Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Adrenal -- Related?


huevo-no-bueno

Recommended Posts

huevo-no-bueno Apprentice

I am new here.

There is a lot of discussion on celiac and gluten intolerance having a connection to autoimmune thyroid disease.

I am wondering about the connection to autoimmune adrenal issues--it just makes sense!

Take a look at this link if you wish. Open Original Shared Link It discusses adrenocorticol autoantibodies and 21-hydrozy enzymes.

Thanks for chiming in!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

It is not uncommon for a person with one autoimmune disease to have other autoimmune diseases. Many just have one. For others they can cluster...look up polyendocrine autoimmune disorders. Certain disease are more likely to occur together: eg : Type 1 diabetes and thyroid, or celiac and thyroid, thyroid and adrenal failure (addisons), adrenal failure and celiac, pernicious anemia...the list goes on... They can occur singly or more than one disease in any combination in a certain individual.

This is a good website: Open Original Shared Link

georgie Enthusiast
There is a lot of discussion on celiac and gluten intolerance having a connection to autoimmune thyroid disease.

I am wondering about the connection to autoimmune adrenal issues--it just makes sense!

Look up PolyGlandular Autoimmune Syndrome Type 2. Its a rare conditon but common if that makes sense :P

Open Original Shared Link

Also be aware that adrenal antibodies can disappear and be absent, if the disease has gone undiagnosed for a long time.

huevo-no-bueno Apprentice

Georgie,

Thanks for that link. I don't think that's what I have since my thyroid is fine. I have a relative with Hashimoto's, so I forwarded the link to them. I believe this person is an undiagnosed celiac.

With adrenals, even the subclinical can feel reeeeeaaallly bad....

georgie Enthusiast
With adrenals, even the subclinical can feel reeeeeaaallly bad....

This could be due to what is defined as 'subclinical'. Some Blood tests are not accurate for adrenal problems and some Drs won't refer you for further more advanced and accurate adrenal testing until a problem shows on the basic tests .....so ....you can waste years waiting to get an answer. And autoimmune Addisons can be slowly progressive or happen in weeks. I know some people that have taken 30 years to be diagnosed !

Read up what an Addisons Crisis is - early warning signs - keep a check on electrolytes , ALL associated Antibody tests and serum cortisol every year. Report unusual symptoms to a Dr like salt or vinegar cravings. Check Blood Pressure. Keep a Diary of symptoms for when you do see your Dr...

I believe that Addisons is the 100% requirement for PGA2 and that Hashimotos is only one of the possibles ( like Celiac).

  • 1 year later...
Leiana Rookie
This could be due to what is defined as 'subclinical'. Some Blood tests are not accurate for adrenal problems and some Drs won't refer you for further more advanced and accurate adrenal testing until a problem shows on the basic tests .....so ....you can waste years waiting to get an answer. And autoimmune Addisons can be slowly progressive or happen in weeks. I know some people that have taken 30 years to be diagnosed !

Read up what an Addisons Crisis is - early warning signs - keep a check on electrolytes , ALL associated Antibody tests and serum cortisol every year. Report unusual symptoms to a Dr like salt or vinegar cravings. Check Blood Pressure. Keep a Diary of symptoms for when you do see your Dr...

I believe that Addisons is the 100% requirement for PGA2 and that Hashimotos is only one of the possibles ( like Celiac).

then it is not curable. just treatable to a certain extent. if you dont know which autoimmune disease is causing it then what??? all this testing is almost getting pointless it seems. i have low cortisol levels, take cortef and lost tons of weight and muscle. cant wait years to find out what is causing this. its scary.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    2. - cristiana replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    3. - trents replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    4. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

    5. - Charlie1946 replied to Charlie1946's topic in Related Issues & Disorders
      11

      Severe severe mouth pain

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      132,900
    • Most Online (within 30 mins)
      7,748

    sai4a
    Newest Member
    sai4a
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Charlie1946, There are many vitamin deficiencies associated with PCOS and Celiac disease and mental health issues.  The malabsorption of nutrients caused by Celiac can exacerbate PCOS and mental health issues. Vitamin B 3 Niacin (the kind that causes flushing) improves sebaceous hyperplasia and PCOS. (300 mg/day) Vitamin B 1 Thiamine improves dysphagia, and with Omega Threes, Sjogren's, and PCOS.     (300 mg/day) The other B vitamins are needed as well because they all work together like an orchestra.   The fat soluble vitamins A, D, E, and K, are needed as well.  Low Vitamin D is common in both PCOS and Celiac and depression.   Deficiencies in Niacin Thiamine, Cobalamine B12, Folate B 9, Vitamin C, and Vitamin D can cause mental health issues.   I wish doctors would check for nutritional deficiencies and gastrointestinal issues before prescribing antidepressants.  My mental health issues didn't get better until my vitamin deficiencies were corrected and a gluten free keto/paleo diet adopted.   Though blood tests are not really accurate, you may want to get tested for deficiencies before supplementing, otherwise you'll be measuring the vitamins you've taken and blood tests will show blood levels that are too high. Yes, Thiamine TTFD and the other vitamins are available over-the-counter.  A B Complex with additional Thiamine TTFD and Niacin made a big difference to my health.  I follow a paleo diet, and make sure I get Omega Threes.  I took high dose Vitamin D to correct my deficiency there.   I've run through the mental health gamut if you would like to talk about your issues.  You can personal message us if you would be more comfortable.   Interesting Reading: Nutritional and herbal interventions for polycystic ovary syndrome (PCOS): a comprehensive review of dietary approaches, macronutrient impact, and herbal medicine in management https://pmc.ncbi.nlm.nih.gov/articles/PMC12049039/
    • cristiana
      Hi @Charlie1946 I am so sorry to hear you are suffering with this problem.   Just a few other thoughts.  I had debilitating anxiety prior to my diagnosis.  I was never admitted to a hospital but thankfully had a lot of support from friends and family, and found a couple of publications contained really helpful advice:  for depression, The Depression Cure: The Six-Step Programme to Beat Depression Without Drugs by Dr Steve Llardi, and for debilitating anxiety, At Last A Life by Paul David.  Both can be ordered online, there is also a website for the latter.  If you are deficient in or have low iron or B12 this can cause or worsen mental health issues.  I am sure my own issues were caused by long-term deficiencies.   If you can get your blood tested, it would be useful.  In the case of iron, make sure you only supplement if you have a deficiency, and levels can be monitored, as too much iron can be dangerous. If you have burning mouth issues, very bad TMJ or neuralgia,  I understand the pain can be managed by the use of a certain class of medication like amitriptyline, which is also used to treat depression.  But there again, it is possible with the correct diet and supplementation these issues might improve? I do hope that you find relief soon. Cristiana
    • trents
      @Charlie1946, as an alternative to milk-based protein shakes, let me suggest whey protein. Whey and casein are the two main proteins found in milk but whey doesn't cause issues like casein can for celiacs. Concerning your question about celiac safe mental health facilities, unfortunately, healthcare facilities in general do not have good reputations for being celiac safe. Most celiacs find that they need to depend on family members to advocate for them diligently or bring in food from the outside. Training of staff is inconsistent and there is the issue of turnover and also cross contamination.
    • Charlie1946
      @knitty kitty are you kidding?  I had no idea about the casein!! No one ever mentioned that to me at all!! I basically live off that milk! I have also wondered if I have Sjorgen's , but I haven't been to the doctor yet. Can you get the TTFD over the counter? I do have dysphasia and I have lysine I just haven't been good about taking it. I am so glad I found this group and all of you with all this helpful information!! I thought I was going crazy!!  I have sebaceous hyperplasia too- is that related to Celiac?  OH , and I wanted to ask if there is a site where I could find information on mental health issues , with celiac safe facilities??
    • Charlie1946
      @trents, Hi, thank you for the reply, I used to be pretty good at taking my vitamins and supplements, because I also have PCOS, I have Barrett's esophagus, it's just too expensive to have it stretched all the time, and I also get kinda panicked when trying to swallow pills because of getting choked a lot before.  I think maybe the thrush made it worse, I just can't figure out why I can't get it to go away 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.