Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help.. I Need Support Please


shae22

Recommended Posts

shae22 Newbie

Hi, I need some moral support. I found out I am celiac a little over a year ago... but for some reason I seem to tell myself that I"m not.. especially when I feel good. So I eat gluten and I pay for it. I use to get D but now it's constipation and with in days I am sick (cold like symptons). Not to mention that bloated tummy...yuck. Why do I do this to myself??? Then when I'm sick I just keep going on eating badly. Am I the only one with no will power??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



dbmamaz Explorer

I had been off milk and wheat due to 'allergic reaction' as an infant, and I'd thougth for years that i'd feel better if I quit them. Finally this past fall, i was ready. If you arent ready yet, you arent ready. However, realize that the longer you eat gluten, the sicker you will become, the more likely you are to get secondary problems (including cancer) and the longer it will take for you to heal once you make the comittment.

If you do want to try, just make sure to get yourself substitute foods that you really love. Be prepared with your own treats when you go out. Dont buy the stuff you love and keep it in the house - make your family eat what you eat, as much as possible. Look at the food, and imagine how you'll feel tomorrow (that always works for me!).

I have heard there are lots of folks who cheat ... many of the ppl here were so very sick for so long, they have serious fear of that suffering keeping them from it. No one can tell you what to do . . . its your body and your choice .. .

flourgirl Apprentice

I know it's hard to change habits, and to "give up" many foods that are tied emotionally to our feeling of and need for feeling of well being. I think you have to convince yourself on both conscious and sub conscious levels that these foods are not good, will not make you feel good, and as a matter of fact are poison to your very existence! I tell myself, when tempted, that this is rat poison. I NEVER EVER want to feel this sick again, nor will I do anything to endanger my survival as a whole, healthy human being.

I would advise that you read everything you can. Look at all of the associative manifestations of Celiac Disease, so that you can make an informed choice not to expose yourself to these crippling problems. I look at my mother, who has been diagnosed years ago with IBS, who went on to have arthritis, fibromyalgia, lupus, several miscarriages, and finally breast cancer, and more. I cry to think that with the information we have today....she may have been able to avoid being so ill, and having so much pain for most of her life. I will not be in that position. Unfortunately, I can't convince her to change her ways, she thinks she's too old at this point to do anything different. In my mind, anyone who has the information, and in light of the results, really has no options.

If you are able.....take the time to reflect why it is that you are resistant to change. Is there anything in your psyche that gains something from being sick? It can be hard to admit something like that, but it happens. You may need time to really understand the ramifications of eating "poisons", to convince yourself that you can be healthy and happy without those things. Set a goal, even if it's only for today, each day, to eat only those things that are good for you. In that way, you can develope new "habits", one day at a time. Hope this helps, even a little. I'm pulling for you!

lizard00 Enthusiast

Welcome to the forum!!! Glad to see you are using it for it's purpose: support

I understand about the eating it and then eating more. Back in Dec, I ate some pizza. This was when, even though I knew that gluten was bad for me, I didn't know if I had celiac or not, so I figure it was ok. Then, as I felt bad, I ate more pizza the next day. Because hey, I already feel bad, who cares! I'll just eat more because I like it and I already feel bad, so if I'm going to feel bad, I might as well eat something that tastes good. Sound familiar? LOL

But, you do have to be ready to make a change. You have to finally decide on your own that you feel bad, you're tired of it, you know what to do, so you're going to do it. It's like quitting smoking, until you decide to quit for yourself, you fail.

I would encourage you though, to make sure you fully understand the ramifications of ingoring your illness. It's not pretty down the road, and it would be awful to carry that regret. It seems totally overwhelming at first, but it becomes second nature. The temptations get less and less with each day that you feel better. And eventually, the gluten-free bread doesn't taste so bad. :D

Hope you feel better soon!!

Respira Apprentice

I used to do the same thing, I finally realized that I did this when I was feeling deprived, feeling sorry for myself, feeling how unfair it was, feeling it can't be true...etc. But it normally would start with feeling deprived. I have found that having special treats on hand has helped. When I am feeling deprived I either have a treat or do something special for myself. I also talk out loud to myself when I am tempted to eat something I shouldn't ie: "Have you lost your mind?", "oh great! Let's be sick for the next week, that'll be fun!" etc.

shae22 Newbie

thank you all for your advice. I will take it to heart and work on getting well. I have gone off gluten for about 6 months back when I first found out and man I did feel like a different person. It's just so easy with a husband and two kids who can eat anything to stay off gluten. But I am going to take it one day at a time and I am going to hit the health food store today for some gluten free treats. I also found gluten free donuts online..... who would have thought?? Now if only they made gluten free pizza that tastes as good as the pizzeria type. Thanks again for your support.

flourgirl Apprentice

Did you know that you can have Pizza? Gluten Free Pizza? I have tried the mix to make the dough and added our own toppings. It's not so bad. I'm looking for a recipe for pizza dough that's closer to the "real" thing...eventually I'll find it. Look at it as an adventure....keep trying all the "new stuff" until you build an arsenal of all of the things you like. Bet you find lots of new foods that you like just fine.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • 2 weeks later...
kitten37 Newbie

I am a HUGE foodie and Italian to boot. I tried to go off gluten about 2 years ago after a specialist suggested it might "help" but not in giving me a "this is what's wrong with you." In that time I felt so much better but as time went on I slowly started eating things I shouldn't have....remembering the feel/taste of certain things and just being plain lazy about it. Trying to deny what was what.

I have just re started not eating the things I shouldn't and the temptation for the bad things is always there because that's what is easily available and what westerners associate "comfort foods" with.

However there are soooooo many more options out there for people who don't like to cook and for those who do the opportunities are endless to make yourself super tasty treats and meals so you don

Guest hightop girl

I think you nailed it! We (or maybe just me) thought food was life, but it isn't. I have had to make that brain shift in the last few months from living to eat, to eating to live. There are lots of things I used to like that the gluten free substitutes just don't do justice to. At first I thought I would really miss them, but I am trying to use this as a time to try new foods, things I never thought about liking. t

I do miss comfort food when I am stressed. My daughter had her ACL reconstructed last week. We ordered pizza for her and my husband and I had a salad. I thought I might come completely unglued just from the smell, but in the end I lived. I hope this gets easier with time.

curlyfries Contributor

I totally agree hightop girl! I have been overweight for a long time. Before I knew what was wrong with me, if my stomach hurt, I would eat something else, hoping it would calm my stomach [usually ice cream]. After I realized my gluten intolerance, I couldn't do it all at once--- I did it in stages. Now that I am gluten-free [and dairy free BTW :( ] I am ready to deal with my weight by that same realization. I just can't put that much importance on something that has been poisoning me. I have not attempted to replace my favorites. I have found new favorites that are healthier. And when I do occasionally get that feeling of being deprived, I go for my new favorite treat----gluten-free/DF chocolate/chocolate chip cookie dipped in peanut butter [maybe two :P !] YUMM!!!

AliB Enthusiast

You have to do a bit of 'psych-ing' up here.

Keep telling yourself that the stuff is evil, it is killing you and you are better off without it. It is deceptively and insidiously poisoning you. You have seen the non-gluten 'light' and are way, way better off than all those thousands of poor people out there who do not know why they are suffering, that all they need to be doing is to not eat gluten.

You are now free.

Just out of interest, I have gone right back to basics to give my gut a real healing kick-start. I have dropped not just gluten but dairy, sugar and most carbs and am just eating plain unprocessed meats, fish and poultry, fruits and veg, honey and nuts and plenty of water - there is plenty of choice within those foods groups. Already, after just 2 months I can now eat eggs and the other day I had some cheese without any problem. Ok so I can't stuff on the 'easy' open-a-packet-and-stuff-it-in stuff any more but so what, I am feeling a lot better off without it!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.