Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

College Celiac


irishchick04

Recommended Posts

irishchick04 Newbie

A few days ago, I was diagnosed with being Celiac. My big problem is I am a freshman in College. I just don't know how to do this. Eating while in College is hard enough as it is, and now that I have extreme diet limitations, I feel like I am going to starve. I don't have a kitchen and all I have to cook with is a microwave. I just feel like crying. I have always been a picky eater and I hate most green vegetables and I love my pasta, bread et cetera. Has anyone had to deal with a situation like this before?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MySuicidalTurtle Enthusiast

I was diagnosed my senior year of High School. I didn't move out but it was still hard to figure everything out and live with a fmaily stoill eating gluten (my Mother and my brother were diagnosed only a few months ago).

There are many options for you with eating. There are some great tasting pastas! Kinnikinnick (and other brands) have some breads, rolls, and muffins that taste very good. You should talk to yuor school about how they deal with people with Celiacs. Maybe you could get a hot plate?

You can still eat meats and things (unless you don't eat animals). Eggs are still okay to make as well. It will be hard at first but you'll learn and it's really not all that bad.

I am not at home right now so I can't look at the products I use but I know there are a lot of other people on here who are in or went through college with Celiacs.

Good luck!

Kristina

Carriefaith Enthusiast

I'm in university now and I have celiac. I was diagnosed in March 2004 with celaic while I was in university. It was tough learning the gluten free diet while being in university but I had no choice!

Maybe you could get a hotplate for your place or a mini stove or a toaster? That way you could cook/toast some things. Maybe your cafeteria could try and accommodate you? I live at home, so it is very easy for me to cook meals and then bring them into the university with me to heat up in a microwave and eat.

Try looking in the health food sections in your local grocery stores for gluten free pastas (I like Tinkyada rice pastas best), cereals, cookies, and other gluten free goodies. Some health food stores/grocery sell gluten free breads, bagels, waffels, hamburger buns, pizza crusts, pies, ect. If you could find a store that sells these things youre all set! You could make sandwiches, pizzas (cooked in the microwave if necessary), hamburgers, and waffels for breakfast!

Also AMY's makes gluten free microwavable dinners and other products which are actually quite good! Here is their website: Open Original Shared Link

Just click on products and then gluten free on the lower left hand corner to get a list of their gluten-free products.

If you like rice, a rice cooker is a fast and easy way to make yummy rice that can easily be eaten with stir fry veggies and a gluten free sauce!

College and Celiac can be done!

irishchick04 Newbie

Thanks for all the suggestions. I'm right now in the process of contacting my college (it's hard right now 'cause I'm on break) but I'm hoping they can accomodate me.

But really, thanks so, so, so much for the kind words and tips. I feel really lucky to have found this message board.

Caryn

LJCurly9 Newbie

Caryn-

I am also a freshman in college...I was diagnosed two years ago, but still had to make the adjustment with college dining services. It's great that you're contacting your college...I'm certain that they will make efforts to accomodate you. My own university did, and they're very helpful about answering my questions in terms of how things are prepared in the different food areas.

Good luck! Don't be discouraged...it gets easier! And you'll be feeling so much better..it's definitely worth the "struggle."

tarnalberry Community Regular

Good luck! (One thing I had in college - though not gluten-free at the time - was an electric skillet. You can cook just about anything in one of those. A good one can be pricey, but long-lasting and worth every penny.)

flagbabyds Collaborator

You said that you had a microwave, well Amy's instant meals are a life saver, all you have to do is heat it up in t he microwave and you have a whole meal.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



celiac3270 Collaborator

If you have space in your room, you might try getting one of the following: toaster oven, george foreman grill, hotplate. If you get a hotplate, you can cook anything you'd cook on a burner at home--that means you can have your gluten-free noodles, etc. The toaster oven is helpful because you can not only toast breads, but make potatoes, Ore Ida french fries, etc. Remember, though, that if a non-gluten-free bread goes into your toaster, it contaminates it.....make sure, if you get one, that a roommate doesn't shove a regular bagel into it or something....George foreman grill = definitely gluten-free meat. Now, if you already have access to a stove, you wouldn't need a hotplate, etc., but these are just suggestions.

Amy's meals are good, but be careful...not all are gluten-free, so you need to make sure it says so on the box and not just assume that all are gluten-free.

Good luck :)

  • 2 weeks later...
jendenise Rookie

I just want to say that I completely understand how you feel. I was diagnosed w/ celiac disease when I was 18 (in college and living on my own as a vegetarian who didn't & still doesn't cook) Here's my survivor list:

Microwave

Electric skillet

Toaster

web address for amys.com (www.amys.com) they have gluten-free foods and all are vegetarian (gluten-free lasagna, mac n cheese, enchilladas, stir fry, etc, all are microwaveable)

crock pot

blender (put frozen strawberries, blueberries and bananas in w/ some ice & apple juice) there's breakfast

George Foreman Grill ( I eat shrimp & started eating turkey bacon recently)

wheat free soy sauce take w/ you when you go for sushi

I also have a "dry supply" These are my ready made ready to eat foods.

Envirokidz nutrition bars (berry, chocolate, peanut butter)

Ener G pretzels

Pam's gluten-free cookies

Envirokidz cereal

Kraft marshmallows

gluten-free Rice Cereal (malt free brand) for rice krispies you can make in crock pot!

potatoes (for baking)

gluten-free Soups (cook in slowcooker)

& a binder of the restraunts that have gluten-free foods, and the list of gluten-free foods.

Hope this list helps, good luck

Brittany Newbie

i think i'm like everybody who got diagnosed in college well 3 mon. ago actually i had a really hard time - i ate like a pig but everybody started asking "brittany are you ok - do you have an eating disorder" and of corse they didn't beleive me when i said no b/c i lost 20 lbs in 2 months - i also had horrible heart burn and was put on prevacid - that and the weight loss were my only symptoms i got really depressed for a while till i got the diagnosis - i felt alot better that i knew what it was but then i fell of a cliff again when i found out what i had to do to fix it - i would try stuff - that was really expensive from whole foods and have to throw it away b/c it tasted so bad - i wasn't gaining weight on rice cakes so my doctor actually baked me bread - it helped that i was crying in her office about it and threatening not to eat - i work at a place called THE PASTA HOUSE for crist sake and i'm on my own so stealing food from work was how i survived! anyway the bread she made was awsome umm......my point is (after all the rambling) it gets better after i realized i could buy the diff flours - follow a recepie and actually eat cake and bread that tasted decent again - but since you are in college i suggest gluten-free pretzles (i got them online) and peanut butter i just dip the pretzles right into the jar - its probly alot of calories but i don't care it fills me up and its fast sorry i talked so much i'm new and i'm just excited b/c i don't know anyone with this disease so i have no one to talk to and my life is completely different than everyone i know now

alex84 Newbie

brittany i know how you feel but its truly not that bad, i was just diag 2 weeks ago and yes it sucks but would you rather continue losing weight and feeling aweful? i thought i was punished enough - having 4 open heart surgeries one not even 2 years ago and then the docs tell me i have this. i felt pretty depressed to say the least. why me? but ill learn to live with it. i'm in college and its pretty rough, especially since beer is now out of the question. all those people who have posted, thanks, didnt know about frozen meals i can buy. that will def be a life saver. good luck...

irishchick04 Newbie

Hey, thanks for all the suggestions. It's so nice to know that you can survive college as a Celiac. It's been an interesting few weeks but I've been managing. One of my friends actually found a gluten-free rice noodle soup by Thai Kitchen that is really good and instant. It's nice because it even says it's gluten and Egg free on the package.

College Celiacs Unite! ;) LOL

Caryn

VegasCeliacBuckeye Collaborator

"Thai Kitchen" makes 3 or 4 instant rice ramen noodle soups that are gluten-free and awesome!

I have had the Roasted Garlic, Spring Onion an Mushroom --they are all good -- you can get them at Whole Foods, Trader Joes', Henry's and Wild oats. They cost around $1.50 each (they come with a bowl -- just add water).

I just finished college and grad school.

I survived on gluten-free Bread (1-2 loaves a week), Hebrew National and Hillshire Farms Cold cuts (most are ok), Fresh Fruit, Wendys Burgers, Arbys Roast Beef (no bun), Borden Cheese Singles (most are gluten-free), Grey Poupon Mustard and of course, Amy's Frozen Gluten Free mac n Cheese ($2.50 each - but worth it).

This should help you a little bit.

If you live near Whole Foods, Trader Joes or Wild Oats - they have a gluten-free grocery list on their websites (PDF File)

If you "google" Wheaton Gluten Free Grocery List", that will bring up a HUGE grocery list --- it saved me!!!!!!!!!! B)

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,556
    • Most Online (within 30 mins)
      7,748

    Rachel Wilson
    Newest Member
    Rachel Wilson
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Your post demonstrates the profound frustration and isolation that so many in the Celiac community feel, and I want to thank you for channeling that experience into advocacy. The medical gaslighting you endured for decades is an unacceptable and, sadly, a common story, and the fact that you now have to "school" your own GI specialist speaks volumes about the critical lack of consistent and updated education. Your idea to make Celiac Disease a reportable condition to public health authorities is a compelling and strategic one. This single action would force the system to formally acknowledge the prevalence and seriousness of the disease, creating a concrete dataset that could drive better research funding, shape medical school curricula, and validate the patient experience in a way that individual stories alone often cannot. It is an uphill battle, but contacting representatives, as you have done with Adam Gray, is exactly how change begins. By framing it as a public health necessity—a matter of patient safety and protection from misdiagnosis and neglect—you are building a powerful case. Your voice and your perseverance, forged through thirty years of struggle, are exactly what this community needs to ensure that no one else has to fight so hard just to be believed and properly cared for.
    • Scott Adams
      I had no idea there is a "Louisville" in Colorado!😉 I thought it was a typo because I always think of the Kentucky city--but good luck!
    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.