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[4everHungry]

Hello, I have been reading the boards for a long time, but this is my first post. Like most of you I had been ill for a couple of years. My doctor tested me for just about everything but never celiac disease. It was when my oldest daughter starting loosing weight and her pediatrician suggested taking her off gluten that I learned of the disease. I then went back to my doctor and asked to be tested. He gave me a lab slip and had me tested for everything that he had already had me tested for but not celiac disease.

I continued to have days when I still got sick so I have eliminated soy and corn as well and am feeling pretty good. So here is my question. What are the chances that I am intolerant to gluten, soy and corn and I do not have celiac disease? I want to know if I have the disease but am pretty tired of dealing with doctors.

[Lisa]

Hello, I have been reading the boards for a long time, but this is my first post. Like most of you I had been ill for a couple of years. My doctor tested me for just about everything but never celiac disease. It was when my oldest daughter starting loosing weight and her pediatrician suggested taking her off gluten that I learned of the disease. I then went back to my doctor and asked to be tested. He gave me a lab slip and had me tested for everything that he had already had me tested for but not celiac disease.

I continued to have days when I still got sick so I have eliminated soy and corn as well and am feeling pretty good. So here is my question. What are the chances that I am intolerant to gluten, soy and corn and I do not have celiac disease? I want to know if I have the disease but am pretty tired of dealing with doctors.

Welcome to your first post!

Here is the test that you should have your doctor order:

Anti-gliadin antibodies (AGA) both IgA and IgG

Anti-endomysial antibodies (EMA) - IgA

Anti-tissue transglutaminase antibodies (tTG) - IgA

Total IgA level.

These test are not 100% accurate. Since you are no longer interested in testing, the positive dietary response would be the way to go. Or, you can pursue gene testing for you and your daughter.

You already know that you feel better off of gluten. You can continue to be gluten free, then introduce gluten and see how you feel. At the least, you know it bothers you. You may or may not have Celiac, but a gluten allergy or intolerance.

But, if you do have Celiac, any amount of gluten can be very harmful. Further testing is a personal decision. This board is rather split on wanting to know and others just want to feel better asap.