Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At The Risk Of Sounding Like A Slacker

Muzz

Recommended Posts

Muzz Rookie
Muzz
Posted

lol Are there degrees of Celiac disease/gluten-intolerance? What I mean is, are some ppl more intolerant and able to cheat sometimes( I sound fully comitted, don't I <_< ) I have only this weekend begun to be aware of gluten problems so please overlook if this seems goofy ;)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


dbmamaz Explorer
dbmamaz
Posted

This is my take, and i've only been hanging out on this forum for a few weeks and dont have a celiac dx. There are basically 3 different reasons to quit gluten (or mosty quit gluten): an allergy to wheat, celiac disease, or a gluten sensitivity that isnt celiac. the fuzziest thing is that some people who dont have celiac, still have the gene for celiac and could develop it. Some people dont have the gene, but still have trouble with gluten.

People with an actual allergy probaby shouldnt cheat at all since that sort of allergy (IgE, the kind that allergists test for) can cause death in extreme cases.

People with celiac shouldnt cheat because gluten causes damage to the cilia and that causes so many other problems. Many people on this forum who were misdiagnosed for over 10 years and were desperately ill cannot imagine cheating and are horrified at other people cheating too, becuase they have that visceral sense of how much illness can be caused by gluten

Many people with gluten or intolernces have such strong reactions to even small accidental gluten ingestion that they work strenuously to avoid it. For example, they may have instant D, spend 2 days curled up in bed with stomach cramps, get a migraine for a full day, or have 2 weeks of anxiety and depression, just from accidental ingestion. They, obviously, dont cheat.

Some people cheat. Heck, people do all sorts of things that are really bad for them. But if you have celiac or other serious symptoms, no one will recomend it.

If you have a mild non-allergic, non-celiac gluten or wheat reaction, you may want to try re-introducting gluten after a good 9 mo or so of being off of it, to see if your symptoms are gone. However, if you have celiac, thats not a good idea, because it could take months or years until you have enough damage to your cilia that you actually notice symptoms.

Guest j_mommy
Guest j_mommy
Posted

Muzz,

Don't feel that way! It's hard to "digest" and take it all in. It seems like alot at first. It's kind of overwhelming.

I'm sure there are people out there that think and feel that they can cheat occasionally. However for a celaic to heal and be healthy...100% gluten-free is the only way. If you have celiac you need to be gluten-free. I don't know much about gluten intolerance but I would think that it is the same way for that.

You almost need to go threw the grieving process for gluten...especially if you were like me and a bread junky! But as I have continued on teh diet and learned to cook, it's ALOT eassier. Now I have replacments for those things I missed and was craving or tempting me to cheat. Plus I know that I don't ever want to feel that way again.

Good Luck to you!

Jess

Muzz Rookie
Muzz
Posted
  • Author

TY for the info, I don't mean to come off sounding as if I'm making light of it :) This all brand-new, as in 2 days new to me, I don't have dx of celiac disease but I am so desperate to regain my health and this might be the answer. At the very least, it will make me eat better...lol Fortunatley, food is not my passion so it may not be as difficult for me, it's just going to take some getting used to being consious of what I eat .

ElseB Contributor
ElseB
Posted
lol Are there degrees of Celiac disease/gluten-intolerance? What I mean is, are some ppl more intolerant and able to cheat sometimes( I sound fully comitted, don't I <_< ) I have only this weekend begun to be aware of gluten problems so please overlook if this seems goofy ;)

I asked the same question many times, but keep getting the answer that if you're celiac, you have to be 100% gluten free. I was only diagnosed through a biopsy 4 days ago, though I had a positive blood test months ago so I was fairly sure I had celiac. But unlike most people, I have almost no symptoms when I do eat gluten. The doctor only tested me as an afterthought when I was recovering from c.difficile. Its hard to accept when you're told eating gluten will make you sick, yet you feel fine when you eat it!!!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,963
    • Most Online (within 30 mins)
      7,748
    AlissaW
    Newest Member
    AlissaW
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.