Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Another Great Disney World Experience

sullystaub

Recommended Posts

sullystaub Rookie
sullystaub
Posted

Just came back from wonderful stay at the Wilderness Lodge @ Disney World. Boy do I wish every place was as good as Disney! The took fabulous care of DS (8). We were on the dining plan so I indicated on all our reservations that we needed a gluten-free meal. At all the table service restaurants the chef came to the table to ask what DS wanted to eat. He's a typical 8 y.o. so he eats the basic pizza, hot dogs, burgers, etc. It would make our lives easier if he would learn to eat more things, but what can you do. They were always able to make him something he liked & he didn't get sick once. Here's where we ate for table service: Kona Cafe, Ohana, Tutto Italia, Chef Mickey's (breakfast), Whispering Canyon & Boma.

I have to say for those of you that have read about Chef TJ at Boma - everything you've heard is true! I can not say enough good things about him. He went through the entire buffet with us letting DS know what he could have. Being the picky eater he is nothing appealed to him. So, Chef TJ asked what he would like because whatever he wanted he would make. He chose (big surprise) chicken nuggets. He made him an ENOURMOUS plate of food - tons of chicken, fried rice, corn on the cob & carrots. He asked what he liked for dessert & after hearing his preferences said he'd take care of it. After bringing the dinner he came back a couple times to make sure he liked it. He said if he didn't he'd make him something else. Then came the dessert! I'm going to try to post the pic. of it if I can figure out how to do it. It was the only food picture I took all week. It was probably 1/2 a pineapple on the bottom with big wooden skewer down the middle, next layer was a big piece of some kind of cheesecake, on top of that were a few pieces of flourless chocolate cake (brownie size pieces), topped with a cherry & then drizzled at the table with a delicious chocolate sauce. I thought DS's eyes were going to pop out of his head. Chef TJ came back a couple more times to see if he liked the dessert. And then to top it all off after he saw me trying to get chocolate sauce off of DS's shirt with water he followed me out of the restaurant with a towel with seltzer water on it. We love you Chef TJ!

Can't remember all the counter service places we ate at, but one word of advice. Order the gluten-free food 10-20 min. before the rest of your party needs to eat. Sometimes it takes awhile. I tried to ask for a manager but that wasn't always possible. Usually the cashier calls someone. I do know the only place to get gluten-free pizza at MK is Pinnocchio's (sp?) Haus.

I highly recommend Disney World!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CeliacMom2008 Enthusiast
CeliacMom2008
Posted

We just returned as well. I posted some of our experience here: Open Original Shared Link.

We had the best vacation I could imagine. My son was actually healthier stomach-wise than he's been at home. Which is depressing, but that's another topic!

I can't wait to go back to Disney!!

mamaw Community Regular
mamaw
Posted

We love Disney & would love to adopt TJ at the Boma. The dining pass is the way to go. We never got sick once & I ate so much I gained ten pounds........ THANKS DISNEY.

That is the only bad thing I can say about Disney & TJ.....

The other people at the Boma wanted to order special food when TJ came strolling out with a platter of gluten-free foods that others would die for.... We could not eat it all. Desserts were so wonderful. We even purchased some to bring home with us... Zebra Domes....

This place is gluten-free heaven....

mamaw

nothungry Contributor
nothungry
Posted

Chef TJ made us the same dessert when we went last year! People were asking us why we got the glorious treatment we received! We went to BOMA a few months ago we had a different Chef, and she was great, but she was not Chef TJ. We'll try again on our next trip!

janelyb Enthusiast
janelyb
Posted

thank you so much I came on today specifically looking for Disney world stuff and already have gotten some great tips. I found this during my online search.....

Open Original Shared Link

It seems like it would be helpful...especially to my family with multiple food allergies.

jayhawkmom Enthusiast
jayhawkmom
Posted

My 6 year old and I went to Disneyworld in February....and I was SOOOO pleased!!!

We had the gluten-free pizza (which is actually Amy's pizza....and I don't care for it much) at Pinnochio's Village Haus, and the gluten-free version is twice the size of the "normal" pizzas. We had people asking us why we were "privileged" and had such large pizzas!! =)

We were able to get almost anything (including pizza) at our resort, too. I enjoyed pulled pork "sammies" and sloppy joes, and all sorts of goodies. We were not able to do any table seating restaurants, as our trip was sort of impromptu over President's Day weekend... which we learned is one of the busiest of the year.

I am always happy to read of such wonderful success at Disney. We are planning to go back, with our entire family, next June. I can't wait!!

Congrats on a wonderful trip!

Nic Collaborator
Nic
Posted

We are going to Disney in August. I have already contacted Disney and they sent me a list of their restaurants that serve gluten free options along with a form to fill out regarding where our reservations are so that they can speak to the chefs. Also, my travel agent made all of the reservations and informed them about my sons diet. But what about the hotel? We have a reservation there twice during our stay so I know that will be covered, but how do you handle eating at the hotel without a reservation? For example, room service or just getting a quick bite to eat?

Nicole

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


janelyb Enthusiast
janelyb
Posted

Let me know if anyone wants the forms, they sent it to me via email very quickly within 24 hrs of my requesting them and I would be happy to fwd them onto someone else or copy and paste them here at least the refference sheets.

  • 3 weeks later...
Alexandra Rosenberg Rookie
Alexandra Rosenberg
Posted

Does anyone know what gluten free options are available at tutto italia (is there any gluten free pasta)? Also, which restaurant(of these two) are better gluten free--Ohana or Kona Cafe(both at the Polynesian). Any information about gluten free at Tempa Edo or Le Cellier Steakhouse would also be appreciated--thank-you

  • 4 months later...
silly yak Newbie
silly yak
Posted

Dear janelyb-

Could I please have a copy of those forms?

Thank you!

Silly Yak

Let me know if anyone wants the forms, they sent it to me via email very quickly within 24 hrs of my requesting them and I would be happy to fwd them onto someone else or copy and paste them here at least the refference sheets.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. catnapt
      - catnapt posted a topic in Related Issues & Disorders
      0

      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      learned I had a high PTH level in 2022 suspected to be due to low vit D got my vit D level up a bit but still have high PTH I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption
    2. catnapt
      - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      6

      how much gluten do I need to eat before blood tests?

      I am on day 13 of eating gluten and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone...
    3. Jmartes71
      - Jmartes71 posted a topic in Coping with Celiac Disease
      0

      Curious question

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was...
    4. Amy Barnett
      - Amy Barnett posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      0

      Question

      What is the best liquid multivitamin for celiac disease?
    5. Scott Adams
      0

      Quick Gluten-Free Shrimp Stir-Fry With Crisp Vegetables

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,322
    • Most Online (within 30 mins)
      7,748
    avery144
    Newest Member
    avery144
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • catnapt
      anyone here diagnosed with a PARAthyroid disorder? (NOT the thyroid) the calcium controlling glands

      By catnapt · Posted

      learned I had a high PTH level in 2022 suspected to be due to low vit D  got my vit D level up a bit but still have high PTH   I am 70 yrs old (today in fact) I am looking for someone who also has hyperparathyroidism that might be caused by malabsorption    
    • catnapt
      how much gluten do I need to eat before blood tests?

      By catnapt · Posted

      I am on day 13 of eating gluten  and have decided to have the celiac panel done tomorrow instead of Wed. (and instead of extending it a few more weeks) because I am SO incredibly sick. I have almost no appetite and am not able to consume the required daily intake of calcium to try to keep up with the loss of calcium from the high parathyroid hormone and/or the renal calcium leak.    I have spent the past 15 years working hard to improve my health. I lost 50lbs, got off handfuls of medications, lowered my cholesterol to enviable levels, and in spite of having end stage osteoarthritis in both knees, with a good diet and keeping active I have NO pain in those joints- til now.  Almost all of my joints hurt now I feel like someone has repeatedly punched me all over my torso- even my ribs hurt- I have nausea, gas, bloating, headache, mood swings, irritability, horrid flatulence (afraid to leave the house or be in any enclosed spaces with other people- the smell would knock them off their feet) I was so sure that I wanted a firm diagnosis but now- I'm asking myself is THIS worth it? esp over the past 2 yrs I have been feeling better and better the more I adjusted my diet to exclude highly refined grains and processed foods. I didn't purposely avoid gluten, but it just happened that not eating gluten has made me feel better.   I don't know what I would have to gain by getting a definitive diagnosis. I think possibly the only advantage to a DX would be that I could insist on gluten-free foods in settings where I am unable to have access to foods of my choice (hospital, rehab, nursing home)  and maybe having a medical reason to see a dietician?   please let me know if it's reasonable to just go back to the way I was eating.  Actually I do plan to buy certified gluten-free oats as that is the only grain I consume (and really like) so there will be some minor tweaks I hope and pray that I heal quickly from any possible damage that may have been done from 13 days of eating gluten.    
    • Jmartes71
      Curious question

      By Jmartes71 · Posted

      So I've been dealing with chasing the name celiac because of my body actively dealing with health issues related to celiac though not eating. Diagnosed in 1994 before foods eliminated from diet. After 25 years with former pcp I googled celiac specialist and she wasn't because of what ive been through. I wanted my results to be sent to my pcp but nothing was sent.I have email copies.I did one zoom call with np with team member from celiac specialist in Nov 2025 and she asked me why I wanted to know why I wanted the celiac diagnosis so bad, I sad I don't, its my life and I need revalidaion because its affecting me.KB stated well it shows you are.I asked then why am I going through all this.I was labeled unruly. Its been a celiac circus and medical has caused anxiety and depression no fault to my own other than being born with bad genetics. How is it legal for medical professionals to gaslight patients that are with an ailment coming for help to be downplayed? KB put in my records that she personally spent 120min with me and I think the zoom call was discussing celiac 80 min ONE ZOOM call.SHE is responsible for not explaining to my pcp about celiac disease am I right?
    • Amy Barnett
      Question

      By Amy Barnett · Posted

      What is the best liquid multivitamin for celiac disease?
    • Jmartes71
      Alarming

      By Jmartes71 · Posted

      I've noticed with my age and menopause my smell for bread gives me severe migraines and I know this.Its alarming that there are all these fabulous bakeries, sandwich places pizza places popping up in confined areas.Just the other day I suffered a migraine after I got done with my mri when a guy with a brown paper bag walk in front of me and I smelled that fresh dough bread with tuna, I got a migraine when we got home.I hate im that sensitive. Its alarming these places are popping up in airports as well.I just saw on the news that the airport ( can't remember which  one)was going to have a fabulous smelling bakery. Not for sensitive celiacs, this can alter their health during their travel which isn't safe. More awareness really NEEDS to be promoted, so much more than just a food consumption!FYI I did write to Stanislaus to let them know my thoughts on the medical field not knowing much about celiac and how it affects one.I also did message my gi the 3 specialist names that was given on previous post on questions on celiac. I pray its not on deaf door.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.