Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Different Glutens, Different Responses?

cdog7

Recommended Posts

cdog7 Contributor
cdog7
Posted

Anyone else notice that depending on what type of gluten-containing food you have, your reaction to it can be totally different? Is that, uh, right? I'm noticing this while I'm still in the pre-diagnosis phase and trying to keep some gluten in my diet for the testing..

Example

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


RiceGuy Collaborator
RiceGuy
Posted

I had noticed a difference between wheat and rye, but not sure about different wheat foods. Maybe it has something to do with other ingredients? Like cereal would likely have sugar, and if the intestines are in distress from gluten, maybe the sugar goes right through into the bloodstream or something. Just a stab in the dark...

Celiconfused Newbie
Celiconfused
Posted

Hey Y'all, I am new to the forum and this disease. I was recently diagnosed by my family practice doctor in December 07. But then when I saw a gastro doctor this month, he wasn't so convinced. He said that my doctor hadn't run enough tests. He did an anitbody panel which of course came up negative because I had been gluten-free for a couple of months.

The doctors office called me and told me to discontinue the gluten-free diet and schedule me for a biopsy. I was off my gluten-free diet for one week and my symptoms all came back. So I cancelled the biopsy. I just don't know if I am doing the right thing. Did any of you have the biopsy done?

:(

PeggyV Apprentice
PeggyV
Posted
Hey Y'all, I am new to the forum and this disease. I was recently diagnosed by my family practice doctor in December 07. But then when I saw a gastro doctor this month, he wasn't so convinced. He said that my doctor hadn't run enough tests. He did an anitbody panel which of course came up negative because I had been gluten-free for a couple of months.

The doctors office called me and told me to discontinue the gluten-free diet and schedule me for a biopsy. I was off my gluten-free diet for one week and my symptoms all came back. So I cancelled the biopsy. I just don't know if I am doing the right thing. Did any of you have the biopsy done?

:(

Did you family doctor run tests? I went back and forth about getting a biopsy, but i had been off gluten and get sick eating gluten so decided against it. My daughter however has gone back on gluten again and plans to test. Her reactions were never intestinal problems. If I was younger I think I would, but now with the prospect of paying my own insurance and retirement coming up in a few years I decided I really dont want the diagnosis.

healthygirl Contributor
healthygirl
Posted

Hi CDog7, I have noticed different reactions based on the type of food and am wondering if it is to do with the amount of gluten? I am assuming some foods will have more than others, or different types of wheat have a higher amount of gluten in it...when I eat pasta I don't have stomach pains, but I typically have a horrible sleep and am all lethargic the next day. If I eat something like a bowl of shredded wheat, I get really burpy, stomach pains, etc. Perhaps durum wheat used to make pastas doesn't have the same gluten content as the wheats used in cereals and breads???

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,029
    • Most Online (within 30 mins)
      7,748
    Jen72
    Newest Member
    Jen72
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac getting dentures

      By Scott Adams · Posted

      Your experience is both shocking and critically important for the community to hear, underscoring the terrifying reality that cross-contamination can extend into the most unexpected and invasive medical devices. It is absolutely devastating that you had to endure six months of sickness and ultimately sustain permanent vision loss because a doctor dismissed your legitimate, life-altering condition. Your relentless research and advocacy, from discovering the gluten in MMA acrylic to finding a compassionate prosthodontist, is a testament to your strength in a system that often fails celiac patients. While the scientific and medical consensus is that gluten cannot be absorbed through the skin or eyes (as the molecules are too large to pass through these barriers), your story highlights a terrifying gray area: what about a substance *permanently implanted inside the body*, where it could potentially shed microparticles or cause a localized immune reaction? Your powerful warning about acrylic lenses and the drastic difference with the silicone alternative is invaluable information. Thank you for sharing your harrowing journey and the specific, severe neurological symptoms you endure; it is a stark reminder that celiac is a systemic disease, and your advocacy is undoubtedly saving others from similar trauma.
    • Scott Adams
      Dedicated gluten-free Restaurants in East Bay (near San Francisco):

      By Scott Adams · Posted

      Those are driving distance from me--I will try to check them out, thanks for sharing!
    • Scott Adams
      Fighting for a name

      By Scott Adams · Posted

      I am so sorry you're going through this bad experience--it's difficult when your own lived reality of cause and effect is dismissed by the very professionals meant to help you. You are absolutely right—your violent physical reactions are not "what you think," but undeniable data points, and it's a form of medical gaslighting to be told otherwise, especially when you have a positive HLA-DQ2 gene and a clear clinical picture. Since your current "celiac specialist" is not addressing the core issue or your related conditions like SIBO and chronic fatigue, it may be time for a strategic pivot. Instead of trying to "reprove" your celiac disease to unwilling ears, consider seeking out a new gastroenterologist or functional medicine doctor, and frame the conversation around managing the complications of a confirmed gluten-free diet for celiac disease. Go in and say, "I have celiac disease, am strictly gluten-free, but I am still suffering from these specific complications: SIBO, chronic fatigue, dermatological issues, and high blood pressure linked to pain. I need a partner to help me address these related conditions." This shifts the focus from a debate about your diagnosis to a collaborative plan for your current suffering, which is the help you truly need and deserve to work toward bouncing back.
    • NanCel
      Celiac getting dentures

      By NanCel · Posted

      Hello, no I had to have them re done and then used a liner over the top.  Many dentists are not aware of the celiac effects.  Best of luck.   There is other material, yet, very expensive.
    • sleuth
      Nicotine Gum For Gluten Symptoms.. Am I Crazy?

      By sleuth · Posted

      He is not just a psychiatrist.  He is also a neuroscientist.  And yes, I have already read those studies.   I agree with benfotiamine.  This is short term while glutened/inflammation occurs.  As I had already mentioned, these symptoms no longer exist when this phase passes.  And yes, I know that celiac is a disease of malnutrition.  We are working with a naturopath.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.