Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnoised With Gluten Intolerance

SweetAmber32

Recommended Posts

SweetAmber32 Apprentice
SweetAmber32
Posted

I am newly diagnoised into this wrold of Celiac Disease/ Gluten Intolerance. Unfortunantly I was not able to be tested as I have no health insurance. I have been out of work for a year due to Fibromyalgia and maybe even Gluten Intolerance. I found out of my intolerance due to eating Seitan. For those who don't know what that is, it is a "meatless" gluten product made for vegetarians. Talk about feeling miserable. Hives, burning, severe lethargy, etc. I made a Doctors appt, that got canceled due to snow, so a new appt was made. To prepare for this appt. I purposely ate seitan again. I did not want my Doctor thinking I was being a hypochondriac. Luckily he did not. He took one look at me and said I was Gluten Intolerant. I even had breathing difficulties later that night. I have been eating gluten/ wheat free for nearly a month now and I feel great. I told my mother recently, that I must have had this since I was kid as I always have had stomach problems. She took me to the Doctor when I was a kid, but the tests were negative. Then about 3-4 years ago I woke up one day and could not button nor zip my pants. I had to hold by pants up by safety pins. In a month my weight went up by 20lbs and I started heart burn and acid reflux. I was diagnoised with having acid reflux, but the meds never worked and even when i avoided foods I stil had heart burn and acid flux. My weight has gone up by nearly 60 lbs since that day. And the bloating was bad. I even develped severe IBS. But since I changed my diet and I try to watch it like a hawk, my IBS is gone, the bloating gone, the heart burn and acid reflux gone, my weight is going down, my clothes are getting bigger. Even some of my aches and pains associated with Fibromayalgia ( I was diagnoised with this in August) have lessened some. I have not felt this great, in I don't know how long. I can even breathe while sleeping on my back and right side, which I have not been able to due for the last few years. I can tell that alot of those on this forum, that they consider their illnesses a nightmare. But I see it differently. I've been given a gift. I have been given a new lease on life. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome! You have found a great place. If you have any questions, please feel free to ask.

lizard00 Enthusiast
lizard00
Posted

Welcome to the Forum and the world of better health!!!!

I've been given a gift. I have been given a new lease on life.

I completely agree with you!! Before I discovered my intolerance to gluten, my life was going from bad to worse. And now, I have a few days where I get bummed out that I can't eat a brownie or pizza, but those days are getting less and less as I feel better and better. I am thankful that my illness can be controlled by food instead of some pill I would have to take for the rest of my life and worry about crazy side effects!!!

YoloGx Rookie
YoloGx
Posted
Welcome to the Forum and the world of better health!!!!

I completely agree with you!! Before I discovered my intolerance to gluten, my life was going from bad to worse. And now, I have a few days where I get bummed out that I can't eat a brownie or pizza, but those days are getting less and less as I feel better and better. I am thankful that my illness can be controlled by food instead of some pill I would have to take for the rest of my life and worry about crazy side effects!!!

Here here!

By the way I was diagnosed as an infant but reintroduced to grains when I was 4. It was downhill all the way. Doctors just didn't get it back then and are only starting to now. I am glad your doc and you figured this out. I had to do it on my own like so many others.

Yolo

Glutina Rookie
Glutina
Posted

hello from another newbie in the gluten-free way of life!

I just wanted to say that your positive attitude towards your diagnosis will certainly help in your return to health...I know that by viewing my diagnosis as "hey--at least now I know what to do to get healthy" rather than "oh poor me, I have to change my life now", I have seen marked improvements in my health even in the month I have been gluten free. (And when there was a slip-up, BOY was I reminded with a vengeance what terrible things I used to live with on a regular basis!)

Bye for now, and welcome!

-Glutina ;)

Kritter Rookie
Kritter
Posted

Welcome! Nice to meet you! I'm pretty new here as well. I'm only 3 weeks gluten-free, but like you, I have a whole new outlook on life! I feel hopeful and encouraged for the first time in a long while and the people here are great! Something you said in your very first post has already been an inspiration to someone else (me) so that should also make you feel good! One of my most vexing and hard to figure out problems is that of being unable to breath at night when laying flat. Your testimony that you are improving in that regard gives me hope!! Thanks!

Kritter

sunshine3230 Newbie
sunshine3230
Posted
Welcome! Nice to meet you! I'm pretty new here as well. I'm only 3 weeks gluten-free, but like you, I have a whole new outlook on life! I feel hopeful and encouraged for the first time in a long while and the people here are great! Something you said in your very first post has already been an inspiration to someone else (me) so that should also make you feel good! One of my most vexing and hard to figure out problems is that of being unable to breath at night when laying flat. Your testimony that you are improving in that regard gives me hope!! Thanks!

Kritter

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sunshine3230 Newbie
sunshine3230
Posted

Hey - just diagnosed last week. Wish I had not put up with years and years of feeling miserable thinking it was just "normal" for my body. Just starting with gluten-free and for me it will just be making sure I know what to eat & what not to eat I suppose. But all of these success stories definitely give me hope. I don't want to get too excited too soon, but after only 20 or so hrs gluten-free, my tummy feels completely different and has stopped that incessant gurgling/churning sensation. Am hoping my sinus headaches go down in number too as I have been reading many celiacs whose headaches have gone away since going gluten-free. Cheers all!

ksymonds84 Enthusiast
ksymonds84
Posted

. I did not want my Doctor thinking I was being a hypochondriac. Luckily he did not. He took one look at me and said I was Gluten Intolerant.

Welcome to the board! Sounds like you have a very smart doctor, your very lucky!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,525
    • Most Online (within 30 mins)
      7,748
    Alil Qt
    Newest Member
    Alil Qt
    Joined
  • Celiac.com Sponsor (A20):

  • Celiac.com Sponsor (A22):



  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • cristiana
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By cristiana · Posted

      More great tips, and a good excuse to shop at M&S and also buy more iced buns!   I wish we had an ASDA near us, as the few times we've been to one their gluten-free pasta range seemed very reasonably priced compared to other shops.  Thanks so much, @Russ H.
    • Russ H
      Shingles - Could It Be Related to Gluten/ Celiac

      By Russ H · Posted

      I hope you are on the mend soon. About 1 in 5 people who contracted chicken pox as a child go on to develop shingles in later life - it is not uncommon. There are 5 known members of the herpes virus family including chicken pox that commonly infect humans, and they all cause lifelong infections. The exact cause of viral reactivation as in the case of shingles or cold sores is not well understood, but stress, sunburn and radiotherapy treatment are known triggers. Some of the herpes viruses are implicated in triggering autoimmune diseases: Epstein-Barr virus is suspected of triggering multiple sclerosis and lupus, and there is a case where it is suspected of triggering coeliac disease. As to whether coeliac disease can increase the likelihood of viral reactivation, there have been several cohort studies including a large one in Sweden suggesting that coeliac disease is associated with a moderate increase in the likelihood of developing shingles in people over the age of 50. US 2024 - Increased Risk of Herpes Zoster Infection in Patients with Celiac Disease 50 Years Old and Older Sweden 2018 - Increased risk of herpes zoster in patients with coeliac disease - nationwide cohort study
    • Russ H
      Sainsbury's Free From White Sliced Bread - Now Egg Free - Completely Ruined It

      By Russ H · Posted

      BFree bread is fortified with vitamins and minerals as is ASDA own-brand gluten-free bread. All the M&S bread seems to be fortified also.
    • Flash1970
      Shingles - Could It Be Related to Gluten/ Celiac

      By Flash1970 · Posted

      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      GI DX celiac despite neg serology and no biopsy

      By trents · Posted

      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.