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Calling All Sleuths

thumper

By thumper
in Coping with Celiac Disease

Recommended Posts

thumper Apprentice
thumper
Posted

Hey everyone,

I have been gluten-free for alittle over a month now. I have had my ups and downs and I still have ALOT to learn yet, but I have great friends in this wonderful group that have helped me tremendously.

Well once again I find myself over my head this is the second day of having really terrible symptoms return to me, Imodium has helped some and I KNOW that I have not been glutened.

So I am calling all sleuths to help me out with this...... when you have a terrible flare up like this one where do you start to look for the cause of it ?? The only new thing that I added to my diet was that I treated myself to Chocolate flavored Silk. I have been using soy milk (Silk) instead of dairy and never had a problem with it before. In the past I use to drink Silk trying to control my symptoms before I knew I have Celiac and never had a reaction to it but because I was still having gluten I am sure it made no difference.

Those are all the facts and I can't come up with anything can any one tell me where to start or does anyone have any ideas as what might of caused this ??

Thumper

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Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted

Hi, Thumper!

I think we have a BamBam on this site, too...

Possibilities:

D caused by sensitivity to soy

D caused by sensitivity to chocolate or caffeine

D caused by virus

D caused by food-borne bacteria

D caused by hidden gluten in food (for example, deli tuna salad often has bread crumbs, "lite" ice cream has wheat starch, soy sauce contains wheat, many meats such as steak, chicken, and rotisserie chicken are pre-marinatd in a soy-sauce containing marinade, and many cereals contain barley malt, which is gluten, etc etc etc)

Immodium might not be the best thing, because diarrhea is your body's way of getting rid of toxins from the lower digestive tract as quickly as possible. If you take immodium, it stops that from occurring. Yes, short term you will be more comfortable, but long-term, you are poisoned for a longer period of time.

gluten15 Apprentice
gluten15
Posted

Well..here I go again with CARRAGEENAN. As soon as I gave up my Silk Soymilk..which contains this product..my problems got better. Not sure if it was the carrageenan..which can cause digestion stress and some more serious health problems..or it it was the soy.

I have given up so many things. I was in love with the plain sugar free Silk Soymilk. I was putting that on all these gluten cereals that I thought were healthy. It sort of all is crazy to look at now.

I thought eating all these 'healthy' grain cereals with Silk Soymilk was such a healthy thing. Shaking head now..just crazy sometimes.

sickchick Community Regular
sickchick
Posted

I stood for 20 minutes going through every different brand of soy milk... rice milk... oat milk... almond milk...hazelnut milk... and what I found is the only brand WITH NO carageenan is Rice Dream.

be well B)

Panopticism Rookie
Panopticism
Posted

Since going gluten free I've had to also cut out eggs, casein, caffeine, meat, high fat... anything and a bunch of other things. I just try to stick to the foods that human beings were originally supposed to be eating. Food for thought... literally.

Fiddle-Faddle Community Regular
Fiddle-Faddle
Posted
  sickchick said:
I stood for 20 minutes going through every different brand of soy milk... rice milk... oat milk... almond milk...hazelnut milk... and what I found is the only brand WITH NO carageenan is Rice Dream.

be well B)

But Rice Dream has undeclared gluten!!! :o

jerseyangel Proficient
jerseyangel
Posted
  Fiddle-Faddle said:
But Rice Dream has undeclared gluten!!! :o

Yes! Beware...it is marked gluten-free, but is processed with barley. <_<

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Guest j_mommy
Guest j_mommy
Posted

Start keeping a food diary, with symptoms. That has really helped me in the past.

mftnchn Explorer
mftnchn
Posted

On this forum it seems like some people develop sensitivities after going gluten-free. Perhaps this is because the immune system starts to work better. Anyway it seems to happen to some.

I'd try avoiding soy, and then retrying it. The soy protein is somewhat similar to gluten, and many of us do have trouble with it. It might be that you can handle very small amounts, or can do it once a week or something.

Again, a hidden gluten ingredient or cc could be an issue even when a label doesn't have it.

One other thought: have you replaced your gluten containing personal care products? That has made quite a difference for some of us.

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