Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Strange Symptoms, Any Ideas?


taweavmo3

Recommended Posts

taweavmo3 Enthusiast

My 5 year old was glutened about 10 days ago while at my parents, my poor dad bought Vans regular waffles instead of the gluten free ones. So she ate TWO, and was very sick that day. It was a typical gluten reaction for her....vomiting for about 6 hours, then just really tired and moody for a few days after.

Over the weekend, she was back to her old self, and even had enough energy to go to a birthday party. Now she's running a fever, which at first was 102, but now it's been running 99 for a couple of days.

She also has a double ureter and grade II reflux, so I went ahead and brought her in for a urine culture yesterday since she didn't have any other symptoms besides the fever. Urine looked clear, still waiting to hear back about the culture. My big concern is that she is drinking a ton of water, and not making much urine. Yesterday she went 18 hours before she voided, and she had been drinking alot of water. She's also been complaining that her eyes feel funny, and things look blurry. Today, she's vomiting again and is really, really lethargic.

If this keeps up, I'll bring her back in. I just don't know if this is gluten related, or possibly a kidney problem. ARGH! Her reactions typically do not last this long, or come back suddenly after she seemed to be recovered. The doctor really didn't have a clue, but said if she gets worse to bring her back. Any ideas guys?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Wow, poor child!

My first thought is that maybe the waffles got stuck in the intestines. That would make me drink a lot, and would also explain the fewer bathroom visits. I'm guessing the party was all gluten-free, since you didn't mention any possible second glutening?

I do know magnesium draws water into the intestines, but what I don't know is if that would be wise right now, and just how much to give. That might be a question for the doctor, but I would expect some sort of scan be done first, to see if there's some obstruction in the digestive tract.

I don't doubt she'll be reading the packages herself from now on.

HTH

taweavmo3 Enthusiast

I'm pretty certain she didn't get glutened at the party.....I brought her a safe cupcake, but there's always the possibility of crumbs being left somewhere. And it was at one of those indoor bounce house places, so there's always the chance of gluteny fingers touching things.

She could have also picked up a regular old bug at the b-day party I suppose. It's so hard to differentiate between a glutening, urinary tract problems (although at least those are easy to rule out), or just a plain bug like other kids get! The only reason I got a tad bit worried was b/c she didn't pee when she woke up yesterday morning, and didn't end up going until about 10am. Even then it was only a little bit, not even 1/4 cup (I only know b/c that's when I took the sample, lol) Then today, she didn't want to get out of bed.....and has just been extremely lethargic all day.

When she said her eyes felt blurry (of course, she is only five, so who knows what this means, lol), I thought the low urine output, thirst, lethargy, and nausea didn't sound too great. But maybe she's also just sleeping off a bug and is a bit dehydrated. Anyway, we'll see what happens! Thanks.

jerseyangel Proficient

Could she have a virus or the flu? That would make her dehydrated and that's why she's not eliminating all the water she's drinking. Being glutened could have made her more vulnerable to getting sick--especially this time of year...just a thought.

If the vomiting continues with the low grade fever, definately check back with the doctor to rule out a kidney infection.

kbtoyssni Contributor

I was also thinking some sort of virus. Getting glutened is rough on the immune system; I find I get every little bug going around when I'm glutened. I'll get things that no one else had, probably because their immune system could fight it off before they got really sick from it.

Darn210 Enthusiast

Not sure of where you live but here in Indiana, we are getting our butts kicked by the flu . . . even those that have had flu shots (like my daughter) are coming down with it. One the nearby elementary schools had about a 100 kids out with the flu (out of about 650).

Hope she's feeling better soon!!

taweavmo3 Enthusiast

Yep, ya'll hit the nail on the head, I think it is the flu. It's been a few years since we've had to deal with it, so I completely forgot how much it can wipe you out. I really worry too much over her, I always assume it's something worse. We haven't had a year yet where she doesn't get diagnosed with something new, so I'm always waiting for the other shoe to drop. Now I can rest...it's just the flu, lol.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    2. - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

    3. - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

    4. - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

    5. - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,344
    • Most Online (within 30 mins)
      7,748

    Scottweath
    Newest Member
    Scottweath
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • asaT
      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.