Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Lemphoma


MELINE

Recommended Posts

MELINE Enthusiast

Hello everyone

My new doctor said I must have a biopsy to exclude lemphoma....He did not want to say anything more untill we have the results of the biopsy. I can't understand...is it cancer? I am googling it but there is so much information I do not know which one is the right one..anyone with that problem?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



2kids4me Contributor

Did the doctor mean Lymphoma? Don't alarm yourself quite yet ... some doctors like to rule out some diseases first before doing other tests. Were there specific symptoms that made him want to check for that?

Doctors scared my brother doing just the same thing! (and it was NOT cancer)

MELINE Enthusiast

Is it lymphoma?? sorry my english is not very good. In greek it is called lemphoma and I thought that was the word....Anyway.....Glad your brother is ok. Doctor said we should check it because I was missdiagnosed for 12 years, I kept getting gluten and now that I've been gluten free for 4 months I still have severe intestine pain and nausea (about 5 times / month)..He said that there is a chance and that we should check it......I still do not know what lymphoma is....He said it is not something fatal and that's all....

jerseyangel Proficient

My GI also said that it's important for us to be screened for lymphoma. It's something that Celiacs need to be aware of.

Mine uses an upper GI to check, though, not an endoscopy.

MELINE Enthusiast
My GI also said that it's important for us to be screened for lymphoma. It's something that Celiacs need to be aware of.

Mine uses an upper GI to check, though, not an endoscopy.

He said gastroscopy and colonoscopy....I am a little bit confused I do not know the difference with endoscopy....anyway....ok of course I'll check it since he said so...but I am a little bit terrified...

2kids4me Contributor

gastroscopy = they look at the stomach

endocscopy = looking at the stoamch and then small intestine (the part of the gut that is right after the stomach)

colonoscopy = looking at the large intestine.

In each type of examination they use a thin flexible tube with a light and camera on the end, they can also take small tissue samples with this "tube". The name of the tube is an "endoscope"

Many endoscopic procedures are considered to be relatively painless and, at worst, associated with mild discomfort.

Endoscopy means looking inside and typically refers to looking inside the body for medical reasons using an instrument called an endoscope.

Please talk to the nurse or the doctor about your fears and have them explain it to you. It is scary when doctors wnat to do tests, and normal to be fearful. Post here as often as you need to!

It sounds like your doctor is very good - he is wanting to be thorough and that is a good thing. :)

Take care and let us know how things turn out...and how you are doing :)

Sandy

Is it lymphoma?? sorry my english is not very good. In greek it is called lemphoma and I thought that was the word..

Cool, now I know some greek!

MELINE Enthusiast
gastroscopy = they look at the stomach

endocscopy = looking at the stoamch and then small intestine (the part of the gut that is right after the stomach)

colonoscopy = looking at the large intestine.

In each type of examination they use a thin flexible tube with a light and camera on the end, they can also take small tissue samples with this "tube". The name of the tube is an "endoscope"

Many endoscopic procedures are considered to be relatively painless and, at worst, associated with mild discomfort.

Endoscopy means looking inside and typically refers to looking inside the body for medical reasons using an instrument called an endoscope.

Please talk to the nurse or the doctor about your fears and have them explain it to you. It is scary when doctors wnat to do tests, and normal to be fearful. Post here as often as you need to!

It sounds like your doctor is very good - he is wanting to be thorough and that is a good thing. :)

Take care and let us know how things turn out...and how you are doing :)

Sandy

Cool, now I know some greek!

sandy thank you so much for the support....I hope too my doctor is worth trusting him. He swears I am not going to feel pain at all, and I just called him about lymphoma and he said that ok there is a possibility but it is something we can deal with. I will let you know about the results...

And guess what.....

Yoy actually speak greek....endoscopy, colonoscopy, gastroscopy are Greek words...It is so cute you trying to explain endoscopy....endo = in, scopy= see, colon=ass...(sorry for the bad word....), gastro=stomach (it is actually ancient greek not modern greek...so you can say you speak like sokrates....much cooler he he ).....I just did not know their medical meaning....I mean ok endoscopy means looking inside, but inside WHAT thing?? Thank you for the explanations..

You are really being helpful here you know. You (may) not understand it but it is really good for me just to know that I can speak to someone about it. I haven't said anything to my boyfiend or my friends cause I don't want to upset them. Of course they will support me no matter what but I just want to protect them in case the whole thing turns out to be nothing bad (I hope that this will be the case).

Thanks again sandy


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



itchygirl Newbie

I'm really glad your doctor is being careful! :)

I wish everybody's doc was as good....

Open Original Shared Link

There is a strong association between celiac disease and gastrointestinal lymphoma. Lymphoma is four to 40 times more common, and death from lymphoma is 11 to 70 times more common, in patients with celiac disease. Delay in diagnosis-and possibly a diagnosis of celiac disease in adulthood as opposed to in childhood-may be associated with poorer outcomes. Several studies suggest that adherence to a GFD reduces the risk of lymphoma in patients with celiac disease.
MELINE Enthusiast
I'm really glad your doctor is being careful! :)

I wish everybody's doc was as good....

:rolleyes:

ravenwoodglass Mentor
And guess what.....

Yoy actually speak greek....endoscopy, colonoscopy, gastroscopy are Greek words...It is so cute you trying to explain endoscopy....endo = in, scopy= see, colon=ass...(sorry for the bad word....), gastro=stomach (it is actually ancient greek not modern greek...so you can say you speak like sokrates....much cooler he he ).....I just did not know their medical meaning....I mean ok endoscopy means looking inside, but inside WHAT thing?? Thank you for the explanations..

Thanks again sandy

Your doctor sounds like a good one. You have gotten some good feedback on that.

I just want to thank you for bringing back lots of memories with this post. We had lots of fun in terminology class making new words out of the greek roots. Not wanting to be a rectodynia here, although many here have considered me one :D , and send things off topic. Just wanted to thank you for the memory jog.

MELINE Enthusiast
Your doctor sounds like a good one. You have gotten some good feedback on that.

I just want to thank you for bringing back lots of memories with this post. We had lots of fun in terminology class making new words out of the greek roots. Not wanting to be a rectodynia here, although many here have considered me one :D , and send things off topic. Just wanted to thank you for the memory jog.

:P glad I made you smile!!!

MELINE Enthusiast

so I had my gastroscopy, colonoscopy and biopsy today and thank god no lymphoma for me!!!! the other results will be ready in about 2 weeks, but doc said nothing bad (cancer..) with my intestine or my stomach. I feel better now!!

kenlove Rising Star

Its great news!!!

Now you know its ntohing like that you can relax much more I guess.

Take care

ken

so I had my gastroscopy, colonoscopy and biopsy today and thank god no lymphoma for me!!!! the other results will be ready in about 2 weeks, but doc said nothing bad (cancer..) with my intestine or my stomach. I feel better now!!
ravenwoodglass Mentor
so I had my gastroscopy, colonoscopy and biopsy today and thank god no lymphoma for me!!!! the other results will be ready in about 2 weeks, but doc said nothing bad (cancer..) with my intestine or my stomach. I feel better now!!

Wonderful news!!!!!!

2kids4me Contributor

What a relief - That is wonderful news. :)

Sandy

MELINE Enthusiast

thank you all for the support!!!

(Hi ken!!)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,333
    • Most Online (within 30 mins)
      7,748

    Donna Chem
    Newest Member
    Donna Chem
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.