Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Autoimmune Adrenal -- Related?


huevo-no-bueno

Recommended Posts

huevo-no-bueno Apprentice

I am new here.

There is a lot of discussion on celiac and gluten intolerance having a connection to autoimmune thyroid disease.

I am wondering about the connection to autoimmune adrenal issues--it just makes sense!

Take a look at this link if you wish. Open Original Shared Link It discusses adrenocorticol autoantibodies and 21-hydrozy enzymes.

Thanks for chiming in!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

It is not uncommon for a person with one autoimmune disease to have other autoimmune diseases. Many just have one. For others they can cluster...look up polyendocrine autoimmune disorders. Certain disease are more likely to occur together: eg : Type 1 diabetes and thyroid, or celiac and thyroid, thyroid and adrenal failure (addisons), adrenal failure and celiac, pernicious anemia...the list goes on... They can occur singly or more than one disease in any combination in a certain individual.

This is a good website: Open Original Shared Link

georgie Enthusiast
There is a lot of discussion on celiac and gluten intolerance having a connection to autoimmune thyroid disease.

I am wondering about the connection to autoimmune adrenal issues--it just makes sense!

Look up PolyGlandular Autoimmune Syndrome Type 2. Its a rare conditon but common if that makes sense :P

Open Original Shared Link

Also be aware that adrenal antibodies can disappear and be absent, if the disease has gone undiagnosed for a long time.

huevo-no-bueno Apprentice

Georgie,

Thanks for that link. I don't think that's what I have since my thyroid is fine. I have a relative with Hashimoto's, so I forwarded the link to them. I believe this person is an undiagnosed celiac.

With adrenals, even the subclinical can feel reeeeeaaallly bad....

georgie Enthusiast
With adrenals, even the subclinical can feel reeeeeaaallly bad....

This could be due to what is defined as 'subclinical'. Some Blood tests are not accurate for adrenal problems and some Drs won't refer you for further more advanced and accurate adrenal testing until a problem shows on the basic tests .....so ....you can waste years waiting to get an answer. And autoimmune Addisons can be slowly progressive or happen in weeks. I know some people that have taken 30 years to be diagnosed !

Read up what an Addisons Crisis is - early warning signs - keep a check on electrolytes , ALL associated Antibody tests and serum cortisol every year. Report unusual symptoms to a Dr like salt or vinegar cravings. Check Blood Pressure. Keep a Diary of symptoms for when you do see your Dr...

I believe that Addisons is the 100% requirement for PGA2 and that Hashimotos is only one of the possibles ( like Celiac).

  • 1 year later...
Leiana Rookie
This could be due to what is defined as 'subclinical'. Some Blood tests are not accurate for adrenal problems and some Drs won't refer you for further more advanced and accurate adrenal testing until a problem shows on the basic tests .....so ....you can waste years waiting to get an answer. And autoimmune Addisons can be slowly progressive or happen in weeks. I know some people that have taken 30 years to be diagnosed !

Read up what an Addisons Crisis is - early warning signs - keep a check on electrolytes , ALL associated Antibody tests and serum cortisol every year. Report unusual symptoms to a Dr like salt or vinegar cravings. Check Blood Pressure. Keep a Diary of symptoms for when you do see your Dr...

I believe that Addisons is the 100% requirement for PGA2 and that Hashimotos is only one of the possibles ( like Celiac).

then it is not curable. just treatable to a certain extent. if you dont know which autoimmune disease is causing it then what??? all this testing is almost getting pointless it seems. i have low cortisol levels, take cortef and lost tons of weight and muscle. cant wait years to find out what is causing this. its scary.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Larzipan's topic in Related Issues & Disorders
      40

      Has anyone had terrible TMJ/ Jaw Pain from undiagnosed Celiac?

    2. - trents replied to Ginger38's topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    3. - Ginger38 posted a topic in Related Issues & Disorders
      1

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - Russ H commented on Scott Adams's article in Latest Research
      5

      Study Estimates the Costs of Delayed Celiac Disease Diagnosis (+Video)

    5. - Russ H posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Coeliac UK Research Conference 2025


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,379
    • Most Online (within 30 mins)
      7,748

    PBarks
    Newest Member
    PBarks
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Some backup to my statement about gluten and milk.   The portion of gluten that passes through to breastmilk is called gliadin. It is the component of gluten that causes celiac disease or gluten intolerance. What are the Effects of Gluten in Breastmilk? Gliaden, a component of gluten which is typically responsible for the intestinal reaction of gluten, DOES pass through breast milk.  This is because gliaden (as one of many food proteins) passes through the lining of your small intestine into your blood. Can gluten transmit through breast milk?  
    • trents
      I don't know of a connection. Lots of people who don't have celiac disease/gluten issues get shingles.
    • Ginger38
      I’m 43, just newly diagnosed with a horrible case of shingles last week . They are all over my face , around my eye, ear , all in my scalp. Lymph nodes are a mess. Ear is a mess. My eye is hurting and sensitive. Pain has been a 10/10+ daily. Taking Motrin and Tylenol around the clock. I AM MISERABLE. The pain is unrelenting. I just want to cry.   But Developing shingles has me a bit concerned about my immune system which also has me wondering about celiac and if there’s a connection to celiac / gluten and shingles; particularly since I haven't been 💯 gluten free because of all the confusing test results and doctors advice etc., is there a connection here? I’ve never had shingles and the gluten/ celiac  roller coaster has been ongoing for a while but I’ve had gluten off and on the last year bc of all the confusion  
    • Russ H
      There were some interesting talks, particularly Prof Ludvig Stollid's talk on therapeutics for coeliac disease.    https://www.youtube.com/playlist?list=PLRcl2mPE0WdigRtJPvylUJbkCx263KF_t
    • Rejoicephd
      Thank you @trents for letting me know you experience something similar thanks @knitty kitty for your response and resources.  I will be following up with my doctor about these results and I’ll read the articles you sent. Thanks - I really appreciate you all.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.