Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Who Here Eats Oats? Safe?


Eric-C

Recommended Posts

Eric-C Enthusiast

We started a no flour no sugar diet about a month and a half back.

Many of the recipes talk about rolled oats and how good they are for you. I've read that oats themselves are gluten free but cross contamination may be an issue.

So we made some cinammon apple bars with Agave for a sweetner. We had one when they were done and another after dinner for a snack.

I didn't feel bad but I had that "gurgly" feeling that I haven't had for months after stopping gluten intake.

My allergy is minor to moderate. I do not have anything with gluten in it but I can tolerate a decent amount after not having it for a while.

I had no other problems besides the feeling so who knows. We had Chicken Vindaloo for dinner with brown basmati which is extremly high fiber and Vindaloo is extremely spicey so it may have been that.

It sent me doing some reading and there seems to be conflicting stories. Oats do not contain gluten per se but they contain something very close which upsets some people.

So I'm sitting here in my office at work staring at these things and getting hungry :)

Anyone have good/bad luck with oats?

Thanks


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



darlindeb25 Collaborator

Oats may be gluten free, yet many celiacs can not tolerate them. And yes, they do have a cross contamination issue too. You have to buy oats that specifically state they are grown and processed separately from wheat. Oats made me sick long before I knew about gluten, so I can't have them anyways.

Was funny though, I could eat oatmeal for breakfast and felt ok, but I could not eat oatmeal cookies, or meatloaf with oats in it, stuff like that.

It's an individual decision as to if you try them or not. Just make sure you try a safe oat.

JennyC Enthusiast

We use Bob's Red Mill gluten free rolled oats with no problems. :)

ravenwoodglass Mentor

You might want to really 'challenge' them and have some of those bars a couple times a day or at least 2 to 3 servings of the gluten-free oats for a week. You may find that the gurgles are a precursor to a reaction. I get the gurgles within a couple hours and the real tummy misery starts 3 days later.

jkmunchkin Rising Star

I have safely eaten oats, however I only buy oats from companies that guarantee they are pure, uncontaminated oats. I have used the oats from Cream Hill Estates without any problems.

Eric-C Enthusiast

Well....I got my answer :)

Won't go into the details but lets just say I'm very used to the stages this progresses.

Now we used some oats we had bought a long time ago and they were generic, American Choice which I think was Farmer Jack's brand so who knows where they have been.

One thing I've noticed is when I ate gluten regularly I could control how I felt. Every 2-3 days and so long as I ate a decent amount of fiber I was for the most part good.

Now after being off of it I'm actually more sensative it seems.

My wife started to notice symptoms of not being able to handle gluten also...we've both been free of it for a while now and she snuck in a girl scout cookie, not a good result.

I'll try the Red Mill's...I had high hope for the oats since it would greatly diversify our breakfast.

If anyone hasn't had it Agave is fantastic. GI index of 19 and a GL load of 1.9. Tastes better than honey with none of the effects of sugar. Its tough to find but worth it.

celiac-mommy Collaborator
We use Bob's Red Mill gluten free rolled oats with no problems. :)

Us too, I've gone CRAZY with them, baked oatmeal (with eggs fruit and milk :P ), cookies, muffins, cakes--whatever I can put it in, I DO!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



KaitiUSA Enthusiast

Some celiacs can handle them and some can't. It really is a risk and toss up. Some celiacs react to the protein in Oats called Avenin and that is even with pure oats. The problem is what about those celiacs who don't get symptoms when eating gluten? If they are the ones reacting to the oats how would they know they are not doing damage? I personally avoid them and I know I would react and man do I feel it.

taweavmo3 Enthusiast

Well after weeks of saying "I'll never risk it", I bought a bag of gluten free oats. I figured several Celiacs around here must be tolerating them okay, b/c they sell out as soon as they are stocked. I had a bowl and felt fine, but I'm not as sensitive as my daughter. I still can't bring myself to give them to her....she is so sensitive, and reactions last for SO long with her. So, I think I'm going to just stick with quinoa flakes until she's a bit older. But I'm just dying to try out a homemade granola bar recipe with them!

hez Enthusiast

One thing to remember when trying out gluten-free oats for the first time is to go very slowly. When I ordered my oats from the Wyoming company they sent along a sheet that described how much to try and to slowly increase over a period of time. Oats can cause the the big "D" due to the high fiber content. If you have a low fiber diet the oats may throw off your system. Just a word of caution.

Hez

gluten15 Apprentice
If anyone hasn't had it Agave is fantastic. GI index of 19 and a GL load of 1.9. Tastes better than honey with none of the effects of sugar. Its tough to find but worth it.

Open Original Shared Link

gluten15 Apprentice
If anyone hasn't had it Agave is fantastic. GI index of 19 and a GL load of 1.9. Tastes better than honey with none of the effects of sugar. Its tough to find but worth it.

Open Original Shared Link

lpellegr Collaborator

With high hopes I bought a box of Cream Hill gluten-free oats and made oatmeal scones. They were delicious, but I reacted like I had been glutened. Very disappointing. But I went ahead and ate the rest of the scones anyway, since I figured I was already screwed! So some of us can't eat them, even if they are gluten free. Must be Mother Nature having her little laugh at me after 30 years of eating three bowls of Cheerios every morning.

Guest digmom1014

I haven't had any trouble with McCann's Irish Oatmeal however, I am getting more sensitive to gluten by the minute so...

This is what they say:

Are McCann's Oat products gluten free?

All McCann's oat products are processed in a dedicated oatmeal mill that handles only oatmeal. In the supply chain between farm and mill, there is a possible cross contamination with other grains, such as wheat and barley but we reckon that the level of non-oat grains to be less than 0.05%. Cleaning equipment within the milling process would remove the vast majority of these grains along with other elements such as stones, straw etc.

But we cannot guarantee that McCann's oats are totally gluten free and we recommend that consumers use their own judgement as to whether they wish to use our oatmeal or not. Many celiacs can tolerate our oatmeal products without any adverse effect but they may not suit those who are particularly sensitive.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - NanceK replied to Jmartes71's topic in Related Issues & Disorders
      9

      My only proof

    2. - knitty kitty replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    3. - Trish G replied to Trish G's topic in Gluten-Free Foods, Products, Shopping & Medications
      10

      Fiber Supplement

    4. - trents replied to Hmart's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      13

      Is this celiac?

    5. - trents replied to kpf's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      ttg iga high (646 mg/dl) other results are normal


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,355
    • Most Online (within 30 mins)
      7,748

    tealangel09
    Newest Member
    tealangel09
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • NanceK
      Oh wow! Thanks for this information! I’m going to try the Benfotiamine again and will also add a B-complex to my supplements. Presently, I just take sublingual B12 (methylcobalomin). Is supplementation for celiacs always necessary even though you remain gluten-free and you’re healing as shown on endoscopy? I also take D3, mag glycinate, and try to get calcium through diet. I am trying to bump up my energy level because I don’t sleep very well and feel fatigued quite often. I’m now hopeful that adding the Benfotiamine and B-complex will help. I really appreciate your explanation and advice! Thanks again Knitty Kitty!
    • knitty kitty
      @Hmart, The reason why your intestinal damage was so severe, yet your tTg IgA was so minimal can be due to cutting back on gluten (and food in general) due to worsening symptoms.  The tTg IgA antibodies are made in the intestines.  While three grams of gluten per day for several weeks are enough to cause gastrointestinal symptoms, ten grams of gluten per day for for several weeks are required to provoke sufficient antibody production so that the antibodies move out of the intestines and into the blood stream where they can be measured in blood tests.  Since you reduced your gluten consumption before testing, the antibody production went down and did not leave the intestines, hence lower than expected tTg IgA.   Still having abdominal pain and other symptoms this far out is indicative of nutritional deficiencies.  With such a severely damaged small intestine, you are not absorbing sufficient nutrients, especially Thiamine Vitamin B 1, so your body us burning stored fat and even breaking down muscle to fuel your body.   Yes, it is a very good idea to supplement with vitamins and minerals during healing.  The eight essential B vitamins are water soluble and easily lost with diarrhea.  The B vitamins all work together interconnectedly, and should be supplemented together.  Taking vitamin supplements provides your body with greater opportunity to absorb them.  Thiamine and the other B vitamins cannot be stored for long, so they must be replenished every day.  Thiamine tends to become depleted first which leads to Gastrointestinal Beriberi, a condition that doctors frequently fail to recognize.  Symptoms of Gastrointestinal Beriberi are abdominal pain and nausea, but neuropathy can also occur, as well as body and joint pain, headaches and more.  Heart rhythm disruptions including tachycardia are classic symptoms of thiamine deficiency.  Heart attack patients are routinely administered thiamine now.   Blood tests for vitamins are notoriously inaccurate.  You can have "normal" blood levels, while tissues and organs are depleted.  Such is the case with Gastrointestinal Beriberi, a thiamine deficiency in the digestive tract.  Eating a diet high in carbohydrates, like rice, starches, and sugar, can further deplete thiamine.  The more carbohydrates one eats, the more thiamine is required per calorie to turn carbs into energy.  Burning stored fats require less thiamine, so in times of thiamine shortage, the body burns fat and muscles instead.  Muscle wasting is a classic symptoms of thiamine deficiency.  A high carbohydrate diet may also promote SIBO and/or Candida infection which can also add to symptoms.  Thiamine is required to keep SIBO and Candida in check.   Thiamine works with Pyridoxine B 6, so if Thiamine is low and can't interact with Pyridoxine, the unused B 6 accumulates and shows up as high.   Look into the Autoimmune Protocol diet.  Dr. Sarah Ballantyne is a Celiac herself.  Her book "The Paleo Approach" has been most helpful to me.  Following the AIP diet made a huge improvement in my symptoms.  Between the AIP diet and correcting nutritional deficiencies, I felt much better after a long struggle with not feeling well.   Do talk to your doctor about Gastrointestinal Beriberi.  Share the article linked below. Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Keep us posted on your progress!
    • Trish G
      Thanks, that's a great addition that I hadn't thought of. 
    • trents
      Other diseases, medical conditions, medications and even (for some people) some non-gluten foods can cause villous atrophy. There is also something called refractory celiac disease but it is pretty uncommon.
    • trents
      knitty kitty asks a very relevant question. So many people make the mistake of experimenting with the gluten free diet or even a reduced gluten diet soon before getting formally tested.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.