Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Calling All Sleuths


thumper

Recommended Posts

thumper Apprentice

Hey everyone,

I have been gluten-free for alittle over a month now. I have had my ups and downs and I still have ALOT to learn yet, but I have great friends in this wonderful group that have helped me tremendously.

Well once again I find myself over my head this is the second day of having really terrible symptoms return to me, Imodium has helped some and I KNOW that I have not been glutened.

So I am calling all sleuths to help me out with this...... when you have a terrible flare up like this one where do you start to look for the cause of it ?? The only new thing that I added to my diet was that I treated myself to Chocolate flavored Silk. I have been using soy milk (Silk) instead of dairy and never had a problem with it before. In the past I use to drink Silk trying to control my symptoms before I knew I have Celiac and never had a reaction to it but because I was still having gluten I am sure it made no difference.

Those are all the facts and I can't come up with anything can any one tell me where to start or does anyone have any ideas as what might of caused this ??

Thumper


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Fiddle-Faddle Community Regular

Hi, Thumper!

I think we have a BamBam on this site, too...

Possibilities:

D caused by sensitivity to soy

D caused by sensitivity to chocolate or caffeine

D caused by virus

D caused by food-borne bacteria

D caused by hidden gluten in food (for example, deli tuna salad often has bread crumbs, "lite" ice cream has wheat starch, soy sauce contains wheat, many meats such as steak, chicken, and rotisserie chicken are pre-marinatd in a soy-sauce containing marinade, and many cereals contain barley malt, which is gluten, etc etc etc)

Immodium might not be the best thing, because diarrhea is your body's way of getting rid of toxins from the lower digestive tract as quickly as possible. If you take immodium, it stops that from occurring. Yes, short term you will be more comfortable, but long-term, you are poisoned for a longer period of time.

gluten15 Apprentice

Well..here I go again with CARRAGEENAN. As soon as I gave up my Silk Soymilk..which contains this product..my problems got better. Not sure if it was the carrageenan..which can cause digestion stress and some more serious health problems..or it it was the soy.

I have given up so many things. I was in love with the plain sugar free Silk Soymilk. I was putting that on all these gluten cereals that I thought were healthy. It sort of all is crazy to look at now.

I thought eating all these 'healthy' grain cereals with Silk Soymilk was such a healthy thing. Shaking head now..just crazy sometimes.

sickchick Community Regular

I stood for 20 minutes going through every different brand of soy milk... rice milk... oat milk... almond milk...hazelnut milk... and what I found is the only brand WITH NO carageenan is Rice Dream.

be well B)

Panopticism Rookie

Since going gluten free I've had to also cut out eggs, casein, caffeine, meat, high fat... anything and a bunch of other things. I just try to stick to the foods that human beings were originally supposed to be eating. Food for thought... literally.

Fiddle-Faddle Community Regular
I stood for 20 minutes going through every different brand of soy milk... rice milk... oat milk... almond milk...hazelnut milk... and what I found is the only brand WITH NO carageenan is Rice Dream.

be well B)

But Rice Dream has undeclared gluten!!! :o

jerseyangel Proficient
But Rice Dream has undeclared gluten!!! :o

Yes! Beware...it is marked gluten-free, but is processed with barley. <_<


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Guest j_mommy

Start keeping a food diary, with symptoms. That has really helped me in the past.

mftnchn Explorer

On this forum it seems like some people develop sensitivities after going gluten-free. Perhaps this is because the immune system starts to work better. Anyway it seems to happen to some.

I'd try avoiding soy, and then retrying it. The soy protein is somewhat similar to gluten, and many of us do have trouble with it. It might be that you can handle very small amounts, or can do it once a week or something.

Again, a hidden gluten ingredient or cc could be an issue even when a label doesn't have it.

One other thought: have you replaced your gluten containing personal care products? That has made quite a difference for some of us.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to CeliacPI's topic in Related Issues & Disorders
      8

      Lymphocytic Colitis with Celiac

    2. - knitty kitty replied to lmemsm's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Finding gluten free ingredients

    3. - knitty kitty replied to KimMS's topic in Gluten-Free Foods, Products, Shopping & Medications
      14

      Gluten free thyroid medications

    4. - knitty kitty replied to Rebeccaj's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      symptoms.

    5. - Rebeccaj posted a topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      1

      symptoms.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      130,506
    • Most Online (within 30 mins)
      7,748

    Celiac731
    Newest Member
    Celiac731
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • knitty kitty
      Do discuss this recent article with your doctors.  Thiamine Vitamin B 1 is important to intestinal health.  Thiamine deficiency can occur in Celiac Disease due to malabsorption.  Supplementing with a B Complex, Benfotiamine, and Vitamin D can help symptoms.   Thiamine deficiency aggravates experimental colitis in mice by promoting glycolytic reprogramming in macrophages https://pubmed.ncbi.nlm.nih.gov/39890689/#:~:text=Our mechanistic study revealed that,necessary to protect against colitis. "Conclusion and implications: Our study provides evidence linking thiamine deficiency with proinflammatory macrophage activation and colitis aggravation, suggesting that monitoring thiamine status and adjusting thiamine intake is necessary to protect against colitis."
    • knitty kitty
      Do keep in mind that most gluten free flours are not enriched nor fortified with vitamins and minerals like gluten containing flours are required to do.   Consuming a diet high in carbohydrates without sufficient B vitamins to digest and process them into energy can lead to High Calorie Malnutrition and weight gain. Deficiency symptoms of B vitamins resemble gastrointestinal symptoms when after eating gluten.  Gastrointestinal Beriberi is a form of Thiamine deficiency.   Do talk to your doctors about supplementing with essential nutrients while on the gluten free diet, especially if you're consuming processed foods.
    • knitty kitty
      Do be sure to talk to your doctors and dieticians about supplementing with a B Complex and extra Thiamine (Benfotiamine, TTFD, thiamine hydrochloride) and other nutrients one might be low in due to malabsorption of nutrients in Celiac Disease. This study shows that Thiamine deficiency and Vitamin C deficiency is frequently found in Hashimoto's.  From personal experience, Thiamine and Vitamin C has helped my Hashimoto's. Hypothyroidism Complicated by Vitamin C and Thiamin Deficiency in Surgical Patients https://pubmed.ncbi.nlm.nih.gov/37278003/  
    • knitty kitty
      Hi, @Rebeccaj, Those Villa that get damaged by eating gluten are the same billion that absorb nutrients from our food.  Damaged villa can't absorb nutrients, vitamins and minerals well.  If we don't get sufficient nutrients, our body can't function properly.  We can get brain fog, pins and needles or neuropathy, feeling off balance, and even worsening digestive symptoms. Talk to your doctor or dietician about taking vitamin and mineral supplements while healing.  The gluten free diet can be low in nutrients, especially if you eat gluten free facsimile processed foods.  Gluten containing breads have vitamins added to them to replace those lost in processing.  Gluten free facsimile foods usually are not enriched nor fortified with vitamins.   Taking a B Complex, Benfotiamine, Vitamin D, and magnesium help the digestive tract heal, lowers histamine, and regulates the immune system.  
    • Rebeccaj
      What are some symptoms people have experienced when someone has cooked toast? Also, pasta? I've been diagnosed with celiac disease 5 years ago but sometimes symptoms then other times no symptoms its weird.?  so neurological   is brain fog, off balance, pins and needles, inflammation, also if eat it's like high inflammation then the villas affected!  Has anyone experienced this because I'm really starting to get confused but have diagnosis from blood test also endoscopy but it's just an ache. 
×
×
  • Create New...