Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Fell Off The Wagon


Muzz

Recommended Posts

Muzz Rookie

I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



mushroom Proficient
I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

____________________________________________________________________________________________________

______________

Hi Muzz:

I think it is pretty much unique for each individual. From what I have read some have incredible changes right away, others just keep plugging on and pretty soon become aware they are feeling better. For me, the arthritis symptoms abated in two months (but unfortunately last night they started coming back so it may have just been a normal flare/regression :( . My bloating and insomnia and other gastro symptoms took about two or three weeks to recede, but come back the next day if I get glutened, but fortunately only last a day or so. We all go "off the wagon" at some point, sometimes intentionally, sometimes accidentally. I was in the supermarket and they were offering samples of a new hummus dip. I carefully checked out that it was gluten free before I tried it, and then realised I had sampled it on a piece of melba toast!! Ouch. Told him he should have some Sakata crackers. My psoriasis is still receding little by little, probably never will totally go away because that is the nature of the beast, but at least I don't feel like I have chicken pox any more, like I did for the last three years. (I have been gluten-free since November)

Don't give up, because the improvement will come, and it will get easier to resist the pizza once that happens.

Neroli

psawyer Proficient

Reactions vary. After only six days without gluten, a relapse to gluten will not be that alien to your system, so a noticeable adverse effect is unlikely. It does take time for your body to recover from years of exposure to gluten.

Move forward. No more gluten. You can do it.

RiceGuy Collaborator

Once you see improvements, it will be much easier to resist. But, you do need to hold on to your willpower long enough to get those benefits. Yes, it does take time for many, though not everyone, to get real improvement. I was gluten-free for six months before I noticed much of anything, and during that time I wondered every so often if I was on the right track. Then suddenly, like out of nowhere, boom! Boy oh boy did things start changing! Then I really knew I had struck gold.

dbmamaz Explorer

I know it sounds weird, but you might want to bring something for you to eat which is similar to what's being served. I havent tried it since I'm also off dairy, but Amy's apparently makes awesome gluten-free pizza.

On the other hand, cutting out dairy too might help your symptoms ease up more quickly . ..

Muzz Rookie

TY all....I'll just consider this a minor relapse :) I was going to take something to munch on at the party but got in a hurry and forgot. My family isn't a prob, they're used to seeing me not eat much at family functions ;)

gfcookie Newbie
I joined last week, had been gluten-free for 6 days but tonight was out GD 2nd bday and the sight of pizza was too much for me and I broke down and ate 2 pieces. I really hadn't been having too tough of a time with the dietary changes, in fact I was prob eating a bit healthier, subbing a banana or an apple for a few crackers for a snack. Is this a makor setback?

Also, I need to know..altho I was only gluten-free for 6 days, should I have not experienced SOME kind of difference? Less bloating, stomach discomfort, fatigue? I didn't feel any better at all. Now, I know that the vets will poo-poo this and tell me it take mths and yrs to see a real diff but should I notice ANY diff at all right away or is that wishful thinking ? :)

you won't start to feel better untill you totally cut gluten out. you probably reversed the small amount of healing that you had over the past week. try again. you will notice a difference pretty soon, some of it is pyschological that you are finally on the road to getting better. but it can take up to six months or a year for your tummy to fully heal. don't give up. But, you won't get better eating gluten "light", and having a few pieces of pizza a week.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Muzz Rookie
you won't start to feel better untill you totally cut gluten out. you probably reversed the small amount of healing that you had over the past week. try again. you will notice a difference pretty soon, some of it is pyschological that you are finally on the road to getting better. but it can take up to six months or a year for your tummy to fully heal. don't give up. But, you won't get better eating gluten "light", and having a few pieces of pizza a week.

TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

gfcookie Newbie
TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

even things that you never even thought could be gluten related could improve when you go gluten-free, because your body will be healing, and before, when your body was "sick", alot of things were probably not working right in your body! stick to it! you can do it!

aikiducky Apprentice

One of my most annoying symptoms is fatigue and brain fog. I don't mind the GI symptoms so much. One thing that helps me is taking a vitamin B complex that has all the vit. B's in it, when I get glutenend I take an extra dose. Just check that the ones you get are gluten free!

Pauliina

BFreeman Explorer

____________________________________________________________________________________________________

______________

My psoriasis is still receding little by little, probably never will totally go away because that is the nature of the beast, but at least I don't feel like I have chicken pox any more, like I did for the last three years. (I have been gluten-free since November)

Does a gluten free diet help psoriasis? We are gluten free at home because husband needs to be, but I have psoriasis (not bad; on hands and elbows). It wouldn't be so hard to go totally gluten-free myself since I'm used to the "rules."

BF

ravenwoodglass Mentor
Does a gluten free diet help psoriasis? We are gluten free at home because husband needs to be, but I have psoriasis (not bad; on hands and elbows). It wouldn't be so hard to go totally gluten-free myself since I'm used to the "rules."

BF

The gluten free diet may very well help. One thing I know for sure is that in Turkey my 'gluten intolerant' gene is deemed one for psoriasis. My DD had a large patch on her elbow that she had for years that did go away after a couple months on the diet. You have nothing to lose by giving it a shot.

Gwen B Rookie
TY :) I had figured that was prob the case. Actually, tho, the GI sx for me are the least of it, not alot of diahhrea but alot o bloating and discomfort but I guess I'e "gotten used" to it. My main prob is th eoverwhelming fatigue, (in spite of a hemoglobin of 12.9) and the neuropathy of feet and legs. Some days I can berely function. Is this familiar to anyone here and if so, did relief come with the gluten-free diet? I can totally go gluten-free if I know that it may help, I'm so desperate for relief.

Fatigue is also my big complaint at the moment. Even after being gluten-free for 3 months some days (not just the few after a cc incident) I get up with my kids but am so tired by the time they have gone to school that I feel I just want to sleep. Not sure if this is a symptom and beginning to doubt whether I am gluten intolerant because I have not tested with a gluten challenge yet. I take vit B12, multivit and often a 'thyroid support' supplement thinking it might help. I didn't have any bad thyroid numbers before going gluten-free and my other vit levels were deemed 'normal' although not high for all the vitamins I am taking! At least I don't have stomach ache all the time :) now. I hope it's just good days/not so good days for a few months and eventually I'll know the difference.

Muzz Rookie

Hubby went to the market and got me gluten-free cookies, bread and pizza mix..and last week he bought us a bread machine so now I have so excuse to fall off the wagon again... ;)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    2. - BlessedinBoston replied to marion wheaton's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?

    3. - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    4. - Jmartes71 replied to Jmartes71's topic in Related Issues & Disorders
      14

      My only proof

    5. - marion wheaton posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Are Lindt chocolate balls gluten free?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,406
    • Most Online (within 30 mins)
      7,748

    Kbradway
    Newest Member
    Kbradway
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • trents
      @BlessedinBoston, it is possible that in Canada the product in question is formulated differently than in the USA or at least processed in in a facility that precludes cross contamination. I assume from your user name that you are in the USA. And it is also possible that the product meets the FDA requirement of not more than 20ppm of gluten but you are a super sensitive celiac for whom that standard is insufficient. 
    • BlessedinBoston
      No,Lindt is not gluten free no matter what they say on their website. I found out the hard way when I was newly diagnosed in 2000. At that time the Lindt truffles were just becoming popular and were only sold in small specialty shops at the mall. You couldn't buy them in any stores like today and I was obsessed with them 😁. Took me a while to get around to checking them and was heartbroken when I saw they were absolutely not gluten free 😔. Felt the same when I realized Twizzlers weren't either. Took me a while to get my diet on order after being diagnosed. I was diagnosed with small bowel non Hodgkins lymphoma at the same time. So it was a very stressful time to say the least. Hope this helps 😁.
    • knitty kitty
      @Jmartes71, I understand your frustration and anger.  I've been in a similar situation where no doctor took me seriously, accused me of making things up, and eventually sent me home to suffer alone.   My doctors did not recognize nutritional deficiencies.  Doctors are trained in medical learning institutions that are funded by pharmaceutical companies.  They are taught which medications cover up which symptoms.  Doctors are required to take twenty  hours of nutritional education in seven years of medical training.  (They can earn nine hours in Nutrition by taking a three day weekend seminar.)  They are taught nutritional deficiencies are passe' and don't happen in our well fed Western society any more.  In Celiac Disease, the autoimmune response and inflammation affects the absorption of ALL the essential vitamins and minerals.  Correcting nutritional deficiencies caused by malabsorption is essential!  I begged my doctor to check my Vitamin D level, which he did only after making sure my insurance would cover it.  When my Vitamin D came back extremely low, my doctor was very surprised, but refused to test for further nutritional deficiencies because he "couldn't make money prescribing vitamins.". I believe it was beyond his knowledge, so he blamed me for making stuff up, and stormed out of the exam room.  I had studied Nutrition before earning a degree in Microbiology.  I switched because I was curious what vitamins from our food were doing in our bodies.  Vitamins are substances that our bodies cannot manufacture, so we must ingest them every day.  Without them, our bodies cannot manufacture life sustaining enzymes and we sicken and die.   At home alone, I could feel myself dying.  It's an unnerving feeling, to say the least, and, so, with nothing left to lose, I relied in my education in nutrition.  My symptoms of Thiamine deficiency were the worst, so I began taking high dose Thiamine.  I had health improvement within an hour.  It was magical.  I continued taking high dose thiamine with a B Complex, magnesium. and other essential nutrients.  The health improvements continued for months.  High doses of thiamine are required to correct a thiamine deficiency because thiamine affects every cell and mitochondria in our bodies.    A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function.  The cerebellum of the brain is most affected.  The cerebellum controls things we don't have to consciously have to think about, like digestion, balance, breathing, blood pressure, heart rate, hormone regulation, and many more.  Thiamine is absorbed from the digestive tract and sent to the most important organs like the brain and the heart.  This leaves the digestive tract depleted of Thiamine and symptoms of Gastrointestinal Beriberi, a thiamine deficiency localized in the digestive system, begin to appear.  Symptoms of Gastrointestinal Beriberi include anxiety, depression, chronic fatigue, headaches, Gerd, acid reflux, gas, slow stomach emptying, gastroparesis, bloating, diarrhea and/or constipation, incontinence, abdominal pain, IBS,  SIBO, POTS, high blood pressure, heart rate changes like tachycardia, difficulty swallowing, Barrett's Esophagus, peripheral neuropathy, and more. Doctors are only taught about thiamine deficiency in alcoholism and look for the classic triad of symptoms (changes in gait, mental function, and nystagmus) but fail to realize that gastrointestinal symptoms can precede these symptoms by months.  All three classic triad of symptoms only appear in fifteen percent of patients, with most patients being diagnosed with thiamine deficiency post mortem.  I had all three but swore I didn't drink, so I was dismissed as "crazy" and sent home to die basically.   Yes, I understand how frustrating no answers from doctors can be.  I took OTC Thiamine Hydrochloride, and later thiamine in the forms TTFD (tetrahydrofurfuryl disulfide) and Benfotiamine to correct my thiamine deficiency.  I also took magnesium, needed by thiamine to make those life sustaining enzymes.  Thiamine interacts with each of the other B vitamins, so the other B vitamins must be supplemented as well.  Thiamine is safe and nontoxic even in high doses.   A doctor can administer high dose thiamine by IV along with the other B vitamins.  Again, Thiamine is safe and nontoxic even in high doses.  Thiamine should be given if only to rule Gastrointestinal Beriberi out as a cause of your symptoms.  If no improvement, no harm is done. Share the following link with your doctors.  Section Three is especially informative.  They need to be expand their knowledge about Thiamine and nutrition in Celiac Disease.  Ask for an Erythrocyte Transketolace Activity test for thiamine deficiency.  This test is more reliable than a blood test. Thiamine, gastrointestinal beriberi and acetylcholine signaling.  https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Best wishes!
    • Jmartes71
      I have been diagnosed with celiac in 1994, in remission not eating wheat and other foods not to consume  my household eats wheat.I have diagnosed sibo, hernia ibs, high blood pressure, menopause, chronic fatigue just to name a few oh yes and Barrett's esophagus which i forgot, I currently have bumps in back of my throat, one Dr stated we all have bumps in the back of our throat.Im in pain.Standford specialist really dismissed me and now im really in limbo and trying to get properly cared for.I found a new gi and new pcp but its still a mess and medical is making it look like im a disability chaser when Im actively not well I look and feel horrible and its adding anxiety and depression more so.Im angery my condition is affecting me and its being down played 
    • marion wheaton
      Wondering if anyone knows whether Lindt chocolate balls are gluten free. The Lindt Canadian website says yes but the Lindt USA website says no. The information is a bit confusing.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.