Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnoised With Gluten Intolerance

SweetAmber32

Recommended Posts

SweetAmber32 Apprentice
SweetAmber32
Posted

I am newly diagnoised into this wrold of Celiac Disease/ Gluten Intolerance. Unfortunantly I was not able to be tested as I have no health insurance. I have been out of work for a year due to Fibromyalgia and maybe even Gluten Intolerance. I found out of my intolerance due to eating Seitan. For those who don't know what that is, it is a "meatless" gluten product made for vegetarians. Talk about feeling miserable. Hives, burning, severe lethargy, etc. I made a Doctors appt, that got canceled due to snow, so a new appt was made. To prepare for this appt. I purposely ate seitan again. I did not want my Doctor thinking I was being a hypochondriac. Luckily he did not. He took one look at me and said I was Gluten Intolerant. I even had breathing difficulties later that night. I have been eating gluten/ wheat free for nearly a month now and I feel great. I told my mother recently, that I must have had this since I was kid as I always have had stomach problems. She took me to the Doctor when I was a kid, but the tests were negative. Then about 3-4 years ago I woke up one day and could not button nor zip my pants. I had to hold by pants up by safety pins. In a month my weight went up by 20lbs and I started heart burn and acid reflux. I was diagnoised with having acid reflux, but the meds never worked and even when i avoided foods I stil had heart burn and acid flux. My weight has gone up by nearly 60 lbs since that day. And the bloating was bad. I even develped severe IBS. But since I changed my diet and I try to watch it like a hawk, my IBS is gone, the bloating gone, the heart burn and acid reflux gone, my weight is going down, my clothes are getting bigger. Even some of my aches and pains associated with Fibromayalgia ( I was diagnoised with this in August) have lessened some. I have not felt this great, in I don't know how long. I can even breathe while sleeping on my back and right side, which I have not been able to due for the last few years. I can tell that alot of those on this forum, that they consider their illnesses a nightmare. But I see it differently. I've been given a gift. I have been given a new lease on life. :D

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Lisa Mentor
Lisa
Posted

Welcome! You have found a great place. If you have any questions, please feel free to ask.

lizard00 Enthusiast
lizard00
Posted

Welcome to the Forum and the world of better health!!!!

I've been given a gift. I have been given a new lease on life.

I completely agree with you!! Before I discovered my intolerance to gluten, my life was going from bad to worse. And now, I have a few days where I get bummed out that I can't eat a brownie or pizza, but those days are getting less and less as I feel better and better. I am thankful that my illness can be controlled by food instead of some pill I would have to take for the rest of my life and worry about crazy side effects!!!

YoloGx Rookie
YoloGx
Posted
Welcome to the Forum and the world of better health!!!!

I completely agree with you!! Before I discovered my intolerance to gluten, my life was going from bad to worse. And now, I have a few days where I get bummed out that I can't eat a brownie or pizza, but those days are getting less and less as I feel better and better. I am thankful that my illness can be controlled by food instead of some pill I would have to take for the rest of my life and worry about crazy side effects!!!

Here here!

By the way I was diagnosed as an infant but reintroduced to grains when I was 4. It was downhill all the way. Doctors just didn't get it back then and are only starting to now. I am glad your doc and you figured this out. I had to do it on my own like so many others.

Yolo

Glutina Rookie
Glutina
Posted

hello from another newbie in the gluten-free way of life!

I just wanted to say that your positive attitude towards your diagnosis will certainly help in your return to health...I know that by viewing my diagnosis as "hey--at least now I know what to do to get healthy" rather than "oh poor me, I have to change my life now", I have seen marked improvements in my health even in the month I have been gluten free. (And when there was a slip-up, BOY was I reminded with a vengeance what terrible things I used to live with on a regular basis!)

Bye for now, and welcome!

-Glutina ;)

Kritter Rookie
Kritter
Posted

Welcome! Nice to meet you! I'm pretty new here as well. I'm only 3 weeks gluten-free, but like you, I have a whole new outlook on life! I feel hopeful and encouraged for the first time in a long while and the people here are great! Something you said in your very first post has already been an inspiration to someone else (me) so that should also make you feel good! One of my most vexing and hard to figure out problems is that of being unable to breath at night when laying flat. Your testimony that you are improving in that regard gives me hope!! Thanks!

Kritter

sunshine3230 Newbie
sunshine3230
Posted
Welcome! Nice to meet you! I'm pretty new here as well. I'm only 3 weeks gluten-free, but like you, I have a whole new outlook on life! I feel hopeful and encouraged for the first time in a long while and the people here are great! Something you said in your very first post has already been an inspiration to someone else (me) so that should also make you feel good! One of my most vexing and hard to figure out problems is that of being unable to breath at night when laying flat. Your testimony that you are improving in that regard gives me hope!! Thanks!

Kritter

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


sunshine3230 Newbie
sunshine3230
Posted

Hey - just diagnosed last week. Wish I had not put up with years and years of feeling miserable thinking it was just "normal" for my body. Just starting with gluten-free and for me it will just be making sure I know what to eat & what not to eat I suppose. But all of these success stories definitely give me hope. I don't want to get too excited too soon, but after only 20 or so hrs gluten-free, my tummy feels completely different and has stopped that incessant gurgling/churning sensation. Am hoping my sinus headaches go down in number too as I have been reading many celiacs whose headaches have gone away since going gluten-free. Cheers all!

ksymonds84 Enthusiast
ksymonds84
Posted

. I did not want my Doctor thinking I was being a hypochondriac. Luckily he did not. He took one look at me and said I was Gluten Intolerant.

Welcome to the board! Sounds like you have a very smart doctor, your very lucky!

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      5

      My journey is it gluten or fiber?

      In general if it is certified gluten-free serious steps are taken to avoid cross-contamination, but things can still happen in a shared facility, and gluten-free certification isn't a guarantee, as we've seen recently:
    2. Scott Adams
      - Scott Adams commented on Scott Adams's article in Skin Problems and Celiac Disease
      3

      Celiac Disease and Skin Disorders: Exploring a Genetic Connection

      I had a variety of skin issues while growing up that were likely related to celiac disease, although I did not get full blown celiac disease until I was in my early 20's. I had topical dermatitis in certain areas, blepharitis (eyelids), and a patch of dermatitis herpetiformis on the back of my right-thumb area. I do believe that many people who have the genetic...
    3. Scott Adams
      - Scott Adams replied to EndlessSummer's topic in Related Issues & Disorders
      3

      Dizziness after eating green beans?

      As already mentioned here, and based on your description, this sounds like a serious and specific reaction to green beans. While your prior allergy tests didn't flag legumes, it's possible to develop a new allergy at any time. The symptoms you describe—extreme dizziness, racing heart, sweating, and itching—are consistent with a systemic allergic response, no...
    4. Scott Adams
      - Scott Adams commented on Jefferson Adams's article in Other Diseases and Disorders Associated with Celiac Disease
      7

      Celiac Disease Patients Face Higher Risk of Systemic Lupus

      I recommend you start a thread on this topic in our forum, rather than comment on an article about Lupus.
    5. Eric.C
      - Eric.C posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Slow healing?

      I was diagnosed with celiac disease in October last year and followed a strict gluten free diet since then. My dietitian told me that my diet looks absolutely perfect and I can’t think of many possible ways to get cc as I am very strict. However, when I did my check up gastroscopy a year later my healing only showed a slow improvement going from marsh 3b...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,703
    • Most Online (within 30 mins)
      7,748
    TamiT
    Newest Member
    TamiT
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      My journey is it gluten or fiber?

      By Scott Adams · Posted

      In general if it is certified gluten-free serious steps are taken to avoid cross-contamination, but things can still happen in a shared facility, and gluten-free certification isn't a guarantee, as we've seen recently:  
    • Scott Adams
      Dizziness after eating green beans?

      By Scott Adams · Posted

      As already mentioned here, and based on your description, this sounds like a serious and specific reaction to green beans. While your prior allergy tests didn't flag legumes, it's possible to develop a new allergy at any time. The symptoms you describe—extreme dizziness, racing heart, sweating, and itching—are consistent with a systemic allergic response, not just an intolerance. Given your history of celiac disease and tree nut allergies, your immune system is already predisposed to sensitivities. It is crucial to stop consuming green beans immediately and consult an allergist. They can perform more specific testing and may prescribe an epinephrine auto-injector for emergency use, as this type of reaction can be unpredictable and potentially escalate.
    • Eric.C
      Slow healing?

      By Eric.C · Posted

      I was diagnosed with celiac disease in October last year and followed a strict gluten free diet since then. My dietitian told me that my diet looks absolutely perfect and I can’t think of many possible ways to get cc as I am very strict. However, when I did my check up gastroscopy a year later my healing only showed a slow improvement going from marsh 3b - 3a. Is this normal healing for a year? My main symtoms pre- diagnosis was joint/back pain, poor immune system and stomach problems (especially in the morning). Joint pain and the immune system improved almost instantly but the stomach problems still persist (but has gotten better). For reference I am a 21 year old male and both my ttg levels were normal after just 4 months and also the test for calkprotekin. My diet consists of 99% home cooked meals in a kitchen free from gluten.
    • xxnonamexx
      My journey is it gluten or fiber?

      By xxnonamexx · Posted

      I read that as well but I saw the Certified Gluten free symbol that is the reason I ourchased it.
    • cristiana
      Issues before diagnosis

      By cristiana · Posted

      I agree, it so often overlooked! I live in the UK and I have often wondered why doctors are so reluctant to at least exclude it - my thoughts are perhaps the particular tests are expensive for the NHS, so therefore saved for people with 'obvious' symptoms.  I was diagnosed in 2013 and was told immediately that my parents, sibling and children should be checked.  My parents' GP to this day has not put forward my father for testing, and my mother was never tested in her lifetime, despite the fact that they both have some interesting symptoms/family history that reflect they might have coeliac disease (Dad - extreme bloating, and his Mum clearly had autoimmune issues, albeit undiagnosed as such; Mum - osteoporosis, anxiety).  I am now my father' legal guardian and suspecting my parents may have forgotten to ask their GP for a test (which is entirely possible!) I put it to his last GP that he ought to be tested.  He looked at Dad's blood results and purely because he was not anemic said he wasn't a coeliac.  Hopefully as the awareness of Coeliac Disease spreads among the general public, people will be able to advocate for themselves.  It is hard because in the UK the NHS is very stretched, but the fallout from not being diagnosed in a timely fashion will only cost the NHS more money. Interestingly, a complete aside, I met someone recently whose son was diagnosed (I think she said he was 8).  At a recent birthday party with 8 guests, 4 boys out of the 8 had received diagnosis of Coeliac Disease, which is an astounding statistic  As far as I know, though, they had all had obvious gastric symptoms leading to their NHS diagnosis.  In my own case I had  acute onset anxiety, hypnopompic hallucinations (vivid hallucinations upon waking),  odd liver function, anxiety, headaches, ulcers and low iron but it wasn't until the gastric symptoms hit me that a GP thought to do coeliac testing, and my numbers were through the roof.  As @trents says, by the grace of God I was diagnosed, and the diet has pretty much dealt with most of those symptoms.  I have much to be grateful for. Cristiana
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.