Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Adrenal -- Related?


huevo-no-bueno

Recommended Posts

huevo-no-bueno Apprentice

I am new here.

There is a lot of discussion on celiac and gluten intolerance having a connection to autoimmune thyroid disease.

I am wondering about the connection to autoimmune adrenal issues--it just makes sense!

Take a look at this link if you wish. Open Original Shared Link It discusses adrenocorticol autoantibodies and 21-hydrozy enzymes.

Thanks for chiming in!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

It is not uncommon for a person with one autoimmune disease to have other autoimmune diseases. Many just have one. For others they can cluster...look up polyendocrine autoimmune disorders. Certain disease are more likely to occur together: eg : Type 1 diabetes and thyroid, or celiac and thyroid, thyroid and adrenal failure (addisons), adrenal failure and celiac, pernicious anemia...the list goes on... They can occur singly or more than one disease in any combination in a certain individual.

This is a good website: Open Original Shared Link

georgie Enthusiast
There is a lot of discussion on celiac and gluten intolerance having a connection to autoimmune thyroid disease.

I am wondering about the connection to autoimmune adrenal issues--it just makes sense!

Look up PolyGlandular Autoimmune Syndrome Type 2. Its a rare conditon but common if that makes sense :P

Open Original Shared Link

Also be aware that adrenal antibodies can disappear and be absent, if the disease has gone undiagnosed for a long time.

huevo-no-bueno Apprentice

Georgie,

Thanks for that link. I don't think that's what I have since my thyroid is fine. I have a relative with Hashimoto's, so I forwarded the link to them. I believe this person is an undiagnosed celiac.

With adrenals, even the subclinical can feel reeeeeaaallly bad....

georgie Enthusiast
With adrenals, even the subclinical can feel reeeeeaaallly bad....

This could be due to what is defined as 'subclinical'. Some Blood tests are not accurate for adrenal problems and some Drs won't refer you for further more advanced and accurate adrenal testing until a problem shows on the basic tests .....so ....you can waste years waiting to get an answer. And autoimmune Addisons can be slowly progressive or happen in weeks. I know some people that have taken 30 years to be diagnosed !

Read up what an Addisons Crisis is - early warning signs - keep a check on electrolytes , ALL associated Antibody tests and serum cortisol every year. Report unusual symptoms to a Dr like salt or vinegar cravings. Check Blood Pressure. Keep a Diary of symptoms for when you do see your Dr...

I believe that Addisons is the 100% requirement for PGA2 and that Hashimotos is only one of the possibles ( like Celiac).

  • 1 year later...
Leiana Rookie
This could be due to what is defined as 'subclinical'. Some Blood tests are not accurate for adrenal problems and some Drs won't refer you for further more advanced and accurate adrenal testing until a problem shows on the basic tests .....so ....you can waste years waiting to get an answer. And autoimmune Addisons can be slowly progressive or happen in weeks. I know some people that have taken 30 years to be diagnosed !

Read up what an Addisons Crisis is - early warning signs - keep a check on electrolytes , ALL associated Antibody tests and serum cortisol every year. Report unusual symptoms to a Dr like salt or vinegar cravings. Check Blood Pressure. Keep a Diary of symptoms for when you do see your Dr...

I believe that Addisons is the 100% requirement for PGA2 and that Hashimotos is only one of the possibles ( like Celiac).

then it is not curable. just treatable to a certain extent. if you dont know which autoimmune disease is causing it then what??? all this testing is almost getting pointless it seems. i have low cortisol levels, take cortef and lost tons of weight and muscle. cant wait years to find out what is causing this. its scary.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,169
    • Most Online (within 30 mins)
      7,748

    Annette Hill
    Newest Member
    Annette Hill
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.