cream of rice cereal and feeling better but this can only go on for so long! Blah Blah Blah! :blink:

b91hd7fjk Apprentice
b91hd7fjk
Posted

It is rare that I go an entire week feeling healthy...I was diagnosed Celiac (via bloodtest and biopsy) in 05' since then I noticed an improvement however lately I have had a lot of difficulty functioning. I have constipation for days then diahrea for an entire day usually. I finally convinced my general doctor to send me to someone for help...I saw an allergist who performed a scratch test on my back. (intentionally scratched me with gluten and I pretty much died from anxiety attack :huh: ) They finally said it came back completely clear so basically im not allergic to anything I am intolerant to things that are still giving me problems. I know now that they are totally different..my allergist told me that NO TEST CAN TEST FOR INTOLERENCES. I told him about Entero Lab and he basically told me it was a load of crap...I have been back and fourth about the topic because of all the positive feedback I have heard on this site. Anyways, I want to get the best test option for what I need but the test listings are soooo confusing. I know I dont need a test for gluten but....I want a test for everything else haha. good luck.

I am going to call my insurance Monday to see if they would be willing to pay a portion of it...otherwise Ill have to wait until I win the lotto...my allergist is trying to send me to see a nutritionist this week but thats $25 copay a visit...pretty steep.

Ok-hope my story helps.

-Staci

psipsina Rookie
psipsina
Posted

I did an IgG panel from my Naturopath when I was originally trying to figure out what was wrong with me. The results were very accurate. After being off the foods for about 6 months I reintroduced them one by one to see if I was still having a reaction or if the higher IgG levels were due to leaky gut. Many of them were true allergies/intolerances. Some were things I would have never thought of eliminating like green beans which I have an awful reaction to.

Tim-n-VA Contributor
Tim-n-VA
Posted
They finally said it came back completely clear so basically im not allergic to anything I am intolerant to things that are still giving me problems. I know now that they are totally different..my allergist told me that NO TEST CAN TEST FOR INTOLERENCES. I told him about Entero Lab and he basically told me it was a load of crap...I have been back and fourth about the topic because of all the positive feedback I have heard on this site.

I have only done a casual scan of the Entero Lab website but I only saw reference to gluten sensitivity, not to "intolerance". I have seen some usage of "intolerance" to mean only a digestive system response and that might be the context where the allergist was saying there was no test for intolerance.

By way of comparison I've seen "intolerance" used in a variety of contexts on this website to include use as an umbrella term to cover any negative response to gluten.

Does enterolab use the pharas "intolerant" or do they use "sensitivity" in their results?

ravenwoodglass Mentor
ravenwoodglass
Posted

Enterolab was my choice when after over 4 years gluten-free I started reacting to stuff after a severe GI illness. I had them test for everything other than gluten, we already know I can't have that. The test showed antibodies to casien and soy and problems have resolved after eliminating them.

Enterolab does not technically diagnose people, what they do is look for antibodies to the offending foods. Antibodies do not form without a reactive substance to set them off. If your body is forming antibodies to something it does not like it and is trying to protect you from the effects the substance is having on you. The substance that is causeing the antibody reactions in celiac and other intolerances spreads throughout the bloodstream and into every organ, these antibodies, once they are in high enough numbers will start to attack the persons own tissues in an attempt to rid the body of the 'foreign and toxic' substance. A lot of damage can be done before the levels get high enough to be found in conventional blood work, if they can be found at all as up to 30% will show negative on conventional testing even if close to death. Enterolab stool testing can find those antibodies before they get to a fatal level, something conventional testing can not do. The only tests that are more accurate for celiac are the mucosal challenge and biopsy of the mouth or rectum but those tests are not available at this point, at least in the US.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,550
    • Most Online (within 30 mins)
      7,748
    Blough
    Newest Member
    Blough
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Taken Seriously

      By Scott Adams · Posted

      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      Looking for a gluten-free roomie in Denver CO

      By Scott Adams · Posted

      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Allergy medication: cetirizine by the HealthA2Z is it gluten free?

      By Scott Adams · Posted

      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      Protein or fat?

      By Scott Adams · Posted

      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.